aftd 2018 annual education conference · register for the 2018 aftd education conference today! to...
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Register for the 2018 AFTD Education Conference today!To ensure your spot at the AFTD Education Conference, be sure to register by following
the link below. Registration is $75. A fee waiver and travel grants are available for caregivers and persons diagnosed. https://tinyurl.com/AFTD2018
Hotel information: The Chicago Marriott O’Hare has made a block of rooms available at the special discounted rate of $199/night while rooms are available. To reserve a room, call 773-693-4444 and mention the AFTD Annual Conference by March 21. Or visit https://tinyurl.com/AFTD2018-Hotel
The 2018 AFTD Education Conference brings together those with living with FTD, their care partners, researchers, and healthcare professionals. Please join us in Chicago to learn about caring strategies for today, and to discover reasons to hope for a future without FTD.
Highlights:• ExpertsinFTDcarewillsharethelatest
developments in addressing the support needsof both persons living with the disease and theircare partners.
• ResearcherswillpresentnewdevelopmentsonFTD science, diagnosis, and what this disease canteach us about how our brains work.
• Attendeeswillhavetheopportunitytoattendsmaller breakout sessions, where they can connectand share more deeply with others affected by FTD.
AFTD 2018 Annual Education ConferenceChicago Marriott O’Hare | Chicago, ILApril 13, 2018, 9:00 a.m. to 5:30 p.m.
AFTD Education Conference 2018Chicago, IL
Photo by Natasha Taylor on Unsplash
Featured Speakers
The AFTD Education Conference will feature speakers from Northwestern University’s Feinberg School of Medicine and other leading organizations.
AFTD offers modest financial assistance for people with FTD and care partners interested in attending the AFTD Education Conference. Comstock Travel Grants
may be used to defray the cost of travel, lodging, and conference fees in order to attend.
For more information, visit: http://www.theaftd.org/life-with-ftd/resources/travel-grants
M.-Marsel Mesulam, MD, Director of the Cognitive Neurology and Alzheimer’s Disease Center at Northwestern University and a member of the AFTD Medical Advisory Council
Sandra Weintraub, PhD, Professor of Psychiatry and Behavioral Sciences at Northwestern University’s Feinberg School of Medicine
Darby Morhardt, PhD,ResearchAssociate Professor at the Cognitive Neurology and Alzheimer’s Disease Center at Northwestern University
Keynote Speaker:
Very Rev. Tracey LindTheVeryRev.TraceyLindis an author, photographer, speaker, and city planner who served as the dean of Trinity Cathedral in Cleveland from 2000 to 2017. That year, she stepped down from
her position after being diagnosed with primary progressive aphasia. Known for her social activism, Rev.LindspearheadedthedevelopmentofTrinityCommons, a civic space that became Cleveland’s first green building when it opened in 2002.
Interrupted by God: Glimpses from the Edge, Rev.Lind’scollectionofessaysandphotographs,waspublishedin2004.Recently,shejoinedAFTD’s Think Tank, an advisory group of persons diagnosedwithFTD.Rev.Lind’swritingsandphotography can be found online at traceylind.com.
The Association forFrontotemporal DegenerationOpening the gateway to help and a cure
AFTD Education Conference 2018Chicago Marriott O’Hare | Chicago, ILApril 13, 2018, 9:00 a.m. to 5:30 p.m.
Photo by Keyur Hardas on Unsplash
8:00 a.m. Registration
9:00 a.m. Welcome Gail Andersen, AFTD Board Chair
9:20 a.m. The State of the Art in FTD: A Clinical Overview of the FTD Disorders Marsel Mesulam, MD
9:45 a.m. PPA Research: What It Is Teaching Us About Brain Function and Progression Sandra Weintraub, PhD
10:00 a.m. Advances in Care and Support Darby Morhardt, PhD
10:15 a.m. Ask the Experts – Q&A Marsel Mesulam, MD, Sandra Weintraub, PhD, Darby Morhardt, PhD Facilitator: Nadine Tatton, PhD, AFTD Scientific Director
10:45 a.m. Break
11:00 a.m. Breakout Sessions: Clinical Issues
12:00 p.m. Lunch
1:15 p.m. Speaking Up for FTD (Film and Panel Session) Sharon Denny, AFTD Program Director
Schedule & Speakers
2:15 p.m. Breakout Sessions: Care Strategies
3:15 p.m. Break
3:30 p.m Breakout Sessions: Support and Networking
4:45 p.m. AFTD 2017 Highlights Susan L-J Dickinson, MS, CGC, AFTD Chief Executive Officer
5:10 p.m. Keynote Address Very Rev. Tracey Lind
5:30 p.m. Social Reception Attendees, Speakers, AFTD Board and Staff are invited to attend
The Association forFrontotemporal DegenerationOpening the gateway to help and a cure
AFTD Education Conference 2018Chicago Marriott O’Hare | Chicago, ILApril 13, 2018, 9:00 a.m. to 5:30 p.m.
Break-Out Sessions
The AFTD Education Conference features breakout sessions on a broad range of different topics, spanning the breadth of AFTD’s mission.
11:00 a.m. Breakout Sessions: Clinical Issues
Diagnostic Evaluation Tools: What They Can Tell You and What They Can’t Sandra Weintraub, PhD, Feinberg School of Medicine, Northwestern University
Treatment Options and Working with Your Doctor Borna Bonakdarpour, MD, Feinberg School of Medicine, Northwestern University
Participating in Research: Opportunities and Advantages Emily Rogalski, PhD, Feinberg School of Medicine, Northwestern University
Balance Problems, Falls and Tremors: The Spectrum of Motor and Cognitive Symptoms in Less-Common Forms of FTD Zoe Arvanitakis, MD, Rush University Medical Center Robin Riddle, MBA, Brain Support Network
Designing Research with Input from People Living with FTD Matt Sharp, MSS, AFTD Debra Niehoff, PhD, AFTD
2:15 p.m. Breakout Sessions: Care Strategies
Building Your Care Team For Newly Diagnosed and Their Care Partners Darby Morhardt, PhD, Feinberg School of Medicine, Northwestern University
Living with PPA: Practical Communication Strategies Emily Rogalski, PhD, Feinberg School of Medicine, Northwestern University Becky Khayum, MS, MemoryCare Corporation
Anosognosia and Positive Strategies for Care Geri Hall, PhD, Banner Alzheimer’s Institute
2:15 p.m. Breakout Sessions, cont’d.
Palliative Care and Easing Difficult Conversations Nancy Flowers, LCSW, Rainbow Hospice and Palliative Care
An FTD Ensemble: An Improvisational Theater Experience For People with FTD and Care Partners Lauren Dowden, MSW, Feinberg School of Medicine, Northwestern University Christine Dunford, PhD, School of Theatre & Music, University of Illinois at Chicago
3:30 p.m. Breakout Sessions: Support and Networking
Mindfulness-Based Stress Reduction Corey Esannason, AFTD Regional Coordinator Volunteer
Networking for Young Adult Care Partners Kacy Kunesh and Brian Rose, AFTD Board Members
Networking for Volunteers: Share Experiences and Learn about Volunteering with AFTD Kathy Urban, Rachel Castellanos, Sarah Sozansky Beil, AFTD Regional Coordinator Volunteers
Networking for Healthcare Professionals Darby Morhardt, PhD, Feinberg School of Medicine, Northwestern University Sandra Grow, RN, AFTD
Networking for People Living with FTD: Speaking Up and Sharing Your Story For People with FTD Amy Shives, AFTD Volunteer
The Association forFrontotemporal DegenerationOpening the gateway to help and a cure
AFTD Education Conference 2018Chicago Marriott O’Hare | Chicago, ILApril 13, 2018, 9:00 a.m. to 5:30 p.m.