2011 Annual Report4237 Salisbury Road, Suite 406, Jacksonville, FL 32216

www.nationalMSsociety.org/fln

We are Unstoppable

We are people who want toDO something about MS NOW.

Who is the National Multiple Sclerosis Society?The National MS Society is a collective of passionate individuals who want to do something about MS now—to move together toward a world free of multiple sclerosis. MS stops people from moving. We exist to make sure it doesn’t.We help each person address the challenges of living with MS through our 50-state network of chapters. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.•We are moving research forward by relentlessly pursuing prevention, treatment and cure. •We are moving to reach out and respond to individuals, families and communities living with multiple sclerosis. •We are moving politicians and legislation to champion the needs of people with MS through activism, advocacy and influence. •We are moving to mobilize the millions of people who want to do something about MS now.

The North Florida ChapterThe North Florida Chapter is one of a network of nationwide chapters that represent the National MS Society. Founded in 1973 the chapter offers education, support and wellness programs to people living in a 34-county area from Jacksonville in the east, south to Gainesville, and west to Pensacola. The chapter serves more than 3,000 people who live with MS, as well as their families, friends, caregivers, and health care providers. The chapter engages individuals who want to do something about MS now through its volunteer and advocacy activates. In 2011 the chapter raised $2,113,992 to do something NOW about MS. This is a 6.4% increase over last year.

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ProgramsMS stops people from moving. The National MS Society exists to make sure it doesn’t. We help each person address the challenges of living with MS every day through the programs and services of the North Florida Chapter.

•The Chapter offered emotional support for people living with MS and their families through 14 area support groups and peer telephone support volunteers. These support programs offer many avenues for encouragement, information,and an opportunity to build new relationships.

•The Chapter’s Financial Assistance Program was designed to bring meaningful financial assistance to people living with MS, with emphasis on helping maintain their independence, safety, health and quality of life. In 2011, the Chapter spent more than $45,000 and leveraged an additional $20,000 in community resources to help people with MS receive short-term home care and respite services, medical equipment, home and auto modifications and wellness support.

We are a driving force of MS research, relentlessly pursuing

prevention, treatment, and cure.

Research

We are a driving force of MS research and treatment to stop disease progression, restore function, and end MS forever. The National MS Society supports and funds research activi-ties spanning all research stages, including early discovery research, translational research that brings promising ideas forward into actual therapeutic solutions for testing, and clinical trials. Our unique approach drives the pursuit of all promising avenues that can impact those living with multiple sclerosis.

In 2011 the North Florida Chapter contributed more than $778,000 to research, more than 50% more than last year’s research contribution. The Chapter also earmarked $75,000 for a clinical fellowship for an emerging MS specialist, and $50,000 for the national Stepping Stones financial assistance program.

We address the challenges of each

person whose life is affected by MS

• Over100 children from across Florida attended Kids Camp, a weekend retreat for children ages 7-13 who have a close relative with MS. Kids Camp featured swimming, canoeing, arts and crafts and other camp activities. Kids also participated in the “MS Experience,” an interactive educational activity facilitated by licensed mental health counselors which simulates symptoms of MS.

•Having a healthy relationship is hard work even in the best of times. MS can sometimes make it even harder. 40 couples from North Florida attended a weekend retreat designed to help them to reconnect and strengthen their relationship, meet other couples living with the disease and enjoy a relaxing weekend together.•The Chapter hosted the fifth annual Women’s Retreat for 115 women living with MS in North Florida. Women are significantly more likely to be diagnosed with MS than men. This retreat was an opportunity to bond with other women living with MS, learn more about the disease, connect with healthcare professionals and enjoy a fun weekend.

•Yard work, household repairs, moving furniture, scrubbing windows, de-cluttering the house, painting, organizing, pressure washing, and heavy cleaning are some of the projects that were completed throughout the year during MS Service Day. Over 175 volunteers donated their time and skills to 25 very grateful homes whose disability prevents them from doing it themselves.

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AdvocacyWe have much to celebrate in the area of advocacy this year. This year we worked collaboratively to urge the continued inclusion of all MS disease modifying drugs on the preferred Medicaid drug list. Now, all MS drugs are on the preferred drug list. Each year this is reviewed by the Florida Agency for Health Care Administration.In a statewide effort, the Chapter joined efforts with other organiza-tions to educate our state legislators on the adverse effects of slash-ing Medicaid programs to our vulnerable population. The Florida chapters serve 30,000 MS clients every day. Approximately 10-15% of those persons rely on Medicaid for healthcare and financial as-sistance. With the shift towards a statewide managed care Medicaid plan, our primary concern remains the need for thorough access to MS specialists. Secondly, we remain concerned about keeping the out-of-pocket fees low for our population who already pay $1,500 to $2,000 each month for their disease modifying drugs. Lastly, we strongly encour-aged the House and Senate to adopt a Community Based Care plan for Long Term Care options. For our MS clients who desire to return to work, however cannot risk losing Medicaid benefits, we strongly encouraged the House and Senate to look at how Florida can adopt the “Medicaid Buy-In” program.feeds, district visits with both the state and federal elected officials in the chapter region as well as Governmental Relations Conference (GRC) Calls with advocates.Looking forward to FY 12 brings more opportunities with a full-time staff person on the ground and the joys of an election year with new possibilities.

We are activists.

Volunteers

This year, more than 1025 Volunteers across the North Florida Chapter came together to be servant leaders. Whether it was installing a handrail during MS Service Day, or an early morning of loading luggage for all cyclists before the start of Bike MS: PGA TOUR Cycle to the Shore, every volunteer has made a long-lasting impression on those af-fected by MS. Volunteers are more than devoted servants; they are advocates, fundraisers, and the driving force be-hind the movement of The National MS Society. The North Florida Chapter had the pleasure of honoring the following individuals, corporations and partners at this year’s annual meeting:

2011 Annual Meeting Awards and Winners:

Team Black: Volunteers of the Year

Everbank: Corporation of the Year

Tina Butterfield: Partner in Hope

Bruce Reid and Linda Bushong-Reid: Fundraisers of the Year

Madison Yearwood & Phillip Lynch: Caregivers of the Year

Jeff Lott: Past Board Chair Award

We mobilize the talents and resources of people who want to do something about MS NOW.

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These honorees go above and beyond by donating their time, energy, and talents to the North Florida Chapter of the National MS Society.

We truly salute and thank our numerous volunteers, board members, and community partners for making efforts in creating a world free of MS.

At year end we can say that the Medicaid Managed Care Plan is still in review with the US Dept of Health and Human Services. FY 12’ should bring new directives from HHS as to how to proceed with the Managed Care proposal and Medicaid Pilot Programs.

Moving on to Federal efforts, the Chapter took the largest contingency to the Public Policy Conference and Hill Visits with our Congressmen and women. Seven North FL advocates participated in 15 visits with our Representatives. Follow-up visits during Congressional Recess in the summer were also completed to continue an on-going line of communication year round.

Year round advocacy efforts include website updates, social media

Walk MS

Walk MS is our rallying point, a time and a place for us to stand together and to be together — to help raise critical funds that support cutting edge research, drive change through advocacy, facilitate professional education and provide programs and services to help people with MS move their lives forward. In 2011, Walk MS North Florida held 6 walks across the state and welcome over 2000 walkers. Teams held fundraising parties, wrote letters to friends and even sold baked goods collectively raising over $225,000 for Walk MS! Consider joining Walk MS in 2011 and become part of the fun! Because every movement you make and every dollar you raise supports the mission to create a world free of MS.

Top 10 Fundraisers Sinoma Brown $6450Brenda Wells $3922.58Lisa Shaw $2875Julie Henderson $2720Cari Shaw $2700William Miller $2630Stephanie Wright $2575Tony Harbin $2095Amy Jones $1991Randy Miller $1970

Top 10 TeamsMiller Clan $9,970Goldring Gulf Drowns MS $9,658.98JAX MS & Neurology Clinic $7,010.99Walmart Distribution $5,250Determined Dragons $5,126Team DreaMS $4,703JuST $4,509.80Shaw ‘Nuff $3,845Team Shaw $3,832.80Team Stonewood $3,688

Development

2011 was another record-breaking year for fundraising for the North Florida Chapter. We celebrated our 25th anniversary PGA TOUR Bike MS: Cycle to the Shore with a new finish line in Daytona Beach. The momentum for Mud Run continues, with incredible growth in its 3rd year. This event, which started with the Society in Jacksonville, is now a major national initiative for the Society. Walk MS, the On the Move Luncheon, and the individual giving campaign also contributed to our success, allowing us to make our single largest contribution to MS research to date, over three quarters of a million dollars. We value the strong commitment of our valued corporate partners including: PGA TOUR, Suddath, Kangaroo Express, Wells Fargo, Sam’s Club, Ring Power, Solantic and the Donald C. McGraw Foundation.

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Top 10 Teams

Kangaroo Express Team $178438.50Mayo Clinic Bike Team $81030.56Team PGA TOUR $76392Team Citi $52822.99Big Bananas $52402.99Team CSX $49062Cody’s Challenge $46964.76Team Prowler $36626.56Team Plan B $31181Team Arizona $25564.98.

Bike MS 2011 was the 25th Anniversary of Bike MS: PGA TOUR Cycle to the Shore. For cyclists and all those seeking a personal challenge and a world free of MS, Bike MS is the premier fundraising cycling series in the nation. With more than 100 extraordinary rides, the Bike MS experience is the ride of your life. Locally, Bike MS: PGA TOUR Cycle to the Shore has taken the corporate community by storm. With more than100 teams, Tent Village is a who’s who of corporate Jacksonville. Being on a team is an opportunity to share a great experience with friends, family members or co-workers — a community coming together for a shared common goal. A team consists of four or more people who join the movement together. Collectively Teams and Individuals cyclists raised over $1,100,000 in 2011.

Top 10 Fundraisers 1.Robert Gillham $15,130.002.Neil Jordan $13,230.003. Pat Heeley $12,151.004. Yosief Ghirmai $12,083.505. Paul Moody $11,864.256. Timothy Cuneo $11,809.647. Ken Artell $11,512.508. Tim Hawes $11,275.009. Charles Sowers $11,005.0010. Mike McCullough $10,900.00

Top 10 Teams 1. Kangaroo Express $258,319.252. Team PGA TOUR $59,271.633. Big Bananas $56,916.094. Team CSX $47,590.505. Mayo Clinic Bike Team $42,430.136. Team Citi $31,800.127. Team Arizona $24,042.488. Blue Cross Blue Shield of Florida $22,616.329. Cody’s Challenge $22,322.0010. Team Gainesville $21,226.00

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Mud Run MS Runners got dirty for a good cause on Saturday, March 26, 2011, as they sloshed their way toward a world free of MS in the third annual Mud Run MS Jacksonville, a 10K bootcamp-style obstacle course gushing with mud. Mud Run MS Jacksonville, presented by Suddath, is one of the National Multiple Sclerosis Society, North Florida Chapter’s main annual fundraisers. The run took place at the Equestrian Center in Jacksonville, Florida, attracting over 3,700 runners ranging from military members and serious athletes to thrill-seeking civilians. The course ended in a giant mudslide with Jacksonville Fire & Rescue on standby to hose down participants. Bystanders watched their friends and family—sometimes decked out in costume—get muddy within a lively festival atmosphere. The run raised $500,000 for MS research, funding and chapter programs and services.

Top 10 Teams Dirt Dobbers - $4,860Mud Up Wit Dat - $3,913MUDDERFUNKERS - $3,675MUDstache Riders - $3,446Mud Bags - $3,153Eyegasms - $3,059CrossFit Ponte Vedra - $2,816BAC Mud Bogging Bankers - $2,480Duval’s Dirty Damsels - $2,417Manly Men of Monterey Street - $2,340Doc’s Dirty Dogs - $2,275

Top 10 Fundraisers Cheryl Russell - Team Mud Up Wit Dat - $3,095David Coxwell - Team Dirt Dobbers - $2,650Tamara Steinle - Team Duval’s Dirty Damsels - $2,150Michael Nicoles - Team Manly Men of Monterey Street - $1,785Keith Faver - Team Dirty Intent - $1,325Danielle Fedor - Team CrossFit Ponte Vedra - $1,210 John Burger (2010 & 2011) - Team Mud Ducks - $1,200Cameron Keane - $1,200 Jim Lanier (2010 & 2011) - Team Mud Puppies - $1,160 Jennifer Newell (2010 & 2011) - Team Mudder Truckers - $1,145 Julie Ward - Team MUDstache Riders - $1,140Kris Amatuli - Team CrossFit Ponte Vedra - $1,125Elisa Rosemond - Team Mud Dawgs - $1,076

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The Golden Circle today

The Golden Circle program is the prestigious individual giving program recognizing the leadership and commitment of those giving annual gifts of $1000 or more. The Golden Circle provides invaluable assistance to more than 18,000 people living with MS and affected by MS in the North Florida Chap-ter’s 34-county area. Make your mark on MS today! When you join the Golden Circle with an annual gift of $1,000 or more, you will directly impact the MS community through critical research and local services. The Golden Circle honors compassionate donors and leaders in the movement to end MS. It is the best way to make a difference in moving

us closer to a world free of MS.

commitment of those giving annual gifts of $1000 or more.

Your Commitment to Join the MovementThe Golden Circle provides invaluable assistance to more than 18,000 people living with MS and affected by MS in the North Florida Chapter’s 34-

1. C.F. Abbott 2. Robin Ambrose3. Mike Ammiano4. Drs. Megan & Kevin Barrett5. Andrew Bottroff6. Andy Bragg7. Margaret Brown8. Patricia Burnett9. Roger & Kathy Dominey10. Bob Doughty11. Gregory Draxl12. Jane Estes13. Greg Euston14. William Eyler15. Kevin Flannigan16. Tom Gibson17. Robert Gillham18. Russell Grice19. Howard Halle20. William and Donna Knauer21. Teresa LaCivita22. Jennifer Lee

23. Tom Mackin24. Dr. Richard McCauley, Sr.25. Danielle McCranie26. Mac McGehee27. Danielle McIntosh28. Drs. Barbara & Matt McLellan29. Alex and Joann Meyer30. Margee and Peter Michaelis31. Kathleen Miller32. Randy Miller33. Pete Mitchell34. Paul and Pam Moody35. Chris Navarro36. Mitch and Jan Owens37. Jeff and Debbie Parker38. James Pyle39. Bruce and Linda Reid40. Shirley Reinstine41. Dr. Harry Reinstine, Jr.42. John Shields II43. Robert Shircliff44. Dr. Thomas Snyder

45. Walter Steele46. Henry Stevenson47. Harold Tool48. Walter Steele49. John Tyrell50. Thomas Walter51. Martin Wander

Thank you to our Charter Golden Circle MembersCause Your gift enables us to dedicate money to help people with multiple sclerosis get the support they need.

CareYour gift helps to fund client programs that provide critical knowledge and improve the lives of those with MS to ensure inde-pendence and to optimize quality of life.

Cure Your gift supports dedicated researchers who are seeking the cause, treatment and cure for MS

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13Fiscal Year 2011 Financial Report

The following figures represent Chapter revenue and expenses for the 2011 fiscal year, October 1, 2010 to September 30, 2011. The National Multiple Sclerosis Society, North Florida Chapter is a non-profit 501(c)(3) organization.

2011 Chapter Expenses

2011 Chapter RevenueTotal Public Support: $2,113,992

2011 Board of Trustees

Jeff Lott – ChairDwight Cooper – Immediate Past ChairJulia Edmonston – TreasurerKevin Flanigan – SecretaryJane Estes – Audit ChairMitch Owens – Development ChairDan Baker – Government Relations Committee Chair

Mike Ammiano Andy BraggMarc JacksonHoward HalleLisa HathawaySam KouvarisMargee MichaelisPete MitchellPaul MoodyKelli O’LearyWalt Pfeil

Bruce ReidDr. Tom SnyderWalter SteelHarold ToolJohn TyrrellTom WadeMartin Wander

Jeff Lott

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35%

31%

15%

14%

5%

Chart TitleResearch Programs & Services National Programs

Fundraising Operations

90%

9%

1%

Chart TitleSpecial Events Membership Contributions Workplace Giving