a proposed framework for supporting behaviour change by translating personalised activities into...

1
www.ulster.ac.uk/niche at the core of nutrition research niche Northern Ireland Centre for Food and Health A Proposed Framework For Supporting Behaviour Change By Translating Personalised Activities into Measurable Benefits Background Our aim is to examine the case for suppor2ng behaviour change in prediabe2c obese people in order to improve their health. In the sec2ons of this poster, we set out the: Objec2ves, background and mo2va2on for suppor2ng behaviour change Relevant literature in this health and wellbeing area Feasibility of SmartLife a persondriven applica2on involving healthcare prac22oners and peer support interac2on Objec6ves The ambi2on of our proposed framework is to: bring together experts in different disciplines to address a common problem; that of contributory factors to obesity and the development of type 2 diabetes among these atrisk individuals The innova2on focus is on novel approaches to change behaviour facilitated through a soGware solu2on that is accessed by users via their social media, for example, Facebook. We also focus on failurefree, posi2ve reinforcement, person empowerment and wellbeing. Healthcare professionals can also use the framework, to monitor their pa2ents or clients and assess behaviour change. Review of literature Obesity is claimed to be the world's largest single cause of mortality and morbidity in the 21st Century. Major contributors to the obesity epidemic include: Economic Technological and social changes (e.g., promote a sedentary lifestyle with easy access to lowcost, calorie dense, highfat food ) The management of obesity, diabetes and other chronic diseases is based on the interac2on between ini2a2ves and resources on the part of pa2ents, rela2ves, and healthcare professionals. A modern pa2ent centred approach to care has evolved from an acutecare paradigm where treatment now supports pa2ents in gradually becoming their own treatment experts, and thus the balance in shared responsibili2es is shiGing over 2me to pa2ents and their families (Brink et al. 2002). Informa2on technology has also undergone rapid development impac2ng significantly on social life and modes of communica2on while technical advances have provided a founda2on for proac2ve health systems that use informa2on from mul2ple sources for support aimed at improved health and avoidance of health risks (Eysenbach, 2008). The possibility for informal and selfdirected informa2on seeking by individuals, implying that the individual is in command of what informa2on should be sought and why it is important (Eysenbach, 2008) has helped drive a con2nuously greater propor2on of online healthrelated informa2on, created and maintained by individuals other than healthcare professionals, such as other pa2ents (Eysenbach, 2008). The eHealth resolu2on WHA58.28, approved in 2005 by the World Health Assembly, stresses the importance of eHealth (WHO, 2005) – urging member states to develop eHealth services and create longterm strategic plans for development and specific implementa2on. Although modern treatment of diabetes includes individualised educa2on, intense mul2pledose treatment regimens, ac2ve selfcontrol, and new insulin and insulin delivery technologies, a large propor2on of pa2ents are s2ll at risk of acute and/or longterm complica2ons. Internetbased interven2ons may improve access to health services, pa2ent educa2on, and quality of care, and have also been reported to influence pa2ents’ health care u2lisa2on, behaviour, a\tudes, knowledge, skills, and, to some extent, metabolic control (Jackson et al. 2006; McMahon et al. 2005; Blonde & Parkin, 2006). References 1. Blonde, L., Parkin, C.G. (2006). Internet resources to improve health care for pa2ents with diabetes. Endocrine Prac2ce. 2006;12 Suppl 1(suppl 1):131–7. 2. Brink, S.J., Miller, M., Moltz, K.C. (2002). Educa2on and mul2disciplinary team care concepts for pediatric and adolescent diabetes mellitus. Journal of Paediatric Endocrinology and Metabolism. 15(8):1113–30. 3. Büchner, A.G, Mulvenna, M.D, (1998) Discovering Internet Marke2ng Intelligence Through Online Analy2cal Web Usage Mining, ACM SIGMOD Record, 27(4): 5461, ACM. 4. Teysenbach, G. (2008). Medicine 2.0: social networking, collabora2on, par2cipa2on, apomedia2on, and openness. Journal of Medical Internet Research. 10(3):e22. 5. Fisher, J.D. and Fisher, W.A. (1992). Changing AIDSRisk Behaviour. Psychological Bulle2n, 111:455474. 6. Jackson, C.L., Bolen, S., Branca2, F.L., BamsTurner, M.L., Gary, T.L. (2006). A systema2c review of interac2ve computerassisted technology in diabetes care. Interac2ve informa2on technology in diabetes care. Journal of General Internal Medicine. 21(2):105–10. 7. Maio, G., Manstead, A., Verplanken, B. et al. (2007). Lifestyle Change. Evidence Review. Foresight Tackling Obesi2es: Future Choices. hmp//www.foresight. gov.uk 8. McMahon, G.T., Gomes, H.E., HicksonHohne, S., Hu Tang, M.J., Levine, B.A., Conlin, P.R. (2005). Webbased care management in pa2ents with poorly controlled diabetes. Diabetes Care. 28(7):1624–9. 9. Mulvenna, M.D., Anand, S.S., & Büchner, A.G., (eds.), (2000) Personaliza2on on the Net using Web Mining, Communica2ons of the ACM Special Sec2on, 43(8):122125, ACM. 10. Na2onal Ins2tute for Health and Clinical Excellence (2011). Centre for Clinical Prac2ce, Quality Standards Programme for Diabetes in adults. Na2onal Ins2tute for Health and Clinical Excellence. hmp://www.nice.org.uk/ media/FCF/87/DiabetesInAdultsQualityStandard.pdf 11. World Health Organiza2on Regional Office for Europe. (2005). [accessed:28022013]. World Health Assembly resolu2on on eHealth (WHA58.28) hmp://apps.who.int/gb/ebwha/pdf_files/WHA58/WHA58_28en.pdf Conclusions In summary, the proposed SmartLife framework will draw upon the exper2se and experience of a mul2disciplinary team and devise a solu2on that uses social media, and iden2fies real benefits for users, based upon the use of a personalised assessment profile. The advice will be ‘failurefree’, based on a posi2ve wellbeing perspec2ve, and focus on changing people’s healthrelated behaviour. Discussion and proposed methodology The goal of our framework is healthrelated behaviour change. To achieve this, the framework seeks to help individuals understand the short, medium and longerterm consequences of healthrelated behaviour; and helping them to feel posi2ve about the benefits and value of healthenhancing behaviours and changing their behaviours. Integral to achieving this is a framework capable of recognising and incorpora2ng how individual’s social contexts and rela2onships may affect their behaviour a fundamental aspect of helping people plan changes in their lifestyle ( Na2onal Ins2tute for Health and Care Excellence ([NICE], UK, 2011). Alongside quan2ta2ve physiological measures it is the ambi2on of the designers to incorporate and assess addi2onal psychological factors which are acknowledged to influence behaviour change including, habits, beliefs, transla2ng inten2on into ac2on, automa2c a\tudes versus selfreported a\tudes, and moral climate within the framework (Maio et al. 2007). As part of this task, it is an2cipated that the framework’s design will take into account the social dialogue nuances prevalent between the users of the SmartLife system, helping to provide more personalised and context/situa2on specific advice while simultaneously facilita2ng peer support and communica2on. A key innova2on will be the use of a bespoke personalisa2on algorithm that translates an individual’s ac2vi2es into quan2fiable measurable benefits (Mulvenna et al. 2000; Büchner & Mulvenna, 1998). The of the SmartLife framework is to formulate an interven2on that goes beyond informa2on campaigns to simultaneously inform, support, shiG mo2va2on and provide the necessary skills to lead to behaviour change (Fisher & Fisher, 1992). The methodology for future work is grounded on an approach which is validated across the different disciplines involved, encompassing psychology, social informa6cs, social media, diete6cs as well and health and wellbeing knowledge. The methodology is to devise a framework where people can selfregister to self manage their wellbeing, and implicit measures are obtained based on the 2me, frequency and wellbeing value of the interven2ons and mediated messages between the system, health and wellbeing advisors in the system and the users themselves. Corresponding author: Maurice Mulvenna Email: [email protected] Maurice Mulvenna 1 , Adrian McCann 2 , Maurice O’Kane 3 , Barry Henderson 3 , Karen Kirby 4 and Deirdre McCay 5 1 TRAIL Living Lab, School of Computing & Mathematics, University of Ulster, UK 2 Biomedical Sciences Research Institute, University of Ulster, UK 3 C-TRIC (Clinical Translational Research and Innovation Centre), Western Health and Social Care Trust, Altnagelvin Hospital, UK 4 Psychology Research Institute and School of Psychology, University of Ulster, UK 5 Western Health and Social Care Trust, Altnagelvin Hospital, UK

Upload: maurice-mulvenna

Post on 20-May-2015

237 views

Category:

Education


3 download

DESCRIPTION

The aim of this position paper is to examine the case for supporting behaviour change in pre-diabetic obese people in order to improve their health. The paper sets out the background and motivation for supporting behaviour change before outlining the relevant literature in this health and wellbeing area. The paper then explores the feasibility of SmartLife - a patient-driven application involving healthcare practitioners and peer support interaction with a focus on failure-free, positive reinforcement, patient empowerment and wellbeing.

TRANSCRIPT

Page 1: A Proposed Framework for Supporting Behaviour Change by Translating Personalised Activities into Measurable Benefits

www.ulster.ac.uk/nicheat the core of nutrition researchniche

Northern Ireland Centre for Food and Health

A Proposed Framework For Supporting Behaviour Change By Translating Personalised

Activities into Measurable Benefits

Background  §  Our  aim  is  to  examine  the  case  for  suppor2ng  behaviour  change  in  pre-­‐diabe2c  

obese  people  in  order  to  improve  their  health.    §  In  the  sec2ons  of  this  poster,  we  set  out  the:  

§  Objec2ves,  background  and  mo2va2on  for  suppor2ng  behaviour  change  

§  Relevant  literature  in  this  health  and  wellbeing  area  §  Feasibility  of  SmartLife  -­‐  a  person-­‐driven  applica2on  involving  

healthcare  prac22oners  and  peer  support  interac2on  

Objec6ves  The  ambi2on  of  our  proposed  framework  is  to:  bring  together  experts  in  different  disciplines  to  address  a  common  problem;  that  of  contributory  factors  to  obesity  and  the  development  of  type  2  diabetes  among  these  at-­‐risk  individuals    

The  innova2on  focus  is  on  novel  approaches  to  change  behaviour  facilitated  through  a  soGware  solu2on  that  is  accessed  by  users  via  their  social  media,  for  example,  Facebook.      We  also    focus  on  failure-­‐free,  posi2ve  reinforcement,  person  empowerment  and  wellbeing.      Healthcare  professionals  can  also  use  the  framework,  to  monitor  their  pa2ents  or  clients  and  assess  behaviour  change.  

Review  of  literature  Obesity  is  claimed  to  be  the  world's  largest  single  cause  of  mortality  and  morbidity  in  the  21st  Century.  Major  contributors  to  the  obesity  epidemic    include:  -­‐  Economic  -­‐  Technological  and  social  changes  (e.g.,  promote  a  sedentary  lifestyle  with  easy  

access  to  low-­‐cost,  calorie  dense,  high-­‐fat  food  )      §  The  management  of  obesity,  diabetes  and  other  chronic  diseases  is  based  on  the  

interac2on  between  ini2a2ves  and  resources  on  the  part  of  pa2ents,  rela2ves,  and  healthcare  professionals.    

§  A  modern  pa2ent  centred  approach  to  care  has  evolved  from  an  acute-­‐care  paradigm  where  treatment  now  supports  pa2ents  in  gradually  becoming  their  own  treatment  experts,  and  thus  the  balance  in  shared  responsibili2es  is  shiGing  over  2me  to  pa2ents  and  their  families  (Brink  et  al.  2002).    

§  Informa2on  technology  has  also  undergone  rapid  development  impac2ng  significantly  on  social  life  and  modes  of  communica2on  while  technical  advances  have  provided  a  founda2on  for  proac2ve  health  systems  that  use  informa2on  from  mul2ple  sources  for  support  aimed  at  improved  health  and  avoidance  of  health  risks  (Eysenbach,  2008).    

§  The  possibility  for  informal  and  self-­‐directed  informa2on  seeking  by  individuals,  implying  that  the  individual  is  in  command  of  what  informa2on  should  be  sought  and  why  it  is  important  (Eysenbach,  2008)  has  helped  drive  a  con2nuously  greater  propor2on  of  online  health-­‐related  informa2on,  created  and  maintained  by  individuals  other  than  healthcare  professionals,  such  as  other  pa2ents  (Eysenbach,  2008).  

§  The  eHealth  resolu2on  WHA58.28,  approved  in  2005  by  the  World  Health  Assembly,  stresses  the  importance  of  eHealth  (WHO,  2005)  –  urging  member  states  to  develop  eHealth  services  and  create  long-­‐term  strategic  plans  for  development  and  specific  implementa2on.  

§  Although  modern  treatment  of  diabetes  includes  individualised  educa2on,  intense  mul2ple-­‐dose  treatment  regimens,  ac2ve  self-­‐control,  and  new  insulin  and  insulin  delivery  technologies,  a  large  propor2on  of  pa2ents  are  s2ll  at  risk  of  acute  and/or  long-­‐term  complica2ons.  

§  Internet-­‐based  interven2ons  may  improve  access  to  health  services,  pa2ent  educa2on,  and  quality  of  care,  and  have  also  been  reported  to  influence  pa2ents’  health  care  u2lisa2on,  behaviour,  a\tudes,  knowledge,  skills,  and,  to  some  extent,  metabolic  control  (Jackson  et  al.  2006;  McMahon  et  al.  2005;  Blonde  &  Parkin,  2006).    

References  1.  Blonde,  L.,  Parkin,  C.G.  (2006).  Internet  resources  to  improve  health  care  for  pa2ents  with  diabetes.  Endocrine  

Prac2ce.  2006;12  Suppl  1(suppl  1):131–7.  2.  Brink,  S.J.,  Miller,  M.,  Moltz,  K.C.  (2002).  Educa2on  and  mul2disciplinary  team  care  concepts  for  pediatric  and  

adolescent  diabetes  mellitus.  Journal  of  Paediatric  Endocrinology  and  Metabolism.  15(8):1113–30.  3.  Büchner,  A.G,  Mulvenna,  M.D,  (1998)  Discovering  Internet  Marke2ng  Intelligence  Through  Online  Analy2cal  

Web  Usage  Mining,  ACM  SIGMOD  Record,  27(4):  54-­‐61,  ACM.    4.  Teysenbach,  G.  (2008).  Medicine  2.0:  social  networking,  collabora2on,  par2cipa2on,  apomedia2on,  and  

openness.  Journal  of  Medical  Internet  Research.  10(3):e22.    5.  Fisher,  J.D.  and  Fisher,  W.A.  (1992).  Changing  AIDS-­‐Risk  Behaviour.  Psychological  Bulle2n,  111:455-­‐474.  6.  Jackson,  C.L.,  Bolen,  S.,  Branca2,  F.L.,  Bams-­‐Turner,  M.L.,  Gary,  T.L.  (2006).  A  systema2c  review  of  interac2ve  

computer-­‐assisted  technology  in  diabetes  care.  Interac2ve  informa2on  technology  in  diabetes  care.  Journal  of  General  Internal  Medicine.  21(2):105–10.    

7.  Maio,  G.,  Manstead,  A.,  Verplanken,  B.  et  al.  (2007).  Lifestyle  Change.  Evidence  Review.  Foresight  Tackling  Obesi2es:  Future  Choices.  hmp//www.foresight.  gov.uk  

8.  McMahon,  G.T.,  Gomes,  H.E.,  Hickson-­‐Hohne,  S.,  Hu  Tang,  M.J.,  Levine,  B.A.,  Conlin,  P.R.  (2005).  Web-­‐based  care  management  in  pa2ents  with  poorly  controlled  diabetes.  Diabetes  Care.  28(7):1624–9.    

9.  Mulvenna,  M.D.,  Anand,  S.S.,  &  Büchner,  A.G.,  (eds.),  (2000)  Personaliza2on  on  the  Net  using  Web  Mining,  Communica2ons  of  the  ACM  Special  Sec2on,  43(8):122-­‐125,  ACM.    

10.  Na2onal  Ins2tute  for  Health  and  Clinical  Excellence  (2011).  Centre  for  Clinical  Prac2ce,  Quality  Standards  Programme  for  Diabetes  in  adults.  Na2onal  Ins2tute  for  Health  and  Clinical  Excellence.  hmp://www.nice.org.uk/media/FCF/87/DiabetesInAdultsQualityStandard.pdf  

11.  World  Health  Organiza2on  Regional  Office  for  Europe.  (2005).  [accessed:28-­‐02-­‐2013].  World  Health  Assembly  resolu2on  on  eHealth  (WHA58.28)  hmp://apps.who.int/gb/ebwha/pdf_files/WHA58/WHA58_28-­‐en.pdf  

 

Conclusions  In  summary,  the  proposed  SmartLife  framework  will  draw  upon  the  exper2se  and  experience  of  a  mul2-­‐disciplinary  team  and  devise  a  solu2on  that  uses  social  media,  and  iden2fies  real  benefits  for  users,  based  upon  the  use  of  a  personalised  assessment  profile.  The  advice  will  be  ‘failure-­‐free’,  based  on  a  posi2ve  wellbeing  perspec2ve,  and  focus  on  changing  people’s  health-­‐related  behaviour.  

Discussion  and  proposed  methodology    §  The  goal  of  our  framework  is  health-­‐related  behaviour  change.  

§  To  achieve  this,  the  framework  seeks  to  help  individuals  understand  the  short,  medium  and  longer-­‐term  consequences  of  health-­‐related  behaviour;  and  helping  them  to  feel  posi2ve  about  the  benefits  and  value  of  health-­‐enhancing  behaviours  and  changing  their  behaviours.    

§  Integral  to  achieving  this  is  a  framework  capable  of  recognising  and  incorpora2ng  how  individual’s  social  contexts  and  rela2onships  may  affect  their  behaviour-­‐  a  fundamental  aspect  of  helping  people  plan  changes  in  their  lifestyle  (  Na2onal  Ins2tute  for  Health  and  Care  Excellence  ([NICE],  UK,  2011).      

§  Alongside  quan2ta2ve  physiological  measures  it  is  the  ambi2on  of  the  designers  to  incorporate  and  assess  addi2onal  psychological  factors  which  are  acknowledged  to  influence  behaviour  change  including,  habits,  beliefs,  transla2ng  inten2on  into  ac2on,  automa2c  a\tudes  versus  self-­‐reported  a\tudes,  and  moral  climate  within  the  framework  (Maio  et  al.  2007).  

§  As  part  of  this  task,  it  is  an2cipated  that  the  framework’s  design  will  take  into  account  the  social  dialogue  nuances  prevalent  between  the  users  of  the  SmartLife  system,  helping  to  provide  more  personalised  and  context/situa2on  specific  advice  while  simultaneously  facilita2ng  peer  support  and  communica2on.    

§  A  key  innova2on  will  be  the  use  of  a  bespoke  personalisa2on  algorithm  that  translates  an  individual’s  ac2vi2es  into  quan2fiable  measurable  benefits  (Mulvenna  et  al.  2000;  Büchner  &  Mulvenna,  1998).  

§  The  of  the  SmartLife  framework  is  to  formulate  an  interven2on  that  goes  beyond  informa2on  campaigns  to  simultaneously  inform,  support,  shiG  mo2va2on  and  provide  the  necessary  skills  to  lead  to  behaviour  change  (Fisher  &  Fisher,  1992).    

§  The  methodology  for  future  work  is  grounded  on  an  approach  which  is  validated  across  the  different  disciplines  involved,  encompassing  psychology,  social  informa6cs,  social  media,  diete6cs  as  well  and  health  and  wellbeing  knowledge.    

§  The  methodology  is  to  devise  a  framework  where  people  can  self-­‐register  to  self-­‐manage  their  wellbeing,  and  implicit  measures  are  obtained  based  on  the  2me,  frequency  and  wellbeing  value  of  the  interven2ons  and  mediated  messages  between  the  system,  health  and  wellbeing  advisors  in  the  system  and  the  users  themselves.  

Corresponding author: Maurice Mulvenna Email: [email protected]

Maurice Mulvenna1, Adrian McCann2, Maurice O’Kane3, Barry Henderson3, Karen Kirby4 and Deirdre McCay5 1TRAIL Living Lab, School of Computing & Mathematics, University of Ulster, UK 2Biomedical Sciences Research Institute, University of Ulster, UK 3C-TRIC (Clinical Translational Research and Innovation Centre), Western Health and Social Care Trust, Altnagelvin Hospital, UK 4Psychology Research Institute and School of Psychology, University of Ulster, UK 5Western Health and Social Care Trust, Altnagelvin Hospital, UK