2017 NATIONAL NET PATIENT

CONFERENCE

April 21 - 22, 2017 Westin Harbour Castle

1 Harbour Square Toronto, Ontario

Photo:TourismToronto

Welcome to the 2017 National NET Patient Conference!

A Time of HOPE: Healing, Opportunities, Patient Resources and Education

CONFERENCE OBJECTIVE To give NET cancer patients hope by showcasing the latest diagnostics, and treatments that will improve their quality of life and longevity. The conference will focus on change: how far we have come in the last five years and where we are headed for the next five.

CONFERENCE DELEGATES AND PRESENTERS Conference delegates will include over 100 NET patients, patient leaders, caregivers and their families from across Canada. Our presenters are all the top multidisciplinary NET specialists from across the country, as well as other related health care professionals with an interest in NET cancer.

CONFERENCE PROGRAMME The conference programme includes state-of-the-art topics and presentations on NET cancer diagnosis and treatment in the Canadian context.

2017 NATIONAL NET PATIENT CONFERENCE

FACULTY Dr. Sylvia Asa

Dr. Tim Asmis

Dr. Jean-Mathieu Beauregard

Dr. Steve Burrell

Dr. John Buscombe

Dr. Cynthia Card

Dr. Elizabeth David

Ms. Ann-Britt Everett

Dr. Shereen Ezzat

Dr. Daryl Gray

Dr. Julie Hallet

Ms. Jackie Herman

Dr. Hagen Kennecke

Dr. Kim Raymond

Dr. David Laidley

Dr. Calvin Law

Dr. Eric Liu

Dr. Sandy McEwan

Dr. Ian McGilvray

Dr. Ozgur Mete

Dr. Amol Mujoomdar

Ms. Sharon Needham

Dr. Janice Pasieka

Dr. Trevor Pugh

Dr. Daniel Rayson

Dr. Dean Ruether

Prof. Girish Shah

Dr. Simron Singh

Dr. Eric Turcotte

Dr. Jean-Luc Urbain

Dr. Rebecca Wong

CANM/CNETS CANADA JOINT SESSION Dr. John Buscombe

Ms. Jackie Herman

CNETS CANADA PATIENT EDUCATION DAY Ms. Jackie Herman

CNETS CANADA BOARD OF DIRECTORS Ms. Jackie Herman – President

Dr. Jean-Luc Urbain – Vice-President

Mr. Vernon Holt – Secretary / Treasurer

Ms. Amanda Rice

Prof. Girish Shah

Mr. Chris Silvestre

Ms. Silvia Steinhilber

SCIENTIFIC & MEDICAL ADVISORY BOARD Dr. Girish Shah – Co-Chair

Dr. Jean-Luc Urbain – Co-Chair

Dr. Sylvia Asa

Dr. Jean-Mathieu Beauregard

Dr. Hagen Kennecke

Dr. Dean Ruether

CONFERENCE ORGANIZING COMMITTEE Amanda Rice – Chair

Sue Folinsbee

Jackie Herman

Hélène Samson

Enrico Mandarino

2017 NATIONAL NET PATIENT

CONFERENCE

April 21 - 22, 2017

AGENDA

12:00 – 1:00 LUNCH

Chairs: Jackie Herman & Dr. John Buscombe

1:00 – 1:15 Welcome and Introduction to CNETS Canada

Jackie Herman, President

1:15 – 1:30 Research

Highlights of research projects funded by CNETS Canada and outcomes Prof. Girish Shah

1:30 – 2:00 Past and Current Research Initiatives

Exploring new ways to treat gastrointestinal and pancreatic NETs Dr. Trevor Pugh

The PET NET Study: impact of 68Ga-DOTA-TOC and 18F-FDG PET/CT on multimodal management among NET patients Dr. Hagen Kennecke

PARP-inhibitor radiosensitization in 177Lu-octreotate PRRT of neuroendocrine tumours Dr. Jean-Mathieu Beauregard

2:00 – 2:15 Patient Perspective

Impact of PRRT on a Patient Journey Ann-Britt Everett

2:15 – 2:30 BREAK

2:30 – 3:10 The Clinical Impact of Ga68 Somatostatin Receptor Scintigraphy

Dr. Eric Liu

3:10 – 3:25 Ga68 Clinical Trial

Dr. Eric Turcotte

3:25 – 4:25 PRRT in Canada

The Cross-Cancer Institute Experience Dr. Sandy McEwan The London Health Sciences Centre Experience Dr. David Laidley

The University Health Network Experience Dr. Rebecca Wong The Chu de Quebec – Université Laval Experience Dr. Jean-Mathieu Beauregard

4:25 – 4:45 PRRT in Europe

Dr. John Buscombe

4:45 – 5:00 RADIANT 4 Clinical Trial

Dr. Simron Singh

5:30 – 6:30 CNETS Canada Reception - Westin Harbour Castle – Pier 4 & 5

Highlighting Maureen Coleman Award Recipients

CNETS CANADA & CANM JOINT MEDICAL SESSION Friday April 21, 2017 1:00 pm – 5:00 pm

Harbour A & B

7:45 – 8:20

CONTINENTAL BREAKFAST

8:20 – 8:30 Welcome and Introductions Jackie Herman, President CNETS Canada

8:30 – 8:45 Plenary NETs 101 – For the Newly Diagnosed

Dr. Daniel Rayson

8:45 – 9:30 Session 1 Medical Therapy Options for NET Cancer: What strides have we made & what’s next?

Chair Dr. Shereen Ezzat

Panel Chemotherapy for NETs – New Developments Dr. Hagen Kennecke

Biologically Targeted Therapies Dr. Simron Singh

Somatostatin Analogs Dr. Dean Ruether

9:30 – 10:00 Session 2 Nuclear Medicine Therapy and Diagnostics: The latest options for Canadian patients & what is around the corner?

Chair Dr. John Buscombe

Panel PRRT in Canada Dr. Jean-Mathieu Beauregard

Ga68 in Canada Dr. Eric Turcotte

10:00 – 10:15

BREAK

CNETS CANADA 2017 NATIONAL NET PATIENT CONFERENCE Saturday April 22, 2017

8:30 am – 4:45 pm Pier 4 & 5

10:15 – 11:00 Session 3

Surgical Therapy: Advances and what can we expect in future?

Chair Dr. Julie Hallet

Panel Liver Transplant and Liver Resections Dr. Ian McGilvray

GI Surgery Dr. Daryl Gray

Multi-organ Complex Surgeries Dr. Calvin Law

11:00 – 11:45 Session 4 Patient Case Profiles: Different perspectives on treatment options

Chair Dr. Sylvia Asa

Panel 2 patient cases and 5 NET specialists (Approx. 20 minutes each case) Dr. Shereen Ezzat

Dr. Janice Pasieka

Dr. Simron Singh

Dr. John Buscombe

Dr. Jean-Mathieu Beauregard

11:45 – 12:45

LUNCH & PATIENT NETWORKING

12:45 – 1:45 Session 5 NET Site Specific Nuances / Treatments (Approx. 10 minute presentations)

Chair Dr. Janice Pasieka

Panel Pathology: Why is pathology important in determining treatment? Dr. Sylvia Asa

Treatment Approach for Lung NETs Dr. Eric Liu

Treatment Approach for pNETs Dr. Cynthia Card

Treatment Approach for GI NETs Dr. Daniel Rayson

Treatment Approach for Rectal NETs Dr. Shereen Ezzat

1:45 – 2:15 Session 6 Liver Directed Therapies, When and Why?

Chair Dr. Steve Burrell

Microspheres with Y90 Dr. Amol Mujoomdar

Bland and Chemo Embolization & Radio Frequency Ablation Dr. Elizabeth David

2:15 – 2:45 Session 7

NETs Quality of Life

Chair Dr. Dean Ruether

Panel Cognitive Impact of NETs Dr. Janice Pasieka

NET Symptom Management Dr. Tim Asmis

2:45 – 3:00

BREAK

3:00 – 3:45 Session 8 Rare Neuroendocrine Tumours & Genetics

Chair Dr. Sylvia Asa

Panel Medullary Thyroid Cancer Dr. Dean Ruether

Paraganglioma & Pheochromocytoma Tumours Dr. Shereen Ezzat

Genetics of Neuroendocrine Tumours Dr. Raymond Kim

3:45 – 4:30 Session 9 Ask the Expert: 12 round tables with topics and experts outlined below. Participants rotate among tables in two 20 minute intervals. The presenter makes a 2-minute introduction to the topic and then patients at each table have 15 minutes to ask questions. After 20 minutes, the bell rings and people change and go to a second table. Same process. The second table conversation ends in 20 minutes.

Advances in Surgery Dr. Calvin Law

Support and Resources for Newly Diagnosed Enrico Mandarino

Ga68 Dr. Eric Turcotte

Pathology of NETs Dr. Ozgur Mete

Diagnostic Tools Dr. Shereen Ezzat

Biologically Targeted Therapies (everolimus, sunitinib)

Dr. Simron Singh

Liver Directed Therapies Dr. Amol Mujoomdar

Lung NETs Dr. Cynthia Card

Dr. Eric Liu

Pancreatic and GI NETs Dr. Hagen Kennecke

PRRT Dr. Jean-Mathieu Beauregard

Somatostatin Analogs (lanreotide, octreotide)

Dr. Dean Ruether

The Rarer of Rare NETs Dr. Sylvia Asa

4:30 – 4:40 Patient Perspective: Finding your voice and advocating for yourself

Sharon Needham, Lung NET Patient

4:40 – 4:45 Closing Remarks, Prize Draw & Evaluation Dr. Jean-Luc Urbain, Vice-President CNETS Canada

2017 NATIONAL NET PATIENT CONFERENCE SPONSORS

PLATINUM

GOLD

LYNN CHOUINARD

BRONZE