a research journey health - university of tasmania · healthy eating for healthy ageing in rural...
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A Research Journey In search of the secrets of
ageing well in rural
communities
Dr Peter Orpin For the Rural Ageing Research
Team
The Team
Team Principals
• Prof. Judi Walker
• Dr Peter Orpin
• Ms Kim Boyer
All Projects
• Dr Hazel Baynes (RCS); Ms Heidi Behrens (RCS); A/Prof. Ros Bull
(UDRH/Nursing); Ms Janet Carty (DHHS HACC Program); Prof.
Bruce Felmingham (Economics); Dr Ros Foskey (RCS); Ms Nadia
Mahjouri (DHHS); Myriad Consultancy; Dr Carol Patterson
(TasCOSS); Prof. Andrew Robinson (Nursing); A/Prof. Elaine
Stratford (Geography & Environmental Studies); TasCOSS; Ms
Tracey Tasker (DHHS) ; Prof. James Vickers (Pathology)
www.utas.edu.au/ruralhealth 2
Research Drivers – People, Policy and Practice
The challenges of supporting ageing well in a rural-
regional environment.
An Ageing Australia
– Structural (proportion) and numerical (numbers) ageing [Australian Bureau of
Statistics]
• 65+: 2004 13%; 2021 18-19% (5 million); 2051 26-28% (7+ million)
• 85+: the major users of health services, projected to increase from
12% of those 65+ in 2006 to 18% in 2036
• Old Age Dependency Ratio: 2007 = 20% (5:1) 2056 = 38-42%(<3:1)
– Regional and rural populations ageing fastest
• Outflow of young, inflow of older retirees and semi-retirees
• 2056 projected dependency ratio of 66% (two working age for each
non-working over 65)
www.utas.edu.au/ruralhealth 3
Being Regional and Rural
• Health – poorer on most indicators – travel further for many
services
• Demographic Change - Overall growing but more slowly than
urban – declines mainly inland agricultural and remote - gains
mainly regional hubs, high amenity coastal and peri-urban
• Economic Change – no overall decline - highly variable pattern ––
most vulnerable are low amenity single industry areas; agriculture,
mining or manufacturing.
• Community – powerful ‘rural idyll/community’ narrative with
plentiful anecdotal support, but research evidence mixed or
missing.
• The Rural/Regional Case – urban-rural dichotomy becoming
blurred – major change processes, demographic and social churn
• Policy and Service Planning – challenges of change and lack of
small-area evidence
www.utas.edu.au/ruralhealth 4
Research Drivers – People, Policy and Practice
Research Drivers – People, Policy and Practice
The Older Person as:
– People – diverse and complex, not a neat category
– Net asset not net drain
– Full participating, contributing members of society not a social
problem to be managed
In Search Of: An adequate and appropriate support
based on need not ‘aged care’
The Experience of Ageing
– Marked by loss: physical and cognitive capacity; roles and
functions; relationships; social norms; forms and activities
BUT
– Highly individual and linked to life course – social and
psychological resources, meaning-making, agency, earlier life
patterns, context
– No convincing evidence that they are, as a group, more lonely
or less satisfied with life than at any other age.
5
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Social Engagement and Ageing Well
• ‘Unsatisfactory’ social engagement patterns
consistently linked to poorer physical and psychological
health and wellbeing, and earlier death
• Perceptions and match to expectation stronger
indicators than objective health or circumstance
measures
• Social networks – become smaller and more
concentrated with age – focus on emotional value over
utility – part of a process of selection and optimisation
(making the best of the hand you are dealt).
www.utas.edu.au/ruralhealth 7
Cradle-Coast Pilot 2005-2007
• Aim: to understand the present and future support
needs of rural older people
• Semi- structured interviews with approximately 200
people 65+ in Cradle Coast region.
• Snowball sampling – implications for generalizability of
findings about social engagement
• Two interviews 18 month apart n=193 (phase I), n=154
(phase II)
• Questions about:
– Demographics
– Social support
– Getting about
– Service usage and service needs
– Future planning
www.utas.edu.au/ruralhealth 8
Cradle-Coast Pilot - Findings
Overall
• Very positive about most aspects of their lives although
facing major health challenges
• Highly engaged and active in their communities
• ‘Doing very nicely thank you’ but highly vulnerable
Social Support
• Almost everyone had someone that provided regular
contact and support – predominantly family
• Majority engaged in community activities weekly
Mobility
• Many reporting increasing incapacity BUT met with
acceptance, adaptation and coping
• Most remain highly mobile BUT almost totally reliant on
access to a private car. www.utas.edu.au/ruralhealth 9
Cradle-Coast Pilot - Findings
Service Usage and Needs
• Surprisingly low usage and concern about traditional
services apart from GP and chemist
• Despite average age 75.9 years, most managing own
activities of daily living
• Most help needed in maintaining household – heavy
housework and house/garden maintenance
Forward Planning
• Resistance to forward planning for frailty – ‘Go out of
here in a box’
• Strong preference for ageing in place through
graduated downsizing.
www.utas.edu.au/ruralhealth 10
11
ARC Linkage Grant: Community Engagement for
Productive Ageing 2007-2009
Prompted by findings of Cradle Coast Study
• The importance of social engagement in ageing well; and,
• The fragility of social engagement in the light of challenges related to
ageing in a rural area
The Study
• In-depth interviews with 69 rural community dwelling people 65+ across
three rural local government area in Tasmania (Central Highland,
Circular Head and West Coast)
• Interview/focus groups with 32 service providers in the study areas
• Interviews with 11 DHHS managers
Aim
• To explore the age-related challenges to social engagement and
participation in a rural context
• To inform the design and delivery of policies and services to support
older rural people to maintain their preferred levels of social engagement
into old age.
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Findings – the voice of older rural people
Ageing as a natural process
• Viewed and accepted as simply part of life – not looking for a cure
Each ageing experience a unique product of:
• Challenges faced – not a good predictor of ageing well
• An individual: personality and social and psychological resources
• A context – a place, a time and a history
• Processes of meaning-making and agency
A shrinking social world
• Loss of capacity, energy, mobility, significant others and much of
the world as they know it
• Can be volitional, welcome and adaptive
– matching expectations and aspirations to capacity
– Selective optimisation/adaptive compensation – making the most of what you
have
www.utas.edu.au/ruralhealth 13
Findings – the voice of older rural people II
Reluctant help seekers
• Stoic, un-reflexive acceptance – ‘Just get on with it’
• Self- reliant, independent and private – wary of loss of
independence and embarking on the ‘slippery slope’
• Clear demarcation between areas of government responsibility
(health and aged care) and their own (personal well-being and
social life)
• Reluctant to accept without being able to reciprocate
However
• Evidence of the lonely, marginalised and disconnected
• High vulnerability:
– Loss of capacity
– Loss of spouse
– Loss of licence
– Loss of cherished community organisations
www.utas.edu.au/ruralhealth 14
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The Voice of Service Providers
• Ageing as a constellation of pathologies
• Identified similar age-related challenges – especially
transport, loss of licence, morbidity and death of spouse
• Cognizant of importance of social engagement to health
and well-being and aspire (or are striving) to working
more flexibly and holistically to support ageing well
BUT
• Health and medical priorities for limited resources
• Constrained by:
– High and narrowly prescribed workloads and scopes of duty
– Environment of highly regulated accountability - financial, time,
OH&S, professional scopes of practice
– Reluctant help-seeking and help accepting among older rural
clients – wary of threats to independence, control and sense of
self-reliance.
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A Practice Framework
Supplementing, enhancing and building the
processes of community
1. Making the connections as a core duty
2. Having the time and flexibility to build an understanding of, and
relationship with client and community
3. Having the flexibility and resources to respond to ‘need’ as and
when, and in whatever form, it presents. This requires – in
individual approach, ‘keeping an eye on’
4. Circumspection – finding ways to support without challenging
control, privacy, self-reliance and independence
5. Accountability: flexible, responsive individualised care
approaches hampered by current scope of practice, key
performance indicator and ‘occasions of service’ accountability
requirements – forces rural providers working at the margins of
official scopes of practice.
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Healthy Eating for Healthy Ageing in Rural
Tasmania: Project I (HACC funded)
An examination of the operation of three models of government
provided meals to determine to what extent they are meeting client
needs:
– Day Centre Meals
– Eating with Friends
– Meals on Wheels
Methodology: Survey (63 clients); Interviews/focus groups (57 clients
and providers)
• Findings:
– For clients, the social, rather than the food or nutritional
dimensions of the service were of primary importance and
benefit
– The current nutritional goal focus in services’ policies and
design are limiting their capacity to respond to the diversity of
social need and individual eating preferences among clients
– Programs are likely to be missing the most isolated clients
18
Healthy Eating for Healthy Ageing in Rural
TasmaniaZ: Project 2 (HACC funded)
‘Perspective from a rural community’ – case study to examine
the capacity of a rural community to provide social eating opportunities for
its older members
Methodology: Small group and one-one-one interviews with independently living
older people, service providers and community leaders
Findings
• There is a very low level of awareness and recognition of nutritional insufficiency
or risk among older community members – where it exists (as existing research
suggests it must) it appears to be largely invisible even to health professionals
• While the community does provide a range of socialisation opportunities for its
older residents (many involving some sharing of food), few of these go the next
step of utilising these socialisation opportunities as a vehicle for simultaneously
and systematically addressing nutritional risk
• Individual sensitivities around food, eating and socialisation preferences, suggest
the issue may be best addressed by a range of flexible, ‘bottom-up’ approaches
utilising the community’s own social and infrastructural resources.
19
Where to from here?: Projects in the Pipeline
NHMRC Partnership Application Aged Support and Aged Care:
program and policy structures to support ageing well in rural and regional
Australia
• Flowing from the ARC finding that current bureaucratic age
care program frameworks are frequently at odds with their
underlying aim of providing older people with the truly
flexible, individualised, relationship based, community
oriented support they need to enable them to ‘age well’
within their communities.
• To develop an audit tool to be used in developing new, and
refining existing, policies and programs to better support
older regional and rural people to remain engaged and
contributing members of their communities into old age.
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Projects in the Pipeline II
Flexible Models for Delivered Meals (HACC funded)
An examination of current developments within NSW
Meals on Wheels that are designed to allow for a range
flexible and socially based approaches to the provision of
delivered meals to nutritionally at-risk older people.
National Seniors Grant Application: Living without a
licence: maintaining social engagement and contribution in rural
communities without access to private transport
• Arising out of our work highlighting the crucial role that access to
private transport plays in assisting older rural people to remain
engaged and contributing members of their families and
communities.
• An action research project aimed at developing and refining a
community development approach for ensuring that older
community members can maintain their community involvement
despite the loss of access to private transport
21
Current PhD Studies
‘Factor influencing older people’s physical activity decisions and
behaviours’ - Sharon Hetherington (submitting September 2011)
• There is overwhelming evidence that maintaining physical activity into older age has
multiple benefits for health and wellbeing yet, research suggests that at present
50% of over 65s are inadequately active.
• The project explores the reasons behind older people’s to undertake or not
undertake adequate physical activity.
‘The Experience of Food Insecurity for Elderly Tasmanians’ -
Alexandra King (PhD commenced June 2011)
• Research shows that there are elderly Australians living in the community who are
experiencing food insecurity.
• Food insecurity risks for older people stem from complex social, cultural, personal
and community factors which are frequently specific to the elderly population.
• The project will take an in-depth or longitudinal approach to teasing out the complex
interplay of these factors in food insecurity amongst elderly people.
• The project aims to capture individual experiences of ageing but also examine the
commonality of factors which impact on elderly people’s food security, as well as the
effectiveness of food security interventions for elderly people.
22
Ageing Well in Regional and Rural Areas
Note: There are very few empirical studies that make a direct urban-rural
comparisons and little solid evidence that ageing experience can be
usefully and reliable distinguished simply along regional/rural-urban divide
lines – what they share in the experience of ageing likely outweighs the
differences.
However, as a broad group regional/rural older people do appear face
some specific place-related challenges :
• Poorer health and poorer access to specialist health and human services
• Infrastructure gaps – especially transport - although not in RAC places &
community support packages, at least on aggregate statistics [AIHW]
• Lower education levels, lower incomes, and a ‘information age’ skill gap
– conservatism and resistance to change
• Compromised support structures as the result of an ageing and ‘empty
middle’ population structure.
• Sea and tree changers who have left their support networks behind
• A culture of reluctant help-seeking
BUT 23
Ageing Well in Regional and Rural Areas II Rural and Regional Living may have its advantages – although the
evidence is largely anecdotal or based on regional/rural rather than rural-
urban comparative studies.
• Community – considerable anecdotal and some empirical evidence for
supportive and caring community – especially for those with a long
history – and obligation to ‘Look out for’.
– Some questions around mental health, marginalised and incomers
• Safety: Possibly more perception than fact but perceptions are crucial –
similarly with support
• Resilience – strong narrative backed by our research – for current
ageing generations based in surviving hardship
– Stoic acceptance
– Self-reliance, independence and interdependence
– ‘Making the best of it’ ‘ Just getting on with it’
The degree to which these advantages apply to the baby boomer
generation, and especially sea and tree changers, is an open
question
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In Summary
25
• Most are not needing to be ‘cared for’ but
simply to be provided the support that will
allow them to get on with living their lives
in the face of some extra challenges
• Remaining active, engaged and
contributing members of their
communities and families is crucial to
ageing well