ACTION PLAN OUTLINE FROM

ACCESS GROUP FOR IACP

NATIONAL WATCH WORD PROGRAMDr. Shashikala, Dr.Asis Ghosh, Dr.Kawaljit,

Dr.Vimochana , Dr. Shabnam Rangwala

Dr.Puja Dhande Dr.VandanaGiri, Mr.Saravanan,

Dr. Divya Karthik,Dr.Dhruv Mehta,Dr.Shalini Modi,

Mrs .Sadhana Rathnaparkhi, Mrs Priya Rout,

Miss , Nupur Pidadi, Mr. Arjun Modi

ARISE- WORK- LEADResearch inclusion

SurveillanceEmpowerment Work force Leadership

Access- Healthcare, Schools Technology,

Information ,Recreation, Public spaces

7 WATCH WORDS FOR DISABILITY WORK IN DEVELOPING COUNTRIESDevelopmental Medicine & Child Neurology 2021,63:629, Dr.Ashok Johari

HRIF, VISION

,Growth &

Nuitrtion,

HIP& bone

health

OUR MASCOTS- MISS. NUPUR PIDADI & MR. ARJUN MODI

THE ONLY DISABILITY IN LIFE IS BAD ATTITUDE

DEFINITIONThe oxford dictionary defines access as the means or opportunity to Approach or enter a place or a system or technology. Interestingly it is a noun as well as verb. Wikipedia defines being ‘Accessible’ means a person with a disability is afforded the opportunity to acquire the same information (information about the disability) engage in the same interactions, (School and Recreation) and enjoy the same services (Healthcare) as a person without a disability in an equally effective and equally integrated manner, with substantially equivalent ease of use (Assistive technology and accessible spaces)

VISION.To create a system and framework for facilitating easy access

to health care, education, entertainment or recreation, easy entrance to public spaces and transport along with barrier free

living spaces to every child, adolescent& adult person with Neuro developmental disorders & support the

quality of life of the persons as well as their families.

PRESENT STRATEGIES

AS SHORT TERM [ 6 MTHS] &

LONG TERM GOALS 2YRS

FOLLOWED BY OUTCOME

ASSESSMENT – TOOLS TO BE

DEVELOPED LATER

HEALTH CARE1Promote the use of

technology to

implement

Evidence based

intervention

programs to reach

families in rural

areas

1.Collate a best practice, Evidence based

protocol for therapy interventions with

family centred approach to

developmental disabilities

.

2.Review currently operating models of

tele-rehab across India recommend a

realistic model

3.Connect with regional, State and

national RBSK units to promote the

recommended model.

4.Create a State wise directory of

Community based organizations working

with children with disabilities listing the

services they provide.

Establish the use of

accessible technology

to implement tele

therapy programs to

reach families in rural

areas

1. Develop satellite DEICs using

technological support by

partnering with community-

based organizations.2. Networking & partnering

with govt programmes like surveillance well being clicsto include disability health care

, 2. Create a

model of trans-

disciplinary

care across the

life span of a

person with

developmental

challenges

1.The IDDEA module[ I ] &

advanced model including

transitional care module of IACP

to be developed & propagated

across the country

2. Link up with RBSK & RKSK

where ever possible

1.Develop a module for

transitional care &

conduct workshops to

develop expertise

among Rehab

professionals.

2.Work on

Sustainability &

1 TASK FORCE for Partnerships

with CBO’s and professional

therapy bodies verified by

IACP to be set up to take up

training based on this model in

regions across India.

2.White paper submission &

persuasion of medical

education Ministry , MCI & RCI

Short term Goals & action points Long term goals & action plan

ASSISTIVE TECHNOLOGY-ASSISTIVE DEVICES ARE MEANT TO DO WHAT THEIR NAME TELLS: TO ASSIST, TO MAKE LIFE EASIER

1. To prepare an inventory of equipment, devices, aids

and appliances used for mobility, communication,

academic learning and in various domains of life

(ADL activities etc.) that are developed and available

in India and their prices. (Short term: 3months)

2. To gather information from National Rehab

institutes/IITs/NGOs/Private entrepreneurs catering

services to different disabilities on utilities,

availability, monitoring and repairing of assistive

devices.

3. To start a separate chapter under IACP for

assistive technology & start some form of credibility

certification to prevent untrained people doing

bad jobs

1.To apply to the Ministry of Social

Justice and Empowerment urging them

to include all devices under different

categories of disabilities for free

distribution with fitment and repairing

facilities to the BPL families.

2. To map the services catered by the

Government agencies such as SSA,

AWCs and established NGOs and

develop a network to monitoring of the

use of these devices by the children

and adults with special needs in every

state.

3.Regular up scaling of a module

workshop on Assistive technology under

IACP banner

Short term Goals & action points Long term goals & action plan

SCHOOLS

Study and find out the right

offices and authorities for

sarva shikshana

abhiyan,Anganwadi etc

Awareness on the importance of

Education/ vocational training & Participation for

special CwDs to Parents &how it can bring positive

impact on mental and social well-being of Pwds

interacting with SSA & anganwadis

Survey/Check list

completion , approach

some local groups and

sensitise them. Approach

industry sponsorers for a

school quiz

A]Creating a 10-12 article questionnaire for the

survey on attitudes and practices around

Special, Inclusive schools

B]Filling up a survey form from various therapy

centers, DEICS, etc to understand how they are

inculcating school readiness activities at the

centers

Liasoning with SSA ,

Anganwadis and NGOs to

facilitate implementation of

functional education

Survey analysis and

collating the information

to use it for long term goal

Proactive programs for spreading the concept of

Functional education & replicate setting up more

inclusive education centres based on APD

model with MOU

Sustainability& Scalability

of these programmes

partnering with SSA

Short term Goals & action points Long term goals & action plan

RECREATION

Creation of Information

Education and Communication

(IEC) materials

Awareness on the importance of

recreational activities for Pwds

&how it can bring positive impact on

mental and social well-being of Pwds

Through pamphlets, e-cards etc

Setting up of a recreational

center at the DEICs as

model centre for recreation

Survey completion A]Creating a 10-12 article questionnaire for the survey on attitudes and

A]practices around using recreational

activities at various centers

B]Filling up a survey form from various

therapy centers, DEICS, etc to understand

how they are inculcating recreational

activities at the centers

Liasoning with the Govt

and NGOs to facilitate

travel & tourism for

special children with accessible transport

Survey analysis and

collating the information to

use it for long term goal

Conversion of a few parks

in every city to become

disability friendly parks in

the city &adapted sports

Short term Goals & action points Long term goals & action plan

ACCESSIBILITY

1.Identification of vision abnormalities in children is

important & will be possible with a mandatory 6 month

vision check for all school children.

2,In Schools, Vision access is very important. As far as possible,

the floor should be level.& any change in the levels, viz stairs,

entry to a room or exit areas can be highlighted with reflective

tapes

3.Have railings in areas where the ground is uneven, like

playground or garden areas.

4.The class rooms should be well lit & if possible, spacious to

accommodate children according to the size of the room.

5.If children on a wheelchair need to enter or exit, the door

size should be slightly larger than a regular than a regular

size, approximately 3&1/2 feet

Ramps to increase access in areas at different levels.

6 Having a disabled friendly play area.

Improvement of family setting where ever possible with universal designs

1.Removing barriers at home needs

creativity than spending money. Western

style Commodes or hanging ropes in

indian style toilets, Nonslip mats in front of

wet areas, appropriate bathing

adaptations to support independence,

ramps if there are steps, removing the

traditional thresholds in living spaces,

suitable sitting space for wheelchair users

& furniture modification to support

independent eating, railings at home

particularly in front of bathrooms & non

furniture & use universal designs.

2.Access to play grounds, parks, theatres,

malls, shopping and entertainment, Public

parking sites for disabled to be made

compulsory. Yearly accessibility audit

should be arranged with Sugamya Bharat

authorities.

Short term Goals & action pointsLong term goals & action plan

1. Spread of Information through Print media, you tube vedios, TV ads, AIR broad casts,

2. Energisinf cpday activities to be public functions than institutional programmes

3. Designate a day for national walk & week celebrations to create awareness

4. Partnering with NGOS & like minded academies to seek public & professional awareness

5. Concentrate on high incidence & low severity NDD like ADHD & SLD .Bring out small pamphlets for regular broad casts & Ads in paoper, TV & FM radio

6. Make a movie on NDD & find some one for funding

7. Write about watch words in every medium & space we have for communication

8. Health in hand”-Health literacy concepts to be widely communicated to overcome Health disparities

Simple Ten /twelve pages Spiral bound Hardbound booklet (Leaf

let ) that has many pictures each. So in twenty pages we tell as

much about Cerebral Palsy namely

1.Cerebral palsy what is it? New definition of CP & ICF, F-words

2. Causes & comorbidities

3. Functioning of brain and other systems,

4. Development in First two years of life, Nature of

development

5. Early detection /identification, Functional

classification systems

6.Early intervention, neuroplasticity

7. Role of Therapies -Physiotherapy, Occupational

therapy and Speech therapy

8. Parents training and Family centred services

Communication, Anticipatory guidance and Coping

9.Role of drugs, injections surgeries

10. Role of Orthotics

11.Posture and mobility aids

12.Aging in Cerebral palsy

13.Health monitoring through lifespan aproach

14.Prevention

15.Parental health & community support

16. Cerebral Palsy so what? -Persons who have blossomed

(Achievers).

Similar booklets for Autism, ADHD & SLD should be brought out.

Short term Goals & action points Long term goals & action planINFORMATION

REFERENCES1. https://www.indiatoday.in/education-today/news/story/unesco-report-says-75-5-year-old-children-with-

disabilities-don-t-attend-schools-in-india-1561722-2019-07-2. https://theprint.in/opinion/un-report-75-india-disabled-kids-never-attendschool-in-lifetime/423440/

3. Linda L. Johnston Lloyd, MEd Neyal J. Ammary, MPH, CHES Leonard G. Epstein, MSW Rae Johnson, RN Kyu Rhee, MD, A Trans

disciplinary Approach to Improve Health Literacy and Reduce Disparities MPH Health Promotion Practice July 2006 Vol. 7,No. 3,

331-335DOI: 10.1177/1524839906289378.

4. Gillian King, PhD; Deborah Strachan, MRC;Michelle Tucker, MClSc(OT); Betty Duwyn, BSc(PT);Sharon Desserud, BSc(PT) Monique

Shillington, BScN(RN) Application of a Trans disciplinary Model for Early Intervention Services Infants & Young Children Vol. 22, No.

3, pp. 211–223

5. Russell, S. C. (1988). Challenges to effective team functioning: Multi- Inter- or trans-disciplinary models? (pp. 38-45).

6. Institute of Medicine, Committee on Understanding and Eliminating Racial and Ethnic Disparities in Health Care. (2003b).

Unequal treatment: Confronting racial and ethnic disparities in health care. Washington, DC: National Academies Press

7. SWOT Analysis of Health Literacy in India Ramanpreet Kaur1 , Harsh Rajvanshi2Int. J. HealthCare Edu. & Med. Inform. 2017; 4(2)

8. Ashok Johari.Watchwords for management of developmental disabilities in developing countries, doi: 10.1111/dmcn.14864

9 .Peter Rosenbaum. DEVELOPMENTAL DISABILITY IN THE 21ST CENTURY: NEW IDEAS FOR A NEW MILLENNIUM, invited article, Indian journal of

cerebral palsy10. Rosenbaum PL, Gorter JW. (2012) The ‘F-Words’ in Childhood Disability: I Swear This is How We Should Think! Child: Care, Health and Development. Jul;38(4):457-63.

11. Rosenbaum PL and Rosenbloom L. (2012) Cerebral Palsy: From Diagnosis to Adult Life. London: Mac Keith Press.

12. M. Kohli-Lynch, C. J. Tann, and M. E. Ellis, ‘Early intervention for children at high risk of developmental disability in low-and middle-

income countries: A narrative review’, Int. J. Environ. Res. Public Health, vol. 16, no. 22, 2019.

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