living with meningitis
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Living With The Impact Of Meningitis
Sue BurkeJuly 2010
22 NDAPRIL 2004Cieran and Connor were born at 17:13 and 17:14
Weighing a healthy 7lb 3oz and 6lb 3/4oz
After a fairly uneventful twin pregnancy of 38 weeks and 1 day
MONDAY 31ST JANUARY 2005
Cieran awoke with a temperature of 41 degrees and was shivering
10 am Attended GP’s Surgery and asked could this be meningitis as I’d seen this Before
Told to give CALPOL , this was nothing more than a virus...
14:30 Visited another GP without Cieran for my own routine appointment and was told to give juice crisps and nurofen.
19:30 Spoke to NHS Direct a doctor called back at 21:30 and told me of course my child would be drowsy, give nurofen, if temp reduces don’t call back
WEDNESDAY FEBRUARY 2ND
2005Didn't appear to know who I was
Returned to G.P’s and was told 90% sure he was fine
Requested paediatric input at hospital
Under duress was referred to the hospital and asked did I want a taxi phoning or did I have transport.
Lumbar puncture
Original diagnosis no meningitis but treatment for meningitis started.
SUNDAY 13TH FEBRUARY 2005
Admitted to Pendlebury Childrens PICU following 2 hour seizure
Christened
Cerebral Atrophy
SYMPTOMSVery high temperature 41 degrees Centigrade
Vomiting
Drowsiness
Pain upon Nappy Change
NO RASH
INITIAL PROGNOSIS
22lb Newborn
No head control / floppy
Hearing test referral
Wheelchair assessment
AFTER EFFECTS TO
DATEProfound Bilateral Deafness no reaction before 110 db,
Cochlear Implant Sept 2005
Epilepsy
Global Developmental Delay
Hypertonia
Brain Abnormalities
? Autism ? ADHD
THE TWIN THING The Benefits
A Role Model to copy
I want to do that No time to wrap in
cotton wool A Friend
The Disadvantages A constant
comparison A permanent what
if A continuous
reminder A brother that has
to grow up too quickly
MY FEELINGS
Meningitis
GUILT
Determination
Fear
Helplessness
THANKYOU
Questions?
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