a 15-year retrospective on medicaid hcbs quality the quality of home- and community-based services:...

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RETROSPECTIVE ON MEDICAID HCBS QUALITY The Quality of Home- and Community-Based Services: A Conversation about Strategic Directions for Research and Policy Wednesday, February 11, 2015 Washington, D.C. Beth Jackson, Ph.D., Truven Health Analytics Anita Yuskauskas, Ph.D., Penn State University

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A 15-YEAR RETROSPECTIVE ON

MEDICAID HCBS QUALITY

The Quality of Home- and Community-Based Services:

A Conversation about Strategic Directions for Research and Policy

Wednesday, February 11, 2015

Washington, D.C.

Beth Jackson, Ph.D., Truven Health Analytics

Anita Yuskauskas, Ph.D., Penn State University

A 15-YEAR RETROSPECTIVE ON MEDICAID HCBS QUALITY

1. Context of HCBS and federal policies in long term care

2. Introduction of quality expectations in the 1915c program

3. Movement toward standardization – automation of program design/application, evidence based approach

4. Healthcare landscape and where HCBS fits

1981

Sta

rt

of H

CBS

19

99

Ol

mst

ead

2002

GAO

Re

port

2004

TA &

Pr

oced

ural

gu

idan

ce

esta

blish

ed

2005

Au

tom

ated

W

aive

r App

&

star

t of

Asso

ciatio

n

2007

IPG

reva

mp

2001

Qua

lity

Prot

ocol Timeline of

important events.

HISTORY OF HCBS QUALITY

2008

IPG

ad

ded

perfo

rman

ces

mea

sure

s and

sa

mpl

ing

“Every system is perfectly designed to achieve exactly the results it gets.”

www.rbl.net

THE CENTRAL LAW OF IMPROVEMENT:

4

OMNIBUS BUDGET AND RECONCILIATION ACT OF 1981

Authorized the provision of Home and Community Based Services (HCBS) as an alternative to institutional care.

The HCBS program was designed to be innovative, flexible, decentralized, and responsive to local need.

Consequently, the program lacked standardization in eligibility, design, services, provider types, rate structure and units, scope, and application…..and quality. …..and quality.

STANDARDIZATION V. FLEXIBILITY

EXPANSION OF HCBS MODELS AND AUTHORITIES: NEW INTERPRETATIONS

Multiple statutory references with different and sometimes competing guidance.– Quality varied by statutory or policy guidance, inconsistent approaches, design/implementation

– Dependent on State OR individual CMS assessor.

– Relied on a look-behind method of reports and anecdotal evidence.

New concepts and service delivery models: – Olmstead, person centered planning, Balancing LTC

– Self direction, managed LTC

– 1915c, 1915i, 1115, 1915b/c, 1915j, 1915a, and later Community First Choice, Balancing Incentives

Critical Federal legislation paralleled the growth and direction of HCBS

Court ordered deinstitutionalization – 14th Amendment Balanced Long Term Care Systems – ADA and Olmstead HCBS National Standard Measures - DRA Health Information Technology, Meaningful Use, Electronic

Health Records – ARRA

FEDERAL LEGISLATIVE ADVANCES

Flexibility and standardization were often at odds

Difficult to establish a national quality approach – differences by state in multiple aspects of multiple HCBS programs.– lack of consistent program parameters, – lack of common service definitions or units, – lack of research on evidence based practices

ORIGINAL DESIGN CONSQUENCES

Tower of Babel• People spoke

different languages

• Their work was diffused and sometimes at odds

• Collaboration and planning was difficult

© Truven Health Analytics Inc. All Rights Reserved. 12

February 11, 2015

Beth Jackson, Ph.D.

Movement Toward StandardizationIn

Medicaid HCBS Quality

© Truven Health Analytics Inc. All Rights Reserved. 13

CMS’ Two Avenues for Conveying Quality Expectations

Waiver Application Monitoring Reviews by CMS Staff

• What CMS requires• How states propose meeting

quality requirements

• Focus of CMS reviews• Whether states meet their

quality obligations

© Truven Health Analytics Inc. All Rights Reserved. 14

Pre-2000

1995 “Pre-print” Application• Check box approach• Very little description of waiver’s quality provisions

Guide for Conducting Reviews (pre-2000)• Voluntary for CMS Regional Office (RO) Staff• Focus on process, not content of reviews• Yielded little consistency across reviewers• RO staff took primary responsibility for quality

oversight, not states

© Truven Health Analytics Inc. All Rights Reserved. 15

2000-2001: CMS Develops the “Protocol”

States pushed for more consistency among CMS reviewers CMS sought increased and consistent oversight by reviewers CMS required reviewers to use the Protocol Protocol focused reviewers on the waiver “quality” assurances

Eligibility Determination (Level of Care) Service Planning Provider Qualifications Health & Welfare

Began to articulate notion of Continuous Quality Improvement (CQI) “Design, Design Implementation, Improvement” Encouraged reviewers to look for “evidence” of implementation (i.e., reports, minutes)

No uniformity in evidence provided by states Shift in primary responsibility for quality monitoring to the states Still substantial opportunity for reviewer inconsistency

© Truven Health Analytics Inc. All Rights Reserved. 16

2004 & 2007: Interim Procedural Guidance

“Interim” until CMS instituted a more formal procedure for states to report evidence

Response to 2002 GAO report

CMS reviewers required to use

Provided reviewers with guidance for assisting states in identifying evidence

Standardized format for CMS review reports, assurance-driven

No “evidence” reporting format required of states No uniformity in types of evidence provided by states

Many gaps in evidence for assurances

“IPG for Assessing HCBS Waiver Programs”

© Truven Health Analytics Inc. All Rights Reserved. 17

With Protocol & IPG, CMS had focused on asking states for evidence toward the end of a waiver cycle

Without first asking them in their applications what evidence they would be providing

“Cart-Before-Horse” phenomenon

© Truven Health Analytics Inc. All Rights Reserved. 18

2005: Automated Waiver Application

One large “box” where states were required to describe their quality improvement strategy

Application guidance stressed CQI – Discovery, Remediation, Improvement

States did not always fully articulate their “Discovery, Remediation, Improvement” approaches in their applications

States often did not specify what evidence they would produce under “Discovery”

CMS inconsistent in their approvals of the QI Strategies in state applications

Consequently, CMS found it difficult to hold states accountable in their “Evidence Packages” submitted under the IPG

© Truven Health Analytics Inc. All Rights Reserved. 19

2008: Automated Waiver Application, Version 3.5

For the first time, states required to specify Performance Measures for each assurance/sub-assurance (Discovery mechanism), including:

Metrics

Frequency of data collection & report generation

Sampling approach

Use of reports in QA/QI

Specific Performance Measures at the discretion of the state But CMS must approve them in the application

3.5 Application formed the basis for a more “evidence-based” approach to Quality in the waivers

© Truven Health Analytics Inc. All Rights Reserved. 20

Current Status

Review process not automated Submission of state’s evidence not supported by automation Still no standardization in how states report evidence

Poses challenges to CMS reviewers

States must craft their own Performance Measures

No ability to compare performance across programs/states

Most measures states track are process measures

States using experience/satisfaction surveys PES, Core Indicators, home-grown, etc. Cross-disability Experience of Care Survey under development

HCBS AND THE HEALTHCARE LANDSCAPE

WHERE IS HCBS IN RELATION TO THE REST OF THE HEALTHCARE SYSTEM?

QUALITY DRIVERS AND QUESTIONS…..

AFFORDABLE CARE ACT: THE THREE PART AIM

Improve the health of the population; Enhance the patient experience of care (including quality, access, and reliability); and Reduce, or at least control, the per capita cost of care.

22

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Quality:– National Strategy for Quality Improvement in Health Care– Adult Health Quality Measures– Interagency Work groups on Health Care Quality– MAP groups - Convene Multi-stakeholder Groups to provide input on

quality measures– Integration opportunities for Medicare-Medicaid

AFFORDABLE CARE ACT

24

Changes to 1915(i) HCBS as a State Plan Benefit Extend Money Follows the Person demonstration Increased funding for ADRCs Community First Choice HCBS Balancing Incentives

ACA – FURTHERED THE NATIONAL FOCUS ON REBALANCING LTC AND EMPHASIZED QUALITY

SHARED CROSS SYSTEMS CONCEPTS

Person centered, integrated care models

Measures development and coordination across systems

Growth of managed care and self directed service delivery models

Integrated quality strategies and measures across all HCBS authorities

The role of HIT and EHRs in LTC: TEFT - Testing HCBS national measure sets & e-health

Coordinated research agenda - integration with policy

QUALITY IMPROVEMENT AND/OR QUALITY ASSURANCE –

Can they exist side by side? HCBS history shows there is often difficulty in meeting

basic assurances Process v Outcomes

– Lack of research on evidence based practices– What role does process play?

Oversight and Enforcement of minimum standards – who is responsible?

Federal role - guidance or compliance overseer ? This varies across programs. Is it CMS’ job to assure a minimum level of quality?

Is there a need for ongoing federal standards and reviews?

What are the roles of the states and MCOs? Do they differ?

THE ROLES IN HCBS QUALITY FEDERAL, STATE, MCOs, PROVIDERS

Is quality more than measures?

Design and oversight: building in quality up front in the design

Where is the focus on design in HCBS and what does it look like?

Is it necessary to measure process as well as outcomes?

THE PROCESSES OF HCBS QUALITY

What defines quality in HCBS?

What is the role of measures and what should be measured? Do individuals who receive services have good outcomes? Are they better off as a

result of receiving HCBS?

Are outcomes sufficient to tell the whole story?

How do we know about the quality of care and the fidelity of the providers/program? – Is the design of the program working as intended? – Are people getting what they are supposed to? – Is there good quality of care? Are providers doing what they are supposed to

meet the needs of individuals (evidence based practices)?

THE MEASURES OF HCBS QUALITY