a 2 hours walk-about with care & kanwork

8/12/2019 A 2 Hours Walk-about With Care & Kanwork

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DEVELOPING CARING COMMUNITY THROUGHDEVELOPING CARING COMMUNITY THROUGH

EDUCATIONEDUCATION EXTENSION APPROACHEXTENSION APPROACH

RUMAH TERBUKA AIDILFITRI

By

MUHAMMAD HAFIDZ ABDUL RAMAN

GS31595

24 SEPTEMBER 2011 @ 1000-1200

Cancer Resources & Education Cancer (CaRE)

Fakulti Perubatan dan Sains Kesihatan (FPSK), UPM.

VISIT & REPORTVISIT & REPORT

Dato Vice Chancellor, Prof. Dr. Mohd Salleh JaafarDVC(R&I) and others VVIP = Utusan etc.

35 Kan Work members = cancer patients, survivors,carers and volunteer.

32 others = UPM staff, students and partners. CaRE Hari Raya Open House & Peer Support Group.

Eating while sharing experience and educationinformation.


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educate, support & empower

Background Two breast cancer survivors, one from Malaysia and the other from USA,

initiate the idea of adapting and translating selected educational materials intoBahasa Melayu as one of the ways in providing the much needed informationon breast cancer treatment and care in Malaysia.

Their effort evolved into a major educational activity; Cancer Resource,Education & Support (CaEd).

Leadership for this program is being provided cooperatively by the UniversitiPutra Malaysia (UPM) and Cornell University. CaEd was formally launched inMalaysia in September 2003. Now CaEd is known as CaRE.

Aspiration To be the frontier leader for cancer education in Malaysia.Goals To develop & provide evidence based cancer information, education & support

to Malaysians affected by cancer To develop human and institutional capacity to sustain the above effort

CaRECaRE: THE ROLE (in Malay): THE ROLE (in Malay)

Satu pusat penyediaan maklumat, pendidikan dan sokongankanser, CaREmemberikan kesedaran awal melalui pelbagai program dan sokongan

yang disediakansepanjang tahun kerana sistem pangkalandatanyamemberikanmaklumatkepada komuniti tentang perkhidmatankansersetempatseperti1. bahanpendidikankanser,2. biliksumberrujukan kanser,3. program rakansebaya oleh Kanwork,4. Program pendidikankanser,5. program kaunselingyang dilaksanakan olehprofessional kaunselor,6. maklumatkanser secara online,7. direktori sumber kanserdan perkhidmatan8. KanHelp line oleh jururawatterlatih.

CaREadalahpusatdimanaCancer Information, Education & Support (CiES)diaplikasikan.


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CaRECaRE: Analysis: Analysis ofof RoleRole

Cancer Research base initiative - cancer education,food dietary, treatment education, body care educationand other health aspect.

Emphasizing on MORE to women.

Aspiration to become resource center in CancerEducation and Research (CaEd).

Open to cancer patients, survivors, their family andindividual/organization with interest to help the needy.


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CaRECaRE ActivitiesActivities Tarikh Program

22 Jan Kesedaran Tentang Obesiti

29 Jan Volunteer Development

24-25 Feb World Cancer Day, UPM

12 Mac Mesyuarat Agong& Maulidur Rasul

9 April Kanser dan Genetik

23 April Program Looks Good Feel Better

7 Mei PaliativeCare

21 Mei Urutan Guasa

11 Jun Rawatan Kanser

25 Jun Isu Perundangandan Wasiat

9 Julai Kanserdan Motivasi Diri

13 Ogos Tazkirah Ramadhan

10 Sep MenyambutPerayaan& Kumpulan Sokongan 8 Okt Terapi Spiritual (Solat Hajat) & Kumpulan Sokongan

12 Nov Kumpulan Sokongan

10 Dis Lawatan Sambil Belajar

CaRE, CaEd, IPSAS, Cornell University, & UPM

PenawarPenawar DiDi TanganTangan Kita (Healing in our hands)Kita (Healing in our hands)

Vission

To ensure that individual and their families, who are livingwith, through and beyond cancer will not journey it alone,

and that their healing needs will be met.Mission

To empower individuals and their families battling withcancer with information that helps them make decisionsand to provide them with emotional and spiritual support.


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KanWorkKanWork: OBJECTIVES: OBJECTIVES To perform as a resource center and education for cancer patients, their

families, society and any related bodies To facilitate support system for breast cancer patients and their families To build leadership amongst group support system for cancer patients

and their families To initiate relationship and cooperation with individuals, groups and

institutions which have the same function in educating cancer patients,their families and societies

To stimulate support effort for prevention, early detection, and breastcancer treatment

To provide programs and services about breast cancer to community

To stimulate educational activities to those who provide health careand volunteers who work for cancer patients, their families and cancersurvivors.

KanWorkKanWork: SCOPE: SCOPE Provide psychological, emotional and spiritual support to cancer

patients and families. Provide information and education on better disease management and

coping strategies for cancer patients and survivors and their families, Promote cancer awareness and prevention among the public. Develop leadership for support group system. Promote recreational

activities and health fitness programs. Promote publication of educational material in local languages to

reach wider segment of the population. Promote related research for better disease treatment and

management. Support efforts on cancer related issues. Link and collaborate with both local and foreign individuals, groups

and institutions of common interests. Other related activities.


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RESOURCE FROMRESOURCE FROM

NEWSPAPERSNEWSPAPERS Sebagai satu program yang memberikanmaklumat dan

sokongan terhadap merekayang terlibat dengan kanserdanmenawarkan6 major perkhidmataniaitu :- Kan Info, KanDidik, KanSupport, KanHelp Line = menerusi talian +603 89472706 bersedia

menjawab pertanyaan tentang perkhidmatanyang disediakan olehCaRE kepada masyarakat, dan

Portal/Websiteyang boleh dilayari melaluihttp://www.cancereducation.org.my/ = Memuatkan maklumatterperinci tentang perkhidmatanyang disediakan boleh didapati

menerusi laman web http://www.ipsas.upm.edu.my/caed/ ataumaklumat pendidikan dan perkhidmatan kanser dihttp://www.cancereducation.org.my dan KanWork dihttp://www.ipsas.upm.edu.my/kanwork/.

To establish any extension educationprogram, we need..

Muhammad Hafidz Abdul Raman

OBSERVATION & DISCUSSIONOBSERVATION & DISCUSSION

LocationLocation: strategic & easy accessible to the needy. InfrastructureInfrastructure: fully equip facilities with material & ext.

edu. resources, with regards to suits their conditions. Target GroupTarget Group: Peoples, Clients, Patients, or Trainers. Educator PersonnelEducator Personnel: Multitask extensionist, teachers,

experts in-house, motivator & demonstrators. ProgrammesProgrammes: Event calender, Must Attractive, evidence

focused, & outcome oriented. Proper FundingProper Funding: Independent sponsors/Private CSR/

Government/ any HALAL sources from local or abroad. PromotionalPromotional: Unconditional supporters, tv, videos, mass

media, event series, active internet webpage, blogspot, skype,twitter, youtube & facebook.


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OBSERVATION: THE CANCER PATIENTSOBSERVATION: THE CANCER PATIENTS

They experienced it. They positively minded. They developed self belonging. They high in spiritual thought and cherish GOD more

often. They established group, peer support group & own

community. They like sharing and caring between each other. They allow volunteer personnel to help them. There are no superiority & work position mentioned.

They are friendly too. They have changed with time and their surrounding. They have gone through the process of change.

The CaRE act as

A middleman between patients, doctors and hospital.

Facilitate change to the patient.

Help patient to change & develop their courage to fightcancer.

Give information & provide easy excess to cancereducational materials.

As tool for patient community to meet and share. Shorten gap by providing ethics language translation

of cancer educational materials and make it availableto all ethnics in Malaysia.


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Why They (Patient) NeedTo Move Forward

1. Professional change

2. Social change

3. Economical change

4. Cultural change

5. Ecological change

6. Political change

7. Psychological change

8. Physical change

9. Process of change Awareness, Interest,

Evaluation, Trial, Adoption, Integration, Innovation.

10. Gaining Control

11. Moving forward


THEORY DISCUSSION

Process of Change

Interested

Integration

Awareness!!

Breach thebarriers

Evaluate

Adaptation

Innovation

Do Trial

Gaining Controls

Moving Forward



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Childhood

SchoolingHistory

TertiaryEducation

Work/Tech

nical

Experience

Seeing Their Potentials

Mind

Challenges(Treatments/Health worsen)

Normal Flow

Mind Dev.

Survive & Moving

Forward

GainingControl

Giving Back

Overview of Their Mental Routes?

EXTENSION INEXTENSION IN CaRECaRE Medical Information Extension - known as the

application of medical scientific research and newknowledge transfer for recipient to practices throughcancer education materials.

Extension - The dissemination of relevant informationand advice to the needy (cancer patients). The field ofextension now encompasses a wider range ofcommunication and learning activities organized forcancer people by professionals from different medical and

allied disciplines, including healthcare, food dietary andmedical guide. Extension practitioners here is working with government

agencies as management officials, lecturers, students andvolunteer.



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ShouldShould You Be :You Be : GenGen X orX or GenGen YY

Theory XTheory X

People are lazy, dislike work and need threat of job lossand financial incentives to work hard. They needdirection and control and cannot take responsibility.

Theory YTheory Y

People need to work, actively seek responsibility, andare generally creative and resourceful. They will beself-directed to achieve objectives that meet bothorganizational and individual goals. Intellectualpotential needs to be utilized.

Douglas McGregor, 1960


POSITIVITY

POSITIVITY

Dislike work will avoid it Must be coerced,

controlled, directed, orthreatened withpunishment

Prefer direction, avoidresponsibility, little

ambition, want security

Do not dislike work Self direction and self

control Seek responsibility Imagination, creativity

widely distributed Intellectual potential, only

partially utilized

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Theory X & YDifferences

Theory X Assumptions Theory Y Assumptions


POSITIVITY

POSITIVITY


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CANCER INFORMATION ROOMCANCER INFORMATION ROOM


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PEER SUPPORT GROUPPEER SUPPORT GROUP


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THANK YOU.

a 2 hours walk-about with care & kanwork

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