A Healthy You and 22q Webinar:

Feeding, Growth and Nutrition Management May 3, 2017

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Date and TimeMay 3, 2017 • 7-8:30 p.m. EST

Feeding, Growth and Nutrition Management

FeeNone. This program is free.

Webinar FormatThe live webinar format will allow participants to watch and listen to a presentation, followed by time for a live question-and-answer period with the presenters all in the comfort of your own home or office. Webinar will be posted for on-demand viewing once the live event has concluded. Webinar link will be sent to you after program registration.

ConfirmationA confirmation e-mail along with the webinar link will be sent to all participants.

22q CenterFor more information about the 22q Center at Nationwide Children's Hospital, please go to NationwideChildrens.org/22q-deletion-syndrome-center

Coming Fall 2017: A Healthy You and 22q Conference - September 23

May 3This live webinar will be led by Lauren Madhoun, MS, CCC-CLP and Kathryn Stephens Obrynba, MD, both from Nationwide Children’s Hospital.

Dr. Obrynba will first discuss typical growth and weight gain patterns seen in infants and children with 22q11.2 deletion syndrome (22q11.2 DS). She will explain reasons for poor weight gain and linear growth, as well as reasons for constitutional growth delay and growth hormone deficiency.

Ms. Madhoun will lead a discussion on common feeding and swallowing difficulties for infants and children diagnosed with 22q11.2 DS. These may include oral motor discoordination, nasal leakage of foods/liquids, difficulty advancing solids or accepting various food textures, decreased airway protection (e.g., aspiration), and upper esophageal dysfunction.

The format of the discussion will be interactive, with a presentation by both experts followed by time for questions from the live web audience.

Speakers: Lauren Madhoun, MS, CCC-CLP

Lauren L. Madhoun, MS, CCC-SLP, BCS-S is a speech-language pathologist and feeding specialist at Nationwide Children’s Hospital in the 22q Center and the Cleft Lip and Palate-Craniofacial Center. Her clinical work focuses on the assessment and treatment of children with feeding and swallowing disorders (dysphagia), specifically those with craniofacial anomalies. Lauren earned her master’s degree from Boston University and is currently a doctoral student at The Ohio State University in the Department of Speech and Hearing Science. Her research focuses on the feeding and swallowing skills of infants with cleft palate.

Kathryn Stephens Obrynba, MD

Kathryn Stephens Obrynba, is a member of the 22q physician team and the Section of Endocrinology at Nationwide Children's Hospital and Assistant Professor of Pediatric Endocrinology at The Ohio State University College of Medicine.

Jennifer York RD, LD

Jennifer York RD, LD is a clinical dietitian in the Department of Endocrinology, Metabolism and Diabetes at Nationwide Children’s Hospital. She earned her bachelor’s degree in Medical Dietetics at The Ohio State University.

A Healthy You and 22q Webinar A program for parents of children with 22q11.2 DS

REGISTRATION FORM

2017 A Healthy You and 22q Webinar May 3, 2017

Please Print

Name _____________________________________

Name _____________________________________

Address ____________________________________

City _______________________________________

State ___________________ Zip ______________

County ____________________________________

Daytime phone ( ____ ) _______________________

Email _____________________________________

Please mail this form to confirm your space to:

Community EducationNationwide Children’s Hospital

700 Children’s DriveColumbus, OH 43205

Or register online at:

NationwideChildrens.org/22q-webinar-spring-2017or

Nationwidechildrens.org/22q-deletion-syndrome-center

For more information, contact Community Education at (614) 355-0662 or

CommunityEducation@NationwideChildrens.org