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#CPHC Twitter ChatFebruary 11, 2014The Autism Society

GailZahtz See what an incredible week we have! RT @RoadWeveShared: 1 for week

http://t.co/Hd0yigY1d3 1 for @AlexSensoryhttp://t.co/w3agP6ziSQ #CPHC

Introductions:GailZahtz It's intro time- as a community we really care who YOU are. So tell us about yourself- what

you do, why you're here, coffee or tea? #CPHC

nxtstop1 Hi everyone,Bernadette Keefe,physician, checking in from NorthCarolina~interested in

all aspects of optimal health/wellness~esp aging. #CPHC

GailZahtz Hello! @nxtstop1 One of my favorite physicians on twitter!! And one of my

other sides @RoadWeveShared Then @SPINN_PHR #CPHC already hot!

RoadWeveShared Hello everyone! Stephanie here- parent advocate for adults who have

#Downsyndrome #CPHC (Coffee / diet coke!)

SPINN_PHR Joining the #CPHC chat! Jeremy here from #SPINNhealth. I prefer coffee

@GailZahtz. Interested in discussing #autism today!

AutismSociety Hello to all the #CPHC chatters today! We are the national office for the Autism

Society here, located in #bethesda #md #dc area! @GailZahtz

GailZahtz Welcome @AutismSociety we're honored you could make this- with all of your

affiliates- how many members do you represent? #CPHC

Sandyhubbard We're honored to have with us @AutismSociety which is the natl office

for Autism Society, located in #bethesda #md #dc area! #CPHC

AutismSociety Our "official" Twitter voice is also known as @fleuredeflorida. Worked in #autism

svcs #disabilities #advocacy for over 5 years. #CPHC...

JimCanto Greetings all. Jim Canto here from http://t.co/6jruV1vJrV .. a.k.a.; @medxcentral

#cphc

GailZahtz Ha- I just pulled @JimCanto who had said he couldn't join us- lovely! Tell usmore about medxcentral Jim! #CPHC

JimCanto @GailZahtz Shhhh... I'm not really here. ;-) #cphc

JimCanto Thanks, @GailZahtz ... for now, it's a simple healthcare social network

for those in healthcare and those who need them. #cphc

JimCanto ok.. punched out for lunch.. now I can participate guilt free. #cphc

CHopeMurray I like both coffee in the morning, tea in the afternoon and batter's choice in the

evening - ever eager to participate/contribute #cphc

GailZahtz I am SO glad you came today @CHopeMurray There is quite a bit I had hoped

you'd be here for today! Count on news by end of #CPHC lol

CHopeMurray @GailZahtz and I must apologize for my extended absences - will try to

attend more regularly in next few months #cphc

GailZahtz You have been missed @CHopeMurray but I already forget as you're

back! #CPHC

Pfanderson Patricia here for #CPHC mom of ASD teen, sister to ASD adult

Pfanderson Triple chatting #cphc #asd #canarychat #teenfbsafety while making storify from this

Ams #umpedsgr
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GailZahtz I am so happy you are joining @pfanderson meet @AutismSociety They are

very collaborative- you'll see partners #CPHC

CHopeMurray how many limbs do you have? RT @pfanderson Triple chatting #cphc

#asd #canarychat #teenfbsafety while making storify from this Ams #umpedsgr

fleuredeflorida .@CHopeMurray extras would be nice, eh? cc: @GailZahtz

@sandyhubbard #CPHCCHopeMurray I can only raise 2 hands in agreement RT

@fleuredeflorida .@CHopeMurray extras would be nice, eh? cc:

@GailZahtz @sandyhubbard #CPHC

GailZahtz FYI @fleuredeflorida our @CHopeMurray was CTO of @RedCross

and only knows everyone ;-) #advocate #community @sandyhubbard #CPHC

NYCPatient @GailZahtz Coffee :-) Volunteer extensively w/ kids, many on the spectrum.

Particularly interested in resources for NVLDs. #CPHC

GailZahtz Glad you're here @NYCPatient Yes, I'm all about coffee! And today we're all

about giving voice to patients/consumers and caregivers! #CPHC

Jenningshealth Hi all, Kate at Jennings here. Hope everyone's Tuesday is going well! #cphc

GailZahtz The fab @jenningshealth meet @AutismSociety and after today we should

talk- you'll see why ;-)) #CPHC

jenningshealth Looking forward to it! RT @GailZahtz: The fab @jenningshealth

meet @AutismSociety and after today we should talk- you'll see why ;-)) #CPHC

NatriceR #cphc sorry running late will try and catch up shortly

WeCan4Health Checking in a bit late, but just enough time to stop in today. Hi everyone! #CPHC

GailZahtz I see the great collaborative author @WeCan4Health You'll love all the true

patient/consumer centered programs of @AutismSociety #CPHC

WeCan4Health @GailZahtz You are so kind :) @AutismSociety #CPHC

ASAAlbanyNY Autism Society of the Greater Capital Region, NY here #CPHC

GailZahtz Hello @ASAAlbanyNY great to have you! Can you tell us more about your specificgoals and programs as an affiliate? #CPHC

NMAutismSociety @GailZahtz @AutismSociety greetings from Sarah Baca/New Mexico here. #CPHC

GailZahtz For later reading @nxtstop1 and others here is my front page article in @KBBconnect on

hidden accessibilityhttp://t.co/7ALcjfHVrl #CPHC

nxtstop1 @GailZahtz @KBBconnect Thanks so much, Gail! #CPHC

Sandyhubbard As folks are drifting into chat, please intro yourselves. Are we all followng each other?

#communityrocks in #CPHC

Sandyhubbard Starting now >#CPHC > we're talking partnerships & strategy. I encourage non-profits &

health-related organizations to chime in! Please RT

Sandyhubbard If you're just arriving at #CPHC, please introduce yourself. Be sure to follow @GailZahtz

who will be talking w/ our guests during the hour.

Sandyhubbard For those of you just joining #CPHC - please follow @AutismSociety and other experts in

today's chat and feel free to comment. :)
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Sandyhubbard We are privileged to be able to offer resources for the #autism community and to

introduce you to people who can answer questions. #CPHC

GailZahtz Meanwhile, we are always an open community so everyone please ask, answer, keep talking!

#CPHC

GailZahtz So what do you think @sandyhubbard seems @AutismSociety is right up the #CPHC beliefs of

collaboration... @pfanderson @CHopeMurrayGailZahtz Imagine @nxtstop1 #CPHC families of communities working with @AutismSociety

partners, affiliates and more- how much both gain? #CPHC

GailZahtz I'm looking forward tomorrow @AutismSociety to hearing more about @AutismMN

steps of hope program on live radio! Though please share #CPHC

Autism Society:

GailZahtz Would you like to start telling us about yourselves @AutismSociety @fleuredeflorida ? We're

excited to learn from #autism to #partners #CPHC

AutismSociety .@GailZahtz We have a network of over 150 affiliates, been around since 1965, we

advocate for the 2M people impacted by #autism in US. #CPHC

AutismSociety .@GailZahtz More than 120k members and more connected through those affiliate

networks, like @autismMN #CPHC #autism #nonprofit

GailZahtz Wow mT @AutismSociety: More than 120k members and more connected through

those affiliate networks, like @autismMN #CPHC #autism #nonprofit

GailZahtz Speaking of @AutismSociety Can you share some links and summaries of your programs,

explain missions and goals and partnerships? #CPHC

GailZahtz As we wait to hear more from @AutismSociety Here are all their partners- collaborative, and

shared values with #CPHChttp://t.co/PtDTDXyNCI

AutismSociety .@GailZahtz Sure! We have programs for #autism #advocacy #awareness #support &

#resources such as Autism Sourcehttp://t.co/Dm2ph2VgOf #CPHCGailZahtz How are you unique in the world of #autism @AutismSociety and tell us more please about

Autism Source ;-) #CPHC

AutismSociety .@GailZahtz We offer nationwide pgms through affiliates such as #firstresponder

#training, #faith initiativeshttp://t.co/eEgFWo7SgM #CPHC

GailZahtz I find affiliate program fascinating- I was talking with @autismmn and they said you

have shared goals but give independence? Explain #CPHC

AutismSociety .@GailZahtz We have common traits with #disabilities partners like @TheArcUS

@EasterSeals @tashtweet @aapd serving #PWD #autism #CPHC

GailZahtz


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nxtstop1 @ASAAlbanyNY @GailZahtz That sounds wonderful~ drawing in the community as a

whole /all families to learn and enjoy good times too~ #CPHC

JimCanto Interesting re; affiliates. Must investigate more @AutismSociety .. my gf is studying to

be #SPED teacher. Oppty? cc: @gailzahtz #cphc

AutismSociety Plz do! MT @JimCanto: Interesting re; affiliates. Must investigate

@AutismSociety .. my gf is studying to be #SPED teacher. #cphcJimCanto @fleuredeflorida Just followed you. That's a good start. :-) #cphc

GailZahtz @AutismSociety What is #SPED I thought I knew all short names lol

#CPHC

JimCanto @GailZahtz @AutismSociety Special Education #cphc

GailZahtz @JimCanto @AutismSociety thanks! #SPED = special

education, interface daily, didn't know acronym #CPHC

GailZahtz It is GREAT to see you @AutismMN You are doing some amazing work here in my "home"

state- share about it? #CPHC @AutismSociety

GailZahtz The partnerships also mean that diagnosis is not only focus @RoadWeveShared

@AutismSociety @TheArcUS @EasterSeals @TASHtweet @AAPD #CPHC

Jenningshealth Offers more complete care MT @GailZahtz: Partnerships mean that diagnosis

isn't only focus @RoadWeveShared @AutismSociety @TheArcUS... #CPHC

GailZahtz Agree @jenningshealth we at #CPHC and our family of networks have been all

about collaboration @RoadWeveShared @AutismSociety @TheArcUS

AutismSociety .@GailZahtz First Responder is natl model, affiliates have flexibility to develop local

#partnerships. #safety #autism #CPHC

GailZahtz How do the affiliates and partners help with local and national community? @ASAAlbanyNY

@AutismSociety @autismmn #CPHC

AutismSociety .@GailZahtz We look at lifetime of opportunities/potential and how can we support?

#PWD #autism #services #disabilities #CPHC

GailZahtz Love this! mT @AutismSociety: We look at lifetime of opportunities/potential; howcan we support? #PWD #autism #services #disabilities #CPHC

GailZahtz Okay as we're getting towards the half-way point- @AutismSociety can you tell us more about

your partnerships and how they help all? #CPHC

AutismSociety .@GailZahtz Affiliates/partners provide local connections to #autism community,

#selfadvocates, #families, #SPED professionals #CPHC

nxtstop1 @GailZahtz @AutismSociety Perfect role, just what

individuals/families/communities need~The go to place for info/support~ #CPHC

GailZahtz And could be global online? RT @AutismSociety: Affiliates/partners provide

local connections to #autism #selfadvocates, #families, #CPHC

AutismMN @GailZahtz founded in 1971, we're the oldest nonprofit in MN focused on educ & advocacy

for people w/ #autism from birth to retirement #cphc

GailZahtz We are TRHILLED to have you @NMAutismSociety As I ask of @AutismSociety Please

answer, comment too! YOU matter here at #CPHC @autismMN

AutismSociety .@NMAutismSociety Yes, feel free to chime in! #CPHC cc: @autismMN

@GailZahtz

GailZahtz TY There is only one of me typing but hoping all our special guests will

talk! #CPHC @AutismSociety @NMAutismSociety @autismMN


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AutismSociety .@GailZahtz Sure! Major partnership with @AMCTheaters on #sensoryfriendly

activities for #autism, see here:http://t.co/NFczbxQ2mL #CPHC

nxtstop1 @AutismSociety @GailZahtz @AMCTheaters That's neat! #CPHC

GailZahtz Can you tell us about the #sensoryfriendly partnership and how it works?

@AutismSociety @AMCTheaters #CPHC @AlexSensory

AutismSociety .@GailZahtz @AMCTheaters partners with local affiliates to offer#sensoryfriendly showings of #movies for #autism families and adults #CPHC

AutismSociety .@GailZahtz @AMCTheaters model for other #sensoryfriendly activities

in #film #community #culture #recreation for #autism families #CPHC

AutismSociety Oh, quick note, @AMCTheatres is spelled the old fashioned way, y'all!

#CPHC @GailZahtz #partners #autism #sensoryfriendly

AutismSociety .@GailZahtz #CPHC We also work with @TheArcUS @TASHtweet @EasterSeals on

#autism interagency council for #publicpolicy #sped #advocacy #IDEA

GailZahtz So @AutismSociety it sounds like you have partnerships that can bring many different views

and help to you, affiliates like @autismm #CPHC

AutismSociety .@GailZahtz also these activities give way to ideas like @AutismMN's Steps of

Hope mall walk #sensoryfriendlyhttp://t.co/UJnq8AvenI #CPHC

AutismSociety .@GailZahtz PS, here's a list of national #partnerships for #autismhttp://t.co/xiEF3bkq5D

#CPHC

Sandyhubbard It's wonderful to see the affiliates of @AutismSociety at our chat. Thank you for

attending and sharing your expertise! #CPHC

GailZahtz So how can partners help?We have networks of communities, media and events-I'm

seeing lots of opportunities-thoughts? #CPHC @AutismSociety

AutismSociety .@GailZahtz Partners/communities can engage with us via Twitter, FB:

http://t.co/GJSYD4a2lz #autism #CPHC #partnerships #autismmatters

GailZahtz Well we definitely have a very large social media contingency- almost

all in #CPHC are leaders within Social Media @AutismSocietyfleuredeflorida .@GailZahtz YAY! Makes for one happy #PR lady! #CPHC

sandyhubbard It's important that advocates band together to gain momentum

& access to platforms for their voices to be heard. #CPHC is one such platform!

AutismMN Other newer progs include emergency preparedness training for families & first

responders -http://t.co/EyTyDv997i #CPHC

Pfanderson @AutismMN This is SO important! Need much more help with this #cphc

Sandyhubbard Excellent RT @AutismMN Programs include emergency preparedness training

for families & first responders - http://t.co/6v5NuoUfDI #CPHC

AutismMN We are especially proud of our Emergency Preparedness 5-Point Scale App

- it's free:http://t.co/jRt7Dkq2hb #CPHC

GailZahtz I love this emergency preparedness- we put it on our home page for

the week @sandyhubbard @AutismMN #CPHC That affects everyone

AutismMN @RoadWeveShared Agreed about EP. We get very positive

responses from law enforcement, and hope to make it a mandatory training in

MN #CPHC

AutismMN Untrained assistants for people w/ ASD results in frustration for everyone: client,

worker, family, agency. #CPHC
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AutismSociety .@GailZahtz Also there is a HUGE amount of activity around Nat'l #Autism Awareness

Month, #NAAM2014 #autismmatters. #CPHC

AutismSociety .@GailZahtz We're putting out #autism tip sheets, tookits & other content and activity

during April 2014 for #NAAM2014 @autismMN #CPHC

GailZahtz Could we help with activities during April? @AutismSociety @autismMN #CPHC

AutismSociety We would LOVE that! RT @GailZahtz: Could we help with activities duringApril? @AutismSociety @AutismMN #CPHC

AutismSociety .@GailZahtz #NAAM2014 is for all impacted by #autism, want to hear why

#autismmatters to you and your communities in April. Join us! #CPHC

GailZahtz Seems like a partnership could work! RT @AutismSociety: We would LOVE

that! mT Could we help during April? @AutismSociety @AutismMN #CPHC

AutismSociety .@GailZahtz We are interested in working with #SPED, #autism

#service providers, etc. during #NAAM2014 #autism #awareness #CPHC

AutismSociety @GailZahtz Also connecting to local affiliates great way to get involved with #autism

#advocacy:http://t.co/Dm2ph2VgOf #CPHC

GailZahtz With all the energy and expertise in #CPHC folks- think we could join the amazing partners,

lend a hand for all?! @sandyhubbard @CHopeMurray

AutismMN @GailZahtz Our annual statewide autism conf is 4/30-5/3 this year with multiple tracks

for families, educators & MH professionals #CPHC

GailZahtz Putting on calendar! Let me know if u need speakers, etc mT @AutismMN:Our annual

autism conf is 4/30-5/3 this year w/ multiple tracks #CPHC

Fleuredeflorida huge opps here too RT @AutismMN: @GailZahtz Our statewide autism

conf is 4/30-5/3 with tracks for families, educators & MH leaders #CPHC

AutismMN @GailZahtz we're putting the finishing touches on the conf lineup. Grateful

to have received many responses to call for papers #CPHC

AutismMN MN Autism Conf. has opportunities for sponsors, exhibitors and advertisers to

support:http://t.co/nakf78h7Vw #CPHCAutismSociety #CPHC chatters, learn more about National Autism Awareness Month #NAAM2014 here:

http://t.co/XEQzo4M8Ax #autismmatters #PWD @GailZahtz

GailZahtz We represent every state and most countries with our members so many could help locally

too @fleuredeflorida @AutismMN #CPHC

AutismSociety .@GailZahtz Great to hear! We are trying to "move the needle" locally and

nationally for #autism #awareness during April 2014. #CPHC

GailZahtz Great! RT @AutismSociety: Great to hear! We are trying to "move the needle"

locally & nationally for #autism #awareness during April #CPHC

AutismMN Another important program launched in 2013 was ASD certrfication for direct service

providers. #CPHC

GailZahtz interesting RT @AutismMN: Another important program launched in 2013 was ASD

certrfication for direct service providers. #CPHC

AutismMN Too many DSPs are put in the position of being the right hand of a person w/ ASD,

without any knowledge of the condition. #CPHC

AutismSociety So critical RT @AutismMN: Another important program launched in 2013

was ASD certs for direct service providers. #CPHC
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GailZahtz You'll get support for this from group members- talked about before

mT @AutismMN: Untrained assistants 4 ASD results in frustration #CPHC

AutismSociety #CPHC @GailZahtz MT @autismmn: Great responses from DSP agencies like TSE,

Autism Works recognizing value of cert -http://t.co/UzCJ9pLN4v

AutismMN We're also looking fwd to the upcoming start of the MN legislative session with some

important initiatives for people imacted by ASD #CPHCAutismMN Great interest based social skills partnerships started recently too: @ComoZoo, @mnzoo,

Leonardos Basement & Eastman Nature Ctr #CPHC

Statistics:

SPINN_PHR Interesting #CNN article discussing #autism. Some really alarming numbers here. #CPHC

@AutismSociety

SPINN_PHR Forgot link to #CNN article...OOPS.http://t.co/3ZoxxK1EKr @AutismSociety #CPHC #autism

AutismSociety Prevalence is 1 in 88! RT @SPINN_PHR: Interesting #CNN article discussing #autism.

Some really alarming numbers here. #CPHC @AutismSociety

SPINN_PHR The United States is facing almost $90 billion annually in costs for autism @AutismSociety

WOW! #CPHC

nxtstop1 @SPINN_PHR @AutismSociety Is much of this from the educational cost or

maintenance later? #CPHC

SPINN_PHR @nxtstop1 research, insurance costs and non-covered expenses, Medicaid

waivers , educational spending, housing, transportation etc. #CPHC

nxtstop1 @SPINN_PHR Thanks big list of expenditures there! #CPHC

fleuredeflorida We think that's low #. RT @spinn_phr: The United States is facing almost $90

billion annually in costs for autism @AutismSociety WOW! #CPHC

SPINN_PHR @fleuredeflorida @AutismSociety How low? #CPHC

SPINN_PHR @nxtstop1 All of this info comes from @AutismSociety http://t.co/upkg8T0TF1#CPHC

AutismSociety .@SPINN_PHR Individual cost per year is too low. Avg. for adult w/ #autism w/

#residential supports more like 100-200k. #CPHC

nxtstop1 @SPINN_PHR @AutismSociety Thanks for link~ Time for real info- super! #CPHC

nxtstop1 @fleuredeflorida @SPINN_PHR Probably depends where on the spectrum~ high functioning

equals job -better situation. #CPHC

fleuredeflorida .@nxtstop1 Yes, it def. varies! Also this study may have only factored out-of-

pocket for individuals, not state/fed costs. #CPHC #autism

GailZahtz Oh- which study talk did I miss? #CPHC @fleuredeflorida @nxtstop1

CHopeMurray Prohibitive makes college seem cheap RT @fleuredeflorida .@SPINN_PHR Avg for adult

w/ #autism w/ #residential support closer 100-200k #CPHC

nxtstop1 @CHopeMurray @fleuredeflorida @SPINN_PHR Once need for residential/custodial

support> costs astronomical~ #CPHC

GailZahtz One year home before residential saves $80,000 !! Will share more from

#IBSVegas @nxtstop1 @CHopeMurray @fleuredeflorida @SPINN_PHR #CPHC

SPINN_PHR @AutismSociety That is big change in numbers. Are there resources for families with lower

incomes dealing with #autism? #CPHC
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WeCan4Health @AutismSociety Seems like a short time ago when Bill Cosby spoke abt #Autism w/Larry

King on CNN w/stat of 1 in 150 @GailZahtz #CPHC

College:

Pfanderson @CHopeMurray @fleuredeflorida @SPINN_PHR For ASD kid in college here, support is ~$6K extra per term, above regular costs #cphc

CHopeMurray ouch! RT @pfanderson @fleuredeflorida @SPINN_PHR For ASD kid in college

here, support is ~ $6K extra per term, above regular costs #cphc

SPINN_PHR @pfanderson So that's would add to the 60k per year I spent on my education. Not

to mention thousands in additional costs! #CPHC

nxtstop1 UNC Chapel Hill ~home to the late and great Eric Schopler who pioneered the Teach Autism

Program~ Probably many of you are aware? #CPHC

CHopeMurray @pfanderson @fleureforida guessing that students with ASD are less than 3% of student

population. Colleges should be able to cover? #cphc

nxtstop1 @CHopeMurray @pfanderson @fleureforida Hate to say, colleges don't voluntarily

cover anything extra~ #CPHC

pfanderson @SPINN_PHR That, or you spend many MANY hours providing the support yourself,

if you can. #cphc

pfanderson @CHopeMurray If you require colleges to cover costs, will they reduce admissions?

#cphc

CHopeMurray @nxtstop1 @pfanderson @fleureforida true - most funds tend to go to prestige

projects, but what could be more noble that ASD support? #cphc

SPINN_PHR @pfanderson Seems like there should be more help from the #government for funding

along with extra resources for students with #autism #CPHC

Pfanderson @CHopeMurray @nxtstop1 since when is academic noble in act as well as in aspiration?

OTOH, it does happen sometimes :) But $$ tight #cphcCHopeMurray @pfanderson we need a redirection of academia, less profit oriented + more

educative + nurturing of those we will depend on in future #cphc

nxtstop1 @CHopeMurray @pfanderson Often Public Universities have this as their mission,

that's why Im big supporter of them~ Inclusionary. #CPHC

pfanderson @nxtstop1 @CHopeMurray I have a workshop centered around this idea #cphc

SPINN_PHR @nxtstop1 @CHopeMurray @pfanderson What about private universities? I would be

curious to see what #BU has. #CPHC

nxtstop1 @SPINN_PHR @CHopeMurray @pfanderson A brilliant aspergers/hi functioning

w/math /computer skills they would take~my guess-others no #CPHC

SPINN_PHR @nxtstop1 I would probably have to agree... #CPHC

Pfanderson @nxtstop1 @SPINN_PHR @CHopeMurray Ie., like football scholarships.

Need special skills, can't be "middle of the road" skills #cphc

nxtstop1 @pfanderson @SPINN_PHR @CHopeMurray Yup~ all very

competitive. They're after the max in their student body~ #CPHC

nxtstop1 @SPINN_PHR @CHopeMurray @pfanderson Worth asking BU. #CPHC

GailZahtz what is worth asking BU? #CPHC @nxtstop1 @SPINN_PHR @CHopeMurray

@pfanderson


9/14

nxtstop1 @GailZahtz @SPINN_PHR @CHopeMurray @pfanderson Whether

they would partially fund attendance and support for autism students~ #CPHC

GailZahtz Scholarships is a wonderful idea! We have a lot of universities

and hospitals in #CPHC @nxtstop1 @SPINN_PHR @CHopeMurray

@pfanderson

CHopeMurray @nxtstop1 @GailZahtz @SPINN_PHR @pfanderson agree - we couldask them publicly (ie through social chat) - no harm in asking after all #CPHC

nxtstop1 @CHopeMurray @GailZahtz @SPINN_PHR @pfanderson Never harm

asking~Actually the only way,you never know. Be nice to have student in mind

#CPHC

pfanderson @NYCPatient @SPINN_PHR @nxtstop1 @CHopeMurray

There isn't money! Budgets tight. They try, but really, it takes a

community to support #cphc

SPINN_PHR @pfanderson You would think they would have some extra money,

especially with the costs of schools these days. #CPHC

SPINN_PHR @pfanderson This seems like a great idea. Why hasn't this

been done???? #CPHC #Autism

GailZahtz If we partnered with @autismsociety and affiliates @nxtstop1

@CHopeMurray @SPINN_PHR @pfanderson They could help with teaching

needs #CPHC

SPINN_PHR @GailZahtz @AutismSociety @nxtstop1 @CHopeMurray

@pfanderson Great idea! #CPHC

CHopeMurray @NYCPatient @SPINN_PHR @nxtstop1 @pfanderson just as

we're doing, highlight good ones & invite the ignorant (not knowing) to respond

#CPHC

NYCPatient @SPINN_PHR @nxtstop1 @CHopeMurray @pfanderson Few priv univsprovide real

resources for any type of special needs, yet alone autism #CPHCnxtstop1 @NYCPatient @SPINN_PHR @CHopeMurray @pfanderson Yes, read major

discussions re physical disability probs & lack mental health support #CPHC

NYCPatient @SPINN_PHR @nxtstop1 @CHopeMurray @pfanderson Pace and Marshall have

reputable programs for serving students w/ autism. #CPHC

NYCPatient @SPINN_PHR @pfanderson 100% agree. Marshall's program is a great model,

including partnerships with several NPOs & community orgs. #CPHC

CHopeMurray @pfanderson @nxtstop1 we need a Noble prize instead of a Nobel prize: what is the use

of wisdom if we don't seek to attain + use it? #CPHC

WeCan4Health @CHopeMurray That's a great thought! @pfanderson @nxtstop1 #CPHC

CHopeMurray The emerging economy appears to be distributed + collaborative, need to ensure all can

participate + contribute, fragmentation fails #cphc

GailZahtz Yes mT @CHopeMurray: The emerging economy appears to be distributed,

collaborative, need to ensure all can participate, contribute, #cphc

NYCPatient @pfanderson @SPINN_PHR @nxtstop1 @CHopeMurray It does. Colleges r req'd by law

under ADA. The biggest need I see is getting DX. #CPHC (1/2)

Pfanderson @NYCPatient @SPINN_PHR @nxtstop1 @CHopeMurray Many not Dx until in college!

Especially college athletes #cphc


10/14

nxtstop1 @NYCPatient @pfanderson @NYCPatient @SPINN_PHR @CHopeMurray That's really

unfortunate~always earlier the better~ #CPHC

CHopeMurray +1 must be proactive RT @nxtstop1: @NYCPatient @pfanderson

@NYCPatient @SPINN_PHR That's really unfortunate~always earlier the better~ #CPHC

NYCPatient @pfanderson @SPINN_PHR @nxtstop1 @CHopeMurray Dx is key! The middle of

college is disservice not just to the student, but to society. #CPHCnxtstop1 @NYCPatient @pfanderson @SPINN_PHR @CHopeMurray Well,right,finally

learning:neglect of individuals any facet ie health>hurts society. #CPHC

Pfanderson @SPINN_PHR Perhaps the assumption that "They" should support is where we go wrong;

need communities of support #cphc Both?

SPINN_PHR @pfanderson Great point. #CPHC What can we do to get schools and communities

on board?

Pfanderson @SPINN_PHR It's a culture of "ask the government what they can do for

you" Back to 60s & Kennedy "ask what YOU can do" #cphc

Pfanderson @NYCPatient @SPINN_PHR @nxtstop1 @CHopeMurray complicated. Diff reqs for college

vs high school; diff needs, transition, diff skills #cphc

CHopeMurray @pfanderson @NYCPatient @SPINN_PHR @nxtstop1 a possible project for Groundcrew:

app for finding contributors + helping people in need #CPHC

CHopeMurray sadly Groundcrew app is no longer active, great idea that was luckily picked up

by @IPvoiceshttp://t.co/g9xw1PmqkE #cphc

nxtstop1 @NYCPatient @AutismMN UNC Chapel Hill's Teach Autism Program is legendary~started by

Eric Schopler in the 70's~ Educates and treats #CPHC

Alex Sensory:

GailZahtz Everyone meet @AlexSensory we had an INCREDIBLE radio show last night on #sensory I wastaking notes-he's going to have #CPHC channel!

nxtstop1 @GailZahtz @AlexSensory Gail can you give us little overview :) re the radio show #CPHC

GailZahtz I shall give you radio show and link to this week and I tweeted and @nxtstop1 feel

free to ask @AlexSensory directly! #CPHC

GailZahtz @AlexSensory @AutismSociety @atomikclimbing don't forget to add #CPHC to all

tweets- can you resend last one so all can see? TY!

nxtstop1 @GailZahtz @AlexSensory Thanks so much and @AlexSensory if you could enlighten us with

info from radio show~ #CPHC

GailZahtz Yes @nxtstop1 Please @AlexSensory do add in #CPHC and talk about all you shared!

GailZahtz @RoadWeveShared Can you share the fab page you've created on this week's programming?

and @ me so I can share ;-) TY! #CPHC

RoadWeveShared 1 for week http://t.co/J3Pq9LQTGt 1 for @AlexSensory

http://t.co/SxcR9N3Uwh @GailZahtz #CPHC

Sandyhubbard @AlexSensory Hi Alex - I am Sandy, co-moderator of #CPHC chat and an ardent for

access and design for all abilities and ages.

nxtstop1 @sandyhubbard @AlexSensory Yey Sandy, great goal/focus~ #CPHC
http://t.co/g9xw1PmqkEhttp://t.co/g9xw1PmqkEhttp://t.co/g9xw1PmqkEhttp://t.co/g9xw1PmqkE


11/14

GailZahtz Meanwhile @AlexSensory I hope you are talking and answering about #sensory of interest to

all! #CPHC

AlexSensory #SPD Self Regulation activity #CPHChttp://t.co/CahUrL8gcO

AlexSensory @AutismSociety #SPD #Autism #CPHC #RAIRSYMPOSIUM #Therapists welcome Feb 22-

23rd #Minnesotahttp://t.co/x6IRBmoKTd http://t.co/sWc3eUOBRr

AlexSensory Most #autism children have low muscle tone try this home activity for a therapeuticactivity #SPD #SI #CPHChttp://t.co/QC7n9yteXf

AlexSensory Before #CPHC had a #OT tx w/ 26 yr old male w/ #autism that crawled late & for only 2 wks

old just crawled 10 yrds x8 reps #SPD #therapy

AlexSensory Glad to have connected with all of you @AutismSociety #CPHC @GailZahtz

http://t.co/2u1ZAI8Yxb

AutismSociety us too! Thanks! RT @AlexSensory: Glad to have connected with all of you

@AutismSociety #CPHC @GailZahtzhttp://t.co/B33llJbS3B

Calendar of events:

GailZahtz We should make a calendar- or borrow one that's made on what each month is in health

awareness @pfanderson @RoadWeveShared #CPHC

Pfanderson @GailZahtz @RoadWeveShared Here you gohttp://t.co/Hw8c9QM3Br #health

#observances #cphc

Jenningshealth .@GailZahtz @pfanderson @RoadWeveShared Here's a list of national health

observances by month http://t.co/tu0wTzW2Q8 #cphc

Pfanderson @jenningshealth @GailZahtz @RoadWeveShared Same on. My favorite :)

#cphc

GailZahtz @pfanderson @jenningshealth @RoadWeveShared We'll need to get that up! Can go on

calendar area? #CPHC

Pfanderson @GailZahtz @jenningshealth @RoadWeveShared It's from the government, open to public.Absolutely #cphc

Pfanderson @GailZahtz @jenningshealth @RoadWeveShared I think there is a subscribable version

#cphc

Partnership:

GailZahtz I see the partnership idea getting Favorited by many in our group @AutismSociety ;-) And we

could help affiliates and April, etc #CPHC

GailZahtz Well @AutismSociety what do you think? Feeling an official partnership before the hour is up

;-) Always about making it happen at #CPHC

AutismSociety Let's do it! MT @GailZahtz: Well @AutismSociety what do you think? Feeling an

official partnership before the hour is up ;-) #CPHC

GailZahtz Done! RT @AutismSociety: Let's do it! MT @AutismSociety what do you

think? Feeling an official partnership before the hour is up ;-) #CPHC

GailZahtz No-one can say not much comes out of an hour at #CPHC so we can say we're honored to

announce a partnership with @AutismSociety
http://t.co/CahUrL8gcOhttp://t.co/CahUrL8gcOhttp://t.co/CahUrL8gcOhttp://t.co/x6IRBmoKTdhttp://t.co/x6IRBmoKTdhttp://t.co/x6IRBmoKTdhttp://t.co/sWc3eUOBRrhttp://t.co/sWc3eUOBRrhttp://t.co/QC7n9yteXfhttp://t.co/QC7n9yteXfhttp://t.co/QC7n9yteXfhttp://t.co/2u1ZAI8Yxbhttp://t.co/2u1ZAI8Yxbhttp://t.co/B33llJbS3Bhttp://t.co/B33llJbS3Bhttp://t.co/B33llJbS3Bhttp://t.co/Hw8c9QM3Brhttp://t.co/Hw8c9QM3Brhttp://t.co/Hw8c9QM3Brhttp://t.co/Hw8c9QM3Brhttp://t.co/B33llJbS3Bhttp://t.co/2u1ZAI8Yxbhttp://t.co/QC7n9yteXfhttp://t.co/sWc3eUOBRrhttp://t.co/x6IRBmoKTdhttp://t.co/CahUrL8gcO


12/14

GailZahtz We just announced @CreativityMoves a national partnership with @AutismSociety including

supporting affiliates #CPHC

CreativityMoves @GailZahtz Looks like it was a great chat! #CPHC

Jenningshealth Exciting! RT @GailZahtz: We just announced @CreativityMoves a national

partnership with @AutismSociety including supporting affiliates #CPHC

GailZahtz Yes @CreativityMoves we will have an announcement of the partnership bynext week and a by topic chat in next days #CPHC

CreativityMoves @GailZahtz Can't wait to hear more and talk tonight! Reading

through the stream right now :) #CPHC

Sandyhubbard You heard it here first, folks> #CPHC and @GailZahtz announces a national partnership

with @AutismSociety and their affiliates!

GailZahtz !! RT @sandyhubbard: You heard it here first, folks> #CPHC announces a national

partnership with @AutismSociety and their affiliates!

GailZahtz I truly didn't know when I woke this morning that we'd be joining ranks with @AutismSociety

& partners like @EasterSeals & affiliates! #CPHC

Fleuredeflorida Twitter magic! MT @GailZahtz: Didn't know when I woke this AM we'd be

joining w. @AutismSociety & partners @EasterSeals & affiliates! #CPHC

GailZahtz Yes! RT @fleuredeflorida: Twitter magic! MT Didn't know when I woke we'd

be joining @AutismSociety partners @EasterSeals affiliates! #CPHC

Exits:

JimCanto Time 4 me to step out. Thx for having me today. I welcome and value your connections.

Here's to the future!! - Jim a.k.a. @medxcentral #cphc

Sandyhubbard @JimCanto @medxcentral Thank you, Jim, for making time for #CPHC today. See

you soon :)

WeCan4Health Have to get going...but thanks to all! Worth a look for those who may have missed thischat as well! #CPHC

GailZahtz @WeCan4Health Thanks for coming! Keep up to date as we announce more on the

@AutismSociety partnership with their many partners #CPHC

Sandyhubbard @WeCan4Health Thank you, Bob, for lending your voice today! #CPHC

NatriceR #cphc @GailZahtz @sandyhubbard sorry I missed most of chat, glad to see #awareness

#autism as topic, good afternoon all!

SPINN_PHR Thanks everyone for the wonderful #CPHC chat about #Autism! Learned so much today!

Tons of great ideas and lots of input from participants

nxtstop1 A wonderful afternoon!~ Very informative/many refs re Autism and the tremendous outreach

efforts.Thanks so much Gail,Sandy and to All! #CPHC

GailZahtz Thank you! We're due for a chat @nxtstop1 to meet collaborative shared goals and

values!! #CPHC

AutismSociety Thanks for chatting today at #CPHC! RT @jenningshealth: Thanks for following!

@AutismSociety

Fleuredeflorida Whew! Now I start combing through the #CPHC feed to find folks! I'm the lady behind

@AutismSociety, so don't be surprised if I add you! :)


13/14

Sandyhubbard Not only are there resources today in #CPHC, there are ideas for engagement for any

non-profit or hc agency. Great chat!

Sandyhubbard Many #CPHC chatters work during the day but will review the stream later. Thesemessages and resources will extend reach over the week.

GailZahtz TY for the point @sandyhubbard Yes @AutismSociety we are much bigger than only

those who can make a week of chat #CPHC

Sandyhubbard Education, Awareness and Advocacy are what we excel in here at #CPHC :) @GailZahtz

@AutismSociety

GailZahtz Yes! RT @fleuredeflorida: RT @sandyhubbard: Education, Awareness and Advocacy

are what we excel in here at #CPHC :) @AutismSociety

GailZahtz So all- looks like a highly productive chat! We'll share information as @AutismSociety & us

have lots to work out- please give input! #CPHC

AutismSociety Thanks! MT @gailzahtz: So all- highly productive chat! We'll share information as

@AutismSociety & us work out- please give input! #CPHC

Fleuredeflorida Thanks! MT @gailzahtz: So all- highly productive chat! We'll share information

as @AutismSociety & us work out- please give input! #CPHC

GailZahtz As we grow our networks of hosts, community leaders & events ( LOTS to share all) please let

us know what works for YOU the #CPHC community

Fleuredeflorida #health #PR MT @gailzahtz: As we grow networks of hosts, community leaders

& events, plz let us know what works for YOU the #CPHC community

GailZahtz Looking forward to more this week! We have @CreativityMoves tonight, @autismmn Wed,

and hopefully a family member Thursday #CPHC

GailZahtz Thank you to our many FAB guests including @AutismSociety @autismMN @AlexSensory

@CreativityMoves @NMAutismSociety @ASAAlbanyNY #CPHC

AutismSociety Thank you! MT @gailzahtz: Thank you to FAB guests @AutismSociety

@AutismMN @AlexSensory @CreativityMoves @NMAutismSociety @ASAAlbanyNY #CPHC

AutismMN We're always looking for community partners to expand resources for folks w/ ASD,

and welcome all who want to discuss. Thanks! #CPHC

GailZahtz I am here, and we are ready to support the (cold) but friendly MN

contingency! #CPHC @AutismMN

Sandyhubbard Thank you to all who participated in #CPHC and learned about advocacy and education

from @AutismSociety and affiliates.

Sandyhubbard be sure to follow @GailZahtz for chat updates, info about her radio show and guests,

web resources for our #CPHC community, and much more!

GailZahtz that's a lot to follow! #grateful for you @sandyhubbard and so many who help us!

Follow http://t.co/N52YkLvH1W by @RoadWeveShared #CPHC

AutismSociety Thanks for talking #autism #partnerships with us and @AutismMN @NMAutismSociety

@ASAAlbanyNY on #CPHC chat today! @GailZahtz @sandyhubbard


14/14

Sandyhubbard Join us every TUESDAY at 1 pm ET for #CPHC chat - a vibrant, caring community with

much to say :)

GailZahtz Big #shoutout as always to @sandyhubbard who has been faithfully co-driving the chat for the

past year! Couldn't do it alone! So fast #CPHC

021114 autism society

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