accord 2012 autumn

Finding My Soul

Autumn 2012

H

HSpeediCath® Compact… For extra discretion

Contact Coloplast for a free sample today!

Freecall 1800 653 317 or email [email protected]

SpeediCath® Compact is your faster, easier, discreet and more comfortable method of intermittent catheterisation.

Compact Design

• Lip gloss size• Fits in any purse• Designed for the female anatomy• Non-touch grip means ease of use

and steady handling

Pre-lubricated

• Ready to use anywhere, anytime• Low risk of infection as no need to

touch catheter

www.coloplast.com.auColoplast Pty Ltd, 33 Gilby Road, Mount Waverley, VIC 3149, Australia

The Coloplast logo is a registered trademark of Coloplast A/S. © 2012-02. All rights reserved Coloplast A/S, 3050 Humlebæk, Denmark.

[email protected], 1800 819 775 Accord Autumn 2012 1

Contents Autumn 2012 Issue Number 36

2 From the CEO

3 From the President

4 Finding My Soul

6 Cockatoo Island Camping

8 UTS Robotics

12 Walk On

14 Day Tripper

16 Publications, Goods and Services, Diary

18 SCI Workforce

19 Hot Topics

20 Computer Mailbox

22 GIO Gardening Blitz

23 CHOICES Launched

24 Squeaky Wheel

26 Round-up

32 Soap Box

page 4

page 6

page 8

Patron Her Excellency Ms Quentin Bryce AC Governor-General of the Commonwealth of Australia

Editor Lauren Allsop

Printer JA Wales Printing Pty Ltd, Alexandria NSW

Submissions We encourage readers to contribute suitable work for consideration by the Editor. All correspondence of this nature should be directed to

The Editor, Accord, PO Box 397, Matraville NSW 2036 Email: [email protected] Phone: 02 9661 8855

Accord is a publication of Spinal Cord Injuries Australia ACN 001 263 734 Incorporated in NSW. Head Office 1 Jennifer Street, Little Bay NSW 2036 Tel: 02 9661 8855, Tel: 1800 819 775 (for consumers outside Sydney) Fax: 02 9661 9598, Email: [email protected] Web: www.scia.org.au City Office Suite 302, Level 3, Westfield Towers, 100 William Street, East Sydney NSW 2011 Tel: 02 9356 8201 Wollongong Office 5/208-210 Corrimal Street, Wollongong NSW 2500 Tel: 02 4225 1366, Fax: 02 4225 1933

ISSN 1448-4145 Estimated Readership: 19,000 (based on Accord reader survey 2006 and website download statistics). The opinions expressed in Accord are not necessarily those of Spinal Cord Injuries Australia or of the Editor. They are published to create a forum for debate on issues related to people with disabilities. Original material in Accord can be reproduced only with permission from the Editor. Donations towards production costs are greatly appreciated. Information in Accord is furnished solely as a guide to the existence and availability of goods or services. Accord has neither the staff nor the facilities for testing and evaluating any of the services or items and therefore can assume no responsibility for the effectiveness, safety or quality of any such items or service. Accord is funded by the Commonwealth Department of Families, Housing, Community Services and Indigenous Affairs and the New South Wales Department of Ageing, Disability and Home Care.

Have you got a

storyryr to tell? We’d’d’

love to hear your

holidays or personal

Email

accordrdr content@

scia.org.au or

write to Accordrdr , PO

achievements—a—a— nything

that might interest or

stories of hobbies,

Box 397, Matrarar ville

NSW 2036.

inspire others!

2 Accord Autumn 2012 News & views, bouquets & brickbats to

This is the first article that I write for Accord with the knowledge that it will not be read by David

Prast.

David was a director of our organisation when I became CEO in 2008 and has been a source of inspiration to me since that time. And then, in November, the adage

that only the good die young was once again proven. David was taken from us suddenly and I, and many others, are still adjusting to the reality that we won’t be seeing him again, in this life at least. For more on David’s life and achievements, please see the obituary later in this issue.

Rather than recounting David’s many achievements, I want to explore the philosophies that David espoused, to give you a better understanding of what drove him and the inspiration this provided to all of us. I think he was misunderstood by many and, even though his concern was completely to do what he could to help others, he was unfortunately sometimes derided by those who are only interested in their own careers, or those who fear change, and these were often the same people.

David’s driving force was to get the best possible outcomes for people who have experienced a spinal cord injury. He was often heard to say that the things he was working on would not benefit him but hopefully would create a better world for those who came after him. This was perhaps the thing that struck me most about David—his selflessness and desire to see the lives of others improved. That is a rare thing today and it was a privilege to see it first hand.

David also had a holistic, strategic approach, probably influenced by his previous career as a senior sales executive in the IT industry. Rather than striving for incremental change in a number of small areas, David

From the CEOPeter Perry

focused on rolling all the little problems into a few big things which would, if changed, have a significant impact for many people for many years to come. I think the fact that I have always operated in this way myself is why we got on so well and experienced a kind of personal chemistry that doesn’t happen very often in a working life.

There are three main areas that David identified as being of most benefit to people with a spinal cord injury and he worked tirelessly towards improvements in these areas. The first was to ensure that the treatment people receive immediately after a traumatic injury is at the highest level and that the world’s best practice is being applied here in Australia. The better the initial care, the better the life outcomes for people and the lower the cost burdens to the individual, their family and the community. This thinking was behind David’s goal to establish a Chair of Spinal Cord Injury Research, which we will now be pursuing with Macquarie University, together with SpinalCure Australia, and named in his honour. It was also behind his desire to see a national SCI strategy, to make sure that best practice becomes a national reality.

The second area that David was passionate about was ensuring that funding levels are sufficient to drive forward research into SCI, so that people experiencing a traumatic injury in the future might be cured or at least get much better outcomes than those in the past. Fifty years ago life expectancy after SCI was a few years, now it is similar to the wider population so why wouldn’t we expect a similar level of improvement in the next 50 years?

David’s third area of passion was using all the tools and techniques available to give people the best opportunities and functional outcomes once their medical condition has stabilised. This led to the establishment of the Walk On program in Australia which is now established in four states and has served more than 150 clients, all of whom report significant physical, psychological and quality of life benefits.

We at SCIA are fortunate to have experienced David’s vision first hand and we have pledged to each other to continue to pursue the goals he so selflessly embraced.

Directors 2012Antony Varrall*Director and Acting President

02 9402 7351 [email protected]

David BrawnChairman


David O’Brien*Director

02 9349 8121david.o’[email protected]

David Brice*Director

[email protected]

Richard Klinger* Director


Margaret NoonanDirector

02 9799 9964 0429 990 960 [email protected]

Michelle AdairDirector

[email protected]

Brad O’HaraDirector

[email protected]

* denotes a person with a disability

NetworkNew South Wales

Sydney Little Bay 02 9661 8855

Illawarra Wollongong 02 4225 1366

Central West Craig Lees 02 6372 1892

New England Glenda Hodges 0427 257 471

Northern Rivers Lee Clark 02 6689 5935

Interstate

ACT Trevor Robinson [email protected]

Victoria Nazim Erdem 03 9489 0777


• lobbyingRailCorptotrialthefixedplatformrampconcept in NSW that is currently being trialled at the Box Hill station in Melbourne. This sensible fixed ramp provides for complete independence at the station as no support is needed to get on and off a train;

•workingalongsideDiabetesAustraliatogetsupportfor people with disabilities who find it difficult to self-administer insulin;

• creatingaHigherEducationContributionsScheme(HECS) reduction when a university student undertakes formal care activities during their studies;

• lookingatHECSagainasawayofprovidingfreeeducation for social work, occupational therapy and physiotherapy students who spend four years working in regional areas; and

• individualadvocacyreformandapushtoredefineindividual advocacy services around the individual.

There are many other policy topics that we are currently scoping, ones often brought to our attention by our members and supporters.

We have also celebrated the opening of our CHOICES apartment. This apartment was created to allow newly injured people the opportunity to leave the hospital ward and rehab centre for a few days to spend time with family in a home environment and give them a taste of independent living in the community.

2012 is the year of the dragon in the Chinese calendar but let it also be the year of spinal injury recognition.

2012 will be a great year for Spinal Cord Injuries Australia. Already we have celebrated

the launch of our new Walk On site with the Melbourne facility opening at the Whitten Oval Sporting complex (for all you AFL fans, it is also the headquarters of the Western Bulldogs!). Walk On now has four sites around Australia all

working to bring better health outcomes to people living with a spinal cord injury.

Work to host our first ever SCI Expo is well underway. The Expo is free to attend and is being held at Olympic Park in Sydney’s inner west. The Expo will bring together aids and equipment manufacturers, along with providing presentations and workshops on community living, social supports and much more. Visit www.scia.org.au/events/independence-expo for more information.

Our work to get a ‘fair go’ for people with spinal cord injuries and indeed the wider community of people with physical disabilities and their carers continues to do well. The policy department is currently involved in work on:• lobbyingforanincreaseintheTaxiTransportSubsidy

Scheme in NSW;• campaigningtohaveGSTliftedfromconsumables

that bring special benefit to a person with a disability but can equally be used by able bodied people;

From the PresidentAntony Varrall, Director and Acting President

Renew today

Flexible Respite Program

PLUS many more member benefits to come in 2012

Simply renew your membership today!

Call us on 1800 819 775 for any enquiries

Call 1800 819 775

to receive these exclusive ‘Member Only’ Offers:

Discount holiday accommodation rate at Coffs Harbour

Discount rate for ‘Walk On’ program

Complimentary ‘Discovering the Power in Me’ session (2 day program)

Members Only

Visit www.scia.org.auIf you have already renewed your membership for 2012, THANK YOU!


Finding My SoulMichael Sattin

I’ve performed in numerous events over the years, including The Sydney School’s Spectacular, and have travelled the world as lead singer in a 60 piece production called ‘Odyssey On Stage’ which opened many doors for me as a professional singer. I performed a duet with Mark Williams of Dragon at the 2000 Darling Harbour Christmas Pageant and have worked with him on numerous occasions since.

I work three or four nights a week on the Sydney, Wollongong and South Coast circuit, as a solo artist, in a duet or with a band. I work with session musicians, that way there are no egos involved and I get to work with some of the best musicians around. I have had a broad range of influences on my career which has led to me performing a range of genres, from jazz, blues and funk to reggae and I played in a rock band for five years. But my passion is soul music. I mainly sing covers as they generate work and bring in the money and although I don’t currently write enough of my own material, it is a commitment of mine for this year.

I’ve used a wheelchair since childhood after catching meningitis in hospital two days after I was born which resulted in paraplegia. Up until the age of five or six I

was happy in my skin; I didn’t know any different and my family treated me the same as everyone else. But when I started at a primary school that supported children with intellectual and physical disabilities, I felt like I was treated as a ‘disabled person’ which is not how I see myself. I moved to a Catholic school but there I was the only pupil with a disability and I felt sorry for myself and took my anger and frustrations out on others. On starting high school the bullying turned around on me and I got a taste of my own medicine.

My passion for music started in year four when I picked up the bongo drums. A teacher furthered my interest and I started singing around the house; Michael Jackson and John Farnham songs. My mum recognised my talent and arranged for me to have vocal tuition and my musical journey began! I started doing end of year concerts at school, talent quests and eisteddfods and my confidence grew. I then moved on to a new and wonderful vocal coach who had worked with the likes of John Farnham and Human Nature and worked closely with him for five years before he passed away. Although I certainly had a natural talent for music I needed tuition to develop.

A professional singer since 1995, initially I was involved in productions, including playing the lead role in The Rocky Horror Show in 2003 held at the Wentworth Hotel in Sydney and organised by one of Australia’s leading production companies. I then attended the JMC Academy, a higher education college dedicated to the education, development and training of students who are passionate about a career in music, TV or film, and completed an Advanced Diploma in Music. It was here that I watched my first band and I was hooked! I started performing in a blues band and progressed from there to ‘Mick On Wheels’.

However my career progression has not all been straight forward and I went through a period of depression about five years ago, the culmination of a serious car accident which led to anger management issues and also music industry pressures—the industry is hard; older, more experienced people took advantage of me at a young age. The use of marijuana at the time further heightened the depression. I visited a psychologist who taught me relaxation methods and then found an interest in Buddhism and have been a practising Buddhist for five years now, mediating every day and taking care of myself physically and mentally. This has helped to turn my life around and I’ve moved on from the drugs and depression. My family has also been a huge support. I come from a strong family unit and if it wasn’t for them I honestly wouldn’t be where I am today and have achieved so much.


My plans for the future involve writing and releasing more music. I’ve released three EPs, two of which I’m proud of, but I’d like to do more. I’d also like to travel to Italy—I have Italian heritage—and take a CD of my music with me when I go there to sell. I’m also working on a show called Voices of Soul which is a tribute to the soul greats such as Aretha Franklin, Ray Charles and Al Green and my hope is to sell the show to theatres.

I don’t care about fame or fortune, after nearly dying as a child I’m just appreciative of being alive and able to do what I love.

For further information contact Mick through his website mickonwheels.com.au.

My career does take me on the road a lot which was lonely at the beginning but now it just feels ‘normal’ and I appreciate the time I have on my own. Music is my life, I don’t love every gig that I play but I have to do my bread and butter work even if it’s playing to three people at a local bowling club. I take the good with the bad. Also the money isn’t always fantastic and some places don’t provide accommodation which can make it difficult financially but I do because I love it.

Since 1998 I have also provided singing tuition. Helping others really brings me joy and helping people and living a positive life is the key to success in my opinion. I currently teach students at my home and would like to build on that in the coming year. I take students though the fundamentals of vocal technique and teach them to use their voice in the correct way to develop their skills as a singer and performer. Goal setting is part of my teaching method as I’ve worked as a results-focused motivational coach in numerous fields. Although it’s still linked to music it is separate from the performing industry and I love it.

Music is my life but outside of singing my hobbies are my animals—my birds and a cattle dog. I find animals and their companionship very therapeutic and love looking after them. I also used to be heavily involved in sport—a member of the Australian weight lifting team, the Australian basketball team and the Australian swimming squad for the 2000 Paralympics before I quit prior to the selection trials. Sport has taken a back seat since my music career has taken off though—I did buy archery equipment but it sits under my house as I don’t have enough free time! I also enjoy escaping to the bush for some time alone and to get in touch with nature—a few nights away with my swag and dog can work wonders. I love my job but it is nice to have a holiday.


Cockatoo Island Camping!Anthony ‘Chucky’ Chuck

In December I had the opportunity to enjoy a night of camping on Cockatoo Island, thanks to an initiative of the spinal unit at Royal Rehab. A memorial fundraising

initiative was held at Royal Rehab after the passing of their longtime friend and supporter Nick Morozoff.

Being the family-oriented and outdoors person that Nick was, the funds were put towards the Cockatoo Island camping initiative and, with the generous support of OZ Tents, the unit has purchased camping equipment that is quick and easy to erect even for wheelchair users. Together with a barbeque pack provided for us that we cooked at the outdoor camp kitchen, we had what many people would describe as a ‘glamping’ experience!

At Royal Rehab, spinal unit staff will be encouraging clients and their family and/or friends to have a night away from the hospital environment … a night under the stars with a view of the Harbour Bridge. I was fortunate to be given the honour of ‘road testing’ the equipment and facilities on Cockatoo Island.

Cockatoo Island is the largest island in Sydney Harbour, located at the junction of the Parramatta and Lane Cove Rivers. It is a former prison, industrial school, reformatory and shipyard and is now a tourist destination, offering great views of the city while still preserving its history. The island is accessible only by boat and Sydney Ferries operates services from Circular Quay and other inner harbour wharves.

The island itself is a lot larger than I first expected and there are plenty of buildings to weave in and out of and tunnels that take you from one side of the island to the other. There is a self-guided audio tour and, for the night owls, an after-dark exploration of the island. As you would imagine, wheelchairs were not in mind when the island was first built on so there are some parts that are not accessible. Efforts have been made to reduce trip hazards and bumps but you need to be careful in some areas.

After you have finished exploring, relax and enjoy one of the fully licensed bars on site. You can enjoy a light snack or a full meal but you pay for the views! If you are like me and like to do things on a budget you can BYO everything excluding alcohol. You will find a communal camp kitchen complete with barbeques, microwave and fridge—remember to clearly label your supplies with your name and the date. You will need to bring your own barbeque accessories, including tongs, plates and cutlery, and don’t forget the ‘barbie mate’ to clean the hot plate ready for the next person to use. There are plenty of picnic tables under cover with long benches and the end of the table was just the right height to wheel in underneath in my manual wheelchair.

There are three roomy and well-appointed accessible bathrooms, with a bench seat to transfer onto and a mirror on a convenient angle to look at yourself. The bathrooms were clean when I visited but, like all public toilets, the cleanliness depends on the last person to use it.

The tent itself is excellent. The front awning comes complete with side panels that make a peaceful place to sit, bug-free, to read a book or play a card game when you are finding the common areas too loud. The camping pack includes a stretcher, two mattresses, a camp chair, a lantern, esky and bedding. Bring extra blankets or a sleeping bag if you feel the chill.


The tent is very spacious but it does slope from front to back so if you require a hoist to transfer then you could utilise the space in the front awning area to manoeuvre around. The camp bed was not at the same height as I am used to so I recommend people bring along a slide board to help if they have trouble transferring.

I set the tent up with the back awing stretched out using the guy ropes. This allowed air flow as it heated up pretty quickly during my summer visit. The tent is a top-of-the-line canvas model so, even though we had some rain in the night, the moisture was kept outside and we stayed dry on the inside. The quality of the canvas also meant that even things touching the sides of the tent didn’t get wet.

For the light sleepers I recommend ear plugs as boats continually motor past throughout the night and the last ferry drop off is after midnight.

There is a great atmosphere on the island. There are plenty of families and the tents are generally spaced out pretty well with separate sections for those people who want to bring their own tent. And don’t fret about security as the island comes complete with guards who also keep a lid on late night noise makers.

All in all the trip is a great way to introduce yourself to camping for the first time. It is also an exceptional way of getting out of the spinal unit if you are feeling walled in as you can enjoy a camping adventure without forgoing the comforts of home. I highly recommend this experience to anyone who wants to give it a go.


Launch of the UTSAssistive Robotics Lab

In a project that could change the face of rehabilitation for people with SCIs and other physical disabilities, Sydney’s University of Technology (UTS) is investing

four million dollars over five years to drive research and collaboration in assistive robotics.

Launched by the NSW Minister for Ageing and Minister for Disability Services, Andrew Constance on 2 November 2011, the program at the Centre for Autonomous Systems (CAS) hopes to enhance the lives of people with disability and increase their independence.

The program’s focus is on developing intelligent machines that collaborate with people. Prototypes were on display at the launch, including a robotic walking assistant, intelligent wheelchair and robotic exoskeletons.

Robotic Walking Assistant and Intelligent Wheelchair

A standard rollator walker and wheelchair which incorporate robotic assistive technology to support the user in their daily activities. The robotics can assist wheelchair users in navigating around their homes and communities.

The robots can learn users’ patterns of moving about, learn ‘areas of interest’ such as the kitchen or bathroom, and then aid users with the mobility associated with these activities unobtrusively and in a natural manner (with no buttons being pressed). The user needs only to act as they would normally do using a standard walker or wheelchair but the tasks will become easier.

The creators are aiming for transparent interaction, with the user still being in control but the active assistance making tasks easier. For example, users would need minimal input to go to usual destinations such as the kitchen, bathroom or garden, as the technology will try a ‘best guess’ as to what the user is about to do and help them in doing it. Effective users feel they are better at what they are doing, with the built-in intelligence in the system overcoming some of their limitations.

Ultimately the objective is to enhance users’ mobility to carry out daily activities safely and independently which will in turn improve their quality of life.

Upper Limb Exoskeleton

A powered upper limb exoskeleton to assist arm movements during physical rehabilitation. The technology uses a musculoskeletal model of the upper limbs to quantify muscle weakness in impaired patients.

Ultimately it is a wear-on mechanism aimed at targeted rehabilitation by strengthening the muscles in need, while letting the others do their work. This customised movement to strengthen the arm may result in improvements in quality of life, for example users will be able to feed themselves.

Lower Limb Exoskeleton

A powered exoskeleton designed to assist the lower extremities operating on the principal of increasing agility and reducing the metabolic cost of walking. Exoskeleton-based training has the advantage of providing a training exercise that is both reproducible and quantifiable, with repeatability allowing higher intensity training programs that accelerate neuromuscular function recovery.


It is with great sadness that we report the loss of our friend and director David Prast who passed away at his home on 22 November 2011.

David was 29 years old when he sustained an injury whilst bodysurfing which resulted in quadriplegia. A successful computer sales manager at the time of his accident, his passion and drive to succeed at work shifted to finding a cure for paralysis. His vision was a better life for all people affected by spinal cord injury.

Amongst his many achievements, David was a leading advocate for spinal cord injury research. He led the lobby to establish the Neurotrauma Research Program in Western Australia which was the first state to provide research funding for SCI. The program continues to fund research.

David helped to pioneer the International Campaign to Cure Paralysis, an affiliation of spinal cord injury research charities around the world. He presented at a number of international conferences and was always a welcome visitor to the many seminars and events he attended.

As well as being a Director of Spinal Cord Injuries Australia (SCIA) and SpinalCure Australia, David was also a member of the interim steering committee which set up the Spinal Cord Injury Network.

David passionately promoted the need for rehabilitation and intensive exercise following a spinal cord injury and this passion brought the Walk On program to Australia, providing intensive exercise rehabilitation—the first program of its kind in Australia. Walk On now operates in Brisbane, Sydney, Perth and Melbourne.

David’s influence wasn’t just in strategy and vision, he also rolled up his sleeves and got involved in knocking on doors and raising funds for SCIA. He was instrumental in establishing SCIA’s partnerships with Slater & Gordon Lawyers and ASG Limited who contribute in kind and financially to SCIA’s programs and with foundations such as Allens Arthur Robinson and Lotterywest.

Everyone who had the pleasure of knowing David will miss him immensely but his legacy lives on. We at SCIA are determined to work even harder to achieve his vision of a better life for all people affected by spinal cord injury. We owe him that.

There is an online guest book at www.legacy.com/guestbook/thewest-au/guestbook.aspx?n=david-prast&pid=154737630&cid=gbsrchres by Friends at the Miami Project to Cure Paralysis where visitors can leave a message of condolence.

David Prast

INVITATION TO PARTICIPATE IN A RESEARCH PROJECT

STANDING STUDYIs your spinal cord injury above T8?

Are you interested in standing on a tilt table in the comfort of your home for thirty minutes, five times a week, for six weeks?

You are invited to participate in a research trial looking at the benefits of regular standing.

For more details contact:

Stephanie Kwok by phone on 0404 834 712 or by email to [email protected]


“You know, I used to find myself thinking that life was so complicated, always with problems to solve. But lookin’ back on it all, life was a breeze.” The playful

American drawl made the statement sound like a throwaway bite of philosophical commentary. After hearing his story though, I knew this was the hard truth for Jim. I sat silently as I reflected on my own life until Jim added, “But you know, the thing that really excites me right now is the opportunity to help others, to give a hand to those who need it.”

Jim Wicks is a husband, father of three and grandfather of three. He has led a diverse life, growing up in the United States before moving to Australia and settling in Coffs Harbour. A sports-loving ‘outdoor type’, accomplished pilot, skilled motor mechanic and locally renowned problem-solving guru, Jim has always made the most of life while remaining humble in his ways. He ran his own mechanical repair business for many years and prided himself on offering customers the type of service we may wish from our friends: honesty, respect and trustworthiness. His integrity and ethical approach to business and community was reflected by the loyalty of his customers over many years. “I might not have made a bunch of money, but I treated my customers well and that’s worth more than just watching the bottom line.”

Jim and his wife were looking forward to retirement and preparing for the good life but events took a terrible and traumatic turn seven years ago when Jim was changing a light bulb under his newly built dream home and fell eight metres, breaking his neck. “My body was fine, except for my damn neck,” he said, his tone revealing some of the hurt that still existed. His youngest daughter and wife were home at the time, and saved Jim’s life. “It was extremely hard on them for sure. If they weren’t there I’d have died.” From that moment, Jim’s life as he knew it changed. He lost movement and sensation in most of his body but insists that’s only the half of the story. Others who share a similar experience to Jim would not be surprised to know that the paralysis is only the beginning of the challenges that come after experiencing a spinal cord injury.

Jim was flown to Sydney to receive emergency treatment for his injury. He quickly learned of the significance of the break and after initial surgeries began a long and problematic rehabilitation process. “I ended up with all sorts of problems during my time after the injury. Pneumonia, blood clots, severe pressure sores, surgery after surgery. Then after surviving that, my home needed major modifications and I couldn’t move in until they were done. My church really saved us here and they all pitched in and did the modifications for us. It was such an overwhelming and humbling experience.”

When Jim finally made it home, he didn’t know what to make of his life, or where he might be headed. “At first I was just happy to be home and out of the system,” he said, referring to the medical system which had left him feeling let down, vulnerable and disempowered. “But then I just didn’t know what to do, it seemed to just be one problem after another.” In fact, Jim says he “felt destroyed” and no longer in control of his life. He says he felt like he could no longer be any of the things he once was and it crushed his sense of worth and purpose. Jim’s family shared this trauma, and it has been a very difficult time for everyone. Jim stresses that he could not have survived these past seven years without the love of his wife and family, and without his belief in God.

The family struggled on, trying to make sense of this new world they had been thrown into. Eventually they needed to sell their house as it was no longer the dream house that they could retire in and Jim looked elsewhere for somewhere to stay, with all of his necessary equipment, to clear the house for the sale. As it happened, there was room available in the Coffs Harbour house run by SCIA and Jim made the tough decision to live there independently. This decision came with many more sacrifices and challenges but it was this decision that eventually led Jim to where he is today, the House Coordinator for SCIA’s new holiday and respite house in Coffs Harbour.

Jim Wicks, House Coordinator,SCIA’s Coffs Harbour HouseAndrew Baines, Regional Employment Consultant, SCI Workforce


Coffs Harbour is Ready andWaiting!Jenni Thompson, Community Services Coordinator

Jim lived in the house with two well known wheelies, Bob McKenzie and Jimmy McGrath, developing new friendship and support. This friendship and understanding helped Jim with what he says is one of the greatest challenges that the spinal cord injury has posed: coming to terms with the massive physical changes to his life. “The support of those who have been through their own trauma and difficulty is priceless,” says Jim.

Sadly, both Bob and Jimmy passed away last year, after which SCIA has worked on creating a new use for this house. An accessible holiday destination is often a difficult thing to find and here was an opportunity to provide a low cost fully accessible option. But the house needed some TLC, plenty of equipment and someone to coordinate the process in the house. Jim was the man for this and did not hesitate when approached by SCIA.

Jenni Thomson, Community Services Coordinator for SCIA, worked with Jim on getting the house ready for its intended purpose while I assisted in supporting Jim through the process, creating the right employment contract and conditions. The journey from this point has taken time, with many challenges to overcome. For Jim, taking on a new role that is completely different from his past professions is surely daunting, though supporting

We are pleased to advise all members of SCIA that the holiday house at Coffs Harbour is now ready to accept its first guests. Each room in the house has an ensuite, electric bed, hoist and commode that can be adjusted to suit the individual, and an over the bed table. There is wi-fi throughout the house, an accessible kitchen and the House Coordinator, Jim Wicks, will be able to provide information on accessible venues and activities.

people in situations such as this is one of the things SCI Workforce aims to do. After a series of assessments, negotiations with care providers and case managers, problem solving and a bit of trial and error, Jim is ready for action. With the aid of SCI Workforce, Jim has been able to procure specialised office equipment which will give him complete independence with his communication and office activities. For someone with a high level spinal injury, this is an exciting prospect.

Listening to Jim’s story, I am floored by the long procession of challenges and losses he has faced and overcome and left wondering how he could ever find hope in his life. When I commented on this, he reminded me that it is so important to find meaning and purpose in life. “Life is complicated and hard and you’ve just gotta keep on doing the best you can. In fact, these challenges I’ve had just make me wanna help others to make good in their life.” I asked Jim if he’s a changed man after having these traumas in his life. “I don’t think so. I’ve always wanted to do the right thing by people, because that’s what really counts in life. I can’t serve people the way I used to but now, with SCIA, I can serve people in a new way, offering information, advice, an understanding ear or even just directions on where to go to have a good time in Coffs Harbour. I’m excited!”

Treat yourself to a holiday made easy where just about everything is supplied! All you need to bring is your food, clothes and personal supplies. For more details visit www.scia.org.au/accommodation-and-care where you can also download the application form.


The highly acclaimed Walk On program has become truly national with the recent opening of Perth and Melbourne Walk On national with the recent opening of Perth and Melbourne Walk On facilities to join our Brisbane and Sydney operations. We now have 14 facilities to join our Brisbane and Sydney operations. We now have 14 fully qualified and accredited staff offering our intensive exercise rehabilitation fully qualified and accredited staff offering our intensive exercise rehabilitation program across the nation. Since the program began in 2008 in Brisbane, over 130 people program across the nation. Since the program began in 2008 in Brisbane, over 130 people have participated in either ‘short-term’ or ‘ongoing long-term’ programs. Each week our highly have participated in either ‘short-term’ or ‘ongoing long-term’ programs. Each week our highly dedicated and talented staff are involved in working with around 60 clients across Australia, assisting dedicated and talented staff are involved in working with around 60 clients across Australia, assisting them to improve their physical functioning by developing greater strength, co-ordination and new skills to them to improve their physical functioning by developing greater strength, co-ordination and new skills to help them live their lives more independently. Students from exercise and sports science courses are involved help them live their lives more independently. Students from exercise and sports science courses are involved at all Walk On sites as part of their formal clinical education placements. This involvement not only provides at all Walk On sites as part of their formal clinical education placements. This involvement not only provides students with great experience but also helps the Walk On staff to deliver exercises and activities that require greater assistance.

We have recently expanded our national team with Kierre Williams, a trained physiotherapist, moving into a new national role to assist in the development of the program, (whilst still continuing as part of the team taking clients in Sydney) and Maria Goldberg providing administration and finance support nationally from our Sydney head office.

Our University of Sydney PhD scholarship, jointly funded by SCIA and SpinalCure Australia, has commenced and is focusing on further evaluating

the program. A second PhD scholarship is to be awarded in Perth at Edith Cowan University by mid-2012 to add to the body of research required to move the program to the next level. There is growing interest from people in New Zealand and a number of other countries in the Asia Pacific region regarding participation in Walk On.

Walk On Brisbane: our flagship program commenced in 2008 in partnership with the Sporting Wheelies and Disabled Association of

Queensland and operates from its premises in Brisbane. As the only facility in Australia for the initial 18 months, the waiting list for places was

long and some people had to wait considerable time to gain entry. With the new Walk On sites opening in Sydney, Perth and Melbourne there is now a much shorter period to wait to access the program in Brisbane and this venue remains popular with Walk On clients.

Walk On Sydney: has been running successfully since early 2010 at The University of Sydney’s Lidcombe campus. Walk On operates in tandem with other university programs at the Clinical Exercise Rehabilitation Unit. Many of the Sydney clients will soon become involved in the PhD study formal evaluation of the program. The Sydney program and its staff have been at the forefront of developing our national training program to ensure we have the capacity to continue to train Walk On staff in Australia as the program continues to expand. Our affiliation with Project Walk in the USA is also continuing in regard to training of staff.

Walk On Perth: opened in October 2011 in partnership with Edith Cowan University (ECU) and operates its Health and Wellness Institute at the Joondalup campus. Made possible by a substantial grant from Lotterywest, the hard work of Elizabeth Boutet and others who had lobbied to bring Walk On to Perth and individual donors, people in WA now have access to the program. Now fully up and running with a strong case load of clients the word is quickly spreading throughout WA that Walk On is now ‘in the west’.

A Truly National Program!Peter Murray, General Manager, Service Delivery

Now operating in...

SydneySydneySydneySydneySydneySydneySydneySydneySydneySydneySydneySydney

PerthPerthPerthBrisbaneBrisbaneBrisbaneBrisbaneBrisbaneBrisbane

MelbourneMelbourneMelbourne

Walk On Therapist, Kierre Williams with Melbourne client, Rod Watson.

Walk On Therapist, Nigel Morgan with Sydney client, Anthony ‘Chucky’ Chuck.


Now operating in...

Walk On Therapist, Kierre Williams with Melbourne client, Rod Watson.

Walk On Therapist, Nigel Morgan with Sydney client, Anthony ‘Chucky’ Chuck.

Walk On Melbourne: after the great fund raising efforts of Rod and Danielle Watson and others affected by a spinal cord injury in Victoria and the support of individual donors, the Walk On Melbourne program opened its doors in early January 2012. In partnership with Victoria University, the program operates at the Whitten Oval sporting complex at West Footscray, part of the university’s campus and the administrative and training base of the Western Bulldogs AFL team. Walk On clients enjoy a great view watching the Bulldogs players train ’as they train’. Walk On Melbourne already has a strong case load of clients and new enquiries for places are already being received on a regular basis.

RT600 Step and Stand – First in Australia at Walk On Perth!

Australia’s first ever Functional Electrical Stimulation (FES) therapy system for stepping and standing has arrived at Walk On Perth!

The RT600 - Step and Stand system has been developed by Restorative Therapies Inc. in the USA and delivers electrical currents to stimulate nerves which activate core and leg muscles of the body to evoke stepping and standing activity in a load bearing position. This enables the lower limbs of a person with a spinal cord injury to move through patterned physical activity utilising their own muscles while safely positioned in a partial body weight supporting harness. The RT600 allows a person to take up to 40 steps per minute and progressively build up the body weight that the muscles can bear.

Research indicates that FES systems provide benefits such as improving cardiovascular fitness, reducing spasm and tone, and improving flexibility, circulation and hypertrophy of muscles.

Restorative Therapies representatives travelled from the USA to deliver a three day hands-on training program to the Walk On Perth staff. This was an invaluable experience for the team and all clients who trialled the RT600 during the training were highly impressed with the equipment. The main positive feedback from the clients was the feeling of being upright and knowing that their muscles were able to hold a percentage of their bodyweight.

Walk On Perth Therapist Leah Clarke commented, “The clients really love the RT600. Being in an upright position exercising is just so empowering for them. It is great to see everyone on it and very rewarding to see how happy they are”.

The inclusion of the RT600 system in Perth is just one of the ways we are continuing to improve the quality of the incredible Walk On program.

Walk On Melbourne - Whitten Oval Sporting Complex at West Footscray

Contact us!

www.facebook.com/sciawalkon

1800 819 [email protected]

Walk On Perth client, Hasib Kapic using the RT600


The designated driver will not be disappointed as the valley has many other flavours. Olive oil, cheese, vinegar, chocolate and coffee producers offer free tastings and information sessions to promote their products.

It was surprising to see that many of the wineries and other venues have recently built visitors centres with easy access to the tasting rooms and dining areas.

Food offerings in the valley range from hatted fine dining to pub bistros. A highlight of Accord’s visit was lunch at Leaves and Fishes. On top of the excellent meal, we enjoyed magnificent views over a lake to the mountains. Another memorable experience was dinner among the vines at Restaurant Botanica.

Hunter Valley Gardens, Broke Road Pokolbin; phone: 02 4998 4000; www.hvg.com.au.

Restaurant Botanica, 555 Hermitage Road, Pokolbin; phone 1300 192 868; www.spicersgroup.com.au/restaurant/restaurant-botanica.

Leaves and Fishes, 737 Lovedale Rd, Lovedale; phone 02 4930 7400; www.leavesandfishes.com.

Accessible accommodation in the Hunter Valley includes:

Harrigan’s Irish Pub www.harrigansirishpub.com.au.

Crowne Plaza Hunter Valley www.crowneplaza.com.au/huntervalley.

Cottages on Mount View www.cottagesonmountview.com.au.

Hunter Valley Travellers Rest Motel www.hvtr.com.au.

Branxton House Motel www.branxtonhousemotel.com.au.

See RollAwayz for more accommodation (www.scia.org.au/publications).

Starting early and coming home late, this Day Tripper can be done in one day, but to get the best out of the destination make it a ‘Two Day

Tripper’.

The Hunter Valley is a two hour drive north from Sydney, most of it on the F3. After the exit onto Freemans Drive towards Cessnock the scenery changes from scrubby bush to undulating farmland with expansive views towards the Brokenback Mountain Range.

After Cessnock the first vineyards appear, with rows of vines growing down the hills on wires strung between posts a metre above the ground. On Accord’s January visit, heavy bunches of dark and green grapes were visible from the road.

While it is possible to travel by train to the Hunter Valley, it is essential to have your own transport for hopping between the various attractions.

The ‘One Day Tripper’ will head first to Hunter Valley Gardens where there are 60 acres of ten stunning feature gardens each with a different theme. The Indian Mosaic Garden is a patchwork of ground covers and pebble beds. Curry plants fill the air with a strong aroma. Enter the Oriental Garden through the Moongate to beds of bamboo, Asian grasses and plants, and ponds filled with lily pads.

At every turn in the Storybook Garden there are characters from nursery rhymes and murals with scenes from storybooks. Jack and Jill tumble down a hill, Humpty Dumpty is sitting on a wall, Alice sits at the tea party with the Mad Hatter, White Rabbit and Tweedledee and Tweedledum. Topiary features appear throughout the gardens: horses run down a hill, giant birds watch the waterfall, and twisted trees rise from the lawns.

There are accessible paths through all of the gardens and toilets at the main entry and Storybook Garden. As well as a café at the gardens, there are more food options at the Village among souvenir and fashion shops.

Along the roads through the vineyards, signs invite visitors to cellar door wine tastings at famous name and boutique wineries. It is daunting for the novice to read tasting notes and select which wines to try, but the staff patiently explain the difference between the various styles. Connoisseurs take their time to judge the bouquet and taste their favourite varieties.

Day Tripper: The Hunter ValleyDavid Stern, Information Officer


I’d Rather Be Dancing: A Story of a Writer, a Wheelchair User, a Boy Learning Love by Dan Acosta. When Dan Acosta fell out of a tree and broke his back—an accident that permanently paralyzed his arms and legs—he responded

in typical Acosta fashion: he gave fate the finger. Then he vowed to go on living a full, passionate life . . . as a freelance travel writer, scuba diver, water skier and lover of many, many women. I’d Rather Be Dancing tells the first-person, unvarnished story of that incredible life. For more information visit www.amazon.com/Id-Rather-Be-Dancing-Wheelchair/dp/0615467180. RRP US$19.95.

Disability Etiquette Matters by Ellen L. Shackelford and Marguerite Edmonds. People with disabilities are often overlooked in various social situations and activities. They face many challenges that oftentimes average people fail to consider. In Disability

Etiquette Matters, the authors stress the importance of proper interaction with people with disabilities. From communication issues to marketing concerns, from social situations to social etiquette rules, and other relevant topics, this book provides explanation and clarification on disability etiquette matters. For more information visit www.amazon.com/Disability-Etiquette-Matters-Ellen-Shackelford/dp/145685559X. RRP US$19.99.

Engage by Paul Kimmage. “Engage!” was the last word Matt Hampson heard before dislocating his neck while in rugby training with other young England hopefuls. The author visited Matt as he recuperated and wrote an award-winning piece on him for the

Sunday Times. They struck up a friendship which led to this spectacular book—where Paul tells Matt’s whole story, in all its intimate detail. This is a story of terrible

sadness yet unadorned triumph and joy, of anger yet of reconciliation and peace—and of a boy who became a man.For more information visit www.amazon.com/Engage-Fall-Rise-Matt-Hampson/dp/1847372708/. RRP US$29.95.

Still Walking by Rob Oliver. At 21 years old, Rob was paralyzed in a body surfing injury. Faced with major life questions, he was forced to reassess his whole outlook. The book chronicles his experiences, looks at his attitude and shares the lessons he’s learned.

Rob talks about his rehabilitation, returning home and moving forward with his life. The writing is straightforward and honest and the stories are engaging. You’ll smile, your heart will be touched, but most of all you’ll be inspired. For more information visit www.amazon.com/Still-Walking-Rob-Oliver/dp/0578073846/. RRP US$9.99.

How I roll: life, love and work after a spinal cord injury by J. Bryant Neville Jr. The day Bryant Neville sustained his spinal cord injury he was an all-American small-town teenager with a circle of friends, a vibrant social life, and hazy life goals. In How I Roll,

Bryant explains how he focused on what he could do with his mind: discovering an interest in computers, obtaining two college degrees, and finding his niche at a local bank where he worked his way up over two decades to become executive vice president and CFO. For more information visit www.amazon.com/How-Roll-After-Spinal-Injury/dp/0982946171. RRP US$14.95.

Publications


story, in all its intimate detail. This is a story of terrible

29–30 March 2012 Australian Council of Social Service (ACOSS) National Conference, Australian Technology Park, Redfern, Sydney. For more information visit www.acoss.org.au.

1–3 May 2012 Connecting Up Conference, ‘Unleashing the Power of your Nonprofit’, Doltone House, Darling Island Wharf, Sydney. For more information visit www.connectingup.org/conference.

3–4 May 2012 NDS Preparing for the New World Conference 2012, Hilton, Adelaide. For more information visit www.nds.org.au/events/1317948204.

17 March 2012 SCIA Independence Expo, Southee Complex, Sydney Showgrounds, Sydney Olympic Park. For more information visit www.scia.org.au/events/independence-expo.

28 March 2012 NGO Media Forum 2012. For more information and venue details visit www.acoss.org.au/events/view/ngo_media_forum_2012.

29 March 2012 Assisting People with Disability to Access the Sex Industry, 328–336 Liverpool Road, Ashfield. For more information visit www.touchingbase.org/workshops-and-training/spat.

Diary


Active Hands Gloves give extra grip for those with limited hand function. They are designed to enable you to firmly hold tools and utensils for sports or games that need grip, such as snooker or table tennis. Visit www.activehands.co.uk.

The RECEIVE-ALL system consists of an arm brace that fits your forearm and an adapter that holds an item. The adapter slots into the brace to make a secure support and gives you control of any item you wish to hold—a fishing rod,

garden and handyman tools, utensils, the possibilities are endless. Only one arm brace is needed to be able to use an unlimited number of items, which can be left in the adapters ready for use. Visit www.receive-all.com.

The Brella Buddy is a hands free wheelchair umbrella holder which does not require attaching anything to your wheelchair. It comprises an over-the-shoulder bag with a loop in its strap that will hold your umbrella in position while keeping your hands free to propel your wheelchair. On a windy day attach your belt to the built-in loop on the back for extra holding power. Visit www.newdisability.com/wheelchairumbrella.htm.

Zero200 provides centralised bookings for wheelchair accessible taxis in Sydney. The fleet is made up of all the WATs registered in Sydney, irrespective of what co-operative they belong to, and can now be booked online. The system does not offer a choice of vehicle types though so people who are limited to certain conversions will still need to make a telephone booking. Visit www.zero200.com.au/bookings.htm.

TecTouch Gloves are made for staying warm while using your gadgets. They have conductive gel pads in their fingertips that operate touchscreen devices such as iPhones. There are 11 styles, some with built-in handwarmers. Visit www.180s.com/tectouchgloves.

Exercise Program for Individuals With … comes as a video and handy pocket guide with demonstrations of activities you can do at the gym or at home to improve your fitness. Two versions are available, for people with paraplegia or tetraplegia. The videos and pocket guides can be ordered separately from www.ncpad.org/shop.

Add a little pizzazz to your chair with accessories from PimpMyChair.com which was created for those who feel their wheelchair should reflect something about who they are. As well as useful accessories, the range also includes decorations, such as spoke lights that have LED lights making designs or spelling out custom text as your wheels spin. Visit www.pimpmychair.com.

Goods and Services


22–24 August 2012 Australian Rehabilitation & Assistive Technology Association (ARATA) National Conference, ‘Bridging the AT Gap’, Sydney Masonic Function Centre. For more information visit www.arata.org.au/conf.php.

30–31 October 2012 Arts Activated National Conference, ‘Desire and Destination’, The Concourse, 409 Victoria Ave, Chatswood. For more information visit www.aarts.net.au/arts-activated-2012.

16 May 2012 Australian Network on Disability National Conference, ‘Raising the Bar 2012’, Sydney Hilton. For more information visit www.and.org.au/pages/national-conference.html.

16–17 May 2012 2012 Daily Living Expo, Caulfield Racecourse, Melbourne. For more information visit www.dailylivingexpo.com.au/Home.aspx.

23–25 May 2012 ACAA 2012 Conference and Trade Expo, “SETTING THE STANDARD” for access into the future, Alice Springs Convention Centre. For more information visit www.access.asn.au/conferences_and_events.


Jack* (T11 paraplegia) is now successfully employed in a maintenance control position in the mining industry

following support from SCI Workforce and SCIA’s Peer Support team, and workplace

modifications funded through Job Access.

WorkforceAustralia

Getting People with a Spinal Cord Injury Back to Work!Rebecca Bentham, SCI Workforce Manager

James* (C4/5 quadriplegia) commenced a telephone

sales role in his home town in Western NSW over six

months ago after SCI Workforce was able to secure

substantial Job Access funding for modifications to his

office and computer.Sarah* (T12 paraplegia) is now

successfully working back on her

farm as manager following an

introduction to SCI Workforce

from an SCIA Education Officer.

With the assistance of significant

funding from Job Access, major

modifications were undertaken

to farm equipment and buildings

to enable Sarah to return to the

job that she loves.

Spinal Cord Injuries Australia’s SCI Workforce team continues its great work to support people with a spinal cord injury to return to the workforce. As the only specialist Disability Employment Service in NSW for people with a spinal cord injury, we currently have nearly 40 people formally engaged with our service. Not only do we assist people to re-engage in work but we also support them once they are in employment. We can also advise people who are currently employed but concerned about their job in the future.

Rob* (T8 paraplegia) is a trained mechanic living in country NSW who was

referred to SCI Workforce by the Spinal

Outreach Service. Funding for workplace modifications was secured from

Job Access allowing Rob to rejoin the workforce

Richard* (C5/6 quadriplegia) has been

working in an office-based security monitoring

position since August 2011. Prior to taking on

the position, Richard completed the necessary

training and accreditation requirements. SCI

Workforce arranged Job Access funding for a

new chair and voice recognition software.

Read some of our success stories below. *Names changed to protect client privacy.

These are just a few examples of how the SCI Workforce team has helped people back into employment. Our philosophy is that “if a person wants to work then we will do everything we can to support their goals — anything is possible!”.

To speak to one of our team:

P: 02 9356 8201 E: [email protected]


SCInfo, our information service, receives enquiries from people with disabilities, professionals, students … anyone. When interesting or regular

questions are asked, you’ll get to know the answers too.

Remember any time you want to know what, where, how or why, ask SCInfo by calling 02 9661 8855 or 1800 819 774 (for callers outside Sydney) or email [email protected].

Where can I buy and sell second-hand disability equipment and vehicles?

There are listings of second-hand equipment in disability magazines and websites. Among them are:

•Accord (see p 32 for this issue’s). There is no cost to place an ad.

• ParaquadNewscarriesclassifiedadsandtheyarealso posted online at www.paraquad.org.au/Classifieds.aspx. Placing an ad in Paraquad News is free for members of Paraquad and $20 for non-members.

• Ebilitywww.e-bility.com/classifieds carries ads on its website. The cost of placing an ad varies according to the item—$22 for a piece of equipment; $55 for a vehicle; $88 for an accessible property.

• TheIndependentLivingCentrekeepsalistofsecondhand items for sale on its website at www.ilcnsw.asn.au/assets/2h_Equip.pdf. Listing is free.

•GizmoByteswww.gizbytes.com is a website with paid ads for buying and selling disability equipment. Fees include $15 for equipment; $30 for vehicles; $5 for wanted.

You will also find disability equipment and accessible vehicles in the general press and websites such as Trading Post www.tradingpost.com.au and ebay www.ebay.com.au. You can look through their categories or use the appropriate search term. The Trading Post has a category ‘Mobility & Medical Equipment’ and on ebay the category ‘Medical, Special Needs’ has subcategories for different product types.

Jack* (T11 paraplegia) is now successfully employed in a maintenance control position in the mining industry

following support from SCI Workforce and SCIA’s Peer Support team, and workplace

modifications funded through Job Access.

WorkforceAustralia

Getting People with a Spinal Cord Injury Back to Work!Rebecca Bentham, SCI Workforce Manager

James* (C4/5 quadriplegia) commenced a telephone

sales role in his home town in Western NSW over six

months ago after SCI Workforce was able to secure

substantial Job Access funding for modifications to his

office and computer.Sarah* (T12 paraplegia) is now

successfully working back on her

farm as manager following an

introduction to SCI Workforce

from an SCIA Education Officer.

With the assistance of significant

funding from Job Access, major

modifications were undertaken

to farm equipment and buildings

to enable Sarah to return to the

job that she loves.

Spinal Cord Injuries Australia’s SCI Workforce team continues its great work to support people with a spinal cord injury to return to the workforce. As the only specialist Disability Employment Service in NSW for people with a spinal cord injury, we currently have nearly 40 people formally engaged with our service. Not only do we assist people to re-engage in work but we also support them once they are in employment. We can also advise people who are currently employed but concerned about their job in the future.

Rob* (T8 paraplegia) is a trained mechanic living in country NSW who was

referred to SCI Workforce by the Spinal

Outreach Service. Funding for workplace modifications was secured from

Job Access allowing Rob to rejoin the workforce

Richard* (C5/6 quadriplegia) has been

working in an office-based security monitoring

position since August 2011. Prior to taking on

the position, Richard completed the necessary

training and accreditation requirements. SCI

Workforce arranged Job Access funding for a

new chair and voice recognition software.

Read some of our success stories below. *Names changed to protect client privacy.

These are just a few examples of how the SCI Workforce team has helped people back into employment. Our philosophy is that “if a person wants to work then we will do everything we can to support their goals — anything is possible!”.

To speak to one of our team:

P: 02 9356 8201 E: [email protected]

CAN’T WORK BECAUSE OF SICKNESS OR ACCIDENT

& YOUR INSURER OR SUPER FUND WON’T PAY?

Don’t take NO for an answer!

Ring FIRTHS and we’ll MAKE THEM PAY in all

• Sickness&Accidentclaims;• IncomeProtectionclaims;• Total&PermanentDisabilityclaims;• Superannuationclaims;• CriticalIllness/Traumaclaims;• MotorAccidentdamageclaims

Free Call – 1800 631 888

* Specialising in spinal cord injuries* If we don’t win you don’t pay us anything* 99% success rate

[email protected]


Ability Technology’s Graeme Smith answers readers’ questions on computer

technology related subjects. To contact Graeme see the Ability Technology advertisement.

iPad Problems

A friend loaned me his iPad and I found it great. I can do almost everything with my finger splint and with a conductive attachment. But what I can’t do is press the home button so that I can switch from one program to another. This barrier means I won’t be able to use the iPad much at all. Is there some way around this?

There is a solution. As part of the operating system upgrade for the iPad/iPhone/iPod (iOS5) there is a new accessibility feature called ‘Assistive Touch’. To activate Assistive Touch, go to ‘Settings’, then ‘General’, then ‘Accessibility’ and select ‘Assistive Touch’. You will then see a floating circular button on the screen. Tapping this icon will reveal a menu with the Assistive Touch options. It is easy to

move the floating button if it gets in the way. In other words, it gives you a ‘soft’ button that you can use instead of the hard button. It is a great solution for people with physical impairments.

Senior Pilot ECU

I have been using a Sicare Senior Pilot ECU for a few years but it has been damaged and I need to replace it. However it seems they no longer make this product. It suited my needs, as I can use a switch and the device would scan though the buttons for me. I had 10 or so commands trained into it. Can you recommend an alternative or replacement for this device?

It all depends on how many commands you need. The TASH Mini Relax controls up to six commands, which may not be enough for you (you can ignore the built-in labels on the device and train them to whatever commands you want). Another option is called the HouseMate Lite, which has ten commands in each of two levels. It also has the capacity to record speech output which this means it will then speak back the options as it is scanning. You wouldn’t need to be looking at the device to make your selection. The TASH costs just under $500 while the HouseMate is just under $1,000. In both cases, this is more than you would have paid for your Senior Pilot.

Voice Control for ECU?

You mentioned last year that you were close to developing a voice control option for the iPod or iPhone. Is this available yet? I am very keen to have a system that is low cost, portable and can be controlled by voice.

Computer Mailbox Graeme Smith, Ability Technology

Environmental control

29 Frenchs Forest RdSeaforth NSW 2092

Phone: 02-99079736Fax: 02-99079599

Email: [email protected]: www.ability.org.au

Lights, lamps, TV, music, fans, doors, curtains, a/c, DVD, telephone,

security...

Increasing yourIndependence

at home

• Independent advice• Expert assessments• Detailed reports


We’re not quite there yet, I’m afraid, although we have some programmers looking very closely at Siri (speech commands in iOS5). However, we do have some good news. We have been able to use the built-in speech recognition in Windows 7 to control a device called the ‘RedEye’. The computer talks to the RedEye via the user’s wi-fi network. The RedEye sends

infrared commands to control various home appliances. Our technical staff need to set up the commands in Windows 7 once the RedEye has been trained for an individual’s set of appliances/devices, but that does not take long. The end result is any device running Windows 7 (with a microphone) can be used to send commands over a wi-fi network to the RedEye. There are Windows tablets of various sizes available. Our work in this area was kindly funded by the Coopers Foundation, to whom we are very grateful.

NEWS

ARATA Conference in Sydney

The biennial conference of the Australian Rehabilitation and Assistive Technology Association (ARATA) is being held in Sydney on 22–24 August. If you are interested in technology for people with a disability, then this conference is not to be missed. There will be workshops, presentations, product displays and case studies.

Memory Aids Project

Ability Technology has been funded to undertake a study of memory and organisational aids, for those with cognitive impairments. You are invited to contact us if you have any feedback on devices you are using or have used for this purpose.


GIO Gardening BlitzLucia Lee, Corporate Partnerships Manager

It was an overcast day that greeted the enthusiastic team from our Corporate

Partner, GIO Workers Compensation when they bravely presented to Stewart House, one of SCIA’s shared transitional houses, on the morning of 30 November 2011 as part of their Staff Community Volunteering.

GIO’s mission was to tidy and clear out all the rubbish and weeds (and there was a truck load of that!) so that SCIA could create a sensory garden for residents to enjoy their outdoor space and participate in outdoor activities such as barbeques and having families and friends visit.

Given the enormity of the task, the GIO Garden Blitz team divided into two teams who swept, weeded, pruned, dug, raked, chased down council trucks (three trucks were required given the amount of rubbish) and sweet talked a local gardening maintenance team to mow and whipper-snipper the lawns.

Afterwards, Stewart House resident Jane* joined the teams in the rejuvenated backyard. Opportunely, Jane’s friends popped by for a visit and exclaimed over the remarkable transformation and vowed to have their visits outside in the backyard to enjoy the new garden. A brilliant idea came to mind: if Jane agreed to regularly tend to the garden then the GIO team agreed to set a small vegetable patch.

The smiles from the residents, friends and neighbours that greeted the weary GIO Garden warriors lent them strength when their aching muscles cried for relief. SCIA salutes the generous support of our Corporate Partner, GIO Workers Compensation. To mark this memorable day at Stewart House, the GIO Team was presented with a Certificate of Appreciation by Nicole Bechaz, SCIA General Manager,

Transitional Services, and a souvenir of the Staff Volunteering Day. We have it on good advice that this memento now sits proudly on their wall in Suncorp Place as a reminder of their “enjoyable and rewarding day with Spinal Cord Injuries Australia”.

Thank you Team GIO!

*Resident’s name changed to protect client privacy.

GIO and SCIA staff pictured with souvenirs of the Staff Volunteering Day


Despite torrential rain and a dark grey sky we had a fantastic turnout for the opening of the latest accommodation venture for SCIA, with The Hon.

Andrew James Constance, MP, Minister for Disability Services speaking enthusiastically about the benefits of the CHOICES apartment.

CHOICES stands for Creative Housing Offering Inspiring, Creative and Empowering Services and we hope that by staying at the apartment, spinal unit in-patient clients will be able to learn and trial new life skills, spend quality time with family and friends and have some time out to relax in a pleasant environment away from the hospital ward.

The apartment is in Breakfast Point in Sydney, along the Parramatta River foreshore, next door to Concord (or for those shoppers out there, a five minute drive from the Ikea store in Rhodes). It is a lovely suburb with wide and leafy streets, many waterfront paths, plenty of accessible parking, and places to eat, shop and socialise. The apartment itself is large and open plan with three bedrooms, two bathrooms and a wrap-around outdoor area with water and parkland views.

It is available to our clients who are currently inpatients within a registered medical facility for periods of up to

seven days at a time following approval from their medical specialist and allied health team. The apartment can accommodate one or two clients at a time and there is room to accommodate up to four of their loved ones, as well as an overnight carer if required. We hope to continue to provide this service at no cost to our clients and can potentially provide funding to help families to travel and stay at the apartment.

Enquiries on the CHOICES apartment should be addressed to Jenni Thompson (0422 001 659), Sheree Hurley (0413 367 519) or any of the Education Officers in our Peer Support Team.

CHOICES Launched!Nicole Bechaz, General Manager, Transitional Services

Daily living ExpoAustralia’s foremost Exhibition for Rehabilitation and Aged Care Equipment

16th - 17th May 2012Caulfield Racecourse, Concourse Level

• SECOND time held in Melbourne • More than 50 exhibiting companies • Dynamic Clinical Program • FREE Parking • Easy public transport access

• Opening hours 9am - 4pm both days

FREE EnTRy - REgiSTER noW

Visit www.dailylivingexpo.com.au or phone 1300 789 845 for more information

Prize pool for Therapists - pre register and attend Daily Living Expo and go into the draw to win a prize pack of products for your facility – and also a $500 gift card for yourself.

*Winner will be notified by phone and mail and will be published in The Australian 26 May 2012.

ATSA IL HPH.indd 1 23/01/12 3:51 PM

Peter Perry, SCIA CEO and The Hon. Andrew James Constance, MP, Minister for Disability Services

NSW

NSW Wheelchair Accessible Taxis

It is approaching six months since the 1 October 2011 implementation of the NSW WAT Measurement Protocol, which requires all new NSW wheelchair accessible taxis (WATs) to provide more space inside the vehicle, resulting from the positive outcome from Greg Killeen’s complaint in the Federal Court.

At a stakeholder meeting in late 2011, hosted by the NSW Department of Transport, it was revealed that approximately 50 WATs complying with the new protocol were in operation, with the excellent news that there was no incidence of passengers using wheelchairs being unable to fit inside the allocated space.

The benefits of the new protocol will be realised over time with these new WATs replacing retired vehicles and when the fleet is increased by the introduction of extra WAT licences. But in the interim, SCIA still plans to seek for all existing WATs to be audited for compliance with the Disability Standards for Accessible Public Transport.

If you are a wheelchair user and are experiencing difficulties accessing WATs due to the lack of allocated space inside the vehicle and want to do something to address it, please contact SCIA Policy Team about your options on 1800 819775; [email protected].

The NSW Taxi Transport Subsidy Scheme (TTSS)

The NSW Independent Pricing and Regulatory Tribunal (IPART) is currently in the middle of its NSW Taxi Fares Review, in which it seeks submissions from all stakeholders and then will make recommendations about if and/or how much taxi fares, and each component of them, should be increased.

SCIA Policy is acutely aware of the ongoing negative impact of price rises on people with disability who are reliant on taxis for their main, or possibly only, option for accessible transport. Sydney taxi fares have increased by over 44 per cent since the one and only NSW TTSS subsidy increase in 1999.

As part of the campaign to have the NSW TTSS percentage and/or dollar value increased, SCIA Policy has written to The Hon. Gladys Berejiklian, NSW Transport Minister, seeking an urgent review and amendment of the NSW TTSS.

The IPART Taxi Fare Review report and its recommendations will be released to the public in the middle of 2012. Although IPART does not have the power to recommend amendments to the NSW TTSS, and the NSW Government is not compelled to accept the IPART recommendations, it is hoped that the ongoing negative impact on people with disability from the increasing taxi fares is recognised in the report. SCIA Policy will continue to use all available relevant data to

continue its campaign for an increase in the NSW taxi subsidy.

NSW Public Transport

It is now 12 months since the March 2011 state election. The new NSW Liberal Government has the task of continuing the rollout of the Easy Access upgrades of railway stations. But unfortunately the $30 million recurrent budget for the upgrades is inadequate to ensure they will be completed and be compliant with the Disability Standards for Accessible Public Transport (DSAPT). The DSAPT requires all public transport and infrastructure to be accessible by 2032, with the exception of public buses which are required to be accessible by 2022.

During the October 2011 NSW Budget Estimates hearings, Ms Berejiklian revealed that the recurrent budget for the Easy Access program would cover three stations per year. At that rate, it will take 80 years for them to be completed. The Minister stated that she is looking at ways to obtain the funding to address this. In contrast, it is anticipated all NSW public buses will be wheelchair accessible by 2017, five years ahead of the DSAPT deadline.

As the rollout of the program will take a number of years, it is extremely important that a rating or priority list be created that identifies where the largest number of people with disability could gain the greatest benefit. The NSW Government uses a variety of demographic mapping and systemic tools to allocate funding for various other services, including health and community services. SCIA Policy believes these should also be used to identify where people with a disability live as it would be better to upgrade train stations where the majority of people with a disability are located, rather than use only data on the overall population who are using train stations.

NSW Public Transport Smartcards

The NSW Ministry of Transport has changed its name to Transport for NSW. It has re-established the Accessible Transport Advisory Committee (ATAC) of which SCIA is one of the various disability sector representatives invited to participate.

The ATAC has been asked to provide feedback on the current review of the Transport for NSW Disability Action Plan. SCIA Policy believes this is a positive move as it provides the opportunity to have direct and effective participation in the development of government public transport policy, as well as the ability to raise and address relevant public transport issues.

If you have a physical disability and have an individual public transport access issue or an idea to address a service or systemic problem, contact the SCIA Policy Team on 02 9661 8855; [email protected].

The Squeaky WheelPolicy Team


NSW Care Workers Parking Authority

SCIA Policy is aware that some care workers employed by NSW Home Care, a government service, were either having trouble finding parking near a client’s home or they were receiving parking infringement notices and fines while assisting clients in the local government areas of Randwick, Marrickville, Sydney City and Waverley. The fines are required to be paid by the care worker and not the employer.

The NSW Home Care Maroubra branch which covers these areas had written to the respective local councils seeking, without success, for this issue to be addressed with the provision of a ‘carer parking permit’. SCIA Policy contacted the NSW Government and received a response from Peter Duncan, Chief Executive, NSW Transport, Roads & Maritime Services stating, “There is no need to create a new type of permit. The client can obtain a Resident Visitor Permit on the worker’s behalf”. This letter was forwarded to Mary Tuscany, NSW Home Care, Maroubra Branch Manager, to pursue with the affected clients.

SCIA Policy is aware that not all councils operate a resident visitor permit scheme, so is in the process of contacting all NSW councils and shires to find out which have this scheme and how it operates. SCIA Policy understands that it can be difficult obtaining and retaining care workers so it is extremely important that there be no unnecessary deterrents. If you have care workers who are being adversely affected by a lack of available parking, SCIA Policy encourages you to apply for a resident visitor permit on their behalf.

The Sydney Festival 2012

The Sydney Festival has positively progressed by ensuring venues provide wheelchair access and recently included some performances with audio scripting for people with a vision impairment and subtitles for people with a hearing impairment. Unfortunately, the 2012 program included The Boys performed at the inaccessible Stables Theatre by the Griffin Theatre Company (which owns the Stables Theatre).

Lindy Hume, Sydney Festival Director, was contacted with the aim of The Boys being relocated to an accessible venue and to seek an assurance that only wheelchair accessible venues will be used in the future. The Sydney Festival has access as one of its core principles, and this year it received a record $6.5 million of NSW taxpayer money, as well as sponsorship from Sydney City Council and the private/corporate sector.

Josephine Ridge, Executive Director of Sydney Festival responded and organised a meeting that included herself, Sophie Clausen of Accessible Arts, Greg Killeen and SCIA Policy to address the issues. Unfortunately it was impossible to relocate The Boys to an accessible venue.

Griffin Theatre Company’s Simon Wellington was also contacted and he explained that, while the company has the willingness and funding to remedy the Stables Theatre’s inaccessibility, it is a heritage building. Advice they have received from an architect, access consultant and OH&S consultant is that, due to the structural restraints, it may be impossible to provide access to the theatre auditorium. Interestingly, the Stables Theatre

foyer has a wheelchair accessible toilet—which is perversely amusing to people who are excluded from attending a performance.

SCIA Policy will continue to campaign for only wheelchair accessible venues to be used for future Sydney Festivals.

National

National Disability Insurance Scheme Lobbying Steps up a Pace

With the release of two reports by PriceWaterhouse Coopers (PWC) and other reports from National Disability Services (NDS), the debate about the form and indeed whether a national disability insurance scheme will become a reality looks like forever continuing.

The ‘Every Australian Counts’ campaign now has more than 100,000 supporters, demonstrating the strength of community support for the NDIS. But sadly, despite the positive studies, reports and economic arguments that spell out the benefit of collectively funding disability services, there is little desire by either party to fund the NDIS until the budget is back in surplus. The notion of budgets being in surplus and the race to show who is the most economically conservative are driving the debate, rather than what the Australian people want.

If you would like to talk to SCIA about the NDIS contact us on 02 9661 8855; [email protected].



The Illawarra Regional Office

During the last quarter of 2011, the Illawarra regional office maintained strong member participation with members attending peer support and information sessions each week. We hosted a presentation from medical equipment supplier, Medistore, which demonstrated a number of items and latest equipment options available to people. Catalogues were left for perusal and ordering.

The office Christmas party for members was again well attended with a mixture of family and friends. This group has now been sharing the Christmas get together event for the last 25 years and, although the ranks are getting thinner, the desire to meet and keep up-to-date with the latest information remains constant.

In November, Spinal Cord Injuries Australia’s Regional Team and senior management broke with the tradition of meeting in Wollongong for our annual conference, meeting instead in Tamworth. All regional workers look forward to this event as the conference allows team members the opportunity to share their thoughts and concerns to move forward in meeting the organisational goals and improving the lives of people within each of the regions SCIA represents.

Flexible Respite Program Update

SCIA’s Flexible Respite Program continued to be very popular in 2011 with enquiries being received each day from all over NSW. Applications are being reviewed on a needs basis with eight packages being approved each month.

The high demand for the Flexible Respite Program has definitely shown a need for this type of support for families and carers. Those taking advantage of the program secure a well earned break from the daily routine.

For information regarding applying for Flexible Respite Program visit www.scia.org.au/flexible-respite-and-transitional-packages or contact Chrissie Stevens on 02 4225 1366; [email protected].

Personal Care

Most people with a relatively high level injury require personal care in some form. Many employ carers with Attendant Care funding, through the Higher Needs Pool, or are self-funded. Irrespective of the care model utilised or how it is funded, it appears that the care arrangements of many are fragile to say the least. What occurs routinely is that I, or some other local support service, will get a call from a consumer for assistance when the ‘wheels fall off’ so to speak; a crisis in care has emerged.

Generally all that can be done under such circumstances is to find a reactive solution to the crisis at hand. At the least, this approach to managing care is generally stressful and can actually put a person’s health and welfare at risk.

The problems originate from a fundamental issue: there are not enough reliable, professional and trained carers to go around. Attracting prospective employees to the industry can be a tough business, particularly in this part of the state. As a result, consumers often end up settling for second best in terms of appropriate candidates. This scarcity of committed staff also means that consumers can become possessive of their best carers.

What can be done? We can start by taking a proactive approach to the care issue. This means several things:

• promotingtheindustrytoattractacrediblestandardofapplicants;

• provisionofprofessionalcarertrainingatalocallevelto ensure consumers are receiving the best standard of care;

• conformingtheworkingconditionsforallemployeesto at least the minimum required by law; and

• takingapre-emptiveapproachtorecruitinganddeveloping a work ready pool of available carers to draw from in response to consumer’s needs.

Further to this last point, at present there is no register of experienced and competent carers available in respective areas. As it stands, consumers are generally on their own when it comes to recruiting. There is little sharing of information between consumers when it comes to their coveted carers. While this is understandable in light of the aforementioned concerns, I really think this mentality has to change if we are to make any real headway on this issue.

Round-up

South Coast and Southern Highlands Alex Traill, Regional Services Manager 5/208-210 Corrimal St Wollongong 2500 Ph 4225 1366 [email protected]

Central West Craig Lees, Regional Officer PO Box 1140 Mudgee 2850 Ph 6372 1892 Mob 0413 367 523 [email protected]


worked in the Coffs Harbour area for many years. Check out the SCIA website www.scia.org.au for more information about using this fabulous facility as your holiday accommodation. We are also working towards better supporting those living in the Mid North Coast so watch this space for more details on this initiative.

Rural Spinal Cord Injury Service

I extend a huge thank you to all Northern Rivers clients and carers who lobbied health and local MPs to ensure a new coordinator was employed to fill this vacant position. Unfortunately the new coordinator is located in Port Macquarie so we no longer have the benefit of the fabulous service we have experienced in the past by Alyssa Rogan and Jenni Barker. We miss both these fantastic ladies but I’m sure a great partnership will be developed with the new coordinator even though is she isn’t located in Lismore.

Several new clients will attend the Spinal Outreach Service clinic that is being run in Ballina once again this year. In 2011 they worked with 19 clients over the four day clinic, 15 of them being new to outreach services and most never having had a spinal check-up since they were first injured 15+ years ago. It has been pleasing to see the fantastic outcomes for those who attended last year, especially seeing the smiles of those who have just received their new wheelchair after battling for many years with their old chairs.

What do people think of having a local database of skilled carers to draw from as required? To implement something like this we would need consumers to contribute information regarding their care, including for example carer contact details, level of experience and hours available for example (with the carer’s consent of course).

Rather than battling along with our own individual care arrangements, collectively we could do so much better I think. Part of the plan over the next 12 months is to find workable solutions to training and recruitment issues.

In the meantime, I would like to hear from consumers in the region regarding their own care arrangements, and any issues or suggestions on how we could improve the current personal care situation. Any efforts to contribute by consumers will be graciously appreciated. Call me on 6372 1892 or email [email protected].

I am looking for a Northern Rivers resident who would like to assist with the preparation of a regular newsletter. If you live in the region and have the time to help, contact me on 6689 5935 or 0421 055 992.

SCIA Northern Rivers Forums

Our SCI Forums are being well attended, with great ideas for future topics and guest speakers being suggested by all. The next forum is on 19 June so lock this date into your diary.

New Work Health & Safety Laws

I recently attended training on the new Work, Health & Safety laws (previously OH&S) and found it very interesting how these will affect carers, particularly for those who employ their own carers through self-managed funding packages. Those in attendance stressed how important it is for the authorities to provide relevant information and training to all whom these changes will affect. If you have any questions, please don’t hesitate to ask me.

Welcome to Jim Wicks in Coffs Harbour

It was with great pleasure that I visited SCIA’s house in Coffs Harbour. The transformation that the refurbishment has provided is amazing, with state-of-the-art equipment being installed. Jim Wicks, resident and House Coordinator, is a charming man who has lived and

Northern Rivers Lee Clark, Regional Officer Suite 6A, 27 Oliver Ave Goonellabah 2480 Ph 6689 5935 Mob 0421 055 992 [email protected]

Mobile Shower CommodesA research study on mobile shower commodes (MSCs) for adults

with spinal cord injury (SCI).

The aim of the study is to develop a measure that will ensure that the right commode is supplied to suit the individual needs of people with SCI.

The following participants are invited to contribute to the research study:

• adults with SCI who use mobile shower commodes for showering and/or toileting;

• suppliers and manufacturers of mobile shower commodes; and

• expert clinicians with more than three years experience in assessing and prescribing mobile shower commodes for adults with SCI.

The study will involve an interview by either phone or internet lasting between 30 and 90 minutes and a follow up survey about four months later, asking for feedback on the first version of the measure.

If you are interested in participating in this study, please email or phone Emma Friesen for a copy of the Participant Information Sheet and Participant Consent Form.

Email: [email protected]

Phone: 0403 442 027


I was born in 1954 in Shropshire, UK and moved around to several places before settling in the Dulais Valley in South Wales. I Joined the Royal Navy in 1969, serving first on surface ships and then diesel electric submarines. In 1989 an opportunity to join the Royal Australian Navy (RAN) arose so my family and I moved to Australia. I became a Naval Police Coxswain serving in a variety of places around Sydney and Western Australia but in 1997 I was involved in a motorcycle accident which left me with T4/5 paraplegia, leading to my discharge from the RAN.

I then worked in a security control room in Sydney for several years before a ‘sea change’ brought me to Tamworth where I completed a Community Cert., Case Management course. I did work experience with the Northcott Society before applying for this position in the SCIA New England Regional Office. I had been introduced to SCIA (which was the first time any advice, information or assistance had been offered to me since my injury) through contact from the office. I am looking forward to working with and for people who have similar concerns as me now and in the future.

The New England office has continued with information and forum sessions, both in Armidale and in Tamworth. We have had interesting speakers offering updated and relevant information to those who have attended. Speakers included Marion Goodman, a health and well-being nurse from the Barton Lane Medical Centre, who spoke on lifestyle changes through diet and exercise to help strengthen the body and mind and Helen Ritchie, an alternative medical therapist from Tamworth, who suggested other medical therapies and talked about the value of relaxation and meditation to alleviate stress and improve general health.

We have arranged another cross-section of speakers to attend this year. In April we will hear Helen Sutherland from Disability Advocacy; in May, the Hon. Kevin Anderson MP, Member for Tamworth; and in June, the Hon. Tony Windsor MP, Mernber for New England, who we hope will be able to update those attending on the NDIS. Information and dates for these forums will be advised in our ‘Nuts & Bolts’ newsletter.

‘Nuts & Bolts’ has been positively received by clients and service providers in this region and it is proving to be a great method of communication for everyone. We have received some great contributions from clients and carers, as well as Centrelink updates, respite information and relevant contact details for service providers. The newsletter has also been fantastic at introducing SCIA to all people in the region: new clients, service providers and the general public.

Regional Transport

Northern Rivers Social Development Council (NRSDC) worked with local access committees, Disability Transport Taskforce Group and SCIA to provide a resource regarding regional transport and how to access it. Kate Geary, NRSDC Transport Program Officer, worked very hard to gather correct and detailed information included in this resource. It covers all means of public transport across the Far North Coast NSW. If you would like a copy, please contact me.

Casino Taxi Company

It is with great pleasure that I congratulate Ashley and Sharla from Casino Taxi Company on the purchase of their new Maxi Taxi that can accommodate six wheelchair-seated passengers at any one time. This is the first taxi in Australia that has been fitted out to carry so many together. The concept came from Ashley and Sharla listening to service providers continually talking about the lack of public transport options in the region. They are very proud of their new purchase and will hire it out on several different levels, including normal taxi use around Casino and district and self-hire/drive. The finer details of hiring will be ironed out over the first six months of use, due to this being such a new concept. If you would like details of how you can use this vehicle, even if you don’t live in the Casino area, please contact Casino Taxis on 6662 1100.

Men’s Shed

Everyone is invited to join the activities at the Men’s Shed at Summerland House Farm (previously known as the House with No Steps) at Alstonville and, even though they are called Men’s Sheds, they do welcome females. They will teach and assist you to ‘have a go’ at making whatever you want, within scope of members knowledge and the machinery and equipment available. To join in contact me on 6689 5935 or phone Summerland House Farm on 6628 0610.

The New England office now has a new member of staff, Les Morriss, who joins us on a part-time basis as the Regional Worker for Tamworth. In his own words:

New England Glenda Hodges, Regional Officer 20 Murray Street Tamworth NSW 2340 Ph 02 6766 6422 Mob 0427 257 471 [email protected]


• thecharacteristics,dimensionsandmanoeuvrabilityofmobility aids that are able to board, alight and be carried on low floor buses; and

• thecharacteristicsofinteriorlayouts,seatingplansand fittings that would enhance functionality of buses for a range of different users.

On the day of the test sessions it was lightly raining which made it particularly difficult and a little scary pushing up the wet ramp to board the bus. After making my way into the wheelchair designated spot, a department representative sat down with me to complete a questionnaire. There are two types of accessible buses used on various routes and we were asked to access and give feedback on both. It was great to see many people using different types of mobility aids attend the session as feedback covered a whole range of possible issues, including how wet weather, as well as other variables, can impact on access.

Bus Accessibility Session

The Department of Transport appealed through organisations for people with physical disabilities to attend a ‘Bus Accessibility Test Session’ and AQA information officer Wayne Bradshaw attended.

The Department of Transport was particularly interested in the views of people who use mobility aids, people with vision impairment, older people and those travelling with small children in pushers and prams regarding current accessibility of low floor route buses. The test session was designed to gather feedback about the following:

• theeaseofboarding,alightingandmanoeuvringonlow floor buses for wheelchair and scooter users;

Victoria Nazim Erdem, AQA Victoria Ph 03 9489 0777 [email protected]

For further information, Call 02 9620 7839

Harmony of Performance & StyleImproving Your Lifestyle

Topolino™. Carbon Fibre technology. Redefines light weight, strong & durable

Natural Fit™. Ergonomic Handrim with Gription Insert. Better push, less injury

Heads First™. Shape fitting, fully customised range, adult & kids sizes

www.seatingdynamics.com.au

City of Melbourne Access Publications

Whether you are a resident, a frequent visitor or it’s your first time in Melbourne, the below accessible publications are designed to make it easier for people with disabilities to find their way around and to use Melbourne’s services and facilities.

Accessing Melbourne: for people with mobility-related impairments, people who have difficulty negotiating the physical environment and others. It contains information about getting around Melbourne, events and attractions, entertainment and accessible accommodation.

Active City Sport and Recreation Access Guide: provides key access information for 34 sports and recreation venues within the municipality for people with mobility, vision and hearing impairments.

City Bars - An Access Guide: includes information about accessibility in city venues. The guide includes detailed information on about 30 bars and entertainment venues within the municipality.

City Eating - An Access Guide: is designed to help choose somewhere to eat by providing basic access information for 88 eateries in Melbourne. As well as listing the type of food, price range and opening hours, the guide also covers a variety of access considerations

such as floor surface, provision of accessible toilets, lighting and background noise.

Mobility Maps: Melbourne CBD, Docklands precinct and Entertainment and Sporting mobility maps help people with limited mobility to use and enjoy what the city has to offer. Information and facilities on the maps include wheelchair accessible toilets and telephones; public TTY telephones; disability designated car parking spaces; accessible off street parking; train stations; accessible pathways; taxi ranks; publics seating; and street gradients. CBD Melbourne Mobility Map.

Our Melbourne – Disability Action Plan 2010–13: outlines what the City of Melbourne will do over the next three years to improve access and inclusion for people of all abilities in all aspects of life.

Visit www.melbourne.vic.gov.au/AboutCouncil/PlansandPublications/Pages/AccessibleMelbournepublications.aspx to download copies of the above publications or hard copies are available from the City of Melbourne on 03 9658 9658 (tel); 03 9658 9461 (TTY).

PEER SUPPORTcan provide assistance to you in various ways to increase your independence and capacity to self manage upon your return home. Our team is based at Little Bay and can visit you in hospital or at home (Greater Sydney metropolitan area). Country visits and clinics can be arranged through your local Spinal Cord Injuries Australia Regional Officer or the Peer Support Coordinator. Contact: 02 9661 8855; [email protected] AND EMPLOYMENT SERVICESSCI Workforce provides employment services to people with physical, mental health, intellectual and psychiatric disabilities in achieving sustainable employment through its contract with Department of Education, Employment and Workplace Relations (DEEWR). Contact: 02 9356 8064; [email protected] SERVICESprovides transitional and long term accommodation in Sydney and Coffs Harbour/Mid North Coast NSW. In addition one accessible room without equipment is available for short stays in Coffs Harbour. Contact: 02 9661 8855; [email protected] AND ADVOCACYsupports people with a disability in advocating on an individual and systemic basis. Our service seeks to best represent the complex issues experienced by people with a spinal cord injury and similar conditions through a number of state and federal committees as well as working closely with peaks. Our commitment is to equality, respect and inclusion. Contact: 02 9661 8855; [email protected].

SCInfo INFORMATION SERVICEprovides you and your family, carers, professionals and the general public with a wide range of information on severe physical disability and services. The information service also helps people with individual advocacy issues to find representation through specialist disability advocacy services. What? Where? Why? How? Contact: 02 9661 8855; [email protected] AND NATIONAL NETWORKSpinal Cord Injuries Australia’s advocacy and community support services are available throughout NSW through a network of Regional Officers. Spinal Cord Injuries Australia stays in touch with issues that matter to you around Australia via a network of national representatives in the other states and territories. See Round-up for contact details. Contact: 02 4225 1366; [email protected] workplace safety awareness to industry by utilising the impact that traumatic injury can have on an individual and their familiy. The personal experience of those who have a spinal cord injury as the result of a workplace accident is a powerful tool to ensure worker participation in safety procedures. The program is available to all workplaces throughout Australia. Contact: 02 9356 1112; [email protected] ONis an intensive exercise recovery program offering a path to maximising functional recovery through a structured program. Currently available in Brisbane and Sydney. Contact: 02 9661 8855; [email protected].

SPINAL CORD INJURIES AUSTRALIA SERVICES DIRECTORY


With much of Canberra in shut-down mode over the Christmas/New Year period, it is not surprising that issues which are normally overlooked as being newsworthy are assigned greater than usual media coverage during the summer months. Such is the case of an unnamed SCI patient languishing in The Canberra Hospital (TCH) for well over two years. It seems that the various arms of the ACT Government—Health, Housing and Disability—have failed to agree on a post discharge plan for the patient, who has significant high and complex needs. Seemingly abandoned by the system, the patient is now entrenched within hospital life. The non-existence of wheelchair accessible housing in the ACT, with both private and public housing stock, is reprehensible for such a wealthy jurisdiction. The impact of excessive hospitalisation is enormous, not only from an economic perspective, but on the person with the SCI.

The beginning of the year is a good time to check the manufacture tags on your pressure cushions. Many

manufacturers like ROHO® and Jay® only certify their cushions for a maximum service life of two years, recommending replacement at this time. With pressure care of the upmost importance, I suggest folk become aware of when their pressure cushions were manufactured, making arrangements for their replacement at the appropriate time. With the chances of a pressure cushion failing beyond its service life high, so is your risk of getting a pressure ulcer. Don’t chance it, replace it.

On a much lighter note, as a birthday gift I received a beautiful Weimaraner bitch pup I named Pepper. From the outset I’d like to admit that my wife helps with Pepper’s ‘deposits’ and her morning feeds. However, with lots of humour and the occasional expletive, I manage to exercise and wash Pepper. I take Pepper to puppy school and have swapped the term heel with wheel. After a number of ear-splitting yelps, Pepper quickly learnt that those round things I sit on hurt, and has managed to stay well clear of my wheels.

With the belated arrival of summer, I took the opportunity to dust off my handcycle and take it for a spin around Lake Burley Griffin. Canberra has fantastic network of cycle paths; it is almost possible to ride from one end of Canberra to the other without crossing a road. The feeling of going 45–50kms/hr with your bum just inches above the path is exhilarating.

ACT Trevor Robinson [email protected]


ZR

TR

TTX

www.seatingdynamics.com.au or call 02 9620 7839 for a list of TiLite Resellers in your area

TiLite offers the ultimate ride, handcrafted precision finish & more. For further information, call or email [email protected]

TTTG XXXG XG G XG G XG G XG TWIST ZZ2Growable kid’s chair Aero Z2, ZRA2

& ZR2 available

Harmony of Performance & StyleDesigned by wheelchair users for wheelchair users


MLAK. It would appear to be one of those acronyms that some people know about but others don’t and, sadly, until recently that included me. For the benefit of all those who are not familiar, MLAK is a Master Locksmiths Access Key. It is a master key system that people with disabilities, family members and carers can obtain for unlocking some accessible public toilets and other facilities.

But who locks public toilets? This is perhaps where the bone of contention lies with such a system. As many people would be aware, accessible public toilets can often be abused by people without disabilities. Without some form of regulation, an otherwise pristine place gets trashed. So there are pros and cons to locking such facilities. The downside to it is that if you don’t have a key you can’t use the facility.

The MLAK system is predominantly used in New South Wales so if you are a tourist from overseas or interstate you’re not likely to have the information to use the system. And unless you can track someone down who has a key this is a problem. This can be difficult and frustrating if it happens to be a public toilet in a park or at a beach where there isn’t a person nearby who can provide a key.

This was brought into stark relief recently by a member of the public who contacted SCIA. They were visiting Sydney from Victoria and attempted to use an accessible public toilet at a beach that had an MLAK lock. They did not hold their own key but they did manage to track down a lifeguard who had one. However, because the lifeguard was busy on the beach, doing what lifeguards do, he could not leave his post to unlock the door.

Soap BoxTo the visitors’ dismay, he refused to hand over the key. The justification for this was that at other times when keys had been given they were sometimes not returned.

No doubt other people have encountered similar problems. In a place like Sydney with a high population density, simply leaving facilities which are aimed specifically for the use of people with disabilities open to the general public 24/7, can lead to problems. Anyone who has visited an accessible toilet at a shopping centre or pub will know that they are often frequented by people without disabilities. Perhaps it is just human nature—the mentality being, well I will only be here for a minute, surely no one will notice. That’s fine until you are parked outside a disabled toilet waiting for 15 minutes only to find the person leaving does not have any form of disability.

When the toilet is in a highly visible public space, such as a popular beach, and is left open constantly for anyone to use then the likelihood is that it will soon become a facility you would not want to visit unless it is cleaned regularly.

The crux of the problem here is that the MLAK system is not universal. It works well for those who are familiar with it and who have keys. However if you do not and you come across a locked facility that you desperately need to use, it can leave you at best feeling disempowered and frustrated; at worst the victim of an embarrassing ‘accident’.

For further information on the MLAK and how to obtain a key visit the SCIA website www.scia.org.au/public-toilets.

Classifieds

FOR SALE: 2001 Ford Fairlane modified with hand-controls, steering wheel spinner knob and Wymo wheelchair rooftop lifter. Driver’s seat modified for tall drivers. 158,000 kms, all scheduled servicing at Ford dealers. Automatic transmission overhauled at 145,000kms. Car has all Fairlane comforts. ACT registration to October 2012. $6,600. Call Trevor on 0408 935 956.

FOR SALE: TiLite TX folding wheelchair (seat pan 16”x17”). Solid tyres, black upholstery, anti-tippers and luggage carriers. $2,000. Call Trevor on 0408 935 956.

FOR SALE : MARVEL manual wheelchair, dual independent suspension, total seat width adjustability 14–18 inches, backrest height, footrest height and seat angle. Six months old. No cushion. $6,800 ONO. Contact Paul on 0424 604 044.

FOR SALE: Chrysler Grand Voyager, 2004 model. 50,000 km. Equipped with rear ramp entry, wheelchair docking and restraints. Seats wheelchair + 7 others. $27,000 ONO. Contact Dianne on 0409 837 084.

In Memory: Frits Douven

Trevor Annetts

Frits Douven was one of the group of young men with a spinal cord injury staying at the Prince Henry Hospital who created what we now know as Spinal Cord Injuries Australia. Frits supported the organisation right up until his passing; attending fundraising events to raise much needed funds and lobbying for the rights of people with a disability, attending many protest rallies in Canberra.

Frits was a passenger in a motor vehicle accident in the early 1960s which resulted in quadriplegia and, as a patient at the Prince Henry Hospital, he met Bob Mackenzie, Jimmy McGrath and me. We became lifelong friends.

Frits worked for SCIA first in the accounts department, then as a donation collector and finishing up in our Geo and Data area where he stayed until his retirement in 2003.

Frits and his lovely wife Donna lived in Coffs Harbour where he indulged his passion for St George footy and his favourite dog ‘Rante’. He will be missed.

PROBLEMMANAGEMENT ENGINEERING LOGOCMYK Blue = 100c 70m

PROBLEMMANAGEMENT ENGINEERING LOGOCMYK Blue = 100c 70m

PME_AD_HiRes.indd 1 17/5/06 2:57:41 PM

accord 2012 autumn

Documents

accord autumn

accord reader survey

wollongong nsw

matraville nsw

east sydney nsw

community services

wollongong office

little bay nsw