adjustment & adaptation to illness & disability

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Rehabilitation Psychology RS2270: BSc (Hon) OT Year 2, BA (Hon) Applied Psychology & Minor in Psychology RS5305: MOT Dr. Andrew Siu

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Page 1: Adjustment & Adaptation to Illness & Disability

Rehabilitation Psychology

RS2270: BSc (Hon) OT Year 2, BA (Hon) Applied

Psychology & Minor in Psychology

RS5305: MOT

Dr. Andrew Siu

Page 2: Adjustment & Adaptation to Illness & Disability

What is Rehabilitation Psychology?

Science and treatment of disabling and chronic health conditions.

Encompass knowledge from several branches of psychology, including:

Social psychology,

Counseling,

Clinical psychology

Health psychology.

Page 3: Adjustment & Adaptation to Illness & Disability

What you would learn …

Theories of Psychological Adjustment & Application

(1-5,9)

Interviewing persons with disabilities

(6-8)

Mental Health Issues in

Rehabilitation

(12)

Social Aspects of rehabilitation

(10,11,14)

Page 4: Adjustment & Adaptation to Illness & Disability

1. Psychological adjustment to disability and chronic health conditions.

Theories of adjustment, assessment of adjustment, principles and strategies in promoting adjustment.

2. Social aspects of rehabilitation. Family issues, social support, employment, sexuality.

3. Therapeutic relationship and basic interviewing skills.

4. Mental health issues in rehabilitation.

What you would learn …

Page 5: Adjustment & Adaptation to Illness & Disability

Teaching-learning Strategies

Lectures: required readings for every week

Videos: for illustration of lecture contents,

demonstrations, reflection

Tutorials: case discussion, experiential activities,

role play.

Seminar: interview a person with disability/illness

& present your analysis of the person’s

psychological adjustment & adaptation in society.

Page 6: Adjustment & Adaptation to Illness & Disability

Assessment

Written Assignment (30%): case analysis;

written exercises in interviewing skills.

Seminar (30%): group presentations

Quiz (40%):

Around 100 MCQs

Based on lecture materials & readings.

Page 7: Adjustment & Adaptation to Illness & Disability

Psychological Adjustment to

Illness & Disability: an Overview

RS2270, RS5305

Rehabilitation Psychology

Dr. Andrew Siu

Page 8: Adjustment & Adaptation to Illness & Disability

Content

Psychosocial Impact of Chronic Illness or

Disability (CID)

Definition and Indicators of Adjustment &

Adaptation

Health-related Coping Model

Facilitating Coping and Adaptation

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Page 9: Adjustment & Adaptation to Illness & Disability

PSYCHOSOCIAL IMPACT OF

CHRONIC ILLNESS &

DISABILITY

Page 10: Adjustment & Adaptation to Illness & Disability

Impact of Disability and Illness

Body Function

& StructureActivities Participation

Impairment Function &

Limitation

Role Assignment

& Restriction

Diagnosis Functional

Performance

Role

Performance

Medical &

Restorative

Therapies

Adaptive &

Therapeutic

Relearning

Social &

Community

Support

Assessment

Intervention

Page 11: Adjustment & Adaptation to Illness & Disability

International Classification of Functioning,

Disability and Health (ICF)

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Page 12: Adjustment & Adaptation to Illness & Disability

ICF analysis

Page 13: Adjustment & Adaptation to Illness & Disability

Psychological Impact of

Disability & Illness

Impairment:

Structural changes in anatomical,

neurophysiological mechanisms of the body

Disability:

Loss of bodily function, functional

independence; the need to relearn function

and living skills.

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Page 14: Adjustment & Adaptation to Illness & Disability

Psychological Impact of

Disability & Illness

Handicap:

Loss of roles, adoption of sick role

Employment difficulties & self-support

Family and/or social support

Physical barriers in community

Social discrimination & self-stigma

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Page 15: Adjustment & Adaptation to Illness & Disability

Key Psychological Impact

Body Image & Self-Concept

Emotional Reactions

Activation of Psychological Defense

Stress & Coping

Chronic Illness & Disability

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Page 16: Adjustment & Adaptation to Illness & Disability

Body Image Particular important for visible

disabilities, e.g. burns, amputation,

spinal cord injury.

Process of adaptation:

Shutting out of existence or

neglect of impaired body part

Search for illusory restoration of

body part or function

Avoid social contacts

Focus on non-impaired body parts

Gradual acceptance

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Page 17: Adjustment & Adaptation to Illness & Disability

Loss, Grief, and Depression

Loss of body part or function feelings of loss

and grief.

Mourning about loss depression

Prevalence of depression is at least twice in

people with disabilities, compared with non-

disabled. Many studies showed that 30-50% of

hospitalized patients are depressed.

Prolonged and recurrent sorrow and sadness, or

even suicidal

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Page 18: Adjustment & Adaptation to Illness & Disability

Defense Mobilization

Ego defenses are largely unconscious efforts to

protect us from anxiety or unpleasant emotions,

and to maintain a consistent self-concept.

Examples: denial, rationalization, displacement,

projection, reaction formation.

Help us to hide from the truth (or facts) but could

eventually leads to a distorted view of self.

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Rationalization - making excuses Displacement - taking out frustrations, feelings, and impulses on people or objects that are less threatening Projection - taking own unacceptable qualities or feelings and ascribing them to other people. E.g. if you have a strong dislike for someone, you might instead believe that he or she does not like you. Projection works by allowing the expression of the desire or impulse, but in a way that the ego cannot recognize, therefore reducing anxiety. Reaction formation - reduces anxiety by taking up the opposite feeling, impulse or behavior. E.g. treating someone you strongly dislike in an excessively friendly manner in order to hide your true feelings.
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Page 19: Adjustment & Adaptation to Illness & Disability

Stress & Coping

Having a serious illness or disability could

be seen as a major stress to the person.

The person may use a variety of coping

strategies to face the illness/disability.

Coping strategies (e.g. avoidance, problem

solving, diversion, etc.) could lead to very

different outcomes in adjustment and

mental health

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Page 20: Adjustment & Adaptation to Illness & Disability

ADJUSTMENT & ADAPTATION

Definition and Indicators

Page 21: Adjustment & Adaptation to Illness & Disability

Psychosocial Adaptation

Evolving, dynamic process through which a

disabled person gradually approaches and optimal

state of person-environment congruence.

Aspects of Adaptation, e.g.

Acknowledgement of abilities and limitations

Relearning of living skills

Enact role changes and social expectations

Acceptance of new body image

Re-establish a new self-concept

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Page 22: Adjustment & Adaptation to Illness & Disability

Indicators of Adaptation

Active participation in social, vocational,

and leisure pursuits.

Successful negotiation of the physical

environment.

Awareness of remaining strength and assets,

as well as limitations.

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Page 23: Adjustment & Adaptation to Illness & Disability

Psychological Adjustment

Sometimes used synonymously with

adaptation

Refer specifically to a particular phase (i.e.

set of experience and reactions) of the

adaptation process.

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Page 24: Adjustment & Adaptation to Illness & Disability

Indicators of Psychological

Adjustment

Reach and maintain psychosocial equilibrium.

Achieving a state of reintegration

Demonstrating positive self-esteem and self-concept

Positive attitudes towards oneself, others, and the disability.

Positively striving to reach life goals.

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Page 25: Adjustment & Adaptation to Illness & Disability

Theories of Psychological

Adjustment

Theories of Adjustment

Stress & Coping

Phase Theory of Emotional Reactions

Counseling or Change theories:

Cognitive Behavior Therapy

Self-efficacy Theory

Person-centered

Stage of Change

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Page 26: Adjustment & Adaptation to Illness & Disability

HEALTH-RELATED STRESS &

COPING MODEL

Page 27: Adjustment & Adaptation to Illness & Disability

General Model of

Stress & Coping

(Cox & MacKay,

1976)

Page 28: Adjustment & Adaptation to Illness & Disability

Model of Stress & Coping

1. Stress: internal expectations or external demands.

2. Cognitive Appraisal Primary: if the stress is beneficial, relevant

harmful, or threatening.

Secondary: Judgment of coping resources.

Re-appraisal: alter one’s perception and judgment of stress situation and coping resources.

3. Responses to Stress – cognitive, affective, & behavioral coping

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Emotional
Page 29: Adjustment & Adaptation to Illness & Disability

Ways to Manage Stress &

Increase Adaptation

Modify expectations for self

Examine person-environment fit

Learn or strengthen coping strategies

Mobilize personal or social resources for

coping

Encourage cognitive re-appraisal of stress

and coping resources needed

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Page 30: Adjustment & Adaptation to Illness & Disability

Examples of (Psychological)

Coping Strategies

Behavioral

• Avoidance, diversion

• Relaxation

• Disengagement

Cognitive

• Planning

• Problem-solving

Spiritual

• Turning to religion

• Seek meaning

Emotional

• Denial

• Blame or criticize

oneself

• Rationalization

• Bargaining or

negotiation

• Ventilation, Seek social

support

• Acceptance

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Page 31: Adjustment & Adaptation to Illness & Disability

HEALTH-RELATED COPING

MODEL

Page 32: Adjustment & Adaptation to Illness & Disability

Health-related Coping Model

Page 33: Adjustment & Adaptation to Illness & Disability

I. Personal Resources

Religious beliefs

Prior health-related and coping responses

Demographic background

Personality characteristics: e.g. self-

efficacy, extroversion, optimism, internal

control, problem-solving ability and style.

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Page 34: Adjustment & Adaptation to Illness & Disability

II. Health-Related Factors

Onset, stage, progression of health

condition

Symptoms: pain, fatigue/energy, etc.

Disability: type & loss of function

Health care environment and treatment

procedures: invasive procedures,

examination by strangers, technical

equipment.

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Page 35: Adjustment & Adaptation to Illness & Disability

III. Social & Physical Context

Social:

Relationship, support, and expectations of

people in network

Physical:

Physical aspects of home, workplace,

shopping, etc. can influence person’s access,

mobility, and autonomy

Personal space, privacy, aesthetic qualities of

surroundings, etc.

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Page 36: Adjustment & Adaptation to Illness & Disability

IV. Cognitive Appraisal

Is the stressor (e.g. chronic illness)

expected and is the person prepared for it.

Is the problem is regarded as

Challenge or threat?

Controllable or not?

Caused by self or not? Am I responsible?

Outcome of this appraisal greatly affects

coping efforts and strategies

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Page 37: Adjustment & Adaptation to Illness & Disability

V. Adaptive Tasks

1. Managing symptoms

2. Managing treatment

3. Forming relationships with health care providers

4. Managing emotions

5. Maintaining a positive self-image

6. Relating to family members and friends

7. Preparing for a uncertain future

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Page 38: Adjustment & Adaptation to Illness & Disability

VI. Categories of Coping Skills

Coping Skills

Logical analysis & search for meaning

Taking problem solving action

Cognitive avoidance or Denial

Acceptance &

resignation

Seeking alternative

rewards

Emotional discharge

Seeking guidance

and support

Positive appraisal

Page 39: Adjustment & Adaptation to Illness & Disability

VII. Health-related Outcomes

Effects of coping strategies

Stress reduction or relief

Emotions: Anxiety, depression, anger; happiness,

satisfaction.

Acceptance of new body image, having illness

Self-esteem

Growth: e.g. resilience, EQ

Social relationship: e.g. closer or alienated

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Page 40: Adjustment & Adaptation to Illness & Disability

FACILITATING COPING &

ADAPTATION

Page 41: Adjustment & Adaptation to Illness & Disability

Promote Adaptation

Person

Environment

Transition

PhysicalSocial

Information

Values

Coping

Reappraise

roles &

functions

Facilitating Coping &

Adaptation in Persons with CID

Page 42: Adjustment & Adaptation to Illness & Disability

Intervention on Physical

Environment

Promote mobility and access within client’s

life space as far as possible, e.g. home,

work, leisure contexts.

Modification of home or work environment

if necessary and feasible.

Use of technology and additional

equipment.

Work simplification and energy

conservation.

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Page 43: Adjustment & Adaptation to Illness & Disability

Intervention on Social

Environment

Map the social support network and assess client’s needs for various types of support (emotional, tangible, information & guidance, need for companion)

Address the issues of caregiver burden.

Encourage client to provide support to others as well, or mutual help.

Encourage social participation

Monitor ongoing changes in social support.

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Page 44: Adjustment & Adaptation to Illness & Disability

Intervention on the Person

Commitment and values.

Re-organization of one’s life commitment & life roles

Identify values and beliefs of the client which may promote adaptation.

Cognitive restructuring of irrational thoughts.

Find facts: Information seeking

e.g. Seek advice, knowledge, guidance, sharing of experience from others.

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Page 45: Adjustment & Adaptation to Illness & Disability

Facilitate Coping Responses

Find meaning: Re-appraisal

e.g. find new meaning in situation, develop

emotional competence, ongoing self-reflection.

Manage stress: Inhibition

e.g. emotional discharge, stress management,

diversion or selective ignoring.

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Page 46: Adjustment & Adaptation to Illness & Disability

Intervention on Transition

Cannot change the nature of transition.

Prevent the development of sick role.

Explore changes in role expectations.

Assist client to re-appraise (acknowledge,

accept, and enact) one’s changing roles and

functions.

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Page 47: Adjustment & Adaptation to Illness & Disability

Required Reading

Livneh, H. (1997). Psychosocial adaptation to

chronic illness and disability. Gaithersburg, MD:

Aspen Publication. Chapter 1.

Martz, E, & Livheh, H. (Eds.). (2007). Coping

with chronic illness and disability: Theoretical,

empirical, and clinical aspects. New York:

Springer. Chapter 6.

Page 48: Adjustment & Adaptation to Illness & Disability

Video

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