impact of a child with a disability

By: Cathy Baptista

EDSP 432 SUM 2014

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*You may go through: (Kubler-Ross’s model)

* · Denial

*· Anger

*· Bargaining

*· Depression

*· Acceptance

The hopes and expectations you had for you child must be revisited and adjusted.

Boyd (1951) Indicated that parents went through three stages in reacting to the diagnosis of disability in a child:

*Focus on Self

*Focus on the Child

*Focus on Advocacy

The child you hoped and planned for no longer exist.

*Increased bills

*Financial burden

*Your job

*Child care arrangements

*Family’s routines

*Family’s activities

*Impact on other family members

*Stress

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The Impact of Child Disability on the

Family found; having an infant with a

serious health condition or health risk

increases the likelihood that parents

divorce or live apart.

Reichman, Corman, Noona. The Impact of Child Disability on the

Family. 2008.

http://www.medscape.com/viewarticle/581577_2

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Investigations show positive experiences on;

Family life related to parenting

Sibling experiences

Pleasure

Satisfaction in caring for and relating to the child

Personal growth

Greater purpose in life

(Dykens, 2005; Hastings & Taunt, 2002; Stoneman, 2005)

In the positive impact of children with an intellectual disability on the family by

Tim Stainton found;

Source of Joy and Happiness

Pleasure in achievements of your child (Beat the odds)

Increased Sense of Purpose and Priorities

What's really important in life

Expanded Personal and Social Networks and Community

Involvement

Getting Involved in the Community

Source of Increased Spirituality

Strengthened religious faith

Source of Family Unity

Growing Stronger (make or break experience)

Source of increased tolerance and understanding

Human Difference

Source of Personal growth and strength

Persistence (bringing out the best)

Positive Impact on others and the community

Acceptance of differences

Interaction with professionals and services

Get over negative interactions with professionals

Stainton, Tim. In the positive impact of children with an

intellectual disability on the family.1998.

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NVPEP Resource Center for Families

http://nvpep.org/webinar-archive.html

Beach Cent3er on Families and Disabilities

http://www.beachcenter.org/default.aspx?JScript=1

Autism-PPD Resource Network

http://www.autism-pdd.net/

Disability Information and Resources

http://www.makoa.org/index.htm