The KeysTO

LifeNovember 1-3, 2013Toronto Airport Marriott Hotel

66th Annual Conference

Keynote AddressDavid RocheDavid Roche is an inspirational humourist, keynote speaker and performer who has transformed the challenges and gifts of living with a facial difference into a compelling message that uplifts and delights audiences around the world.

“When I walk on stage, I encourage the audience to ask, 'What happened to your face?'I then explain that I was born with a severe facial difference. On the left side of my face isan extensive vascular malformation, a benign growth consisting of blood vessels. As an infant and child I underwent many facial surgeries and heavy radiation therapy, which left radiation burns on my temple and eyelid."

"Yet my face is a gift, because my shadow side – my difficulty and challenge – is on the outside, where I have been forced to deal with it."

- David Roche

Live Entertainment Jeff Poolton

Jeff came upon his love of singing at the age of seven, when he joined his mother at the piano and began to sing along with the songs she played. Since then, he trained for nearly 15 years, eventually achieving his grade 10 vocal certification through the Royal Conservatory of Music. Jeff has over 25 years of performance experience. Music has proven to be a great source of comfort and confidence, while facing the challenges of his life with cerebral palsy. These challenges, along with his desire to thank those that inspired him on his journey, led to the creation of his new pop album “Welcome to My World”. The collection of original songs is chronologically organized, as Jeff sings his way through the highlights of his life.

Now 37, Jeff is a passionate supporter of many organizations that assist people with disabilities. His hope is that through his music people will see the world a little differently.

The Keys to LifePart of the OFCP’s vision is to improve the quality of life for people who have cerebral palsy. With that aim in mind, this year’s conference focuses on four key themes that have a significant impact on our collective and individual experiences. Let's share how mental health and relationships enrich and complicate our lives; how representations of disability frame our collective identity and how government legislation impacts disability justice.

As always, the OFCP conference is ripe with opportunities to share and celebrate our successes as people with cerebral palsy. Check out the 2nd annual gallery of accomplishments, watch digital shorts about fellow members, celebrate at the awards banquet and dance, learn from your peers and come “home” to relax and unwind amongst friends. All are welcome to relish the Keys to Life.

FRIDAY NOVEMBER 1st 5:00 - 8:00 pm Registration - Welcome Buffet 8:00 - 10:00 pm Keynote Address & Live Entertainment9:00 - 11:00 pm Complimentary Punch and Snacks

Program

SATURDAY NOVEMBER 2nd 7:30 - 9:00 am Continental Breakfast

9:00 - 9:45 am General Session and Introductions 10:00 - 11:00 am Session One - Healthy Minds with AbilityOnline

11:00 - 11:30 am Break

11:30 - 12:30 am Session Two - Making the AODA work for you

12:30 - 2:00 pm Lunch 2:00 - 3:00 pm Session Three - Disability and Relationships with The Rose Centre

3:00 - 3:30 pm Break

3:30 - 4:30 pm Session Four - Project Re•Vision

4:30 - 6:30 pm Free Time

6:30 - 9:30 pm Awards Banquet 9:30 - 1:00 am Dance with DJ

SUNDAY NOVEMBER 3rd8:00 - 9:30 am Continental Breakfast9:45 - 11:45 am Annual General Meeting 12:00 - 1:00 pm Lunch 1:00 pm Departure

Conference Location and Contact:Preferred Rate overnight accommodations at Toronto Airport Marriott Hotel, 901 Dixon Road, Toronto Phone 1-855-823-6348 or local 416-674-9400 online at https://resweb.passkey.com/go/OntFedCerebralPalsyOFCP Conference Contact 1-877-244-9686 ext. 296

Healthy MindsAbilityOnlinePresented by Sarah Evans and Michelle McClure

Healthy Minds is a youth led initiative which focuses on mental health and its impact on disability. The initiative seeks to empower people with disabilities with information, strategies for coping, role models and inspiration. Presenters Michelle McClure, Executive Director of AbilityOnline and Sarah Evans, Chair of the Healthy Minds Youth Advisory Committee, will guide the audience through the resources available at Ability Online.

This one hour presentation will include knowledge and skill acquisition opportunities as well as consultation from the audience on how the initiative can further develop. Sarah will share her personal experiences with the intent of starting candid discussion about mental health and disability.

Making the AODA work for youOntario Accessibility Standards Advisory CouncilPresented by John Hendry

John Hendry has been an elected public school trustee for more than twenty-seven years. During his term as a trustee he has also been a member of the Special Education Advisory Committee. John has been appointed to sit on the Accessibility Standards Council in the Province of Ontario. The Province will be the first jurisdiction in the world to legislate accessibility.

In 2005 the Province of Ontario enacted the Accessibility for Ontarians with Disabilities Act (AODA). The act has received attention around the world and has been noted in the United Nations Newsletter on Disabilities. However, under the AODA, accessibility takes on the form of a “complaints-based system” whereby businesses are not required to be accessible unless there is a complaint made by an individual.

This presentation will use the concrete examples to unpack the impact of the AODA’s five accessibility standards on persons with disabilities such as cerebral palsy. It will include opportunities for the attendees to cite specific accessibility issues. Participants will gain a good understanding of the legislation and potential benefit to persons with disabilities. The presentation will conclude with opportunities for feedback and discussion.

Michelle McClure

John Hendry

Sarah Evans

Project Re•VisionPresented by Dr. Carla Rice, Eliza Chandler and Dr. Kirsty Liddiard

Project Re•Vision is a CIHR-funded project that puts on digital storytelling workshops around Ontario for folks who are interested in exploring issues around disability and healthcare provision with a desire to dismantle stereotypes. Digital stories made in Project Re•Vision’s workshops are about disabilities and differences. Viewers are asked to reflect on their responses to physical or mental difference.

This special presentation will explore how people with disabilities have been historically and contemporarily represented in dominant culture, emphasizing how such representations effect how we are treated. Storytellers from project Re•Vision often describe their work as providing a counter-narrative to dominant representations of disability and physical difference. We will conclude our presentation by sharing how you can become involved in our project.

Disability and RelationshipsThe Rose Centre for Young Adults with DisabilitiesPresented by Tim Rose and Natalie Sanborn

The Rose Centre for Young Adults with Disabilities is a Toronto based organization that recognizes the differences in social opportunities between young adults with disabilities and their peers. Our primary goal is to support young adults with disabilities in the areas of sexual expression, dating, and building healthy relationships. Our secondary goal is to raise awareness within the general population on issues surrounding disability and social relationships. To realize these goals we provide a safe space, hold inclusive events, and engage in other activities that empower young adults with disabilities to maximize their potential.

Our presentation will use the personal story of Tim Rose & Natalie Sanborn to examine disability and relationships. We’ll take a fun and informal look at the ups, downs and twists of disability and positive relationships. Have questions? Bring them. Have thoughts? Share them. Have interest? Come and join us. All are welcome.

Tim Rose and Natalie Sanborn

Dr. Carla Rice Eliza Chandler Dr. Kirsty Liddiard

Registration Form Name: ___________________________________________________________________ Male Female Address:_____________________________________________________ City:_________________________Province:___________________ Postal Code:________________ Phone:__________________________Email:______________________________________________________________________________________

Emergency Contact Information:Name: ______________________________________________ Relationship: __________________________Address:______________________________________________________ City:_________________________Province: _________ Postal Code:________________ Home Phone: ________________ Cell Phone:_____________Email:______________________________________________________________________________________

Who can assist you with communicating about the information on this application if necessary?Name: ______________________________ Relationship: _____________________ Phone: _________________

Please indicate which meals you will be attending:Friday: Reception Saturday: Breakfast Lunch Banquet Sunday: Breakfast Lunch Special Dietary considerations (including any food allergy): __________________________________________________________________________________________________________________________________

Annual Conference Fee Information: Regular Fee ODSP Reduced RateConference (includes ALL MEALS plus Banquet) $120 $60Banquet only $30 $15

Hotel Booking Information (only for individuals requesting attendant services from the OFCP):

Note: Hotel Rooms are not included in the conference registration fee. Individuals must register at the hotel to reserve a room Exception: OFCP will make hotel reservations for individuals requesting attendant services from the OFCP. Please include the cost of hotel in your registration

Hotel Room - Per Night (including tax) Single $136 Shared $68

I would like: Shared Room Single Room Friday Night Saturday Night Please indicate if there is someone you would prefer to share your room with,Roommates Name: __________________________________________________________________________Conference location: Toronto Airport Marriott Hotel, 901 Dixon Road, Toronto Phone 1-855-823-6348 or local 416-674-9400 online at https://resweb.passkey.com/go/OntFedCerebralPalsy

Payment: Cheque Visa Cash Card number: _____________________________________________________ Expiry date: _____________Total Payment enclosed: $ _______________________

REGISTRATION DEADLINE: OCTOBER 1st, 2013

Send Registration and Payment to: Educational and Recreational Services, OFCP #104- 1630 Lawrence Ave. West Toronto, Ontario, M6L 1C5

For questions, please call 1 877 244 9686 ext.296Registrations will not be processed until payment is made in full. Once your registration has been processed, the OFCP must be informed of any changes PRIOR to October 1st, 2013.

Please sign the attached General Liability Waiver and enclose it with your registration forms.

Self-Medication Assistance And Personal CareConference participants are required to self-direct their own medication and support needs to OFCP staff. Please fill out this form IN FULL if you require attendant services during the OFCP Annual Conference.

First Name: _________________________________ Last Name: ____________________________________

THE OFCP PROVIDES SPECIAL ACCOMMODATION FOR PEOPLE WHO REQUIRE COMPLEX CARE. IF YOU HAVE COMPLEX CARE NEEDS CALL 416-244-9686 EXT 296 TO MAKE ARRANGEMENTS

Self Medication Assistance PlanConference participants are required to self-direct their own medication and support needs to OFCP staff.

Do you require assistance with taking your medication? _____________________________________________

If bringing medication with you, where have you packed it? ___________________________________________

If you require assistance with medication you MUST fill out the following form:

List of Medications Medication Time

Dosage Procedure to follow in case of medication error

(Attach additional pages if necessary)

Personal Care Attendant Services planNOTE: CONFERENCE PARTICIPANTS ARE REQUIRED TO BRING ALL PERSONAL CARE SUPPLIES INCLUDING BRIEFS, HOYER SLINGS, GLOVES, ETC. AND MEDICATIONS INCLUDING WRITTEN INSTRUCTIONS.Please outline any relevant health history:__________________________________________________________________________________________________________________________________________________

Please list any allergies and describe their severity (i.e., food, medication, airborne vs. ingestion): ________________________________________________________________________________________________________

Please list any dietary restrictions: ___________________________________________________________________________________________________________________________________________________________________

What assistance will you be requiring from our staff? Task Yes No Estimated Time Required

Eating

Brushing teeth

Washing hands/face

Grooming

Dressing

Bathing

Toileting

What type of mobility device do you use?_____________________________________________

Please sign the attached Authorization for Assistance with Self Medication and Personal Care and General Liability Waiver and enclose it with your registration.

Do you use an epi-pen? Yes No

Should your meals be:

Pureed Chopped Diabetic

Other (specify): ____________________________

Do you require assistance at each meal? Yes No

Do you use a G-Tube? Yes No

Do you use bed rails at home? Yes No

Will you be bringing your own commode? Yes No

What is your preferred transfer method?

Hoyer Lift 2 Person Transfer Pivot

Other (specify): ____________________________

Ontario Federation for Cerebral Palsy1630 Lawrence Avenue W. • Suite 104Toronto, Ontario • M6L 1C5

0003559165

The KeysTO

Life66th Annual ConferenceOntario Federation for Cerebral Palsy

November 1-3, 2013Toronto Airport Marriott Hotel

OFCP ANNUAL CONFERENCE GENERAL LIABILITY WAIVER

I _____________________, a participant at the Annual Conference of the Ontario Federation for Cerebral Palsy ( “OFCP”), and in consideration for my participation in the OFCP Annual Conference, hereby release and forever discharge the OFCP, its officers, directors, employees, agents and volunteers (hereinafter referred to as the “Releasees”) of and from all manner of claims, demands, actions, causes of action of every kind, losses, damages or injuries, however caused or contributed to, arising out of my participation in the Annual Conference.

I further agree not to make any claims against any person or legal entity which may claim contribution or indemnity from the Releasees or any of them, with respect to the claims released herein. I also do hereby agree to indemnify the Releasees for any liability, losses or damages, including all costs, expenses and lawyer fees expended to defend any such claim, sustained by them as a result of such actions or proceedings made by any person or entity to which the Releasee or any of them might be liable, directly or indirectly, arising from my participation in the Annual Conference.

I agree to the above terms and conditions, and I do hereby acknowledge that I have read and fully understand the above terms and conditions, and I understand this Waiver contains both a full release of all claims I may have against the Releasees, and an agreement to indemnify the OFCP.

Name (Please Print): ______________________________________________________________ Date:________________

Signature:_____________________________________________________________________________________________

Note: This waiver is required if you wish to attend the OFCP Annual Conference.

OFCP ANNUAL CONFERENCE AUTHORIZATION FOR ASSISTANCE WITH SELF-MEDICATION and PERSONAL CARE and GENERAL LIABILITY WAIVER

I __________________________________, a participant at the Annual Conference of the Ontario Federation for Cerebral Palsy ( “OFCP”), and in consideration for my participation in the OFCP Annual Conference, hereby give permission to any personal services attendants that may be from time to time provided by the OFCP during the Annual Conference (the “Attendants”) to assist me with my medication(s), personal care and transfer as I may direct them.

I understand that the Attendants are working outside of my normal medical, personal care and transfer assistance parameters, and that I am solely responsible for my personal care and safety while a participant at the Annual Conference, and for any direction(s) that I may give to the Attendants for my personal care and safety.

I further understand that it is my sole responsibility to safely direct my medication procedure(s). I acknowledge that the attendants have no formal training in the use, administration or effect of medication, and that they are thereby limited in the assistance that they may be able to provide to me. I agree that I am solely responsible for any direction I give to the Attendants for self-medication, and the effect of the same.

I do hereby release and forever discharge the OFCP, its officers, directors, employees, agents and volunteers (hereinafter referred to as the “Releasees”) of and from all manner of claims, demands, actions, causes of action of every kind, losses, damages or injuries, however caused or contributed to, arising out of my participation in the Annual Conference, including without restricting the generality of the foregoing, all claims arising or in any way related to the Attendants’ administration of medication or the failure to administer medication, or the personal care and transfer assistance provided by the Attendants.

I agree not to make any claims against any person or legal entity which may claim contribution or indemnity from the Releasees or any of them, with respect to the claims released herein. I also do hereby agree to indemnify the Releasees for any liability, losses or damages, including all costs, expenses and lawyer fees expended to defend any such claim, sustained by them as a result of such actions or proceedings made by any person or entity to which the Releasee or any of them might be liable, directly or indirectly, arising from my participation in the Annual Conference, including all claims arising or in any way related to the Attendants’ administration of medication or the failure to administer medication, or the personal care and transfer assistance provided by the Attendants.

I agree to the above terms and conditions, and I do hereby acknowledge that I have read and fully understand the above terms and conditions, and I understand the Waiver contains a full release of all claims I may have against the Releasees and an agreement to indemnify the OFCP.

Name (Please Print):___________________________________________________ Date:___________________________

Signature:_________________________________________________________________________________________

Note: This waiver is required if you wish to attend the OFCP Annual Conference and use attendant services provided by the OFCP.