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Out of 260 responses

Answers out of 29% of respondents who said yes to using alternative

medicine; may have reported multiple therapies

Out of 355 responses

Patients can select multiple responses

Out of 355 responses

Patients can select multiple responses

Out of 219 responses

Out of 276 responses Out of 279 responses

Out of 277 responses Out of 277 responses

Out of 349 responses

Out of 362 responses

“What I would like others to know about the registry is upon diagnosis everyone wishes there was just one

"thing" that could be done to fix the problem of our family member

or ourselves. Filling out this questionnaire is perhaps that one" thing" that leads a drug company or researchers down the path of discovering something helpful.

There aren't many of us out there to provide this data so every data point is critical. We all need to do

our part and make an impact toward a solution. ”

– Shannon C.

Out of 91 responses

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