Annual Report 2014-2015

A Year in Review

Letter from Chief Executive Officer

Dear Friends,

On behalf of everyone engaged with the mission of the Cutaneous Lymphoma Foundation, we thank you for your generous support. Whether it is through a financial donation or gifts of time and talent, each and every person has a profound impact on the lives of those around the world suffering with cutaneous lymphoma.

The past year has been an active one for the CLF. We are more committed than ever to serving the needs of cutaneous lymphoma patients by promoting awareness and education, advancing patient care, and facilitating research. We continued our long-standing initiative of hosting live programs delivered around the country, culminating with the 3rd Annual 2-Day Education Conference in San Diego. Close to 100 people gathered together to hear from clinical experts about the disease basics with many opportunities for everyone to make new connections with others who share a similar journey. One of the additional program highlights was attending the first-ever International Dermatology Patient Organization Conference held in Vancouver, Canada in collaboration with the World Congress of Dermatology. This conference brought together patient leaders from around the globe to share ideas, insights and hear from advocacy experts about new ways to deliver much needed support to people living with skin diseases. Out of this meeting, a new worldwide organization was established called the International Alliance of Dermatology Patient Organizations that will serve as an umbrella group whose mission is to raise awareness of the challenges of people living with skin disease and advocate at the global health level on their behalf.

An exciting second year of our CLARIONS Research Award program culminated in renewal of the first two awards and adding two unique new awards. Tae Jin Kim, PhD from Stanford University School of Medicine, project is investigating Optical imaging of electron radiotherapy to promote uniform total skin irradiation, and Sergei Koralov, PhD, from New York University School of Medicine, project is deciphering the role of skin microbiota in CTCL pathogenesis, We are thrilled to have the financial capacity to support these researchers and their important work.

This year also saw some changes in two long-term members of our Board of Directors. After 16 years of dedicated service, Dr. Stuart Lessin has stepped down from active Board service. As many of you know, Dr. Lessin was integral in getting the CLF off the ground and will continue to serve as Chair of the Scientific Review Committee. Board President, Chris Shipp has also decided to step down from his long-term Board service over the last 10+ years. We are grateful to Dr. Lessin and Chris for their many years of committed service and wish them well.

Board Member, Joe Eischens, Esquire, stepped forward to take on the leadership role of Board President. As a patient himself, Joe, like many of us, is in current treatment for his cutaneous lymphoma while living an active professional life as an attorney serving people who have suffered from discrimination along with enjoying time with his wife and two children. He brings to the Board a passion for helping us create a sustainable infrastructure so that everyone who is diagnosed with this rare disease, wherever they live, can find support here at the CLF. We are thrilled to have Joe step into this critical volunteer position.

Susan Thornton, CEO2

Letter from President of the Board of Directors

I am honored to accept this new position as President of the Board. As I begin my journey in this leadership role, I am inspired by how far the organization has come in the last 15 years with a small staff and dedicated members of the Board. I am committed to working collaboratively with my fellow Board members and the CLF staff to continue the innovation and initiatives to bring education and support to people around the world as well as grow our research program to allow us to support the critical work of the dedicated investigators trying to find answers to the many questions about this disease.

As we look to next year, we will continue to serve those who need us most by providing the knowledge and resources related to treatment, quality of life and ensure that patients are armed with as much information as possible to make important and informed treatment decisions along with their medical team. New and innovative initiatives are on the horizon that will enable more people to connect to the CLF in a meaningful way along with continuing the CLARIONS research grant program to support important work necessary to unlock the mysteries around cutaneous lymphoma that can help find new treatments and better ways for earlier diagnosis.

Each day, as we fight against this rare disease and all of its challenges, the staff and Board keep in mind that there is an individual behind the diagnosis who looks to us to provide support, sound information and hope. With each step forward, and each individual we touch, we continue to dedicate our efforts to serving all people impacted by cutaneous lymphoma.

Thank you for being an integral part of our community. Together we can bridge the knowledge gap and strive toward a time when a diagnosis of cutaneous lymphoma is nothing more than a brief detour in a long and rich life.

Joe Eischens, Esq.President, CLF Board of Directors

Contents:Board of Directors & Staff .............................................4A Year in Review ...........................................................6Financials........................................................................8Donors ..........................................................................10All Donors .....................................................................11Looking Forward ..........................................................15

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Board of Directors

The mission of the Cutaneous Lymphoma Foundation is to support every person with cutaneous lymphoma by promoting awareness and education, advancing patient care, and facilitating research.

We exist to make sure that each person with cutaneous lymphoma gets the best care possible.

OFFICERS

Laurel CarlsonSecretaryAnnandale, VA

Jeff Ward TreasurerLondon, UK /West Barnstable, MA

Marianne Tawa, MSN, RN, ANPInterim President/Vice PresidentDana Farber Cancer InstituteMedfield, MA

CHIEF EXECUTIVE OFFICERSusan ThorntonChief Executive OfficerPhiladelphia, PA

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Lauren Pinter-Brown, MDUCLA Medical CenterBeverly Hills, CA

Stuart Lessin, MDBryn Mawr Skin & Cancer InstituteHaverford, PA

Michael W. YoungCarlsbad, CA

Mike SilverToronto, ON, Canada

DIRECTORS

Steven Horwitz, MDMemorial Sloan-Kettering Cancer CenterNew York, NY

Joseph Eischens, EsquireDirectorParkville, MO

David LambAlexandria, VA

Brace KragFar Hills, NJ

STAFF

Holly PriebeChief Operating and Financial OfficerWarren, MI

Kira MannDirector of Development and MarketingFarmington Hills, MI

Deb Van ZegerenAdministrative and Communications ManagerEastpointe, MI

Hilary RomkeyProgram ManagerGainesville, FL

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What is Cutaneous Lymphoma?

Cutaneous lymphomas are cancers of lymphocytes (white blood cells) that primarily involve the skin. Classification is based upon lymphocyte type: B-lymphocytes (B-cell) or T-lymphocytes (T-cell).

Cutaneous T-cell lymphoma (CTCL) is the most common type of cutaneous lymphoma that typically presents with red, scaly patches or thickened plaques of skin that often mimic eczema or chronic dermatitis. Progression from limited skin involvement is variable and may be accompanied by tumor formation, ulceration, and exfoliation, complicated by itching and infections. Advanced stages are defined by involvement of lymph nodes, peripheral blood, and internal organs.

Cutaneous lymphomas affect thousands of individuals worldwide. It is estimated that over 30,000 people in the United States alone have been diagnosed with some form of lymphoma. The incidence of cutaneous T-cell lymphoma in the United States is increasing with approximately 3,000 new cases being diagnosed annually. Due to the difficulty of diagnosing the disease in its early stages and the current lack of an accurate reporting system, prevalence of cutaneous lymphoma is thought to be much higher.

A Year in Review

Patient Support Services• Connected with 1000+ individual patients and caregivers in person and via

telephone or email from around the world.• Began Patient Networking Groups in New York City, New York

Patient Education• Held 6 full-day Patient Educational Forums• Introduced our Answers from the Experts...LIVE! programs and held

5 evening programs• Held third 2-Day Patient Conference in San Diego, CA• Served 200+ patients and caregivers through these events in 12

cities throughout the United States.• Added videos on CBCL and ALCL to Online Learning Center

Medical Meetings• American Society of Hematology (ASH), San Francisco, CA• American Academy of Dermatology (AAD) , San Francisco, CA• American Society of Clinical Oncologists (ASCO), Chicago, IL• European Organization for Research and Treatment of Cancer (EORTC) and

Cutaneous Lymphoma Task Force (CLTF), Paris, France• Society of Investigative Dermatology (SID), Atlanta, GA• Dermatology Nurses Association (DNA), Las Vegas, NV• International Society for Cutaneous Lymphoma (ISCL)• T-Cell Symposium, San Francisco, CA• United States Cutaneous Lymphoma Consortium (USCLC) Annual Workshop , San

Francisco, CA• World Congress of Dermatology, Vancouver, Canada

Research• Awarded CLARIONS Research Awards to Tae Jin Kim, PhD of Stanford University School

of Medicine and Sergei Koralov, PhD of the New York University of School of Medicine. CLARIONS Research Awards were renewed for a continuing year to Leandro Cerchietti, MD of Weill Cornell Medical College and Rachael Clark, MD, PhD of Harvard Medical School.

• Young Investigator Awards were presented to Tomomitsu Miyagaki, MD, PhD, The Univer-sity of Tokyo Graduate School of Medicine, Japan (SID); Filiberto Cendeno Laurent, MD, PhD, University of Pennsylvania (ASH)

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Publications• Published 2015 Research Report - CLF’s first report for the CLARIONS

Research Grant• Published three Forum newsletters and 12 e-Newsletters

AdvocacyCLF Board & staff attended a variety of advocacy meetings and policy programs in Washington, DC held throughout the year, including two legislative lobby days on Capitol Hill:

• One Voice Against Cancer - CLF was represented by Joe Eischens, CLF Board President

• American Academy of Dermatology Captiol Hill Day - CLF was represented by staff member, Deb Van Zegeren

• CLF became an active member of the Partnership to Improve Patient Care (PIPC).

• CLF joined the Lymphoma Education and Advocacy Partners (LEAP), the advocacy arm of the Lymphoma Research Foundation

Collaborative Partners included:A special “Thank You” to the below organizations for their support of our efforts and the opportunity to work together on behalf of those we serve:• Canadian Patient Skin Alliance• CancerCare - joined with the CLF to provide meeting space and support for

our New York Networking Group• Coalition of Skin Diseases• International Alliance of Dermatology Patient Organizations - CLF is a founding

member this organization• Lymphoma Coalition• Lymphoma Research Foundation• Patient Advocate Foundation• Regulatory Education and Action for Patients• T-Cell Leukemia Lymphoma Foundation

What I found most helpful...was the realization I’m not the only person with CTCL.

Patient Educational Forum Attendee7

Financials*

Statement of Financial Position • Year Ending June 30, 2015

2015 2014ASSETS

CURRENT ASSETS Cash and cash equivalents 875,846 1,050,723 Promises to give 43,000 7,775 Inventory 2,155 2,919Total current assets 921,001 1,061,417

FIXED ASSETS Property and equipment, net 708 1,546Total fixed assets 708 1,546

OTHER ASSETS Prepaid rent 1,019 1,019 Security deposit 1,333 1,333 Total other assets 2,352 2,352

TOTAL ASSETS $924,061 $1,065,315

LIABILITIES AND NET ASSETS

LIABILITIES Accounts payable 18,579 20,214 Accrued expenses 90,832 83,093

Total liabilities 109,411 103,307

NET ASSETS Unrestricted 159,448 323,988 Temporarily restricted 655,202 638,020

Total unrestricted net assets 814,650 962,008

TOTAL LIABILITIES AND NET ASSETS $924,061 $1,065,315

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*Financial figures taken from independently audited financial statements.

Statement of Activities • Year Ended June 30, 2015

SUPPORT AND REVENUE: Unrestricted Temporarily

Restricted Total Contributions and grants 162,681 575,515 738,196Merchandise sales, net of cost of goods sold of $784 in 2015 and $482 in 2014 (673) 0 (673)Special events 600 0 600

Investment income 548 0 548 TOTAL SUPPORT AND REVENUE 163,156 575,515 738,671

NET ASSETS RELEASED FROM TEMPORARY RESTRICTIONS 558,333 (558,333) 0 721,489 17,182 738,671

FUNCTIONAL EXPENSES:Program 742,371 0 742,371Management and general 71,933 0 71,933Fundraising 71,725 0 71,725

Total functional expenses 886,029 17,182 886,029

CHANGE IN NET ASSETS (164,540) 17,182 (147,358)

NET ASSETS - Beginning of year 323,988 638,020 962,008

NET ASSETS - End of year $159,448 $655,202 $814,650

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How Your Dollar Was Spent

Partner in Care Society$5,000 - $9,999 Annual Fund Campaign Giving

Friend in Care Society$1,000 - $4,999 Annual Fund Campaign Giving

Visionary of Care Society$10,000+ Annual Fund Campaign Giving

DonorsThe Cutaneous Lymphoma Foundation is deeply grateful to all of the donors who supported our mission through financial contributions during our 2014-2015 fiscal year (July 1, 2014 – June 30, 2015). Your gifts have enabled us to make sure each person with cutaneous lymphoma receives the best care possible and that the Foundation can continue to expand our programs and services to support those who need us most. Thank you for your support.

Actelion Pharmaceuticals US, Inc. Adaptive BiotechnologiesAvella Specialty PharmacyCelgene CorporationFlince Research & DesignKyowa Hakko Kirin Pharma, Inc.

Patients Like Me, Inc.Seattle GeneticsSpectrum PharmaceuticalsTetraLogic PharmaceuticalsTherakos, Inc.Valeant Pharmaceuticals International, Inc.

The Steve Euller and Nancy Roehr Family Charitable Fund

Randolph AngermannMary ArgusAschkenasy Family FundBakewell FoundationGail and George BarilBQ6 Media Group, LLCKent and Kay ColbergAmy B. CroweFidelity CharitableFirst GivingSteven DirectorSuzanne GylfeMarilyn J. HarranStuart R. LessinThe Chris & Melody Malachowsky Family Foundation

Arthur and Laurie MalmanKelly OddleTheresa Pacheco, MDThomas PledgerCarlos S. RodriguezMark RusleyPatrick RyanLinda ShafferAnthony SogliuzzoPatricia SullivanRon SwiftUnited Way of King CountyUnited Way of Kansas City Danna Wessels & Nancy Noble

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The following list includes all individual, corporate and foundation donors who contributed to our Annual Fund Campaign or supported other programs and services.

All Donors

Larry AbeJose AbreuActelion Pharmaceuticals US, Inc. Adaptive BiotechnologiesDavid AdelmanNida AhmadBeverly AlbertFrank & Emille AllenAndrea AllenMarla AlmeidaFadwa Al-TaherMr. & Mrs. Anthony AlterioTricia AlveyAmazonSmile FoundationErnestine AnaniaTom AndrewsRandolph AngermannPatricia AngleyAri AnolicEddy AntunesKeith AnzelLynne AranyFrank J. ArenaMary ArgusHoward AronsonLinda ArthurAschkenasy Family Fund Helen AshtonAnn Atkinson & Terrence AtkinsonAvella Specialty PharmacyMaryAnn & Reg AwtreyJudith AxelrodAugust BaetsleAxel BaeumlerSofia BainDebra BairdMark BakerSally BakerBakewell FoundationBlake BallardWilliam & Evelyn BarcombGail BarilNicole BarilBetty BarnettDaniel Barolsky

Mara BarryElizabeth BassanHerman BauerMargaret BaumNorbert BeaucheminJudy BeckMary Ellen BehmCarlene BelangerThe Benevity Community Impact FundDorothy BerchtoldVera Berlin FundBonnie BergeleenDotti BerryJessica BirchFrank BirneyStephanie BlackmoreDavid & Barbara BlandinoDorothy BleilerMichael BlockEric BlockDavid M. BloomIda BohmsteinRon BowerBQ6 Media Group, LLCKristina BradleyRichard B. BradlowMicharel BraffPhil & Alison BravermanRenate BrennekeLinda BrewerThe Brooks Group & Associates, Inc.Bruce MinkoffIvan & Ana BudisinJudith BurgsteinBetty BurnsCatherine BurrisCarolyn BurrousSally BuschValerie ButeraBill & Joan ButtonEllen CameronJames & Margery CarenzoJoe CareyWarren CasnerCelgene Corporation

Jean CernakElizabeth CerriPi Ling ChangMarilyn CharapCharles A. and Alice Jean Boyer Matuszak Family FundSandi ChatzPamela ChumleyCarole ChungPhilip ChurchClorox Company FoundationNoal CohenWallace M. CohenKent & Kay ColbergMerle & Arnold ColeFred & Gail ColvinDiane ColyerCommunity Health Charities of CAWilliam & Janis ConnerWarren A. Cooper, Warren L. Cooper & Peggy RandlesJulie CostaRhea CoxAmy B. CrowePhyllis CrumpShannon M. CurrenMarion DagenaisAnita DaliaRegina & Danny D’AngeloWilliam DavidsonLidia DavidsonClaudia DayThomas DayRonald DeckerJoseph DeFinaMary L. Del VecchioDermasurgery CenterSusan DevineNeil and Linda DickerJackie DildySteven DirectorRichard DoddsDonald DorerCheryl DownenMartha DrillingDov DrizinMark Drusin

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Arthur & Lorraine DugasBen DussanFrank EastburnEbatesIra EdelsonKimberly EdmundsJoe Eischens & Patricia SullivanDavid ElefantLori & Doug ElefantJoanne ElefantJohn EleyAmy ElikKaren EnglerJC Ephraim, Jr.Kathleen EricksonThe Steve Euller and Nancy Roehr Family Charitable FundCarole EvansJerry & Rikki FarberDavid & Charmagne FarrarRichard & Kathryn FavelaDonna WorkmanMichael J. FeolaFidelity CharitableJulia FinkFirstGivingNorton & Carol FishmanAlan FletcherFlince Research & DesignRon FooterAlyson FooterSamuel FrankJulian FrankelLisa Frankel-BoernerMelvin L. FreemanPeter & Laura FrenzelRich FriedmanJoan FriedmanPaula PirrottaSteven FrobergMary Jane FrystakMarguerite FumanoWilliam & Fay FusonPat GagneJeremy A. GarciaBrian GavinKaren GavinFrancesca GiancottiEdward GilbertCarol Gilles

Joan GillucceLouis GioeAdele GleichmanRobert GodauMarvin GodnerLynn GoldSusan GombosDorothy GomezGood Faith TrustHarriet GoodmanDaniel GoodmanAmy GormanBrian & Margaret GraceyScott GrantBeverly GrapponeTara GreenGerald and Barbara GreenbergJennifer Greer-GlanvilleStephen GriffithsMalvin GroceSarah S. GrossmanCharles GuffeySuzanne GylfeFrederick HaabDeberah HaferkampGail HankinJames & Emogene HanveyMary and James HardenJohn HarmonMargarett HarnettMarilyn J. HarranPatricia J. HassettMichael Isquick (In honor of)William HeffernanSharon HeimanHelen FranckeRoseann HermanHerndon Charitable FoundationMarian HerrickDiane HerzogKim and Diane HightMargaret HineCarolyn HintlianLaurie HobermanJoey HoffmeierWilliam HollisHelen HomulkaAndrezej HonoryRobert HortonSteven Horwitz, MD

Bruce J. HoughDavid HudsonReid HunterDavid IngberEdith G. IsaacsDavid JackmanJoy JacobsJoAnn JamesionDan & Tina JanichekSandra JeffreySeta JessourianJoyce JettMichael JohnsonThoedore JohnsonNancy JolliffeKathryn JonesJoni JulianRonald & Marilyn KaiserGary & Deborah KarlRona KatzKeenum Family Charitable FundAllan KeillerAndrew KeiserMichael & Ronnie KelapireGeorgianne A. KennedyAmanda KikJane F. KilthauGertraude KingDonald KirkKiwanis Club of Northridge, Inc.Melvin and Earline KlaffSharon KleinbergJoann KlineMarlene KlotzAndrew KnoxKenneth KobargE. Joan KofflerRichard KolsterBruce & Susan KonheimLarry & Lucille KostekShirley KostrevaKathleen KovachBrace KragE.T. KrattyRonald KrolakPaula KrugerSteven Kruse, MDKenneth & Judy KulpaKyowa Hakko Kirin Pharma, Inc.Nancy Ladisky

Richard LafrateDavid LambStanford Lamberg, MDDolores LawrenceMr. & Mrs. Robert J. LearyDr. & Mrs. Chao Te LeeJohn LeiboldMartin & Monica LemelmanChristine LenartAlbert LennyLenovo Employees CareDonald & Cheryl LessemStuart R. LessinCarly LeungJordan LewisHenry Lim, MDRachel LinbergerJames LipchakDolores LipiroStuart LippeSandra LishkaBari & Roland LissnerRoger LloydDan LockwitzCarol & Joseph LoewyDr. Vivian LotzLouis & Mary Jean LotzLowell FrederickCarmel LowenthalLeora LowenthalRichard & Doris LyonsMadison Community FundFrank MaglioccoLaurett Maignan GibsonThe Chris & Melody Malachowsky Family FoundationChristine MaliwanagArthur & Laurie MalmanRoberta ManchesterRobert L. MangJohn MangusiRobert MarchettiH. Patricia MarchukitisMaria E. RossiLinda MarinoAndre MarkarianPhillip G. MarshRainer C. MartinPauqel MasonCarolyn Masters

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Theresa MatseyKatherine MatthewsHelen & Jeff MattoxLeslie MaurerKenneth MawsonHelen R. MayvilleMolly McCarthyAnnette McDonaldRichard McInnesKim McKenize-CampNatalie McLainKati McNealJamie MeachanKathleen MeagherJan Susan MedvedKathleen Meier & David PerryJane MeinersMerck FoundationNancy MeredithGayle MetcalfBill & Donna MethenyDonna MilkoLloyd MillerMark MillerDonald G. MillerDaniel MillerJennifer MillsMarc MinerMaryida MirabellaRonald & Carolyn MisckoMargaret MontgomeryHope MorganMorgan StanleyPaul MorrisonWilliam D. MosherAnn MoskowitzJane A. MullenVicki and Italo MusaHelen MuscatRonald NappiNationwide United Way CampaignLinda Nessly AllisonNetwork for GoodJim & Judie NevilleAlan NicholasClaudia NogueiraCaitlin NorrisSharon & Neil NovickKelly OdleSherri Oliver

Tim OlsenElise OlsenTuba OncuSylvia OsborneBarbara OstbergKaren PaikinJesse PaikinBill PanellaJames & Sharon ParkmanPatients Like Me, Inc.James PattieMichele PawlukPenny PeerceAndrew PelletierJudy PeloquinCheryl PerkinsMarilyn PerlottoWanda PetersDouglas PetersJames M. PhersonMark PipalJohn PlankThomas PledgerLaura Pratt Gregg & John GreggHolly PriebeRobert PurselMyrna W. PykeRobert M. Pyle, Jr.Tova RafaelRaphaelson Levine Law FirmDaniel RayBeff RayPatricia RayDan ReedElaine Reinbold PitkinCarolyn RenzAllan R. Rexinger, Esq.Mike & Patty ReynoldsMary ReynoldsCheryl RomineDeborah RichardsDonna RingelsteinRonald & Bridget RitterRobert RobertsRuth RobertsRick & Susan RobillardJoan & Rick RocamoraCarlos S. RodriguezJohnnie RogersGary Rose

Rosenson FoundationJohn RoushCraig RoyEugene & Janet RoyLouis RoyKaye RuskeyMark RusleyBria Colyer RussoFrederick RuvkunPatrick RyanSally DietzRobert & Diane SaltzmanElizabeth SauerLorraine SauterLilianna ScaliGerald & Sharon SchefflerSteve & Amy ScheidlerGloria & Ernie SchellSandra SchleedeAmy SchlesingerCaryn SchlesingerDavid SchmidtKatherine SchneiderZac SchroederTeresa SchrubenEllen SchwartzRobert SchwartzBarbara SchwartzHerman SchwartzmanLaurie ScottLaurie S. ScottBritt ScottMary ScottSeattle GeneticsLinda SeibertSelect ResourcesLinda ShafferAnn ShawMichael ShechtmanKaren ShermanJianfeng ShiMichi Shinohara, MDMary K. ShoemakerPhyllis ShurginJohnnie SignaterLarry P. SimmonsYvette SimmonsMary SingletonEd & Mary SkowneskiSusan Slaviero

Adam SmithRobert SmithJudy & Al SmithStephanie SmithVeda SmithKaren SnowBob SnyderStu SodellAnthony SogliuzzoLibby Sorkin RoutmanCynthia & Ralph SowdenSpectrum PharmaceuticalsMichael SpivakJohn SredniawskiMiriam StallingsJanice & Dan StaniszewskiLinda StapleyMr & Mrs. David StaplinPaula StarRobert SteeleC. Jeffrey SteinStaci StephensMarsha Stevens, RN, BSNJeffrey and Mary StevensSusan C. StevensSherrie StilleAnn StinsonJohn & Nancy StiresBeverly StaussKathy StroubeEmily StrulsonMark SwerdlikRon Swift

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Connie SwindellSystems Consulting InternationalSandor SzombathyChris TalbottJohn TauzellMarianne TawaTen Penn Center Associates, LPKarl TepferIan TepielowEdith TerebeloTetraLogic PharmaceuticalsTherakos, Inc.Casey TheriaultDonna & Bill ThielAndrew ThomasJohn & Peggy ThompsonSusan ThorntonMargaret ThorntonBeulah M. ThreattMr. Gail TietzViolet TolerVicenta TouamiAl & Fran TrotterTRUiSTUnited Way of Central & NE ConnecticutUnited Way of Greater Kansas CityUnited Way of Greater Philadelphia & S New JerseyUnited Way of King County

Theresa Pacheco, MDRichard VacareloValeant Pharmaceuticals International, Inc.Michael Van KampenLawrence & Diane VarsekPam VasquezMichael VegaTom & Sarah VilleneuveJames & Betty VugteveenBarnet WagmanBarbara WagnerLisa WaldronTerry & Peggy WalkerRichard & Roberta WalshCarmen WardSue WarrenRalph WarrenIrwin Zeke WarsawWalter WashingtonSusan WatsonRochelle WeinbergJeremy WeinsteinLinda WeissBelinda WelchAnn T. WelchWells Fargo Co SupportPeter & Diane WenzelCindy Wesley

Danna Wessels & Nancy NobleRobert WesselsJohn WesselsEdward & Linda WhitmanLinda WilfordMrs. Clyde L. WilliamsRichard & Sandra WilliamsBarrington WilliamsCinja WilliamsJoni WilliamsonTracy WilsonLaura WitschiKylie WoellerHank Low & Linda WongBette WozobskiPaul WrezelDanielle WronzbergDiane YanceyGarry YohnLeslie ZarnowskiSara ZelmJohn Zic, MDFrancine ZinmanNicholas and Judith ZukH. M. ZwernemannAnonymous Donors (61)

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Accuracy StatementThe report recognizes contributions received by the Cutaneous Lymphoma Foundation July 1, 2014 through June 30, 2015. Please accept our apologies if we have made any errors or omissions with your name or gift. If your listing requires correction, please contact us at info@clfoundation.org or 248.644.9014.

Cutaneous Lymphoma Foundation’s 2014-2015 Corporate Partners

Looking Forward

Looking ahead to the next fiscal year and beyond, we are focusing on the following programs and initiatives:

• Adding new ways for people to participate and view our live events through technology using live streaming services;

• Add translation tool to website to increase accessibility to non-English speaking users;

• Increasing number of Annual 2-Day Patient Education Conference to two per year;

• Funding of new CLARIONS Research Awards and the renewal of the second year awards;

• Celebrating our researchers and clinical supporters at our annual reception at the American Society of Hematology;

• Growth and enhancement of the CLF staff and Board of Directors;

• Increase ways for individuals to become part of the growing CLF community through direct support of CLF and it’s mission.

I discovered the Foundation quickly after (my husband’s)diagnosis. It is now our only resource because it has met all our needs. Everyone with whom we’ve had contact has been informative, supportive and sincerely empathetic. 2- Day Patient Conference Attendee 15

PO Box 374 • Birmingham, MI 48012Phone: 248.644.9014

www.clfoundation.org