a message from margie we've moved! bdsra's … · parents dean and jennifer were both...

SAVE THE DATE!BDSRA's Annual ConferenceMeet us in Nashville July 18-21, 2013

BDSRA’s 2013 Conference, Notes of Hope, is just around the corner! The Nashville Airport Marriott will be our home for a weekend of sharing, learning and fun. Highlights will include some of Nashville’s “Must-See” attrac-tions and its famous Southern hospitality. More

information about the program will follow as details and schedules are confirmed. Lots of new features are planned, partnering with time-honored favorites.

IMPORTANT NOTE: One of this year’s exciting changes is the move to ONLINE REGISTRATION. This will help you, BDSRA and the hotel manage your family’s information and requests more accurately and efficiently. Staff will be available to answer questions and help with the online process. Online conference registration and room reservations will be up and running shortly. We will post information and links on the BDSRA Official Group Facebook page and BDSRA’s website (http://www.bdsra.org/programs-services/annual-conference/), as well as send some e-mail remind-ers and updates (make sure we have your correct e-mail address). In the meantime, if you have any questions, please do not hesitate to contact us either at (800) 488-4570 or [email protected].

Music City, USA cordially welcomes us - we look forward to seeing you there!

2013. So much happening and so much to look forward to. BDSRA has already accomplished a big resolution for the new year in our move to a new location in Columbus, Ohio. Minutes from downtown and the State Capitol, The Ohio State University Wexner Medical Center and Nation-wide Children's Hospital, we will be able to take advantage of incredible resources within our reach. Soon, we’ll be recruiting interns to work on resource development for families, marketing and communications, and other important work. As the jackhammers continue in the offi ce build-out, we meet in our metal stud-lined offi ces making big plans. Our conference will be better than ever in Nashville, with the great coordination of Sherry Hatchett and team. Research con-tinues with top-notch investigators because of people like you who continue to fund them. More online and phone meetings are scheduled so that we can learn more about what you want your year to bring with BDSRA. Be in touch!

WE'VE MOVED!BDSRA'S New Location:1175 Dublin RoadColumbus, OH 43215800/448-4570866/648-8718 (Fax Toll Free)

Highlights of What’s Inside

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Our Staff Margie Frazier, PhD, Executive Director800/[email protected]

Julie C. Conry, MA, Senior Director of Advancement and Outreach800/[email protected]

Lisa A. Weston, MPA, Program Director800/[email protected]

Donna Gunn, Offi ce Manager800/448-4570 [email protected]

Volume 24, Number 1 - January 2013

In Loving Memory

Focus | On | Families

Meet Your Board Members

facebook.com/bdsra twitter.com/bdsra

Rare Disease Day,Research Study Opportunity

BDSRA Partners with CNS,Support Services For Families

News From Our Supporters

THE

ILLUMINATORA MESSAGE FROM MARGIE

Donors

Batten Disease Support and Research Association | 1175 Dublin Rd. | Columbus, OH 43215 | 800/448-4570 2

Families are our biggest asset. They share valuable support and essential advice with each other in addition to the care received from medical professionals. Facebook, phone calls, emails and letters pass from home to home every day with news good and bad, with hope and laughter.

The Medley family is from Jacksonville, Florida, where parents Dean and Jennifer were both born and raised. Their children are Caroline (age 13), Anna (age 11), and Jake (age 8). Caroline and Anna are both healthy and thriving, though their little brother, Jake, is living with Late Infantile Batten disease. In September 2007, two weeks before Jake's third birthday, he experienced his fi rst seizure. Four months later he was diag-nosed with epilepsy. The next 21 months were spent trying countless anti-seizure medications, consulting with multiple specialists, and undergoing much genetic testing, while Jake was slowly losing the skills he had once acquired. He was fi nally diagnosed with LINCL in October 2009, after he lost his ability to walk and talk, and when he was beginning to lose his vision. The Medleys have received much love and sup-port from their community, family and friends over the years. Their faith in God has helped them to remain strong, even when they felt like giving up.

BDSRA: You seemed to have done well with Jake’s seizure control. Can you tell us a little about what has helped you feel successful from the beginning stages until now?

Jennifer: When Jake was fi rst diagnosed with epilepsy, his neurologist prescribed an anti-seizure medication that we thought would begin controlling his seizures within several weeks. That particular medication actually made his seizures more frequent and severe, so we began weaning him off it and onto a new one. This went on for over a year, trying one medication after another until we fi nally found the best com-bination for Jake. We learned that we were likely not going

to be able to stop the seizures altogether, though we fi gured out what medications were most successful in minimizing the number of seizures with the least side effects. Jake has been on a combination of Banzel and Clonazepam since 2009. We have learned that when his seizures become more frequent it is usually time for an increase in dosage due to weight gain. Last year we had to add Keppra, and have been satisfi ed with his seizure control since then. We know that he is going to experience myoclonic seizures daily and there is nothing we can do about that, so we do not let that stress us out. It is the tonic-clonic seizures that we closely monitor. Jake will have one every 3-8 weeks or so. I am very active on the BDSRA Facebook group, and have learned that that is about average for other children with LINCL in Jake's age range. We are comfortable with Jake's current seizure control, even though every single one is diffi cult to witness.

BDSRA: How did you monitor his seizures and how those seizures were treated?

Jennifer: We keep a written record of the tonic-clonic sei-zures Jake has, indicating the date, duration, and if emergency anti-seizure medication was administered. We time every sei-zure, and administer Diazepam rectally if it lasts longer than three minutes or if Jake's color turns bluish and he appears to be struggling to breathe.

BDSRA: Can you share your thoughts about how Jake’s treatment team is engaged in his care?

Jennifer: We are very fortunate that Jake's primary doctor is his uncle, my sister's husband. He is a family practioner and is very involved in Jake's care. He makes home visits when-ever we need him to, and is very accessible to us. He works closely with Jake's neurologist, who is very familiar with Bat-ten disease. We see Jake's neurologist in his clinic every four to six months now. He is also recently being seen by a pul-monologist due to respiratory issues over the last six months. We have chosen to minimize the amount of specialists Jake sees over the last few years. He used to see his dietician and gastroenterologist regularly because he is G-tube fed, and has been to other specialists, though now we only see these specialists if problems arise. We have a pretty good handle on his care now, and have chosen not to spend all of our time running Jake from specialist to specialist.

BDSRA: How has the family adjusted over time to Jake’s seizures? What do you tell his sisters about what he is going through?

Jennifer: We all know that Jake's seizures are a part of this dreadful disease we all are forced to live with, and unfortu-nately, they are just a part of our daily life. Caroline and Anna

FOCUS | ON | FAMILIESContributed by Lisa Weston, Program Director

Continued on page 3

The Medley family (from left: Jake, Jennifer, Caroline, Dean and Anna) enjoy their fourth visit to Camp New Hope, located in the mountains of West Jefferson, NC, in March 2012. Camp New Hope provides a week-long vacation for families of children with life threatening illnesses.

3Receive the latest updates, learn more about Batten disease and fi nd out how to help at www.bdsra.org.

have lived with this for 5 years now, so it's about all they know. We explained to them years ago that Jake's brain's nor-mal electrical activity is disrupted during a seizure, which will cause him to jerk or "zone out." They are used to Jake mak-ing little jerks throughout the day, and know how to "snap him out of" an absence seizure. They say that he is in "Jake Land" when he has one of these. He started having tonic-clonic seizures about 15 months ago. Caroline witnessed her fi rst one a few months ago, and Anna has yet to see one. I have prepared them both for what one of these seizures will look like, and even showed them a video of him having one of his worst tonic-clonic seizures. We have always been real honest and up front with the girls about every aspect of this disease.

BDSRA: Any other tips or ideas to share with other families?

Jennifer: Always do what you think is best for your child when it comes to seizure control. Seek advice from other parents of children with Batten disease, who can be a tremendous sup-port, though don't base your decisions solely on the advice of other parents. You know your child better than anyone and know what will make them the most comfortable and happy.

Seven year-old Jake enjoys the outdoors at Camp New Hope in March 2012.

FOCUS | ON | FAMILIES (continued from pg 2)

February 28th is Rare Disease Day. How will you tell your story?

This international advocacy day helps bring attention to the challenges faced by families just like ours. In the U.S., any disease affecting fewer than 200,000 Americans is considered rare. According to the National Institutes of Health (NIH), there are nearly 7,000 such diseases affecting nearly 30 million Americans. We all know the challenges:

• Diffi culty getting a timely, accurate diagnosis• Too little research• Too few treatments• Reimbursement or other issues affecting access to treatments• A sense of isolation • Diffi culty fi nding medical experts

Tell your story to your local paper, congressional representative or even your Facebook friends.

For awareness toolkits: www.rarediseaseday.us.

RESEARCH STUDY OPPORTUNITYThe University of Rochester Batten Center is recruiting children and young adults ages 6-25 to participate in a medication treatment trial for JNCL (CLN3). To be eligible, children must have genetic confi rmation of CLN3 and must be able to walk at least 10 feet on their own (use of a walker is permitted). For more information, please contact Amy Vierhile at (585) 275-4762.


NEWS FROM OUR SUPPORTERSBy Julie Conry, Senior Director of Advancement & Outreach

2012 BDSRA Annual Fund Meets Challenge Goal

Donations to the 2012 BDSRA Annual Fund surpassed the challenge match by an anonymous donor to generate a total of $114,000 for BDSRA research and services. The challenge match of $50,000 was met through more than 550 donors who contributed nearly $64,000 in cash to the annual fund campaign. The campaign was launched in October 2012, and concluded in December. Many donors noted they were inspired to help meet the match goal and double their donations dollar for dollar.

“We are amazed and grateful for the generous response and contributions this campaign has brought for BDSRA,” noted Margie Frazier, executive director. “The challenge was very motivating for our supporters and we will strive to exceed this goal in coming years,” she said.

California Friendship Group Supports BDSRA Annual Fund

The Ta Da Circle of Friends, a California-based group of women who dedicate craft shows profi ts to favorite charities, chose to honor Jessica Hynie and the Batten disease research efforts as their 2012 nonprofi t focus for their fundraising efforts. Ta Da, which stands for “Totally Awesome and Deeply Appreciated,” has a mission to ‘pay it forward,’ according to Linda Smith, a founding member of the group. The women’s group meets regularly for fellowship and they devote signifi cant time to create handmade products they sell at specialty craft shows, she said.

“One member of the group knows the Hynie family and we chose to dedicate our 2012 charity project proceeds to support Batten disease,” Smith noted. “We knew very little about this devastating disease, like so many people we talked with, so com-munity awareness also became our mission as part of the project,” she said. Through the sales of items such as sock cupcakes, sold at craft shows and on the group’s website Little Gems, the group donated $650 to the BDSRA annual fund campaign.

Created in 2008, the Circle of Friends is dedicated to “defying age through emotional, physical, intellectual, and spiritual well-ness,” according to Smith.

Continued on page 5

California Teens Honor Cousins and Raise Funds for BDSRA

Vacaville, California, teens Jakob Sharp, 13, and his brother Zack Sharp, 17, do-nated $1,885 to the BDSRA Annual Fund through contributions they raised by sponsors for their participation in the Vacaville Recreation Foundation’s Annual Run for Fun last October. The two brothers dedicated their race to their cousins Korry Sharp, 19, and Rachael Sharp, 16, who have Late Infantile Batten disease. The boys each pushed their cousins in their wheelchairs during the event.

“My hope is to raise money for this cause, not just for this disease, but for other diseases as well, and just raise awareness,” Zack noted. “For the two of us, it’s sort of a chance to do something for our cousins,” Jakob added. The boys said creating new memories with their cousins has taken on more importance as time passes, and that this event was one way to honor their courage and share in an experience that would help educate others about Batten disease.

Georgia Sharp, Korry and Rachael’s mother, said her daughters were diagnosed after symptoms began to appear when they were in kindergarten. Often people ask what they can do to help, she said, and it is sometime diffi cult to fi nd a response to that. “But this is absolutely what people can do, this is the best kind of help there is,” she said of the teens and their efforts to raise funds for BDSRA.

California teens Jakob and Zack Sharp (center) honored their cousins Korry Sharp (left) and Rachael Sharp (right) by raising funds for BDSRA through the Vacaville Recreation Foundation's Annual Run for Fun. (Photo by Rick Roach of the Vacaville Reporter)


High School Students Donate to Celia’s Walk

Kacie Lang is a typical high school student at Hilliard Darby High School near Columbus, Ohio, one who enjoys hanging out with friends and planning social activities. Not one to sit on the sidelines, however, once she learned about Batten disease and research initiatives across the country, she enlisted classmates, teachers and friends to donate volunteer time and money to Celia’s Walk this past fall. Attending the walk several times with her mother, who works as a nurse at the Ohio State Wexner Medical Center, Lang was inspired to do more for a cause that touched her heart.

“I do not know Celia’s family, but the walks and amazing things I heard about them from my mom’s coworkers were magnifi cent and I wanted to help,” Lang said. “After many weeks of hard work on our project, we were able to raise and donate $558 to BDSRA in honor of Celia,” she said.

Through bake sales, raffl es, restaurant promotional events, and school donations, Lang worked with her fellow students in her high school’s Renaissance program, a leadership development group, to gener-ate donations for BDSRA and Celia’s Walk. A main effort, she noted, was raising awareness as well as funds for Batten disease.

“We put a great deal of effort into getting the word out about what Batten disease is and the tremendous toll it takes on families,” Lang said. “I recited count-less times what Batten disease is to teachers, students, and staff because many had never heard of the disease before.”

Celia’s Walk to Defeat Batten Disease Holds 2012 Event in Grandview

Hundreds of supporters, family members and friends of the Betz family of Grandview, Ohio, gathered at the local high school track November 4, 2012 for the 4th Annual Celia’s Walk to Defeat Batten Disease. Jenni and Andy Betz lost their daughter, Celia, in January 2012 from INCL. The annual walk is organized

and hosted by staff from the Ohio State University Wexner Medical Center Inten-sive Care Unit, led by volunteers Sara Zeller Chernick and Allison Walker. For 2012, $5,959 was donated to BDSRA through par-ticipants and donors to Celia’s Walk. The link

to the nursing community is strong for the Betz family, as Andy Betz, his father, an aunt, and Jenni’s sister are all nurses who helped care for Celia.

“This year was another successful chapter in our journey to raise awareness and fi nancial support for research for Batten disease. We believe that the support we garner from generous community members does positively impact the lives of those affected by Batten disease,” according to Chernick and Walker. “Just like the Batten Disease Support and Research Association’s mantra, we too aim to be a ‘light in a world of darkness.’”

Each year brings new ideas to expand and enhance the local fun-draiser, according to Walker. In addition to making raffl e items available, T-shirts and other promotional proceeds are included to support the ef-fort. The Wexner Medical Center MICU nurses also have projects they organize throughout the year to help fund the costs of the walk, supplies, and refreshments for participants. The group has also focused on making registration and contribution processes more streamlined, and created a website for the event (https://www.facebook.com/CeliasWalk) to share photos, raise awareness, and thank donors. The Betz family also maintains a blog with Celia’s story at http://betzfamilycolumbus.blogspot.com.

“We are fortunate to have the continued support of the Medical ICU staff at the Wexner Medical Center,” noted Walker. “Their fundraising efforts in the months leading up to the event this year paid for more than 80 percent of all operational expenses.”

NEWS FROM OUR SUPPORTERS (continued from pg 4)

The Grandview High School track was the setting for the 2012 Celia's Walk event, which raised $5,959 for BDSRA.

Volunteers help with the efforts at Celia's Walk.

Kid’s KornerBy Donna Gunn, Offi ce Manager

Shining stars not only light up the skies at night but also shine here in BDSRA’s Illuminator.

This Christmas season, the 3rd Grade Class of Water Oak Elementary, Sulphur Springs, TX, re-ally wanted to do something special for someone. One of the students is friends with Emily Collins. After much discussion, they set up a hot chocolate stand in front of a local bank (smart thinking) and raised money in Emily’s honor to help fi nd a cure for Batten disease.

With grateful hearts we recognize Alexis Coffman, Jasmer Coleman, Ty Grant, Addie Price, Kiara Stowater and Jadyn VanWinkle. We thank all of you for your sincere compassion for others.


BDSRA is very fortunate to have a dedicated Board of Directors whose members contribute their time, experi-ences and expertise to help the organi-zation meet its mission and goals. We asked Debbie Ham of Vancouver, WA, and new board member, Tony Ferran-dino of Newtown, PA, to share a little bit about themselves.

In a few sentences, talk about how BDSRA was made known to you and how we helped your family when your children were/are af-fected?

Debbie: In the spring of 1991 our son Daniel Yanak was diagnosed with Batten disease at Oregon Health Sci-ences University. When we received the diagnosis we were given a couple of brochures with information about Batten disease, the brochures were published by BDSRA. I contacted BDSRA, that was my fi rst conversation with Lance. I always appreciated know-ing we weren’t alone; I was connected with other families in Washington and

Oregon. I always appreciated know-ing that BDSRA was there when I had questions or needed support.

Tony: On January 30, 2007, after a two year journey of trying to fi gure out what was wrong with our little Drew, we received the devastating news that Drew has Late Infantile Batten disease. Little did we know, our journey was just beginning. The team of doctors admit-tedly had never seen a child with Batten disease so they had limited information. Katie and I were determined to fi ght for our son and give him the best pos-sible life we could. That fi ght started with BDSRA - we reached out to Lance the day we received the diagnosis. Lance gave us so much great informa-tion about what to expect and what is going on in the scientifi c community. From that day on, BDSRA has been in our lives and has been a great source of support and hope.

What are you most proud of accomplishing with your board team?

Debbie: The board consists of smart, dedicated and compassionate people. All organizations go through changes which aren’t always easy; in the past year that is certainly true of BDSRA. I’ve been so impressed with the vision the board has for BDSRA, their willing-ness to work together on behalf of all of our children and their dedication to fi nding a cure. The new changes regarding how research projects are evaluated and the partnerships regard-ing funding are very important and I

believe, over time, will prove to be more effective in fi nding the cure.

Tony: The Batten community is fortunate to have a team of people as dedicated as the Board of BDSRA. The focus is clear; we need to fi nd a cure for this disease and help our fellow families cope with life while that cure is being pursued.

What do you want membership to look forward to?

Debbie: I am excited about the vision Margie and her team have for BDSRA. I think families will see BDSRA grow as an organization and in our ability to infl uence and partner on research. I also believe our family support pro-grams will become more streamlined and effective in reaching an even larger number of families affected by Batten disease.

Tony: Our membership should look forward to a day when Batten disease is a thing of the past. With hope and pas-sion we will get there.

MEET YOUR BOARD MEMBERS

A recent photo of Debbie (center) and her family.

BDSRA welcomes its newest board member, Tony Ferrandino.

Friendly Reminder - Annual Membership DuesAnnual membership dues are payable beginning in January 2013. The BDSRA national offi ce is a vital link to information and support for families affected by Batten disease. BDSRA collaborates with partners across the globe to fund the most promis-ing research to fi nd treatments and cures for all forms of Batten disease. We hope you will continue your membership with BDSRA, or perhaps join for the fi rst time. Membership costs $40 per year, per family. A “family” includes two adults ages18 years and older plus dependents living with those adults.

You can sign up for membership online at http://www.bdsra.org/how-to-help/annual-membership/ or contact the offi ce at (800) 448-4570. Please note that payments should be made directly to BDSRA and not the Chapter affi liations.

Your support and participation are greatly appreciated!


BDSRA partnered with the Child Neurological Society’s NDC Symposium on October 31, 2012 in Huntington Beach, CA. The Symposium is a forum for preeminent investigators assembled to discuss recent accomplishments and future directions with a large group of child neurologists, program offi cers from the National Institutes of Health, and members of dedicated foundations and associations.

350 attendees listened to a full day of presentations by Batten researchers who work with us on an ongoing basis. Additionally, Marcus Kerner, immediate past board member and his wife, Joanna, joined us for the day’s luncheon. Marcus spoke eloquently about his family’s experiences raising Daniel, whom they lost in 2010. We were excited and honored to be part of this important event. To listen to highlights, log on to www.neurobiologyofdisease.com. Many thanks to Jon Mink, David Pearce, and Bernie Maria of NDC for helping us organize this great event.

FACEBOOK - JOIN THE BDSRA OFFICIAL GROUPDid you know there is an “offi cial group” for BDSRA on Facebook? This Facebook community is a place for affected fami-lies, their close family members, caregivers, and involved Batten professionals to share experiences, support, and insight into the care of those affected by Batten disease. Even though Facebook platforms are relatively open spaces, the people who are part of this group expect it to be a safe place. What they post is treated with utmost confi dentiality. If you wish to join this group, go to https://www.facebook.com/groups/155390134499620/ and request to join. Please state your connection to an affected family or the Batten disease community. If you have any questions, please contact BDSRA at [email protected].

SUPPORT SERVICES FOR FAMILIESFinancial resources for families affected by Batten disease can be diffi cult to fi nd. Below are organizations that offer grants for families who are in need of vital support. As additional resources become known to BDSRA, we will pass along that informa-tion.

First Hand Foundation: In 1995, Cerner Corporation, a global health leader, founded the First Hand Foundation. A not-for-profi t, 501(c)(3) organization, First Hand assists individual children with health-related needs when insurance and other fi nancial resources have been exhausted. First Hand accepts applications from anywhere in the world. For more information, go to https://applications.cerner.com/fi rsthand/FirstHand_1a.aspx?id=28726.

Children’s Charity Fund: The Children’s Charity Fund of Sarasota, FL, will assist families caring for disabled children who are housebound or unable to care for themselves. The Fund will grant medical equipment for children if they have been denied coverage for necessary medical equipment by their insurance or Medicare coverage and have fi nancial need. For an ap-plication form and further details, contact:

Children’s Charity Fund6623 Superior AvenueSarasota, Florida 34231800-643-5787www.childrenscharityfund.org

The following are for those who cannot afford prescription medications:www.needymeds.orgwww.PatientAssistance.comE-mail: [email protected]

The Kinsmen Foundation of B.C. and Yukon: This Canadian organization raises funds to support organizations and individuals facing the challenges of living with severe physical disabilities. Learn more at http://www.kinsmenfoundationofbc.ca/history.htm.

In Loving Memory JEREMY FIELDS, son of Cecelia Fields, Siler City, NC

Born: 01-12-88 Died: 12-09-12 Juvenile

SYED ABDULLAH, son of Ayaz Kaleem & Farah Hakim, Corona, CABorn: 10-20-95 Died: 12-01-12 Juvenile

CHRISTOPHER COMEAU-D’ORSAY, son of Robert D’Orsay & Wendy Comeau-D’Orsay,Barrie, Ontario, Canada

Born: 10-04-87 Died: 11-13-12 Juvenile/GROD

HANNAH DAVIS, daughter of Bill & Peg Davis, Bovey, MNBorn: 07-19-81 Died: 11-13-12 Juvenile

ROSIE MICHA WALTERS, daughter of Michelle Mayhew, Bridgend, Wales, UKBorn: 08-30-05 Died: 08-20-12 Late Infantile

LILLIAN BULMER, daughter of Tim & Cindy Bulmer, Narrabi, New South Wales, AustraliaBorn: N/A Died: 08-18-12 Late Infantile

MORGAN MAWSON, son of Eddie & Jenni Mawson, Sinfi n, Derby, UKBorn: 05-09-07 Died: 08-15-12 Infantile

JORDYNROSE TIMMS, daughter of Mark & Rawinia (Ra) Timms, Timaru, New ZealandBorn: N/A Died: 08-07-12 Juvenile

MICHAEL LOWERY, son of Amy Alvarez, Round Lake Beach, ILBorn: 12-25-94 Died: 07-16-12 Juvenile

CHLOE HAMPSON, daughter of Glen & Debra Hampson, Bonner, Australia Born: 04-26-02 Died: 04-07-12 Late Infantile

BDSRA takes great care to memorialize those individuals who have passed away from Batten disease.If a person is omitted from this page, it is because BDSRA was not notifi ed of the death,

did not have permission to publicize, or did not have confi rmed information.


The Batten Disease Support and Research Association has been remembered many times in the past three months by families and friends of children with Batten disease. Thank you for your generous contributions. This support for the vital mission of research and services for families is crucial to fi nding a cure. We are also grateful to those supporters who have participated in events and volunteered their time to advance our efforts for Batten disease research and family services. We also acknowledge in this donor list all the generous contributions made through the 2012 Annual Fund Campaign.

IN HONOR OF:ALL BATTEN CHILDRENMr. & Mrs. Glen CurranMr. & Mrs. William NordCONNOR ALLBEEMs. Brenna PackardANNIE ALLIOVacaville Police Offi cers AssociationTHOMAS ANDERSONMr. & Mrs. Kurt MoserBILL BARKLEYMr. & Mrs. Edward SmithCONNOR BENNETTMs. Joanne CalabroMs. Barbara EngischMs. Stephanie GrayMs. Melissa RichardsonMs. Kerry SevilisThe South Hunterdon Regional High School Secretaries, Lambertville, NJKATE BENROTHMs. Britt MenchhoferBEST FRIEND’S SONMr. & Mrs. Scott InfanteJEFFREY BOBBYMomZICHAELA CAFFEYMr. & Mrs. Phillip StubbsKARMEN CALLIHANMs. Dorothy DealCASEN CAMERONMr. Douglas HockingANN CAUGHEYMs. Esther Liston

Fourth Quarter Donor Gifts(Gifts given Sept. 27, 2012 through Dec. 31, 2012)

BARB CAUGHEYMs. Esther ListonLYDIA CAUGHEYMs. Esther ListonNAOMI CAUGHEYDad & MomMr. & Mrs. Robert CaugheyMs. Esther ListonCHRISTOPHER, ELIZABETH, JAMES & SAMUEL CHAPPELLThe Ladies Golf Association MembersBOB CHERBAMr. & Mrs. Stephen ThompsonBRANDON CHILDERSMs. Elizabeth TherkildsenREBECCA COLLINSMs. Dori BarkerLincoln-Way East Swim Team, Mokena ILSIDNEY COOLIGEMr. & Mrs. Carmen Ceo CLIFFORD DAHLDad & MomChatham Presbyterian ChurchMs. Adriana ColindresFriends of the Chatham Library (Café)Mr. & Mrs. Dennis DahlMr. & Mrs. Randy Dahl Ms. Susan DahlMr. & Mrs. Justin DooleyMr. & Mrs. David GallowayMs. Diane RichertMr. & Mrs. Eddie RodriguezMITCHELL DITMARMr. & Mrs. Kevin StanleyKENNETH DOCKTERDad & MomMr. & Mrs. Joan BarozMr. & Mrs. Bernard PaulsenMs. Marilyn RomeuTHE DOCKTER FAMILYMs. Carol BayneMs. Katherine FairleyBECKY DONNALLY – In Honor of her 30th BirthdayMs. Barbara KleckCHAD DOVELMomADIA ELFERTNorth Coast Litho

RYAN FARETDad & MomMr. & Mrs. John CasaleMs. Elna FaretMs. Selma GoodmanBjorg & Ole GrendeMs. Mary HasbrouckMr. John Martakis Mr. & Mrs. Edward SnyderMr. James ThomasMs. Helen WernlundMs. Denise WrightTHE FARET FAMILYMr. & Mrs. Sverre AndersenMs. Marion ZweckLEAH FITZGERALDMomMs. Judith AlexanderMr. & Mrs. Richard MeyerKELLEY FORSTERMr. Jeremy ForsterMARGIE FRAZIERLisa WestonKELSEY FULLERDad, Mom, Madison & MatthewMs. Kimberly BringhurstMr. & Mrs. Douglas FullerMr. & Mrs. Eric FullerMs. Andrea GiedoshMs. Alyson GioiaMs. Laura RichardsonMr. & Mrs. Vince WalshKELSEY FULLER & FAMILYGreat Aunt SylviaETHAN GAHLBECKMs. Kathleen NolanMs. Joanne MerrittMACKENZIE GAIRDad & MomMr. & Mrs. Paul GairAl, Tammy & Mason MymrykMs. Lindsay WinterKELSIE HARDINMr. & Mrs. ArkleyMr. & Mrs. Daniel SelboNATHAN HARDYDad & MomMs. Judith Okeefe

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BRANDON & JEREMY HAWKINSMs. Margine BensonBinders, Inc.Ms. Ruth HawkinsMr. & Mrs. Garett LedererTHE HAWKINS FAMILYMr. Dan PieroniAUSTIN HEINMr. & Mrs. Robert FinkMr. & Mrs. Daniel KappMr. & Mrs. Kenneth PranschkeMR. & MRS. KEITH HEINMs. Bonnie PaulingTERRI HEUERTZMr. Patrick McCarvilleNATHAN HOOVERMr. & Mrs. Chad ErnstMr. & Mrs. Brian EssingerMr. & Mrs. Ronnie EssingerMr. & Mrs. Gene LauberMs. Mary LaurionJESSICA HYNIEMs. Nancy HustedMr. & Mrs. Larry ReichardtMr. & Mrs. Martha SkellyTa Da Little GemsMs. Christine TrankTHE HYNIE FAMILYMs. Barbara HarrisSARA INKSMr. William GellermanMr. & Mrs. George SchaeferMs. Victoria ThorpeCHRISTOPHER ISNARDMr. & Mrs. Leonard TaylorJERRY & HIS SON & DAUGHTER IN N. CAROLINATerry PeeleNOAH & COURTNEY JOHNSONMr. & Mrs. Joseph BraunsbergMr. & Mrs. James DaugheryMr. & Mrs. Dennis DepoiMr. & Mrs. Steven DowiatMr. & Mrs. Randall LathamELLEN K.Mr. Ryan BornbachMARTIN KATZ, PhDMs. Susan MussattBRIDGET KENNICOTAnola PickettTAYLOR KINGMr. J. William Deuink Jr.Ms. Barbara GloverMs. Lottie Sutton

EKATERIM KURYSHEVAMr. & Mrs. Roy TruelsonMR. & MRS. CHARLES LEFFLERMs. Sallie NewtonNOLAN LEISDad & MomMr. Harry BealClements Automotive, LLCMr. & Mrs. Jerold LeisMr.& Mrs. David MaulsbyMs. Jill ThompsonAARON LESHKOMr. George GramataERIC & McKENNA LOWDENDad & MomMr. & Mrs. Alton StephensonMr. & Mrs. I.W. StephensonMs. Lila ThomeMr. & Mrs. Richard WallachEDDIE MAJESKIMs. Jennifer EarlyMr. & Mrs. Walter TidwellJOHN MANGUMMr. & Mrs. David LongrenMs. Nancy MangumRYAN MAYNARDDad, Mom & FamilyMr. John PatersonJONATHAN McCOLLUMMr. & Mrs. David RobinsonMr. & Mrs. Paul WilliamsCHRIS McDONOUGHDad & Mom WESTLEY McKINLEYMr. & Mrs. Thomas BowMr. & Mrs. Daniel SaundersMs. Julie YossJAKE MEDLEYMs. Christine BoydNICOLE MILECKIDad & MomJEFFREY MONTAVONDad & MomMs. Sylvia BettnerGilmore FarmsMr. & Mrs. Mervyn SchlesingerED MURPHYMr. David WilliamsonASHER NIKOLAJEVSMr. Sanford BlackMr. Richard PerkinsNOAH’S HOPEMr. & Mrs. Eric KallbackTIMOTHY NORDQUISTMs. Katie Severn-Klooster

RACHEL NOWICKIMomBRIAN O’NEILLMr. & Mrs. Michael SnyderSUNEETA RANAMs. Patricia CardenasCHRISTINE RATZDad & MomMr. & Mrs. Gene EmanuelMr. Philip HovisMs. Kate OshimaMr. & Mrs. Rossiter Jr.BRADY REGEHR aka B-MANMr. Gary FytenJORDAN & ZACHARY ST. GELAISMs. Sylvia LePageKATELYN ST. GELAIS & FAMILYMs. Mary TarpeyTIFFANY SARAZENChris GarciaMR. & MRS. TONY SCHMIDT – In Honor of their 60th AnniversaryMr. Kevin SchulteMR. & MRS. STEVE SHERIDANMr. & Mrs. Richard ZaskiCARSON, WILLIE & VIOLET SHERMANGrandma’s Club – Carolyn, Eleanor, Ellen, Jane & SharonMr. & Mrs. Carson NeifertKESLEY SHUROSDad & MomMr. & Mrs. Samuel FinkMr. Curtis HudakMr. & Mrs. James Miles-PolkaMr. & Mrs. Robert MohrbacherTHE SIKORRA FAMILYMr. & Mrs. Michael FoleyMASON SMERDELMr. & Mrs. Nicholas CalvertMr. & Mrs. Scott CiupakMs. Bernadette DemouraNorth Coast LithoMs. Marianne TerryMr. & Mrs. Thomas UlineEMILY SMITHMs. Janet JorgesKRISTIN SMITHDad & MomMr. & Mrs. Allen DavisMr. & Mrs. David HultgrenMr. Bill IltzscheMr. John PelhamMs. Kerri SmithMr. Richard Steinbeck



WILLIAM & GRACE STANCOMBEMr. Keith LevesqueMR. & MRS. AL STRUNCMs. Bonnie PaulingLAUREN & MICHELLE SURREYMr. & Mrs. David FranklinMs. Marion RissmanNATALIE TARAILOMr. & Mrs. David RammingBONNIE J. THOMPSONMs. Martha DarntonREX TIMKO – In Honor of his 5th BirthdayFamily & FriendsJami BabyakMr. Peter BarkerMs. Taryn MarinoMelanie, Mia & Olivia SibleyMs. MaryAnn SnyderMs. Autumn TimkoWild Violets & ThymeTHE CELIA TOLLIVER-BETZ FAMILYMs. Margaret HukillBRADLEY TYLERDad & MomLAINE & NOAH VANHOUTANMr. & Mrs. R. Thomas BeechamJOHN VON TUNGELN – In Honor of his 40th B-day!Ms. Julie HughesRACHEL VON TUNGELNMs. Julie HughesMs. Prema WilsonLUKE & RACHEL WATSONMr. & Mrs. W.H. RichardsALISON WERDENMr. & Mrs. Philip StarcherCHELSEY WORSTERMr. & Mrs. Ronald RoundKIM ZELLMERMs. Judy WrightGENE ZONINAML Industries Inc.

IN MEMORY OF:CATIE ALLIOMs. Paula Lindsay- NashMs. Georgia ViscontiKARI ANDERSONMs. Margot M. AndersonMr. Paul KozarMr. Charles LivingstonMr. Gregory Nelson

CURTIS ANTHONYMr. & Mrs. Paul AnthonyMr. & Mrs. F.B. McMeneminMr. & Mrs. James RobinsonJAMES ASHER – Brother-in-Law of George MaximMr. & Mrs. Gerald RiggJEFFREY BALZERMs. Jean McCormickBOONE BARRICKLOWMomWHITNEY BARROWMr. & Mrs. Patrick JordanJUNI BARSTOW – Caregiver of Angel Levi KnowlesMr. & Mrs. John NiemiJULIE BECKSFORTDad & MomALICE BENSONMr. John BensonCELIA BETZMr. & Mrs. J. Timothy BetzMs. Alice BunningMs. Sandra FergusonMr. & Mrs. John GillsMr. & Mrs. Jonathan GreenMs. Lynnette HalsteadHilliard Davidson High School, Hilliard, OHMs. Margaret Hukill Ms. Barbara KleckMr. & Mrs. Johnnie MarcumMr. & Mrs. Doug PaulMr. & Mrs. Gary RawsonMs. Joan SchmidtMr. & Mrs. Bryan SheltonMs. Tandy SimpsonMARK BINDLMr. & Mrs. Gilbert BindlCOREY & KIMBERLY BINGHAMMs. Margaret BinghamLESLEY & LYNN BLAKEMr. & Mrs. Jim BlakeAMY & MIKE BOERDad & MomMr. Robert MerkleABBY BORTZMs. Elizabeth MarksMARY ALICE BORTZMs. Elizabeth MarksDANIEL BREUERDadLULU CALDERONMs. Georgina Griego

MATHEW CALVERTThe Calvert FamilyMs. Alice CanterburyGARRETT CAMPBELLDad & MomGarrett’s Wings FoundationChris HudsonTREVOR CASTLEMr. & Mrs. Gary ParrettJONATHAN, KAREN, MARK & PAUL CASTORMr. Stephen CastorHANNAH CAULFIELDDad & LoriMs. Brenda DesenaMs. Cindy SchallerALLY CHANCEDad & MomMr. & Mrs. Charles ChanceCHRISTOPHER COMEAU-D’ORSAYMr. & Mrs. Gene DockterMs. Maureen GavinRYAN COOPERDad & MomKARI COURTNEYMr. Homer MidtlyngMARIAH CRAWFORDMs. Debra CressMAITE ELIZABETH CRUZDad & MomCLAY CUNNINGHAMMr. & Mrs. Dean BucalosMs. Jean WhartonMEGAN DEPEWMr. & Mrs. Greg StaceyCHRISTOPHER DICAPUADad & MomMs. Irene SamulewskiLAURIE & TOMMY DOCKTERDad & MomMr. & Mrs. Robert McGrathMr. & Mrs. Bernard PaulsenEMILY DUGGERDad & MomMr. & Mrs. James KerlickMr. Skip McGrawMr. & Mrs. Gerald RaglandMr. & Mrs. Steven SummersPETER EDWARDSDad & MomMr. & Mrs. Douglas MorackMs. Jenna O’RourkeMr. Robert Wint



FRAYA FIELDSDad & MomJEREMY FIELDSBDSRA Southeast Chapter & FamiliesMr. & Mrs. Charles Leffl erAMANDA FITZGERALDMomMs. Marilyn GulottaMs. Valerie JohnsonMr. & Mrs. Richard MeyerKATE FRANKMr. Paul FrankMELISSA FROIODad & MomJIM FRYEMs. Dru GlennROBERT GEBHARDTMomSARA GEDEONMr. Tomas GedeonBECKY GJEMSEMr. & Mrs. Arlyn JohnsonGRETCHEN GLENNONMr. & Mrs. Mike DodgeJR. GODFREYDad & MomMr. & Mrs. David LoebachCHRISMOND & KERRICK GOLLMomTRACY LYNNE GUERTNERMr. & Mrs. Ronald OuellettePRESTON HABERSHAWDad & MomNOAH HARDYDad & MomMs. Judy OkeefeKOURTNEY HARMONMr. Walter CzechowiczMs. Diane Fogle Mr. & Mrs. Thomas FogleMEGAN HARRIMANDad & MomMr. & Mrs. Thomas GallensteinMs. Jane RemyWANDA HARVEYDad & MomSTEPHEN HATCHETTMr. & Mrs. Larry JonesMr. Joseph ToneyMs. Susie WileeTYLER & RYAN HAXTONDad & MomHELEN HILTONMr. & Mrs. William Shell

MRS. EDITH HOOVER – Grandmother of Nathan HooverMr. & Mrs. Ronnie EssingerGroveport Madison Local Education AssociationMr. & Mrs. Jerry LauberMrs. William SniderMr. & Mrs. Brant TedrowAAGE JENSEN - Grandfather of Angel Sara LambMs. Joanne BowmanMr. & Mrs. Tony McLainJAY JENSENMomJAMIE JERCHAMr. & Mrs. Donald BlankMr. & Mrs. Mark Jercha Mr. & Mrs. Brian ReeseMr. & Mrs. Anthony TomichNICHOLAS JEWETTDad & MomDONALD & LAURIE JOHNSONMr. & Mrs. Arlyn JohnsonELISABETH JOHNSONDad & MomMs. Judith HaynesMr. & Mrs. Paul SilvaLEE, LORENA & ELAINE JOHNSTONMr. Dean WyseLORENA JOHNSTONMr. & Mrs. David BirckbichlerHAYLEE JOYCEMs. Debbie DierkingMr. & Mrs. Donald JoyceMr. & Mrs. Robert KrauseJOE & IAM JOYCEMr. & Mrs. Edward DircksDANIEL KERNERCarmen WeissASHLEY KIEFERDad & MomJULIE ANN KLEE – In Memory of her 30th BirthdayDad, Mom, Paige & TylerLEVI KNOWLESDad & MomJUSTIN LAVENMr. & Mrs. Neil NelsonJULIE LEFFLERDad & MomMs. Laura RatchfordSTEPHANIE LEISMr. & Mrs. William Sanford

SCOTT LITTRELMs. Rochelle MannhardtMs. Marcia UnwinMATTHEW & RICK LOWTHERDad & MomKEVIN LUMMDad & MomMr. Atsuko SandersSTEVEN & CAROL MARTENSMs. Lynn WirthLINDLEY MATTHEWSMr. Thomas Dempsey IIROBBIE & STEFANIE MAXIMMr. & Mrs. James AsherTHELMA McDONOUGHMs. Mary NewbyLEAH McFARLANEDad & MomMs. Sandy PhillipsBILLY & JOEY MILANIAunt SusanMs. Erika BlasMs. Karen KarlThe Joel Maynard FamilyMr. & Mrs. John MilaniJohn G. Newby, MDMs. Martina SochaMr. Jeffrey Van SpankerenMr. Kenneth Van SpankerenMr. Steven Van SpankerenKAREN NEWTONMomHALEY NICHOLSMr. & Mrs. David WolfeNONA LYN NICKERSONMomZACHARY NOORDHOEKDad & MomMs. Julie CarlsonED & BETTY NOWAKMr. Roy PalmerEVELYN NOWICKIMom NATHAN OLIENMs. Lorean HallMEGHAN O’NEILLMr. & Mrs. Wesley LentzMr. & Mrs. Ronald NelsonMr. & Mrs. James ReasonerMr. & Mrs. Alfred RubyMrs. Robert VanderweeleMr. & Mrs. Stephen VidetoDANIEL ORTLANDDad & MomMs. Lynne Flynn



MICHAEL PANKRATZDad & MomTAMMY PATANEMs. Grace RomeoBARBARA JO PATTERSONMs. Susan ConverseBENJAMIN PAYNEMomJUSTIN PECKDad & MomMr. & Mrs. Craig KemperThe Joel Maynard FamilyMs. Betsy PeckMs. Juliene StaffordADAM PEDERSONMr. Bruce GlorvigenDAVID PETERSONAnonymousSARA PFALLERMs. Jean ConnollyMr. & Mrs. Casimer DuravaMs. Geralyn HamesMs. Kathlyn HamesMr. Dale HortikMr. & Mrs. Ty KurthMs. Nancy MenneckeMr. & Mrs. Benedict PfallerMs. Jean WalshDAVID PFOHLDad & MomMr. & Mrs. Brian SteenWILLIAM PHELANMs. Marcia ChildressMs. Linda PhelanRICHARD PHILLIPS – Beloved Grandfather of Angel Leah McFarlaneMrs. Sandy PhillipsMARCY, MINDY & MICHAEL PINDERMr. Randy AnselMr. & Mrs. Bernard BehrenshausenMs. Michele FeeneyMs. Pauline RamseyHOWIE PITTSMs. M. Faye ReynoldsLAUREN POHRENMr. & Mrs. John NewellJOSHUA POWELLDad & MomSTEFANI PUSKARInge PuskarSHIV RANAMs. Patricia CardenasMs. Virginia ElginMr. & Mrs. John Jerikian

MARK & JAMES RICKMANMr. & Mrs. Samuel RobinsonBILL & MARGARET ROSCHEMs. Marilyn RoscheROBERT & SUSAN ROSCHEMs. Marilyn RoscheAMBER, SANDY & SARAH ROYALTYDad & MomMr. & Mrs. Mark KoenigCHARLIE SCANLONDad & MomW.L. HaddadCOLLIN SCHMIDTDad & MomDOUGLAS SCHMIDTMr. Kevin SchulteTHOMAS SCHULTZMs. Sally DechantMs. Caryll SchultzMr. & Mrs. John TurnerNATEY SCHWARTZEMr. & Mrs. Angelo BellassaiMr. & Mrs. Francis SchwartzeAMIEE & MONICA SHEERMANDad & MomMICHELE SHERIDANMr. & Mrs. Richard ZaskiJORDAN LYNNE SIBORGDad & MomLINDA SIVULKAMr. & Mrs. Mark PodskarbiTIFFANY SMITHMs. Cheryl LueneburgSARAH SPROGERDad & MomARTHUR SURREYMr. Robert CimlerMr. & Mrs. Robert SchardtWILLIAM STANCOMBEMr. Keith LevesqueMELISSA TARAILODad & MomBROXTON TAYLORMs. Jean BowmanTHEIR PARENTSMs. Margie FrazierMr. Dave LippertEMILY THOMPSONDad & MomMs. Deanna BrownMr. & Mrs. Wasyl KarpenkoMs. Bonnie ThompsonMs. Winifred WebbJOANNA VANMETERMs. Patricia VanMeter

ROSIE WALTERSMs. Michelle ArsenaultMs. Rachael WrightTIMOTHY & TYSON WEAVERMr. & Mrs. Steve HansonMICHAEL SHANE WHEELERPride International, Inc.PAULA WHITEMs. Dru GlennCAROLYN WILHELMMr. & Mrs. Eugene Breyer Jr.Mr. & Mrs. Richard HortonMr. R. Dennis KellyMr. & Mrs. Thomas MelvinMr. & Mrs. John TensingCASSIE, LINDSAY & PAT WOLTERMr. & Mrs. Chuck DitterMr. & Mrs. Ronald HoutsRACHAEL WRIGHTMs. Michelle ArsenaultN. DAVID YAMAUCHIMomDANIEL YANAKDad & MomMADDIE ZELLMERDad & MomDrs. Betse Gage & Wm. ChaseMr. & Mrs. Louis FerloMr. & Mrs. Tim GibbsMs. Amelia MannMr. & Mrs. William ShellMr. & Mrs. Lance Van DusenMr. & Mrs. Brad Williams

PROGRAMS, SERVICES & RESEARCH:Ms. Andrea AllioAnonymousMs. Erin BakerMr. & Mrs. William BataldenBDSRA Heart of America Chapter & FamiliesBDSRA Louisiana Chapter & FamiliesBDSRA Metro NY/NJ Chapter & FamiliesBDSRA Southeast ChapterMr. & Mrs. Robert Biester Sr.Dr. Gordon BixelMr. Roger BowersMr. & Mrs. Robert BrannanMr. Kurt BrunoMs. Lori BuserCal-Neva 7-Eleven FOA



Mr. & Mrs. Kevin CalvertCapital One Card Lab Connect ProgramCauses on FacebookMs. Alysa ChaduaMr. & Mrs. Robert ClearMr. Vincent ColarussoMr. & Mrs. Frank ConradMr. Thomas CornellCostco Wholesale, Inc.Mr. Thomas CumminsMr. & Mrs. Tony DepoiMs. Peggy DiCapuaMr. & Mrs. Anthony DimaggioMr. & Mrs. Mark DimariaMs. Joan DitmarMs. Helen DuffyMr. & Mrs. Roy EberleMs. E. Margaret EshlemanMrs. Judith EtchelecuMr. & Mrs. C. Thomas FennimoreMs. Jayne FieldsFirstGivingMs. Mary ForsethFoth & Van Dyke, LLCE. FragapanoMs. Violet GarbersMs. Ann GeerGoodSearchMs. Sharon GrabillMs. Julia GrandleMr. & Mrs. Gary Griffi thMr. & Mrs. Stephen GunnRev. Marvin & Mrs. HardingMr. & Mrs. Steven HarmonMs. Mary Jo HenryMr. & Mrs. Wayne Herndon/ Beyond Batten Disease Foundation Mr. &Mrs. Donald HollenbergMr. Larry HooverMr. & Mrs. John HowardHubbard FeedsHyde Park Hair CentreMr. & Mrs. Keith JapowiczMaider JimenezMr. Walter JohnsonMr. Joel KargDr. & Mrs. Martin Katz

Mr. Michael KennyMr. & Mrs. Benjamin KingMs. Elizabeth KordtMs. Katey KowalskiKrogerMr. & Mrs. Robert KuhnleyMr. & Mrs. Pierre LariviereMr. & Mrs. Patrick LoneyMs. Stephanie LouroMr. & Mrs. Raymond ManiaciMs. Linda MattesonMs. Peggy McCormickMr. & Mrs. Danny McDowellMr. & Mrs. Thomas McIntoshSayyed MehmoodMr. & Mrs. Christopher MeierMercer Health & Benefi ts LLCMs. Jane MillerMr. George Mims Jr.Mr. & Mrs. John MitchellMs. Brandie MorganMs. Margaret MountSoraya NaboulsiNational Organization for Rare DisordersNetwork LogixMr. Jared NielsenMr. & Mrs. Donald NordquistNorth Coast LithoMr. Dennis OlsenMr. William OnopaMr. Riccardo PappiniMr. & Mrs. W. PhalenMr. & Mrs. John PolacekMs. Theresa PostenMr. Mike PozoloMr. & Mrs. James PranschkePremier, Inc.Mr. & Mrs. Gary RansickThe Rider FamilyMr. & Mrs. Donald RobbinsMr. Charles RobertsMs. Gloria RowanMr. & Mrs. James SanoskiMr. & Mrs. Lewis SchattlerMr. Scott SchumannMr. Kevin ShawMr. & Mrs. Richard Sheerman

Mr. Stephen ShepherdMs. Katherine SholtysIsha ShresthaMr. & Mrs. Jeffrey Simonton Mr. & Mrs. John SmithMs. Jacqueline SuchnickMr. & Mrs. Philip SymanskiMr. Richard TarburtonTCG Consulting Partners, LLCMs. Sara ThompsonMr. & Mrs. Stephen ThompsonMr. & Mrs. Scott TinerviaMr. & Mrs. W.M. VolnaMr. & Mrs. Robert WilhelmMr. David WilliamsonMs. Florence YodisMs. Elizabeth YoungsMr. & Mrs. Daniel YstesundMr. & Mrs. David Zuchowski

DONATIONS RAISED FOR BDSRA THROUGH SPECIAL EVENTS SEPT. THROUGH DEC. 2012:Bash 4 Battens - $4,000.00Beating Batten 5K - $5,272.78 Honor of Naomi CaugheyCarbrey Family - $55.50Celia’s Walk - $5,959.00 Memory of Celia BetzDave’s Home Roast - $2,940.00 Honor of Clifford DahlWater Oak Elementary School, Sulphur Springs, TX, 3rd Grade Class Hot Chocolate Stand - $164.06 Honor of Emily CollinsMike’s Beer Bucket Golf Outing - $2,250.00Miles for Michael - $2,700.00 Memory of Marcy, Mindy & Michael PinderRun for Broxton - $750.00 Honor Broxton TaylorTrottin’ for Taylor - $500.00

Please direct any questions or concerns regarding this list to Donna Gunn at [email protected].

Thank you for your generous support.

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