january 20061 getting dementia out of the closet glenn rees ceo, alzheimer’s australia 24 th...
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January 2006 1
Getting Dementia out of the ClosetGlenn Rees
CEO, Alzheimer’s Australia
24th Conference of ADI2009 Singapore
January 2006 2
The Context
Alzheimer’s Australia has broadened it’s interests beyond those of an organisation with a narrow disease focus on dementia to a broader policy interest in aged care, the linkages between dementia and other conditions and consumer empowerment.
January 2006 3
Themes
• Promote awareness that dementia can strike at any age.
• Advocating for consumer choice in services through consumer directed care.
• New partnerships.
January 2006 4
Younger Onset Dementia
• Low awareness at the political and community level.
• No understanding of the special issues that face this group in social and economic terms.
• Younger Onset Dementia Summit co-hosted with Parliamentary Friends of Dementia.
• The Summit Communiqué.
January 2006 5
Summit Communiqué
January 2006 6
Priority Areas
January 2006 7
Intellectual Capital
January 2006 8
Intellectual Capital
January 2006 9
Consumer Directed Care
Consumer directed care is a term used to refer to
obtaining care for older and younger people under
which the person who needs care, with their family
carer, is given direct control over the resources
provided for their care.
January 2006 10
Choices
Choice can be provided by giving the person a sum of money which they canspend as they wish; or a budget whichis managed by an agency.
January 2006 11
January 2006 12
Access to Responsive Services
• Most services in Australia for people with dementia are for older people.
• The CDC model will be helpful in ensuring that responsive flexible services are developed for people with younger onset dementia and their carers.
• This is important in respect of respite care services, care packages and residential care services.
January 2006 13
Consumer Directed Care
Consumer directed care is integral to our strategic approach in four main ways
January 2006 14
Consumer Directed care• In broadening our role beyond that of a chronic disease organisation
to advocacy for reform of aged care services.• Making the point that life does not stop with a diagnosis of dementia
and that people with dementia want to continue for as long as possible in social engagement and lifetime activities supported by responsive and flexible services.
• Reinforcing the view that people with dementia with their carers are able to express their wishes and should have the choice to take greater responsibility for the care they receive.
• Achieving more flexible services that respond to the needs of people with dementia of any age
January 2006 15
Partnerships
• Partners invited to the Summit
• Dementia can be the consequence of many other chronic conditions.
• Development of new partnerships with the appropriate National peak organisations.
January 2006 16
Partnerships
Many areas for collaboration e.g.• Promoting awareness• Establishing a national approach to genetic
testing and counselling• Improved access to care services• Dementia research • Advance care planning
January 2006 17
Conclusion
We believe we have some of the elements of the
strategy in place to get the issue of younger onset
dementia out of the closet and acted upon at the
political level.
Visit www.alzheimers.org.au/youngeronsetdementia
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