#! they kn ew iwa sstillinside · 2017-02-10 · kirstie allsopp a hot fa vo urite since sh e has...

1
2 1GT Thursday February 2 2017 | the times times2 Deborah Ross Melania for Dr Who! She should get her chance in the Tardis After a stroke Kate Allatt found herself ‘locked in’. It was terrifying and lonely, she tells Lucy Bannerman Katie Hopkins Because she knows everything and has known everything since time began and will know everything into all eternity. She will put the Daleks right: “Exterminate, exterminate? I’ll show which race exterminates which race round here. It isn’t personal. I’m just saying what everyone is thinking.’’ Odds: no one’s favourite, but there may be a fight to see who gets to shoot her into orbit in a box. Mary Berry Old, experienced, good with jam. You just can’t go wrong with those qualities. Odds: 22/1 Melania Trump Not such a great leap from First Lady to First Time Lady — is it your first time, lady? If so we recommend First Time Lady Lites — but she will have to withstand some fearsome encounters. The Silurians. Ood. The Meddling Monk. Davros. And the Master, who was driven insane after looking into the Untempered Schism on Gallifrey, so is proper nuts, but has regular-sized hands and, as of yet, has never said it’s OK to grab women by the pussy. “He is proper nuts but has regular hands? He won’t feel free to grab me by the pussy? I’m in,’’ she will likely say. Odds: 2/1 (She will time-travel to galaxies far, far away where she will try to describe The Donald, but will not be believed, even by those funny little chaps with the faces that melt off like goo.) Mrs Tiggy-Winkle Historically, the Doctor has always been “prickly’’, so she may be a shoo-in. Odds: 7/1 Idris Elba Just because you always have to include him in any list like this. Regardless. Odds: 15/1 (To date, no sign of any “male assistants” but Salman Rushdie is interested, apparently. “I like the idea of not having to get round to mending a fence for 2,000 years,’’ he has said.) T he BBC, it would appear, is under pressure to appoint a female Doctor now that Peter Capaldi has announced he is to leave Doctor Who. A Time Lady? Why not? Sounds rather like a sanitary pad — is it your time, lady? — and, OK, the fact any woman will get everything done by lunchtime may curtail the narrative, but does that matter? (Personally, I have always found Doctor Who takes a very lofty attitude to narrative.) And now everyone is weighing in, including Harriet Harman, Labour’s former deputy, who has said not only should the Doctor be female but also her assistant should be a man so she could “tell him what do’’. But I don’t know. As it stands, tell a man what to do and he thinks he has 2,000 years to do it, and then you go and give him 2,000 years to actually do it? This is playing right into their hands, surely. That fence is never going to get mended now. Many names have been mooted, with Olivia Colman apparently favourite to be our first Time Lady — “we recommend Time Lady Maxi for those heavy flow days’’ — and no doubt the suggestions will rumble on until the BBC announces it’s happened upon yet another white male: “We weren’t actively seeking yet another white male, but looked him up and down, and saw he was exactly what we were after! What are the chances?’’ But, in the meantime, here are the other female front-runners: Kirstie Allsopp A hot favourite since she has the requisite bossiness and probably the requisite British colonial attitude (“so many monsters, so little time,’’ she will sigh) and will refashion the Tardis as a wraparound in bright florals before showing it to Jane and Mike from Putney: “It’s much bigger inside than it looks. Great storage.” Odds on being the new Doctor: 5/1; Odds Jane and Mike will buy: 50,000,000/1 since they have decided to “think about it some more’’. (Christ on a bike, how many bold floral Tardises have people got to be shown before they’ll finally make up their minds?) Princess Charlotte Dead cute. Odds: 40/1 pulse in my bunged-up head. My cold has set off a pain in my ears. My cold laughs in the face of Lemsip and Night Nurse and similar. But there are no nice colds, I hear you say, as we have established, but what you need to understand is this: whereas your “nasty’’ cold is actually just a regular cold and you’d do best to man up, mine is not. Mine is awful. Mine is the worst cold ever. Have we got that now? composed of the white blood cells that wish to expel the virus. (I couldn’t find out whether, if you didn’t produce snot, the virus would take you over.) The cough is the snot that’s dripped down the back of your throat and into your lungs, which have only one thing on their mind: “Out, damned mucus, out!’’ My cold is certainly no fun. My cold means I have to prop myself up in bed at night to breathe. My cold means I can hear my own cold remembered my birthday with flowers!’’ I have a cold and have been looking into colds. There are many interesting facts about colds. Only higher primates, for example, can get them. The cold virus can exist outside your body but cannot multiply. A cold always starts with that razor- blade-wedged-in-the- neck feeling because the immune system stages its first fightback by inflaming the throat. I could go on, and will. The snot is I have noted that whenever anyone gets a cold they always say “I have a stinking cold’’ or “I have a really heavy cold’’ or “I have a nasty cold’’ as if there might be nice colds you could get as in: “I have a nice cold and when we’re through, we’ve agreed we will write.’’ Or: “My GETTY IMAGES My cold is terrible. Yours isn’t K ate Allatt woke up from her medically induced coma feeling groggy and confused. She remembered the moments leading up to her stroke vividly, the way that a stubborn headache had suddenly seemed to spread inside her skull as her three children got ready for bathtime. She remembered the face of the junior doctor, who only hours earlier had dismissed it as a migraine and sent her home from A&E. She also remembered the noise — “the most horrific noise I’ve ever heard” — which had sounded as though there was a pneumatic drill that only she could hear as the blood vessels burst in her brain and her husband spilt his cup of tea. “What’s happening to me?” she tried to say, not realising that her sounds made no sense. Three days later she awoke from the coma to find that she could not move. Figures of doctors and nurses moved in and out of the room. Outside, in the family room down the corridor, her husband was being told that she would probably be better off dead. She became aware of conversations taking place around her, of voices speaking about her, but never to her. She was locked in. The worst part of it all was that she couldn’t remember anyone ever really looking her in the eye, trying to see if she was still there. “I’d heard people sighing,” she says. “They examined my feet, my feeding tube and the rest of my body, but the most upsetting thing was the amount of people who didn’t look into my eyes. I would spend all day staring at the nurses, willing them to look at me.” They didn’t. For the next two weeks she battled hallucinations and sleep deprivation, desperately trying to catch the attention of the next person to walk into her eyeline to prove through the power of her eyeballs alone that she wasn’t brain-dead — she was trapped. “I’d watch the nurses in the empty bay, drinking coffee, reading magazines and think: ‘Please come in here, I’m thirsty, I’m scared. Please keep me company.’ It was like I was invisible.” Fear and desperation to see her children kept her awake at night. During the day she was terrified that she’d fall asleep before the next round of checks and miss her chance to make eye contact with the next medic to examine her above the neck. When her family came to visit she would scream in silence as she listened to staff briefing her husband on her condition. “They would say things like: ‘She slept well, she has been quite settled.’ I wanted to scream: ‘Oh no I bloody well didn’t!’” Unable to move anything beyond a single eyelid, her mind went into overdrive. She hallucinated that the nurse “with the sinister smile” who came every day to top up the brown fluid in her cannula was trying to kill her. A book that she’d read in her book club, The Guernsey Literary and Potato Peel Pie Society, also resurfaced. “I imagined that every day a girl was waiting at the bottom of my bed. She would wheel my bed to Guernsey where she made me watch her drink a latte, then she’d wheel me back to the hospital. I was hallucinating, but it was so real for me. I was so scared. It was like water torture.” Allatt was 39 at the time. Her life in Sheffield up until that day in February 2010 had raced along at the typical pace of a working mother of three, ferrying her children, Woody, Harvey and India, then aged five, eight and ten, between school, ice-skating and football. Her husband, Mark, worked in medical sales and was often away from home. Long-distance running was her release from the stress. For her 40th birthday she had planned to climb Kilimanjaro. The holiday was all booked and paid for. Instead she lay in her hospital bed, staring at the clock on the wall, staring at her toes, her fingers, the dead weight of her body, willing it to move. She could feel touch, but had no way of telling anyone how desperately she needed to hold her children. “All you want to do as a mother is throw your arms around them and tell them that it’s going to be OK.” It was a further agony when her children did come but were advised not to cuddle their mother, “all trussed up like a turkey with wires and tubes everywhere”. The shock was overwhelming for her two oldest children — her daughter sat by her bedside, but was promptly sick. Her middle son didn’t speak for the next two days. When her youngest massaged her feet and felt her hair Allatt wanted to shout for joy. It wasn’t until her three friends came to visit that the breakthrough came. “My head was facing the door. When I saw them I wept silent tears. That’s when they knew I was still inside.” At their next visit, they brought an A4 piece of paper with a handwritten A-Z. With Jackie pointing to the letters and Alison and Anita studying the flutter of her eyelid, after 20 minutes she managed to spell “sleep”. She was exhausted. They all cried. Some who read the story this week of the four German patients with locked-in syndrome, who finally managed to make communication thanks to new technology that effectively reads their thoughts, might have been surprised to hear that they told researchers they were “happy”. When I wept, New technology can effectively read patients’ thoughts the times | Thursday February 2 2017 1GT 3 times2 Yo, Barry, still on for our boys’ night out at Hooters? Lads on tour, eh? Havin’ it large. Whoo! Ah, about that. I’ve taken the liberty of tweaking the booking. Tweaked — hahaha. Like your style. That’s what I’d do to all those tight T-shirted waitresses. No, I’ve changed the booking. We’re now going to Hoots. I know, mate. Love the place. “You’ve never seen a rack like this,” they say. Mental. It’s a pun on ribs and . . . Yes, I got that. I’m afraid Hoots is an offshoot of Hooters, but without the young women in skimpy clothes. [Short silence] You almost had me there. Wind-up merchant! I’m increasingly discomfited by the objectification of women for male gratification. Come again? I like the food, but not women having to showcase their bodies while they serve it. Are you quite all right? You realise that when people talk about liking the hot baps they don’t mean a bread basket? But that’s just it. I do. Are you pulling my p . . . . . . That’s why they’ve opened Hoots for the discerning chap who wants to focus on his meal. There are male servers as well as female ones. In normal clothing. Terrible idea. What does Hooters mean other than boobs? It’s a breastaurant. Well, we’re going and we’re going to enjoy our chicken wings. But no one goes to a Hooters joint for the food. That’s like watching a porno film for the character development. Actually, I do that too. Hello? Hello? That’s odd. The phone line’s gone dead. Carol Midgley The lowdown Hoot(er)s The patients all have advanced forms of amyotrophic lateral sclerosis. They are, in effect, completely locked in. Unlike Allatt they are unable even to move their eyes. Their “happiness” doesn’t surprise Allatt one bit. “That moment when you finally make a connection, I can’t describe the euphoria. It’s like every Christmas, every birthday and every time you’ve held your newborn in your arms rolled into one. I thought: ‘Oh my God, they can hear me.’ ” Her friends wept with her. “They said: ‘We’ve got her back.’ They literally became my voice.” That A4 sheet became her lifeline to the outside world, but some nurses disapproved. “They would tidy it away, keep it out of sight. They said that when I started rehab it would be a different system so I would get confused. That was so cruel.” It was a slow and frustrating process for everyone. Her husband, she remembers now with a laugh, was not a natural. Once when trying to tell him she had leg cramps, he threw down the board in frustration. “He said: ‘Kate, there’s not a word that begins, L, E, G, C!’ At that point I could have rammed that board where the sun don’t shine.” She spent five months locked in. With communication, came confidence — and hope. “I didn’t know back then about neuroplasticity, or the physio terms like intense repetition, but if my right thumb raised an inch then I’d spend the next day making it rise two inches. Once that moved I found other fingers moved, until I could flip my entire wrist over.” Her biggest obstacle turned out to be the low expectations of many of the medical professionals around her. “Many of them were so worried about giving false hope that in doing so, they gave none at all. They quash all hope.” Consider, for example, the book that the rehab nurses recommended Allatt read, The Diving Bell and the Butterfly. “Yes, it’s an inspirational book for ‘normal’ people,” she says of the memoir by the French journalist and bon viveur Jean-Dominique Bauby that introduced the horrors of locked- in syndrome to the wider world. He died two days after its publication. “Motivational text? I don’t think so. “They were treating me as average, but I wasn’t average. I was a runner. If I had been a Jeremy Kyle-watching sofa surfer then I might have given up, but I didn’t. I just thought: ‘Sod you, I’m going to show you all.’” When consultants suggested moving to a care home, her best friend took her straight to the letter board. She spelt out: “Stand by me.” Allatt set her own goals. She went to the gym she used to go to and begged the manager to let her use some of the weights. He went one better, having seen his own father suffer a stroke, offering her his best physio and use of the gym free of charge. Within six weeks she’d gone from a wheelchair to walking sticks. With another six she was shuffling by herself. The suggestion that the new kitchen in her home should be ripped out to install a bedroom downstairs, made her determined to conquer the stairs herself. Her kitchen remains intact. She focused every fibre of her being on being able to run again by the first anniversary of her stroke: February 6, 2011. It’s on YouTube for everyone to see, a joyous “shuffle”, as she describes it. “Running was the goal that worked for me, but everyone has their own passion. Some people improve, some people don’t improve as much, but everyone should be encouraged to be the best that they can be.” Allatt is about to mark the seventh anniversary of her stroke. She walks her two dogs for a couple of hours every day and makes a living as a motivational speaker. Later in the year she and her youngest child, Woody, are going to go on a “mum and son” holiday to Abu Dhabi and Dubai. She cites Christine Waddell, from Co Durham, and the Finnish blogger and author Kati Van De Hoeven, who have both been living with locked-in syndrome for almost 20 years, as inspirational figures. “So many people say that they wouldn’t want to live if they couldn’t wipe their own arse, but that changes. The will to survive is stronger than I ever imagined.” Kate Allatt is a motivational speaker and stroke activist and the author of Running Free: Breaking Out from Locked-in Syndrome (Accent Press, £9.99) @kateallatt, kateallatt.com Kate Allatt in hospital. Top: Allatt and her husband, Mark, after renewing their wedding vows post-recovery, with her best friend Alison French, top left, and children Woody, India and Harvey they knew I was still inside MC PHOTOGRAPHY

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Page 1: #! they kn ew Iwa sstillinside · 2017-02-10 · Kirstie Allsopp A hot fa vo urite since sh e has the requ isite bossin es s and pr ob ably the requisi te British colonial attitude

2 1GT Thursday February 2 2017 | the times

times2

Deborah Ross

Melania for Dr Who! She shouldget her chance in the Tardis After a stroke

Kate Allatt foundherself ‘locked in’.It was terrifyingand lonely, she tellsLucy Bannerman

Katie Hopkins Because sheknows everything and hasknown everything since timebegan and will know everythinginto all eternity. She will putthe Daleks right: “Exterminate,exterminate? I’ll show whichrace exterminates which raceround here. It isn’t personal.I’m just saying what everyoneis thinking.’’ Odds: no one’sfavourite, but there may bea fight to see who gets to shoother into orbit in a box.Mary Berry Old, experienced,good with jam. You just can’t gowrong with those qualities.Odds: 22/1Melania Trump Not such agreat leap from First Lady toFirst Time Lady — is it your firsttime, lady? If so we recommendFirst Time Lady Lites — but shewill have to withstand somefearsome encounters. TheSilurians. Ood. The MeddlingMonk. Davros. And the Master,who was driven insane afterlooking into the UntemperedSchism on Gallifrey, so is propernuts, but has regular-sized handsand, as of yet, has never said it’sOK to grab women by the pussy.“He is proper nuts but has regularhands? He won’t feel free to grabme by the pussy? I’m in,’’ she willlikely say. Odds: 2/1 (She willtime-travel to galaxies far, faraway where she will try todescribe The Donald, but will notbe believed, even by those funnylittle chaps with the faces thatmelt off like goo.)Mrs Tiggy-Winkle Historically,the Doctor has always been“prickly’’, so she may be a shoo-in.Odds: 7/1Idris Elba Just because youalways have to include him in anylist like this. Regardless. Odds: 15/1(To date, no sign of any “male

assistants” but Salman Rushdie isinterested, apparently. “I like theidea of not having to get round tomending a fence for 2,000 years,’’he has said.)

The BBC, it wouldappear, is underpressure toappoint a femaleDoctor now thatPeter Capaldi hasannounced he isto leave Doctor

Who. A Time Lady? Why not?Sounds rather like a sanitary

pad — is it your time, lady? —and, OK, the fact any womanwill get everything done bylunchtime may curtail thenarrative, but does that matter?(Personally, I have always foundDoctor Who takes a very loftyattitude to narrative.)And now everyone is weighing

in, including Harriet Harman,Labour’s former deputy, who hassaid not only should the Doctorbe female but also her assistantshould be a man so she could “tellhim what do’’. But I don’t know.As it stands, tell a man what to doand he thinks he has 2,000 yearsto do it, and then you go and givehim 2,000 years to actually do it?This is playing right into theirhands, surely. That fence is nevergoing to get mended now.Many names have been

mooted, with Olivia Colmanapparently favourite to be ourfirst Time Lady — “werecommend Time Lady Maxi forthose heavy flow days’’ — and nodoubt the suggestions will rumbleon until the BBC announces it’s

happened upon yet another whitemale: “We weren’t activelyseeking yet another white male,but looked him up and down, andsaw he was exactly what we wereafter! What are the chances?’’ But,in the meantime, here are theother female front-runners:Kirstie Allsopp A hot favouritesince she has the requisitebossiness and probably therequisite British colonial attitude(“so many monsters, so little time,’’she will sigh) and will refashionthe Tardis as a wraparound inbright florals before showing it toJane and Mike from Putney: “It’smuch bigger inside than it looks.Great storage.” Odds on being thenew Doctor: 5/1; Odds Jane andMike will buy: 50,000,000/1since they have decided to“think about it some more’’.(Christ on a bike, how manybold floral Tardises have peoplegot to be shown before they’llfinally make up their minds?)Princess Charlotte Dead cute.Odds: 40/1

pulse in my bunged-uphead. My cold has setoff a pain in my ears.My cold laughs in theface of Lemsip andNight Nurse andsimilar. But there areno nice colds, I hearyou say, as we haveestablished, but whatyou need to understandis this: whereas your“nasty’’ cold is actuallyjust a regular coldand you’d do best toman up, mine is not.Mine is awful. Mineis the worst coldever. Have we gotthat now?

composed of the whiteblood cells that wish toexpel the virus. (Icouldn’t find outwhether, if you didn’tproduce snot, the viruswould take you over.)The cough is the snotthat’s dripped down theback of your throat andinto your lungs, whichhave only one thing ontheir mind: “Out,damned mucus, out!’’My cold is certainly

no fun. My cold meansI have to prop myself upin bed at night tobreathe. My cold meansI can hear my own

cold remembered mybirthday with flowers!’’I have a cold and

have been looking intocolds. There are manyinteresting facts aboutcolds. Only higherprimates, for example,can get them. The coldvirus can exist outsideyour body but cannotmultiply. A cold alwaysstarts with that razor-blade-wedged-in-the-neck feeling becausethe immune systemstages its first fightbackby inflaming the throat.I could go on, and

will. The snot is

I have noted thatwhenever anyone gets acold they always say “Ihave a stinking cold’’ or“I have a really heavycold’’ or “I have a nastycold’’ as if there mightbe nice colds you couldget as in: “I have a nicecold and when we’rethrough, we’ve agreedwe will write.’’ Or: “My

GETTY IMAGES

My cold isterrible.Yours isn’t

Kate Allatt woke upfrom her medicallyinduced coma feelinggroggy and confused.She remembered themoments leading upto her stroke vividly,the way that a

stubborn headache had suddenlyseemed to spread inside her skull asher three children got ready forbathtime. She remembered the face ofthe junior doctor, who only hoursearlier had dismissed it as a migraineand sent her home from A&E. Shealso remembered the noise — “themost horrific noise I’ve ever heard”— which had sounded as thoughthere was a pneumatic drill that onlyshe could hear as the blood vesselsburst in her brain and her husbandspilt his cup of tea.“What’s happening to me?” she tried

to say, not realising that her soundsmade no sense.Three days later she awoke from the

coma to find that she could not move.Figures of doctors and nurses movedin and out of the room. Outside, in thefamily room down the corridor, herhusband was being told that she wouldprobably be better off dead. Shebecame aware of conversations takingplace around her, of voices speakingabout her, but never to her.She was locked in. The worst part of

it all was that she couldn’t rememberanyone ever really looking her in theeye, trying to see if she was still there.“I’d heard people sighing,” she says.

“They examined my feet, my feedingtube and the rest of my body, but themost upsetting thing was the amountof people who didn’t look into myeyes. I would spend all day staring atthe nurses, willing them to look at me.”They didn’t.For the next two weeks she battled

hallucinations and sleep deprivation,desperately trying to catch theattention of the next person to walkinto her eyeline to prove through thepower of her eyeballs alone that shewasn’t brain-dead — she was trapped.“I’d watch the nurses in the empty bay,drinking coffee, reading magazinesand think: ‘Please come in here, I’mthirsty, I’m scared. Please keep mecompany.’ It was like I was invisible.”Fear and desperation to see her

children kept her awake at night.During the day she was terrified thatshe’d fall asleep before the next roundof checks and miss her chance to makeeye contact with the next medic toexamine her above the neck.When her family came to visit she

would scream in silence as she listenedto staff briefing her husband on hercondition. “They would say thingslike: ‘She slept well, she has been

quite settled.’ I wanted to scream:‘Oh no I bloody well didn’t!’ ”Unable to move anything beyond a

single eyelid, her mind went intooverdrive. She hallucinated that thenurse “with the sinister smile” whocame every day to top up the brownfluid in her cannula was trying to killher. A book that she’d read in herbook club, The Guernsey Literary andPotato Peel Pie Society, also resurfaced.“I imagined that every day a girl was

waiting at the bottom of my bed. Shewould wheel my bed to Guernseywhere she made me watch her drinka latte, then she’d wheel me back tothe hospital. I was hallucinating, but itwas so real for me. I was so scared. Itwas like water torture.”Allatt was 39 at the time. Her life in

Sheffield up until that day in February2010 had raced along at the typicalpace of a working mother of three,ferrying her children, Woody, Harveyand India, then aged five, eight andten, between school, ice-skating andfootball. Her husband, Mark, workedin medical sales and was often awayfrom home. Long-distance runningwas her release from the stress.For her 40th birthday she had

planned to climb Kilimanjaro. Theholiday was all booked and paid for.Instead she lay in her hospital bed,staring at the clock on the wall, staringat her toes, her fingers, the deadweight of her body, willing it to move.She could feel touch, but had no way

of telling anyone how desperately sheneeded to hold her children. “All you

want to do as a mother is throw yourarms around them and tell them thatit’s going to be OK.” It was a furtheragony when her children did comebut were advised not to cuddle theirmother, “all trussed up like a turkeywith wires and tubes everywhere”.The shock was overwhelming for

her two oldest children — herdaughter sat by her bedside, but waspromptly sick. Her middle son didn’tspeak for the next two days. When heryoungest massaged her feet and felther hair Allatt wanted to shout for joy.It wasn’t until her three friends came

to visit that the breakthrough came.“My head was facing the door. WhenI saw them I wept silent tears. That’swhen they knew I was still inside.”At their next visit, they brought an

A4 piece of paper with a handwrittenA-Z. With Jackie pointing to the lettersand Alison and Anita studying theflutter of her eyelid, after 20 minutesshe managed to spell “sleep”. She wasexhausted. They all cried.Some who read the story this week

of the four German patients withlocked-in syndrome, who finallymanaged to make communicationthanks to new technology thateffectively reads their thoughts, mighthave been surprised to hear that theytold researchers they were “happy”.

When I wept,

New technologycan effectivelyread patients’thoughts

the times | Thursday February 2 2017 1GT 3

times2

Yo, Barry, still on for our boys’ nightout at Hooters? Lads on tour, eh?Havin’ it large. Whoo!Ah, about that. I’ve taken the libertyof tweaking the booking.

Tweaked — hahaha. Like yourstyle. That’s what I’d do to allthose tight T-shirted waitresses.No, I’ve changed the booking.We’re now going to Hoots.

I know, mate. Love the place.“You’ve never seen a rack likethis,” they say. Mental. It’s a punon ribs and . . .Yes, I got that. I’m afraid Hoots is anoffshoot of Hooters, but without theyoung women in skimpy clothes.

[Short silence] You almost hadme there. Wind-up merchant!I’m increasingly discomfited bythe objectification of women formale gratification.

Come again?I like the food, but not women havingto showcase their bodies while theyserve it.

Are you quite all right? You realisethat when people talk about likingthe hot baps they don’t mean abread basket?But that’s just it. I do.

Are you pulling my p . . .. . . That’s why they’ve opened Hootsfor the discerning chap who wantsto focus on his meal. There are maleservers as well as female ones. Innormal clothing.

Terrible idea. What does Hootersmean other than boobs? It’s abreastaurant.Well, we’re going and we’re goingto enjoy our chicken wings.

But no onegoes to aHooters jointfor the food.That’s likewatchinga porno filmfor thecharacterdevelopment.Actually, I dothat too. Hello?Hello? That’sodd. Thephone line’sgone dead.Carol Midgley

The lowdownHoot(er)s

The patients all have advanced formsof amyotrophic lateral sclerosis. Theyare, in effect, completely locked in.Unlike Allatt they are unable even tomove their eyes.Their “happiness” doesn’t surprise

Allatt one bit. “That moment whenyou finally make a connection, I can’tdescribe the euphoria. It’s like everyChristmas, every birthday and everytime you’ve held your newborn in yourarms rolled into one. I thought: ‘Ohmy God, they can hear me.’ ”Her friends wept with her. “They

said: ‘We’ve got her back.’ Theyliterally became my voice.”That A4 sheet became her lifeline

to the outside world, but some nursesdisapproved. “They would tidy it away,keep it out of sight. They said thatwhen I started rehab it would be adifferent system so I would getconfused. That was so cruel.”It was a slow and frustrating process

for everyone. Her husband, sheremembers now with a laugh, was nota natural. Once when trying to tellhim she had leg cramps, he threwdown the board in frustration. “Hesaid: ‘Kate, there’s not a word thatbegins, L, E, G, C!’ At that pointI could have rammed that boardwhere the sun don’t shine.”She spent five months locked in.

With communication, cameconfidence — and hope.“I didn’t know back then about

neuroplasticity, or the physio termslike intense repetition, but if myright thumb raised an inch then I’dspend the next day making it risetwo inches. Once that moved I foundother fingers moved, until I could flipmy entire wrist over.”

Her biggest obstacle turned out tobe the low expectations of many of themedical professionals around her.“Many of them were so worried aboutgiving false hope that in doing so, theygave none at all. They quash all hope.”Consider, for example, the book that

the rehab nurses recommended Allattread, The Diving Bell and the Butterfly.“Yes, it’s an inspirational book for‘normal’ people,” she says of thememoir by the French journalist andbon viveur Jean-Dominique Baubythat introduced the horrors of locked-in syndrome to the wider world. Hedied two days after its publication.“Motivational text? I don’t think so.“They were treating me as average,

but I wasn’t average. I was a runner.If I had been a Jeremy Kyle-watchingsofa surfer then I might have given up,but I didn’t. I just thought: ‘Sod you,I’m going to show you all.’ ”When consultants suggested moving

to a care home, her best friend tookher straight to the letter board. Shespelt out: “Stand by me.”

Allatt set her own goals. She went tothe gym she used to go to and beggedthe manager to let her use some of theweights. He went one better, havingseen his own father suffer a stroke,offering her his best physio and use ofthe gym free of charge. Within sixweeks she’d gone from a wheelchair towalking sticks. With another six shewas shuffling by herself.The suggestion that the new kitchen

in her home should be ripped out toinstall a bedroom downstairs, madeher determined to conquer the stairsherself. Her kitchen remains intact.She focused every fibre of her being

on being able to run again by the firstanniversary of her stroke: February 6,2011. It’s on YouTube for everyone tosee, a joyous “shuffle”, as she describesit. “Running was the goal that workedfor me, but everyone has their ownpassion. Some people improve, somepeople don’t improve as much, buteveryone should be encouraged to bethe best that they can be.”Allatt is about to mark the seventh

anniversary of her stroke. She walksher two dogs for a couple of hoursevery day and makes a living as amotivational speaker. Later in the yearshe and her youngest child, Woody,are going to go on a “mum and son”holiday to Abu Dhabi and Dubai.She cites Christine Waddell, from

Co Durham, and the Finnish bloggerand author Kati Van De Hoeven, whohave both been living with locked-insyndrome for almost 20 years, asinspirational figures. “So many peoplesay that they wouldn’t want to live ifthey couldn’t wipe their own arse, butthat changes. The will to survive isstronger than I ever imagined.”

Kate Allatt is amotivational speakerand stroke activistand the author ofRunning Free:Breaking Out fromLocked-in Syndrome(Accent Press, £9.99)@kateallatt,kateallatt.com

Kate Allatt in hospital.Top: Allatt and herhusband, Mark, afterrenewing their weddingvows post-recovery,with her best friendAlison French, top left,and children Woody,India and Harvey

they knew I was still insideMC PHOTOGRAPHY