13th european conference on epilepsy & society

“Break down the barriers and stand up for epilepsy”

w w w . e p i l e p s y a n d s o c i e t y . o r g

2013-02-2281-13thECES-Announcement Booklet-A5-INNER AND COVER-5.pdf 1 5/17/2013 5:57:07 PM

ORGANISING COMMITTEE Chair: Athanasios Covanis (Greece)

Committee : Michael Alexa (Austria) Victoria Dimech (Malta) Matevž Kržan (Slovenia) Janet Mifsud (Malta)Igor Ravnik (Slovenia) Seppo Sarkkula (Finland) Ljubica Vrba (Slovenia)

LETTER FROM THE CHAIR

Dear Friends,

On behalf of the Organising Committee, we are pleased to invite you to Ljubljana to attend the 13th European Conference on Epilepsy & Society, taking place from 28th-30th of August 2013.

The conference aims to inform people with epilepsy and their families, as well as those working in the field of epilepsy, about new developments in epilepsy treatment, associated cognitive dysfunction related to epilepsies and the psychosocial implications that derive from this common brain disorder and, of course, to provide solutions. The theme for this conference is “Break down the barriers and stand up for epilepsy”. Above all, this meeting will facilitate communication and exchange of ideas among people with epilepsy and professionals in the field, right across Europe. The programme includes morning plenary sessions and afternoon discussion groups with as much participation as possible by delegates. Special emphasis is being placed on Posters, so we would encourage you to prepare your latest work for submission.

We look forward to welcoming you to the beautiful city of Ljubljana for what is going to be an excellent gathering of wonderful people. In this way we believe we will not only increase our knowledge and understanding of epilepsy but we will also fulfil the goals of the International Bureau for Epilepsy.

v

Yours sincerely,

Athanasios CovanisChair IBE European Regional Executive CommitteeIBE President-elect

Organising Committee

2www.epilepsyandsociety.org


Programme at a Glance

3 www.epilepsyandsociety.org

Wednesday28th August 2013

Friday30th August 2013

Advocates for epilepsy workshop:

09:00 - 17:00

Opening Ceremony

19.00-20.00

Welcome Reception

19.00-20.00

Workshop: Making the most of

European Epilepsy Day

16:15-17:00

Closing of conference

17:00

Coffee Break : 15:00-15:30

Lunch : 13:30-15:00

Panel Discussion: Epilepsy care in Europe;

where are we after the European Written Declaration?

14:00-15:45

Lunch & Poster Presentations : 13:00-14:00


Lunch : 12:30-13:30

Beyond seizures and medication

13:30-15:00

Conference Opening 08:45-08:50

DEBATE: Representations of epilepsy in popular culture break down stereotypes

08:50-09:35

What are the alternatives when drugs don’t work?

09:35-10:25

What are the alternatives whendrugs don’t work? (continued)

10:55-12:30


Social media

08:00-09:00

Women and epilepsy

09:00-10:00


Switching brands: what are the issues?

10:30-11:45

Epilepsy care in Europe

11:45-13:00

Introduction by Chair- Epilepsy networks

- Epilepsy seizures and syndromes- Seizure observation

- Case reports

09:00-11:00

- Acute management of seizures- Risk of seizures and safety measures

- Comprehensive epilepsy care

11:30-13:30

- Epilepsy & everyday activities (sports, driving, work place and travel)

- Risk factors for the development of cognitive problems in

persons with epilepsy- Raising awareness and contributing

to better epilepsy research- Conclusion – How can I be a better

advocate?

15:00-17:00

Thursday29th August 2013

Group Session(Group A)

Joining Forces

15:30-16:15

Group Session(Group B)

Employment and Epilepsy

15:30-16:15Group Session

(Group B)Joining Forces

16:15-17:00

Group Session(Group A)

Employment and Epilepsy

16:15-17:00



www.epilepsyandsociety.org

WEDNESDAY 28th AUGUST 2013

THURSDAY 29th AUGUST 2013

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dDEBATE: Representations of epilepsy in popular culturebreak down stereotypes. Moderator: Athanasios Covanis (Greece) For the motion: Philip Lee (UK)Against the motion: Rick O’Shea (Ireland)

What are the alternatives when drugs don’t work? Chair: Matevž Kržan (Slovenia)

Ketogenic diet Helen Cross (UK)

Vagal nerve stimulation and deep brain stimulation Christian Elger (Germany)

Problems of drug compliance and adherence in epilepsy Martin Brodie (Scotland)

Is everyone with epilepsy suitable for surgery? Natalija Krajnc (Slovenia) and Bogdan Lorber (Slovenia)

The future of drug development Meir Bialer (Israel)

Beyond seizures and medication Co-chairs: Ivan Bielen (Croatia) and Svetlana Simic Klobucaric (Slovenia)

Epilepsy: science and superstition Peter Wolf (Denmark) Epilepsy and cognition Does epilepsy affect memory and cognition? Reetta Kälviäinen (Finland)

What is the role of epilepsy support groups? Marietta Remoundos (Greece)

Panagiota Nasiopoulou (Greece)

Building networks - Working with other organisations Michael Alexa (Austria)

Henrik Peersen (Norway)

Employment and Epilepsy Co-chairs: Athanasios Covanis (Greece) and Sari Tervonen (Finland)

Employment in the open labour market Sari Tervonen (Finland) Dare Troha (Slovenia)

Programme



DEBATE: Representations of epilepsy in popular culturebreak down stereotypes. Moderator: Athanasios Covanis (Greece) For the motion: Philip Lee (UK)Against the motion: Rick O’Shea (Ireland)

What are the alternatives when drugs don’t work? Chair: Matevž Kržan (Slovenia)

Ketogenic diet Helen Cross (UK)

Vagal nerve stimulation and deep brain stimulation Christian Elger (Germany)

Problems of drug compliance and adherence in epilepsy Martin Brodie (Scotland)

Is everyone with epilepsy suitable for surgery? Natalija Krajnc (Slovenia) and Bogdan Lorber (Slovenia)

The future of drug development Meir Bialer (Israel)

Beyond seizures and medication Co-chairs: Ivan Bielen (Croatia) and Svetlana Simic Klobucaric (Slovenia)

Epilepsy: science and superstition Peter Wolf (Denmark) Epilepsy and cognition Does epilepsy affect memory and cognition? Reetta Kälviäinen (Finland)

What is the role of epilepsy support groups? Marietta Remoundos (Greece)

Panagiota Nasiopoulou (Greece)

Building networks - Working with other organisations Michael Alexa (Austria)

Henrik Peersen (Norway)

Employment and Epilepsy Co-chairs: Athanasios Covanis (Greece) and Sari Tervonen (Finland)

Employment in the open labour market Sari Tervonen (Finland) Dare Troha (Slovenia)

FRIDAY 30th AUGUST 2013Early Morning Session – Day 2

Social Media Case Study Mark Morton (Epilepsy Action UK)

How to apply Social Media with effect and affection Ruud Janssen (Switzerland)

Case Study Isabella Platon (International Diabetes Federation)

Women and Epilepsy Chair: Athanasios Covanis (Greece)

Torbjörn Tomson (Sweden) Person With Epilepsy (name to be confirmed)

Switching Brands: what are the issues? Co-chairs: Martin Brodie (Scotland) and Victoria Dimech (Malta)

Giuseppe Capovilla (Italy) and Person With Epilepsy (name to be confirmed)

Epilepsy Care in Europe Co-chairs: Athanasios Covanis (Greece) and Igor Ravnik (Slovenia)

Speakers: Ivan Bielen (Croatia), Alla Guekht (Russian Federation), Igor Ravnik (Slovenia), Cristina Stuiver (Portugal), Torbjörn Tomson (Sweden), Person With Epilepsy (name to be confirmed)

Poster Presentations Posters will be presented during the lunch break

Workshops

Panel Discussion: Epilepsy care in Europe: where are we after the European Written Declaration Co-chairs: Athanasios Covanis (Greece) and Igor Ravnik (Slovenia)

Panel: Ivan Bielen (Croatia), Mike Glynn (Ireland), Alla Guekht (Russian Federation), Janet Mifsud (Malta), Cristina Stuiver (Portugal), Torbjörn Tomson (Sweden), Person With Epilepsy (name to be confirmed)

Making the most of European Epilepsy Day Co-chairs: Ann Little (Ireland) and Sonia Martial (France) Reetta Kälviäinen (Finland) Jelko Kacin MEP (Slovenia)

Close of conference: Athanasios Covanis (Greece)

Programme



ADVOCATES FOR EPILEPSY WORKSHOP

Advocates for Epilepsy is an exciting new workshop concept, designed to raise awareness and improve patient care through collaborative practice. This workshop, which is supported by the ILAE Commission on European Affairs and the International Bureau for Epilepsy, will take place on the 28th of August, prior to the 13th European Conference on Epilepsy & Society. The workshop is planned to be highly interactive and will be an excellent learning experience for all participants. Due to limited space, attendees are encouraged to register early.

Who should attend: This workshop will appeal to nurses, people with epilepsy, allied health professionals, carers, psychologists,neuropsychologists, physiotherapists, social workers and teachers.

Why attend: Participants will learn how to develop strategies to help them better understand and support the individual living with epilepsy, using a person-centred approach. Topics will be presented by a range of experts in the field, and participants will be actively involved through question-and-answer sessions and group discussions. Learning objectives: This workshop will address several important areas of epilepsy research, highlighting problems and concerns, and proposing methods to overcome them, with a view to raising awareness and promoting epilepsy research. Participants will gain a practical knowledge of how to become better advocates for people with epilepsy.

Topics for discussion:

• Epilepsy networks• Epilepsy seizures and syndromes• Seizure observation• Case reports• Acute management of seizures• Risk of seizures and safety measures• Comprehensive epilepsy care• Epilepsy everyday activities (sports, driving, work place and travel)• Risk factors for the development of cognitive problems in persons with epilepsy• Raising awareness and contributing to better epilepsy research• How can I be a better advocate?

Workshop registrationAll delegates under 35 years of age and delegates from Albania, Estonia, Georgia, Macedonia, Serbia, Russian Federation, Moldova, Ukraine and Bulgaria are entitled to free registration. As space is limited, please register via the registration system to ensure your place is reserved. The registration fee for all other attendees is 25 euro.

To register to attend the “Advocates for Epilepsy workshop” please visit:www.epilepsyandsociety.org/registration


Advocates for epilepsy workshop


ADVOCATES FOR EPILEPSY WORKSHOP

Advocates for Epilepsy is an exciting new workshop concept, designed to raise awareness and improve patient care through collaborative practice. This workshop, which is supported by the ILAE Commission on European Affairs and the International Bureau for Epilepsy, will take place on the 28th of August, prior to the 13th European Conference on Epilepsy & Society. The workshop is planned to be highly interactive and will be an excellent learning experience for all participants. Due to limited space, attendees are encouraged to register early.

Who should attend: This workshop will appeal to nurses, people with epilepsy, allied health professionals, carers, psychologists,neuropsychologists, physiotherapists, social workers and teachers.

Why attend: Participants will learn how to develop strategies to help them better understand and support the individual living with epilepsy, using a person-centred approach. Topics will be presented by a range of experts in the field, and participants will be actively involved through question-and-answer sessions and group discussions. Learning objectives: This workshop will address several important areas of epilepsy research, highlighting problems and concerns, and proposing methods to overcome them, with a view to raising awareness and promoting epilepsy research. Participants will gain a practical knowledge of how to become better advocates for people with epilepsy.

Topics for discussion:

• Epilepsy networks• Epilepsy seizures and syndromes• Seizure observation• Case reports• Acute management of seizures• Risk of seizures and safety measures• Comprehensive epilepsy care• Epilepsy everyday activities (sports, driving, work place and travel)• Risk factors for the development of cognitive problems in persons with epilepsy• Raising awareness and contributing to better epilepsy research• How can I be a better advocate?

Workshop registrationAll delegates under 35 years of age and delegates from Albania, Estonia, Georgia, Macedonia, Serbia, Russian Federation, Moldova, Ukraine and Bulgaria are entitled to free registration. As space is limited, please register via the registration system to ensure your place is reserved. The registration fee for all other attendees is 25 euro.

To register to attend the “Advocates for Epilepsy workshop” please visit:www.epilepsyandsociety.org/registration


EARLYOn or before the 31st May 2013 200 EUR

LATE1st June – 16th August 2013 250 EUR

ON-SITE at the Conference 260 EUR

NOTE: The on-line pre registration system will close on Friday 16th August 2013.

CANCELLATION FEES:

On or before 14th June 2013 Registration fees refunded less 10%

On or before 28th June 2013 Registration fees refunded less 40%

On or before 26th July 2013 Registration fees refunded less 60%

On or before 16th August 2013 Registration fees refunded less 80%

From 17th August 2013 No refunds

REGISTRATION INFORMATIONOnline registration is now available on the official conference website www.epilepsyandsociety.org Reduced registration fees are available until Friday 31st May 2013. Please contact [email protected] with any registration enquiries.

Registration to the conference includes the following:• Access to the conference sessions on Thursday 29th August, and Friday, 30th August 2013. • Access to the exhibition area during the conference.• Coffee breaks and lunches on Thursday 29th August, and Friday, 30th August 2013.• 13th ECES Opening Ceremony on 28th August 2013.

REGISTRATION FEES :


Registration Information


BURSARIES

The conference will provide assistance towards travel, accommodation and registration for a limited number of lay delegates from local organisations or working with people with epilepsy (PWE). Bursaries will be granted on the basis of a short written statement, which may be submitted by post, e-mail or fax to the Conference Secretariat. Following the 13th European Conference on Epilepsy & Society, successful applicants will be required to provide a brief written report about their experiences of and opinions on the conference.

The deadline for applications is Monday 8th July 2013. For further details and to download the application form please go to www.epilepsyandsociety.org.

POSTER PRESENTATIONS

Submissions are now invited for posters to be displayed during the conference. Posters discussing social aspects of epilepsy or detailing the work of national member associations are welcome. The deadline for receipt of poster submissions is Monday 8th July 2013.

Guidelines for the presentation of posters are available on the conference website.www.epilepsyandsociety.org.

IMPORTANT DATES FOR YOUR DIARY

Date Event

31st May 2013 Early Registration deadline

8th July 2013 Bursary Applications deadline

8th July 2013 Poster Submission deadline

16th August 2013 Late Registration deadline

28th August 2013 Onsite Registration open

28th – 30th August 2013 13th European Conference on Epilepsy & Society


General Information



ABOUT LJUBLJANA

Besides having everything that all other modern capitals have, Ljubljana succeeds in maintaining the relaxed atmosphere of a small city. This picturesque and very vibrant city is full of surprises. Though it is classified as a mid-sized European city, Ljubljana has preserved its small-town friendliness and relaxed atmosphere while providing all the facilities of a modern capital. The official language of Slovenia is Slovene, however English is widely spoken in Ljubljana. Other languages spoken in Ljubljana are Serbo-Croatian, German, French, Hungarian, Italian and Spanish.

The official language of the conference is English.

VENUEThe venue for the 13th European Conference on Epilepsy & Society is the Cankarjev Dom in Ljubljana, Slovenia.

Cankarjev dom, Kulturni in kongresni center, Prešernova cesta 10, SI-1000 Ljubljana

ACCOMMODATION Accommodation in Ljubljana can be booked via hotel e-mails (found on www.epilepsyandsociety.org) and should have the notification “Epilepsy 2013”. Bookings should be made no later than 28th July 2013. As the number of rooms available for the Conference is limited, your choice of hotel cannot be guaranteed after that date.

For a full list of hotels, please log on to www.epilepsyandsociety.org/accommodation


General Information


EXHIBITION

A trade exhibition will run in conjunction with the conference offering delegates the chance to learn the latest developments in products and services. Companies interested in exhibiting at the conference are kindly requested to contact the Exhibition Manager as soon as possible at the address below:

Exhibition Manager13th European Conference on Epilepsy & SocietyIBE/ILAE Congress Secretariat7 Priory Hall, Blackrock, Co. Dublin, IrelandE-mail: [email protected].: +353 1 2056720Fax: +353 1 2056156

ACCESSIBILITY

Airlines

Star Alliance has been appointed as the official airline network for the 13th European Conference on Epilepsy & Society. For more information on how to avail of discounted rates please visit www.epilepsyandsociety.org/general-information/transport/


General Information


EUROPEAN EPILEPSY DAY

Monday 10th February 2014

A date for

next year’s diary!

eedEUROPEAN EPILEPSY DAY

4

Organised by the ILAE/IBE Epilepsy Advocacy Europe Task Force Celebrated by national epilepsy associations across Europe

Supported by European Advocates for Epilepsy MEP special interest group


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13th european conference on epilepsy & society

Documents

epilepsy workshop

field of epilepsy

epilepsy treatment

representations of epilepsy

epilepsy society

european epilepsy day

coffee break

european conference