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MEMBERSHIP
DIRECTORY
2014
Rev. 7/7/2014
1825 K Street, NW, Suite 1200 • Washington, DC 20006 • PH 202/783-2229 • FAX 202/534-3731 • Info@c-c-d.org • www.c-c-d.org
2
CCD MEMBERSHIP DIRECTORY
2014
ACCSES (formerly American Congress of
Community Supports and Employment Services)
1501 M Street NW, 7th Floor
Washington, DC 20005
(202) 349-4259 (office)
(fax)
www.accses.org
Gary Goosman ggoosman@accses.org
Terry Farmer trfarmer@accses.org
Sara Rosta sara.rosta@ppsv.com
Morgan Coor mcorr@accses.or
Advance CLASS, Inc.
1825 K Street, NW #600
Washington, DC 20006
(202) 261-7314 or (703) 919-2837 (office)
(202) 261-7314 or (703) 451-0376 (fax)
Connie Garner cgarner@advanceclass.org
Kate Josephson kjosephson@advanceclass.org
American Academy of Pediatrics (AAP)
601 13th Street, NW, Ste. 400N
Washington, DC 20005
(202) 347-8600 (office)
(202) 393-6137 (fax)
www.aap.org
Patrick Johnson pjohnson@aap.org
Allyson Perleoni aperleoni@aap.org
Robert Hall rhall@aap.org
American Academy of Physical Medicine
and Rehabilitation (AAPM&R)
1501 M Street NW, 7th Floor
Washington, DC 20005
(202) 466-6550 (office)
(202) 785-1756 (fax)
www.aapmr.org
Peter Thomas peter.thomas@ppsv.com
Theresa Morgan theresa.morgan@ppsv.com
Emily Whiteman Emily.whiteman@ppsv.com
3
American Association of People with
Disabilities (AAPD)
2013 H Street, NW
Washington, DC 20006
(202) 457-0046 (office) V/TTY
(202) 457-0473 (fax)
http://www.aapd-dc.org
Lisa Ekman lekman@aapd.com
American Association on Health
and Disability (AAHD)
110 N. Washington Street, #340-A
Rockville, MD 20850
(410) 451-4295(office)
(301) 545-6144 (fax)
www.aahd.us
Roberta Carlin rcarlin@aahd.us
Clarke Ross clarkeross10@comcast.net
American Association on Intellectual and
Developmental Disabilities (AAIDD)
501 Third Street, NW, Ste. 200
Washington, DC 20001
(202) 387-1968 (office)
(202) 387-2193 (fax)
http://www.aaidd.org
Margaret Nygren mnygren@aaidd.org
Danielle Webber dwebber@aaidd.org
Jason Epstein jepstein@aaidd.org
American Bar Association
Commission on Disability Rights (CDR) 740 15th Street, NW
Washington, DC 20005
(202) 662-1570 (office)
(202) 442-3439 (fax)
www.americanbar.org/disability
Arnettia Wright awright@arightlg.com
c/o Wright Law Group, P.C.
444 North Capitol Street, NW, Ste. 605
Washington, DC 20001
(202) 829-7500 (office)
(202) 829-7550 (fax)
American Council of the Blind (ACB)
2200 Wilson Blvd, Suite 650
Arlington, VA 22201
(202) 467-5081 (office)
(202) 467-5085 (fax)
http://www.acb.org
Eric Bridges ebridges@acb.org
4
American Counseling Association (ASA)
5999 Stevenson Ave.
Alexandria, VA 22304
(703) 823-9800 (office)
(703) 823-0252 (fax)
Art Terrazas aterrazas@counseling.org
Guila Todd gtodd@counseling.org
American Dance Therapy Association (ADTA)
10632 Little Patuxent Parkway, Suite 108
Columbia, MD 21044-3263
(202) 686-1637 (office)
(202) 686-1637 (fax)
www.adta.org
Myrna Mandlawitz mandlawitz@verizon.net
American Diabetes Association (ADA)
1701 North Beauregard Street
Alexandria, VA 22311
(703) 299-5519 (office)
(703) 549-8748 (fax)
www.diabetes.org
Krista Maier Kmaier@diabetes.org
Brian Dimmick bdimmick@diabetes.org
Katie Hathaway khathaway@diabetes.org
Shereen Arent sarent@diabetes.org
Amy Wotring awotring@diabetes.org
American Foundation for the Blind (AFB)
1660 L Street, NW, Ste.513
Washington, DC 20036
(202) 822-0830 (office/TDD)
(202) 822-0838 (fax)
http://www.afb.org
Mark Richert 202-822-0833 direct line
mrichert@afb.net
American Medical Rehabilitation Providers
Association (AMRPA)
1710 N Street, NW
Washington, DC 20036-2907
(202) 223-1920 (office)
(202) 223-1925 (fax)
www.amrpa.org
Carolyn Zollar czollar@amrpa.org
Sarah Warren snicholls@amrpa.org
Emily Whiteman emily.whiteman@ppsv.com
Mimi Zhang mzhang@ampra.org
Peter Thomas peter.thomas@ppsv.com
American Music Therapy Association (AMTA)
8455 Colesville Road, Ste. 1000
Silver Spring, MD 20910
(301) 589-3300 (office)
(301) 589-5175 (fax)
http://www.musictherapy.org
Judy Simpson simpson@musictherapy.org
Rebecca Smith smithr@musictherapy.org
Myrna Mandlawitz mandlawitz@verizon.net
5
American Network of Community Options
And Resources (ANCOR)
1101 King Street, #380
Alexandria, VA 22314
(703) 535-7850 (office)
(703) 535-7660 (fax)
http://www.ancor.org
Katherine Berland kberland@ancor.org
Barbara Merrill bmerrill@ancor.org
American Occupational Therapy
Association (AOTA)
4720 Montgomery Lane
Bethesda, MD 20824-1220
(3010 652-2682 (office)
(301) 652-7711 (fax)
http://www.aota.org
Daniel Brown dbrown@aota.org
Heather Parsons hparsons@aota.org
Tim Casey tcasey@aota.org
John Ray jray@aota.org
American Physical Therapy Association (APTA)
1111 N. Fairfax Street
Alexandria, VA 22314
(703) 684-2782 (office)
(703) 684-7343 (fax)
http://www.apta.org
Deborah Crandall deborahcrandall@apta.org
Michael Hurlbut michaelhurlbut@apta.org
Monica Herr monicaherr@apta.org
American Speech-Language-Hearing
Association (ASHA)
444 N. Capitol Street, NW, Ste. 715
Washington, DC 20001
(202) 624-7750 (office)
(202) 624-5955 (fax)
http://www.asha.org
Catherine Clarke cclarke@asha.org
Laurie Alban-Havens labanhavens@asha.org
Susan Karr skarr@asha.org
2200 Research Boulevard, Ste. 220
Rockville, MD 20850
(301) 296-5677 (office)
(301) 296-8579
American Therapeutic Recreation
Association (ATRA)
1501 M Street NW, 7th Floor
Washington, DC 20005
(202) 466-6550 (office)
(202) 785-1756 (fax)
http://www.atra-tr.org
Peter Thomas peter.thomas@ppsv.com
Emily Whiteman Emily.whiteman@ppsv.com
6
Amputee Coalition of America (ACA)
P.O. Box 73725
Washington, DC 20058
(202) 302-4373 (office)
(800) 599-8994 (fax)
Dan Ignaszewski dan@amputee-coalition.org
APSE – The Network on Employment (APSE)
451 Hungerford Drive, Ste. 700
Rockville, MD 20850
(414) 581-3032 (office)
(804) 278-9377 (fax)
www.apse.org
Laura Owens lowens@apse.org
Ryley Newport ryley@apse.org
Association for Behavior Analysis
International (ABAI)
601 Elmwood Ave, Box 671
University of Rochester Medical Center
Rochester,NY 14642
(585) 273-5974 (office)
(585) 276-2605 (fax)
Jennifer Zarcone Zarcone@kennedykrieger.org
Association of Assistive Technology Act Programs
(ATAP)
P.O. Box 32
Delmar, NY 12054
(518) 439-1263
(518) 439-3451 (fax)
www.ataporg.org
Audrey Busch abusch@wpllc.net
700 McKnight Park Drive, Suite 708
Pittsburgh, PA 15237
Diane Golden diane.golden@ataporg.org
Association of University Centers on
Disabilities (AUCD)
1010 Wayne Ave., Ste. 1000
Silver Spring, MD 20910
(301) 588-8252 (office)
(301) 588-2842 (fax)
http://www.aucd.org
Kim Musheno kmusheno@aucd.org
Rachel Patterson rpatterson@AUCD.ORG
Diane Dressler dressler@kennedykrieger.org
Andy Imparato amparato@aucd.org
Attention Deficit Disorder Association (ADDA)
3 Boysenberry Dr ive
Hockessin, DE 19707
(302) 239-1518 (office)
(302) 239-8508 (fax)
Janet Kramer jkr5936763@aol.com
7
Autism National Committee, Inc. (ANC)
P.O. Box
Arlington, VA 22207
(703) 598-9610 (office)
www.autcom.org
James Butler jbutler5700@gmail.com
Jessica Butler Jessica@jnba.net
3 Bedford Green
South Burlington, VT 05403
Autism Speaks
1990 K Street, NW
Washington, DC 20006
(202) 955-3312 (office)
(202) 424-5834 (fax)
www.autismspeaks.org
Karen.Driscoll karen.driscoll@autismspeaks.org
Stuart Spielman sspielman@autismspeaks.org
Autistic Self-Advocacy Network
P.O. Box 66122
Washington, DC 20036
(202) 596-1056 (office)
Ari Ne’eman ANeeman@autisticadvocacy.org
Samantha Crane sscrane@autisticadvocacy.org
Bazelon Center for Mental Health Law (BCMHL)
1101 15th Street, NW, Ste. 1212
Washington, DC 20005
(202) 467-5730 (office)
(202) 223-0409 (fax)
http://www.bazelon.org
Elaine Alfano elaine@bazelon.org
Jennifer Mathis jenniferm@bazelon.org
Bethany Lily bethanyl@bazelon.org
Brain Injury Association of America (BIAA)
1608 Spring Hill Road, Ste. 110
Vienna, VA 22182
(703) 761-0750 (office)
(703) 761-0755 (fax)
www.biausa.org
Amy Coldberg acoldberg@biausa.org
CBM-US
9537 Locust Hill Drive
Great Falls, VA 22066
(703) 801-7704 (office)
Donna Waghorn waghornconsulting@gmail.com
8
Center for Workers with Disabilities (CWD)
1133 19th Street, NW, Ste. 400
Washington, DC 20036
(202) 682-0100 (office)
(202) 289-6555 (fax)
http://cwd.aphsa.org
Center on Budget and Policy Priorities (CBPP)
820 First Street, NE, Suite 510
Washington, DC 20002
(202) 408-1080 (office)
(202) 408-1056 (fax)
www.cbpp.org
Judy Solomon solomon@cbpp.org
Children and Adults with Attention-Deficit/
Hyperactivity Disorder (CHADD)
8181 Professional Place, Ste. 150
Landover, MD 20785
(301) 306-7070 (office)
(301) 306-7090 (fax)
http://www.chadd.org
Ruth Hughes Ruthj_hughes@chadd.org
Community Legal Services (CLS)
3638 N Broad Street
Philadelphia, PA 19140
(215) 227-2417 (office)
(215) 227-2435 (fax)
www.clsphila.org
Richard Weishaupt rweishaupt@clsphila.org
215-981-3773
Conference of Educational Administrators
of Schools and Programs for the Deaf (CEASD)
P.O. Box 685
Washington Grove, MD 20880
(301) 990-2847 (office)
(301) 990-2848 (fax)
http://www.ceasd.org
Barbara Raimondo baraimondo@me.com
9
Corporation for Supportive Housing (CSH)
1731 Connecticut Ave., NW, 4th Floor
Washington, DC 20009
(202) 588-1110 (office)
(202) 330-5960 (fax)
www.csh.org
Peggy Bailey peggy.bailey@csh.org
Hilary Gawrilow hilary.gawrilow@csh.org
Council for Exceptional Children (CEC)
1110 North Glebe Road, Ste. 300
Arlington, VA 22201
(800) 224-6830 (office)
(703) 243-0410 (fax)
http://www.cec.sped.org
Deb Ziegler debz@cec.sped.org
Kimberly Hymes kimh@cec.sped.org
Lindsay E. Jones lindsayj@cec.sped.org
Council for Learning Disabilities (CLD)
15122 Red Cedar Drive
Burtonsville, MD 20866-1386
(301) 549-1779 (home)
http://www.cldinternational.org
Debi Gartland gartland@towson.edu
Council of Parent Attorney and Advocates (COPAA)
P.O. Box 6767
Towson, Maryland 21285
(410) 372-0208 (office)
(410) 372-0209 (fax)
www.copaa.org
Denise Marshall denise@copaa.org
Laura Kaloi lkaloi@wpllc.net
1101 Vermont Ave. NW Ste. 400
Washington, DC 20005
92020 349-2310
Dialysis Patient Citizens (DPC)
900 7th Street, NW Ste. 670
Washington, DC 20001
(202) 789-6931 (office)
(202) 789-6935 (fax)
Hrant Jamgochian hjamgocian@dialysispatients.org
Jackson Williams jwilliams@dialysispatients.org
Disability Rights Education and Defense
Fund, Inc. (DREDF)
1825 K Street N.W, #600
Washington, DC 20006
202-725-5523 (office)
(fax)
http://www.dredf.org
Rhonda Neuhaus rneuhaus@dredf.org
Susan Henderson shenderson@dredf.org
Marilyn Golden mgolden@dredf.org
Mary Lou Breslin mlbreslin@dredf.org
Robert Borrelle rborrelle@dredf.org
Silvia Yee syee@dredf.org
10
Disability Rights Legal Center (DRLC)
800 S Figueroa Street, #701
Los Angeles, CA 90017n, DC 20036
202-725-5523 (office)
(fax)
http://www.dredf.org
Paula Pearlman paula.pearlman@lls.edu
Division for Early Childhood of
the CEC (DEC/CEC)
6129 Calico Pool Lane
Burke, VA 22015
(703) 850-1187 (office)
(703) 250-4935 (fax)
http://www.dec-sped.org
Sharon Walsh walshtaylo@aol.com
Division for Learning Disabilities of CEC (DLD)
932 Raymond Rd.
Charlottesville, VA 22959-
(434) 924-0759 (office)
(434) 924-0747 (fax)
www.teachingld.org
David Bateman dfbate@ship.edu
223 Conway Street
Carlisle, PA 17013
(717) 253-8961 (office)
(717) 477-4036 (fax)
Easter Seals (ES)
1425 K Street, NW, Ste 200
Washington, DC 20005
(202) 347-3066 (office)
(202) 737-7914 (fax)
http://www.easter-seals.org
Jennifer Dexter jdexter@easterseals.com
Katy Beh Neas kneas@easterseals.com
Mary Andrus mandrus@easterseals.com
Maynard Friesz mfriesz@easterseals.com
Epilepsy Foundation (EF)
8301 Professional Place East
Landover, MD 20785-2238
(301) 459-3700 (office)
(301) 731-3842 (fax)
http://www.epilepsyfoundation.org
Angela Ostrom aostrom@efa.org
Beatriz Duque Long bduquelong@efa.org
Cherree Sanders csanders@efa.org
Brian Fiske bfiske@efa.org
Sandy Finucane afinucane@efa.org
Family Voices
2030 M Street, NW #350
Washington, DC 20036
(202) 546-0558 (office)
www.familyvoices.org
Janis Guerney jguerney@famiilyvoices.org
11
Health & Disability Advocates (HDA)
623 Kennedy St., NW
Washington, DC 20011
(202) 506-6481 (office)
(202) 506-6481 (fax)
http://www.hdadvocates.org
Lisa Ekman lekman@hdadvocates.org
Helen Keller National Center (HKNC)
141 Middle Neck Road
Sands Point, NY 11050
(516) 944-8900 (office)
(516) 944-8367 (TTY)
(516) 944-5984 (fax)
www.hknc.org
Susan Ruzenski sue.rezenski@hknc.org
Higher Education Consortium for
Special Education (HECSE)
c/o AACTE
1307 New York Ave., NW, Ste. 300
Washington, DC 20005
(202) 478-4593 (office)
(202) 457-8095 (fax)
www.hecse.org
Jane West jwest@aacte.org
IDEA Infant and Toddler Coordinators Association
6129 Calico Pool Lane
Burke, VA 22015
(703) 850-1187 (office)
(703) 250-4935 (fax)
www.ideainfanttoddler.org
Sharon Walsh walshtaylo@aol.com
Institute for Educational Leadership/Center for
Workforce Development (IEL/CWD)
4455 Connecticut Ave, NW, #310
Washington, DC 20008
(202) 872-8405 (office)
(202) 872-4050 (fax)
Curtis Richards andrea@harles.com
12
Learning Disabilities Association of America (LDA)
4001 N 9th Street, #505
Arlington, VA 22203
(703) 243-2614 (office)
(703) 243-0894 (fax)
http://www.ldaamerica.org
Myrna Mandlawitz Mandlawitz@verizon.net
3001 Veeazey Terrace, NW
Washington, DC 20008
(202) 686-1637 (office/fax)
Lupus Foundation of America (LFA)
2000 L Street, NW #410
Washington, DC 20036
(202) 349-1150 (office)
(202) 349-1156 (fax)
Kim Cantor cantor@lupus.org
Sara Chang chang@lupus.org
Lutheran Services in America (LSA)
100 Maryland Ave., NE Ste. 500
Washington, DC 20002
(202) 499-58431(office)
(fax)
www.lutheranservices.org
Sarah Meek smeek@lutheranservices.org
Mental Health America (MHA)
2000 N. Beauregard St., 6th Floor
Alexandria, VA 22311
(571) 236-2802 (office)
(703) 684-5968 (fax)
http://www.nmha.org
Clarke Ross clarkeros10@comcast.net
National Academy of Elder Law Attorneys (NAELA)
1412 K Street, NW
Washington, DC 22201
(703) 942-5711 (office)
(202) 789-3606 (fax)
Brian Lindberg brian@consumers.org
Marly Flores mflores@consumers.org
David Goldfarb dgoldfarb@naela.org
National Alliance for Caregiving (NAC)
4720 Montgomery Lane, Suite #205
Bethesda, MD 20814
(301) 718-8444 (office)
(301) 951-9067 (fax)
www.caregiving.org
C. Grace Whiting gracewhiting@caregiving.org
Stephanie Herndon Stephanie@caregiving.org
13
National Alliance on Mental Illness (NAMI)
3803 N. Fairfax Drive, Ste.100
Arlington, VA 22203
(703) 524-7600 (office)
(703) 524-9094 (fax)
http://www.nami.org
Andrew Sperling andrew@nami.org
Darcy Gruttadaro darcy@nami.org
Jean “JB” Moore jeanmoore@nami.org
Dania Douglas ddouglas@nami.org
Emily Cepla ecepla@gmail.com
National Alliance to End Homelessness (NAEH)
1518 K Street NW, #410
Washington, DC 20005
(202) 638-1526 (office)
(202) 638-4664 (fax)
www.endhomelessness.org
National Association for the Advancement
of Orthotics and Prosthetics (NAAOP)
1501 M Street NW, 7th Floor
Washington, DC 20005
(202) 466-6550 (office)
(202) 737-2517 (fax)
www.naaop.org
Peter Thomas peter.thomas@ppsv.com
Sara Rosta Sara.rosta@ppsv.com
Emily Whiteman Emily.whiteman@ppsv.com
National Association of Councils on Developmental
Disabilities (NACDD)
1825 K Street, NW, Suite 600
Washington, DC 20006
(202) 506-5813 (office)
(202) 506-5846 (fax)
http://www.nacdd.org
Donna Meltzer dmeltzer@nacdd.org
Esme’ Grant egrant@nacdd.org
National Association of County Behavioral
Health and Development Disability Directors
(NACBHDD) 25 Massachusetts Avenue, NW, Ste. 500
Washington, DC 20001
(202) 661-8816 (office)
(202) 661-8871 (fax)
www.nacbhd.org
Ron Manderscheid rmanderscheid@nacbhd.org
14
National Association of Disability
Representatives (NADR)
c/o Akerman Senterfitt LLP
750 9th Street, NW, Ste. 750
Washington, DC 20001
(202) 824-1725 (office)
(202) 393-5959 (fax)
www.nadr.org
Jeanne Morin jmorin@akerman.com
National Association of School
Psychologists (NASP)
4340 East West Highway, Ste. 402
Bethesda, MD 20814
(301) 657-0270 (office)
(301) 657-0275 (fax)
http://www.nasponline.org
Mary Beth Klotz mbklotz@naspweb.org
Kelly Vaillancourt kvaillancourt@naspweb.org
National Association of State Directors of
Developmental Disabilities Services (NASDDDS)
113 Oronoco Street
Alexandria, VA 22314
(703)·683·4202 (office)
(703)·683·8773 or (703)·684·1395 (fax)
www.nasddds.org
Dan Berland dberland@nasddds.org
National Association of State Directors of
Special Education (NASDSE)
225 Reinekers Lane, Ste. 420
Alexandria, VA 22314
(703) 519-1506 (office)
(703) 519-3808 (fax)
http://www.nasdse.org
Nancy Reder nancy.reder@nasdse.org
National Association of State Head Injury
Administrators (NASHIA)
4330 East West Highway, Suite 301
Bethesda, MD 20814
(301) 656-3145 (office)
(301) 656-3530 (fax)
www.nashia.org
Susan Vaughn slvaughn@nashia.org
Becky Wolfkiel rwolfkiel@ridgepolicygroup.com
15
National Association of States United
for Aging and Disabilities (NASUAD)
1201 15th Street, NW, Suite 250
Washington, DC 20005
(202) 898-2578 (office)
(202) 898-2583 (fax)
www.nasuad.org
Kelsey Walter kwalter@nasuad.org
Lindsey Copeland lcopeland@nasuad.org
Erin White ewhite@nasuad.org
Nanette Relave NRelave@nasuad.org
National Center for Learning Disabilities (NCLD)
1101 Vermont Ave., NW, #400
Washington, DC 20005
(646) 616-1252 (office)
(202) 842-1942 (fax)
www.ncld.org
Kaitlyn Richardson krichardson@ncld.org
Meghan Casey mcasey@ncld.org
National Committee to Preserve Social
Security and Medicare (NCPSSM)
10 G Street, NE Suite 600
Washington, DC 20002
(202) 216-0420 (office)
(202) 216-0446
Julie Tippens tippensj@NCPSSM.org
Diane Lifsey lifseyd@ncpssm.org
Webster Phillips phillipsw@ncpssm.org
Brenda Sulick sulickb@ncpssm.org
National Council for Behavioral Health (NCBH)
1701 K St. NW, Ste. 400
Washington, DC 20006
(202) 684-7457 (office)
(202) 684-7472 (fax)
www.nccbh.org
Rebecca Farley rebeccaf@thenationalcouncil.org
Jeannie Campbell jeanniec@thenationalcouncil.org
Charles Ingoglia chucki@thenationalcouncil.org
Kirsten Reed kirstenr@thenationalcouncil.org
Mohini Venkatesh mohiniv@thenationalcouncil.org
Nina Marshall ninam@thenationalcouncil.org
Laira Roth lairar@thenationalcouncil.org
Shelina Foderingham shelinaf@thenationalcouncil.org
Adam Swanson Adams@thenatinalcouncil.org
Alanna Tivesky alannat@thenationalcouncil.org
National Council on Aging (NCOA)
1901 L Street, NW, 4th Floor
Washington, DC 20036
(202) 479-6678 (office)
(202) 479-0735 (fax)
Howard Bedlin howard.bedlin@ncoa.org
Joe Caldwell joe.caldwell@ncoa.org
16
National Council on Independent Living (NCIL)
1710 Rhode Island Ave., NW, 5th Floor
Washington, DC 20036
(202) 207-0334 (office)
(202) 207-0341 (fax)
www.ncil.org
Kelly Buckland kelly@ncil.org
Lindsay Baran Lindsay@ncil.org
Mike Bachhuber mikeb@ikw.org
National Disability Institute (NDI)
1667 K Street, NW, #640
Washington, DC 20006
(202) 296-2043 (office)
(202) 296-2047 (fax)
www.ndi-inc.org
Deepa Goraya dgoraya@ndi-inc.org
National Disability Rights Network (NDRN)
900 2nd Street, NE, Ste. 211
Washington, DC 20002
(202) 408-9514 (office)
(202) 408-9520 (fax)
http://www.napas.org
David Hutt david.hutt@ndrn.org
Cheryl Bates-Harris cheryl.bates-harris@ndrn.org
Kenneth Shiotani kenneth.shiotani@ndrn.org
Eric Buehlmann eric.buehlmann@ndrn.org
Ron Hager ron.hager@ndrn.org
Cindy Smith cindy.smith@ndrn.org
Dara Baldwin dara.baldwin@ndrn.org
National Down Syndrome Congress (NDSC)
2107 Dumfries Terrace
Olney, MD 20832
(301) 237-7011 (office)
(fax)
www.ndsccenter.org
Susan Goodman susan1961@aol.com
National Down Syndrome Society (NDSS)
2520 Locustwood Place
Silver Spring, MD 20905
(301) 452-0811 (office)
(301) 879-1467 (fax)
http://www.NDSS.org
Sara Weir sweir@ndss.org
National Health Law Program (NHeLP)
1444 I Street NW, @1105
Washington, DC 20005
(202) 289-7661 (office)
(202) 289-7724 (fax)
Mara Youdelman youdelman@healthlaw.org
David Machledt machledt@healthlaw.org
17
National Industries for the Blind (NIB)
1310 Braddock Place
Alexandria, VA 22314
(703) 310-0520 (office)
(703) 671-9053 (fax)
www.nib.org
James “Ned” Rupp nrupp@nib.org
Anthony “Tony” Stephens astephens@nib.org
Rick Webster rwebster@nib.org
Darren Wyatt dwyatt@nib.org
Angela Hartley ahartley@nib.org
National Multiple Sclerosis Society (NMSS)
1100 New York Ave., NW, Ste. 440 East
Washington, DC 20005
(202) 408-1500 (office)
(202) 408-0696 (fax)
www.nationalmssociety.org
Kim Calder kim.calder@nmss.org
Lauren Chiarello lauen.chiarello@nmss.org
Ted Thompson ted.thompson@nmss.org
Laura Weidner laura.weidner@nmss.org
National Organization of Social Security
Claimants’ Representatives (NOSSCR)
1025 Connecticut Avenue, NW Suite 709
Washington, DC 20036
(202) 457-7775 (office)
(202) 457-7773 (fax)
http://www.nosscr.org
Ethel Zelenske nosscrdc@worldnet.att.net
National Organization on Disability (NOD)
77 Waters Street, Suite 204
New York, NY 10005
(646) 505-11910 (office)
(646) 505-1184 (fax)
http://www.nosscr.org
Ron Drach consultrwd@yahoo.com
National PTA
1400 L Street, NW, #300
Washington, DC 20005
(202) 289-6790 (office)
(202) 289-6791 (fax)
National Respite Coalition (NRC)
4016 Oxford Street
Annandale, VA 22003
(703) 256-9578 (office)
(703) 256-0541 (fax)
http://www.chtop.com
Jill Kagan jbkagan@verizon.net
18
National Senior Citizens Law Center
1444 Eye Street NW, Suite 1100
Washington, DC 20005
(202) 683-1992 (office)
(fax)
Fay Gordon fgordon@nsclc.org
Hannah Weinberger-Divack hdivack@nsclc.org
Kate Lang klang@nsclc.org
Paralyzed Veterans of America (PVA)
801 18th Street, NW
Washington, DC 20006
(202) 872-1300 (office)
(202) 416-7706 (fax)
http://www.pva.org
Lee Page (416-7694) leep@pva.org
Susan Prokop (416-7707) susanp@pva.org
Perkins School for the Blind
1501 M Street NW, 7th Floor
Washington, DC 20005
(202) 349-4243 (office)
(202) 785-1756
Sara Rosta sara.rosta@ppsv.com
Rehabilitation Engineering and Assistive
Technology Society of North America (RESNA)
1700 N. Moore Street, Ste. 1540
Arlington, VA 22209
(703) 524-6686 (office)
(703) 524-6630 (fax)
http://www.resna.org
Michael Brogioli mgrogioli@resna.org
Paul Galonsky pgalonsky@resna.org
Religious Action Center - Union for Reform Judaism
(URJ)
2027 Massachusetts Ave., NW
Washington, DC 20036
(202) 237-5620 (office)
(202) 237-5618 (fax)
www.rac.org
Rabbi Lynne Landsberg
lynneflandsberg@starpower.net
Research Institute for Independent
Living (RIIL)
2322 40th Place, NW, Ste. 203
Washington, DC 20007
(202) 295-9033 (office)
(202) 295-9034 (fax)
David Auxter dauxter@bellatlantic.net
19
School Social Work Association of
America (SSWAA)
3001 Veasey Terrace, NW, Ste. 825
Washington, DC 20008
(202) 686-1637 (office)
(202) 686-1637 (fax)
http://www.sswaa.org
Myrna Mandlawitz mandlawitz@verizon.net
Libby Nealis libbynealis@yahoo.com
Source America
8401 Old Courthouse Road
Vienna, VA 22182
(571) 571-226-4660 (office)
(571) 288-9146 (fax)
http://www.nish.org
Tony Young TYoung@sourceamerica.org
David Fields david.fields@sourceamerica.org
Alicia Epstein aepstein@sourceamerica.org
Shari Walton swalton@sourceamerica.org
Ashlie Strackbein astrackbein@sourceamerica.org
Special Needs Alliance
6341 E. Brian Kent Drive
Tucson, AZ 85710
(520) 546-1005 (office)
(520) 546-5119 (fax)
Morris Klein morrisklein@netzero.net
Jihane Rohrbacker info@specialneedsallaince.org
TASH
1025 Vermont Avenue NW, Ste. 300
Washington, DC 20005
(202) 540-9016 (office)
(202) 540-9019 (fax)
http://www.tash.org
Barb Trader btrader@tash.org
Jenny Stonemeier jstonemeier@tash.org
Teacher Education Division/CEC (TED/CEC)
c/o AACTE
1307 New York Ave., NW, Ste. 300
Washington, DC 20005
(202) 478-4593 (office)
(202) 457-8095 (fax)
www.tedced.org
Jane West jwest@aacte.org
The Advocacy Institute
P.O. Box 565
Marshall, VA 20116
(540) 364-0051 phone
www.advocacyinstitute.org
Candace Cortiella Candace@advocacyinstitute.org
20
The Arc
1825 K Street, NW, Suite 1200
Washington, DC 20006
(202) 783-2229 (office)
(202) 783-5433 (TDD)
(202) 534-3731 (fax) http://www.thearc.org
Marty Ford ford@thearc.org
Julie Ward ward@thearc.org
Annie Acosta acosta@thearc.org
TJ Sutcliffe Sutcliffe@thearc.org
CCD Administrative Support:
Brenda Walker walker@thearc.org
The Jewish Federations of North America
1720 I Street, NW, #800
Washington, DC 20006
(202) 736-5871 (office)
(202) 785-4937 (fax)
http://www.ujc.org
Jonathan Westin jonathan.westin@ujc.org
David Feinman
David.feinman@jewishfederations.org
Tourette Syndrome Association, Inc. (TSA)
1301 K Street, NW, #600 East
Washington, DC 20005
(202) 408-7009 (phone)
(202) 408-3260 (fax)
http://www.tsa-usa.org
Elridge Proctor elridge.proctor@tsa-usa.org
United Cerebral Palsy (UCP)
1825 K Street, NW, Suite 600
Washington, DC 20006
(202) 776-0406 (office)
(202) 776-0414 (fax) http://www.ucp.org
Connie Garner cgarner@ucp.org
Kate Josephson kjosephson@ucp.org
United Spinal Association (USA)
1660 L Street, NW, Ste. 504
Washington, DC 20036
(202) 556-2076 (office)
(202) 223-2380 (fax)
www.unitedspinal.org
Alexandra Bennewith abennewith@unitedspinal.org
Carol Tyson ctyson@unitedspinal.org
VetsFirst, a program of United Spinal Association
Heather Ansley hansley@vetsfirst.org
United States International Council
on Disabilities (USICD)
1710 Rhode Island Ave., NW, 5th Floor
Washington, DC 20036
(202) 207-0338 (office)
David Morrissey dmorrissey@usicd.org
Eileen Dombrowski edombrowski@usicd.org
21
Vietnam Veterans of America (VVA)
8719 Colesville Road, Suite 100
Silver Spring, MD 20910
(301) 585-4000 ext. 118 (office)
(301) 585-3180 (fax)
Bernard Edelman bedelman@vva.org
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