1 presentation by mrs janet jacob psychiatric nurse & former homes manager for pilgrims friend...

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Presentation by Mrs Janet Jacob Psychiatric nurse & former homes manager for

Pilgrims Friend Society

Presentation by Mrs Janet Jacob Psychiatric nurse & former homes manager for

Pilgrims Friend Society

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Pilgrims Friend Society is 204 years old

Exists solely to serve older Christians

Began by providing pensions – long before the Welfare State (1807)

Offers residential, nursing, dementia care, sheltered housing, including ECH Shares experience and information with publications, seminars and conferences.

Pilgrims Friend Society is 204 years old

Exists solely to serve older Christians

Began by providing pensions – long before the Welfare State (1807)

Offers residential, nursing, dementia care, sheltered housing, including ECH Shares experience and information with publications, seminars and conferences.

Person Centred CarePerson Centred Care

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‘It is important to see the person first rather than the dementia’ – Tom Kirkwood

‘It is important to see the person first rather than the dementia’ – Tom Kirkwood

Each human face is unique, and so is each

human brain. Each person with Dementia is unique,

with very different experiences of life, with

their own needs and feelings, likes and dislikes.

Each human face is unique, and so is each

human brain. Each person with Dementia is unique,

with very different experiences of life, with

their own needs and feelings, likes and dislikes.

Caring for the person with dementiaCaring for the person with dementia


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Caring for the person with dementiaCaring for the person with dementia

Discover the personGive respect

Focus on their abilitiesEncourage expressions

Create community and trust

Discover the personGive respect

Focus on their abilitiesEncourage expressions

Create community and trust

Remember:-•The person is still the same.•Focus on the person not the dementia.•Good care depends on understanding and knowing.•Carers relationship is therapeutic in itself.

Caring for the care-giverCaring for the care-giver

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Despite our welfare system, the major role in care-giving

is still taken on by family members, very often an elderly spouse.

Despite our welfare system, the major role in care-giving

is still taken on by family members, very often an elderly spouse.

The person with dementia is not on this journey alone, the caregiver is walking beside

them.


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Caring for a person with dementia is different to other types of care giving, and is one of the most difficult

situations encountered by caregivers.

Caring for a person with dementia is different to other types of care giving, and is one of the most difficult

situations encountered by caregivers.

Usually 24/7

May involve 3 to 15 years of caring

2/3rds of people with dementia are cared for in their

own homes by a relative

At present there are 540,000 care givers

A new case is diagnosed every 3.2 minutes

Usually 24/7

May involve 3 to 15 years of caring

2/3rds of people with dementia are cared for in their

own homes by a relative

At present there are 540,000 care givers

A new case is diagnosed every 3.2 minutes


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Care givers experienceCare givers experience

Continuing losses

Anticipatory grief

Role captivity

Emotional

reactions

Continuing losses

Anticipatory grief

Role captivity

Emotional

reactions


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Importance of relationshipsImportance of relationships

•Avoid isolation

• Share the diagnoses

• Let the church family know

• Prepare for the future

• Anticipate your feelings

•Avoid isolation

• Share the diagnoses

• Let the church family know

• Prepare for the future

• Anticipate your feelings


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Care givers needsCare givers needs

•Empathy•Re-assurance•Time for self•Share the responsibility•Assessment of needs•Talk to others•Human contact•Spiritual encouragement

•Empathy•Re-assurance•Time for self•Share the responsibility•Assessment of needs•Talk to others•Human contact•Spiritual encouragement

The Spiritual JourneyThe Spiritual Journey

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‘I believe that people with dementia are making an important journey from cognition, through emotion, into spirit.

I’ve begun to realise what really remains through this journey is what is really important.

I think that if society could appreciate this, then people with dementia would be treasured and accepted’.

‘I believe that people with dementia are making an important journey from cognition, through emotion, into spirit.

I’ve begun to realise what really remains through this journey is what is really important.

I think that if society could appreciate this, then people with dementia would be treasured and accepted’.

Christine Bryden


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When you pass through the waters, I will be with you;

and when you pass through the rivers, they will not sweep over you.

When you walk through the fire, you will not be burned;

the flames will not set you ablaze. For I am the LORD your God,

the Holy One of Israel, your Saviour. Isaiah 43:2-3

When you pass through the waters, I will be with you;

and when you pass through the rivers, they will not sweep over you.

When you walk through the fire, you will not be burned;

the flames will not set you ablaze. For I am the LORD your God,

the Holy One of Israel, your Saviour. Isaiah 43:2-3

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Blessed are they who

understand

My faltering steps and

shaking hand.

Blessed, they who know my

ears today

Must strain to catch the

words they say.

Blessed are they with a

cheery smile

Who stop to chat for a while.

Blessed are they who never

say‘You’ve told us that story

twice today’.

Blessed are they who make

it known

That I am loved, respected

and not alone.

Blessed are they who

understand

My faltering steps and

shaking hand.

Blessed, they who know my

ears today

Must strain to catch the

words they say.

Blessed are they with a

cheery smile

Who stop to chat for a while.

Blessed are they who never

say‘You’ve told us that story

twice today’.

Blessed are they who make

it known

That I am loved, respected

and not alone.

1 presentation by mrs janet jacob psychiatric nurse & former homes manager for pilgrims friend...

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