DISTRESS SCREENING & SURVIVORSHIP RESEARCH

Panel Presenters

Lowell SmithSr. Director, Business & CommunicationResearch AdministrationMoffitt Cancer Center

Jeanine Stiles Chief Administrative OfficerAssociate Director for AdministrationUC Davis Comprehensive Cancer Center

Deidre B. Pereira, PhDAssociate ProfessorDepartment of Clinical and Health PsychologyCollege of Public Health and Health ProfessionsUniversity of Florida

Open Discussion

Distress Screening & Survivorship: Definitions

Distress Screening - identify psychosocial symptoms (e.g., depression, anxiety) to determine needs and offer appropriate levels of psychosocial care

Survivorship - management of potential long-term and/or late effects of cancer and its treatment

Quality of life - an assessment of a patient’s well-being or lack thereof including all emotional, social, and physical aspects of the individual's life

Distress Screening & Survivorship:Background

Growing national interest and emphasis in area(s)

Clinical & research areas include: Patient and family centered care Cancer care delivery research Health Care Reform Search for cost savings Precision medicine Emphasis on better outcomes

Funding opportunities Patient-Centered Outcomes Research Institute (PCORI)

~$650M a year in funding Not limited to oncology Competitive

Distress Screening & Survivorship: Topics To Consider

How is research area organized at your Center? A research program by itself? Is it an aim? Subset of an aim/focus?

How integrated are your clinical and research areas? Recruitment - how challenging? Training

how formal is training and education in this research area? R25/T32s?

How has the Affordable Care Act impacted the research? Funding

Has the advent of PCORI funding impacted priorities for these program(s)? Are there other funding sources besides PCORI?

Has anyone included distress screening or survivorship as research in the community?

Others thoughts? Relationship between Clinical and Research Efforts Role of External Advisory Committee and other advisory groups

Distress screening & Survivorship Research:

Moffitt Cancer Center Structure

American College of Surgeons accredited Clinical – 2 separate departments Research – Integrated into one program (& department) Administration – Patient & Family Services Department

Longstanding research in the area Growing emphasis on Cancer Care Delivery

Supportive Care MedicineSPECIALIZED INTERDISCIPLINARY HEALTH CARE THAT REDUCES THE PHYSICAL, EMOTIONAL AND SPIRITUAL CHALLENGES OF ILLNESS TO IMPROVE PATIENT AND FAMILY QUALITY OF LIFE AND WELL-BENG.

Clinical and Academic Department Includes

Behavioral medicine Palliative care Integrative Medicine

10 physicians including Chair About half involved in research Currently no CCSG Members

Internal & Hospital MedicineMEETS THE NEEDS OF PATIENTS WITH ACUTE COMPLICATIONS.

WORKS WITH CANCER SUBSPECIALISTS TO BRIDGE THE GAP BETWEEN HIGHLY SPECIALIZED CANCER CARE & GENERAL MEDICINE.

Clinical and Academic Department Includes

Senior Adult Oncology (clinical program) Moffitt's Direct Referral Center (DRC) provides urgent care

10 physicians including Chair Less than half involved in research Currently 1 CCSG Member

Health Outcomes & Behaviorto contribute to the prevention, detection, and control of cancer through the study of health-related behaviors, health care practices, and health-related

quality of life.

Academic Department Research Program

21 CCSG Members including Program Leader $5.8M current annual direct funding Rated “Exceptional” last CCSG review (2011) Involves research across the disease spectrum – from initiation, to detection, to

treatment, and final outcomes Aims

1. To understand the determinants of behaviors that can lead to prevention and early detection of cancer and develop effective methods of promoting those behaviors;

2. To understand and improve the quality of life (QOL) of patients and family members throughout the disease course;

3. To synthesize existing evidence and examine delivery of health services in order to improve the quality of cancer care; and

4. To understand and intervene upon the social, cultural, and behavioral determinants of cancer-related health disparities.

Examples of Research in the Area

PCORI “Navigator Guided e-Psychoeducational Intervention for Prostate Cancer Patients and

their Caregivers” (Rivers)

ACS “Self-Administered Stress Management for Latinas Receiving Chemotherapy” (RSG,

Jacobsen) “Behavioral and EmotioNal Impact of BRCA Testing in African Americans (BENITA)” (RSG,

Vadaparampil)

NCI “HRQoL Values for Cancer Survivors: Enhancing PROMIS Measures for CER” (R01, Craig) “Behavioral Oncology Education & Career Development” (R25, Jacobsen) “Internet-Assisted Cognitive Behavior Intervention for Targeted Therapy Fatigue” (R21,

Jacobsen) “Sickness Behaviors During Chemotherapy for Gynecologic Cancer” (R01, Jim)

Summary Clinical setting vital for research

Collaboration important, but Stick to stringent membership guidelines Strong aim(s) can exist without physician-scientists on CCSG

Future plans rely on expanding this area Lots of competition for expertise Unlikely to develop into its own program

New funding opportunities PCORI, like NCI, is very competitive

Distress Screening & Survivorship: Topics To Consider

How is research area organized at your Center? A research program by itself? Is it an aim? Subset of an aim/focus?

How integrated are your clinical and research areas? Recruitment - how challenging? Training

how formal is training and education in this research area? R25/T32s?

How has the Affordable Care Act impacted the research? Funding

Has the advent of PCORI funding impacted priorities for these program(s)? Are there other funding sources besides PCORI?

Has anyone included distress screening or survivorship as research in the community?

Others thoughts? Relationship between Clinical and Research Efforts Role of External Advisory Committee and other advisory groups