the secret language of data

TAXONOMIES AND MEANINGFUL METADATA TO CRACK THE CIPHER AND TELL THE STORY

alberta soranzo | @albertatrebla

UCLA Center for Health Policy Research

EuroIA | Edinburgh, 26-28 September 2013

THE SECRET LANGUAGE OF DATA

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SECRET LANGUAGE OF DATA alberta soranzo | @albertatreblaCC  Image  courtesy  of  prayitnophotography  on  flickr.com

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SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

Health data provide information about the occurrence of certain diseases and health conditions.

—http://www.health.ny.gov/environmental/public_health_tracking/about/glossary.htm

HEALTH DATA

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

A massive volume of both structured and unstructured data that is so large that it's difficult to process using traditional database and software techniques.

—http://www.webopedia.com

BIG DATA

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

825,300,000

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

BIG IMPACT

STORYTELLING WITH DATA

CC  Image  courtesy  of  clappstar  on  flickr.com

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

THE STORY

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

THE STORY

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

EUROSTAT

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

EUROSTAT

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

WHO

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

ESS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

ESS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

ESS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

ESS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

ESS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

ESS

THE AskCHIS WAY

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

AskCHIS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

AskCHIS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

AskCHIS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

AskCHIS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

AskCHIS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

AskCHIS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

AskCHIS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

EFFECT = AFFECT

HOW DID WE DO IT?

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

TAXONOMY

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

TAXONOMY

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

TERMINOLOGY

OPTIONS CHOICE

Benefit Package, Work Insurance, Employee Insurance, Employee Health Plan

Employment-based coverage

Poor, Indigent, Impoverished, Below Federal Poverty Line Low-income

Handicapped, Disabled, Blinds, Deaf Persons, Persons with disabilities

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

SYNONYMS/POLYHIERARCHY

MANAGED CARE DISABILITY

= =

Medicare, Health Insurance, Comprehensive Medical Insurance, Group Medical Insurance, Health Plan, Medicaid, Medi-cal, Indian Health Services, Healthy Families

Handicap, Deficit, Impairment, Mental Impairment, Physical Impairment, Health Problem, Functional Impairment, Incapacity, Ailment

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

METADATA

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

METADATA

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

METADATA

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

METADATA

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

CONTENT MODEL

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

STRUCTURED CONTENT

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

STRUCTURED CONTENT

Variable LabelCHIS Data Source(s)

Age Groups

Levels

Description

Restrictions

Year

WHERE WE ARE GOING

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

CONCRETELY

WHAT (DELIVERABLES) HOW (USES) WHY (GOALS)

• Sitemap• Content Inventory• Wireframes• Controlled

Vocabulary

• Tags• Categories• Filters• URLs• Glossary

• Navigation• Content strategy• Findability• Organization• Cross-channel

Consistency• Governance• Understanding• Branding

CHPR CHIS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

MORE (RE)SEARCH

CHPR AskCHIS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

CONNECTIONS

CHPR AskCHIS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

CONNECTIONS

CHPR AskCHIS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

CONNECTIONS

CHPR AskCHIS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

CONNECTIONS

CHPR AskCHIS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

CONNECTIONS

CHPR AskCHIS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

CONNECTIONS

CHPR AskCHIS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

CONNECTIONS

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

PRIORITIZE CONTENT

NEWSLETTERSIGNUP

PROGRAM 1(50 WORDS MAX)

PROGRAM 2(50 WORDS MAX)

PROGRAM 2(50 WORDS MAX)

GLOBAL NAVIGATION AND SERVICE LINKS SEARCH

LOGO AND SLOGAN

MAIN NAVIGATION

CAROUSEL PHOTO

FEATURED PRODUCT 1 (3 WORDS MAX)

FEATURED PRODUCT 2 (3 WORDS MAX)

PUB SEARCH

SLIDE TITLE (10 WORDS MAX)

SLIDE TEASER (50 WORDS MAX)

ASK THE EXPERT(100 WORDS MAX)

TOPIC CENTER(10 LINKS x 4 WORDS MAX)

HEALTH CARE REFORM(100 WORDS MAX)

SPOTLIGHT(100 WORDS MAX)

PROGRAM 1(50 WORDS MAX)

PROGRAM 2(50 WORDS MAX)

PROGRAM 2(50 WORDS MAX)

NEWS(5 LINKS x 10 WORDS MAX)

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

PRIORITIZE CONTENT

NEWSLETTERSIGNUP

GLOBAL NAVIGATION AND SERVICE LINKS SEARCH

LOGO AND SLOGAN

MAIN NAVIGATION

CAROUSEL PHOTO

FEATURED PRODUCT 1 (3 WORDS MAX)

FEATURED PRODUCT 2 (3 WORDS MAX)

PUB SEARCH

SLIDE TITLE (10 WORDS MAX)

SLIDE TEASER (50 WORDS MAX)

ASK THE EXPERT(100 WORDS MAX)

TOPIC CENTER(10 LINKS x 4 WORDS MAX)

HEALTH CARE REFORM(100 WORDS MAX)

SPOTLIGHT(100 WORDS MAX)

PROGRAM 1(50 WORDS MAX)

PROGRAM 2(50 WORDS MAX)

PROGRAM 2(50 WORDS MAX)

NEWS(5 LINKS x 10 WORDS MAX)

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

PRIORITIZE CONTENT

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

NEWSLETTERSIGNUP

GLOBAL NAVIGATION AND SERVICE LINKS SEARCH

CAROUSEL PHOTO

FEATURED PRODUCT 1 (3 WORDS MAX)

FEATURED PRODUCT 2 (3 WORDS MAX)

PUB SEARCH

SLIDE TITLE (10 WORDS MAX)

SLIDE TEASER (50 WORDS MAX)

TOPIC CENTER(10 LINKS x 4 WORDS MAX)

NEWS(5 LINKS x 10 WORDS MAX)

CONTENT PRIORITY = FLEXIBILITY

NAV SEARCH (SITE AND PUBS)

SLIDE TEASER SHORT(10 WORDS MAX)

FEATURED PRODUCT 1(3 WORDS MAX)

TOPIC CENTER(5 LINKS x 4 WORDS

MAX)

NEWS(5 LINKS x 10 WORDS MAX)

CAROUSELPHOTOTHUMB

FEATURED PRODUCT 2 (3 WORDS MAX)

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

NEWSLETTERSIGNUP

GLOBAL NAVIGATION AND SERVICE LINKS SEARCH

CAROUSEL PHOTO

FEATURED PRODUCT 1 (3 WORDS MAX)

FEATURED PRODUCT 2 (3 WORDS MAX)

PUB SEARCH

SLIDE TITLE (10 WORDS MAX)

SLIDE TEASER (50 WORDS MAX)

TOPIC CENTER(10 LINKS x 4 WORDS MAX)

NEWS(5 LINKS x 10 WORDS MAX)

CONTENT PRIORITY = FLEXIBILITY

NAV SEARCH (SITE AND PUBS)

SLIDE TEASER SHORT(10 WORDS MAX)

FEATURED PRODUCT 1(3 WORDS MAX)

TOPIC CENTER(5 LINKS x 4 WORDS

MAX)

NEWS(5 LINKS x 10 WORDS MAX)

CAROUSELPHOTOTHUMB

FEATURED PRODUCT 2 (3 WORDS MAX)

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

NEWSLETTERSIGNUP

GLOBAL NAVIGATION AND SERVICE LINKS SEARCH

CAROUSEL PHOTO

FEATURED PRODUCT 1 (3 WORDS MAX)

FEATURED PRODUCT 2 (3 WORDS MAX)

PUB SEARCH

SLIDE TITLE (10 WORDS MAX)

SLIDE TEASER (50 WORDS MAX)

TOPIC CENTER(10 LINKS x 4 WORDS MAX)

NEWS(5 LINKS x 10 WORDS MAX)

CONTENT PRIORITY = FLEXIBILITY

NAV SEARCH (SITE AND PUBS)

SLIDE TEASER SHORT(10 WORDS MAX)

FEATURED PRODUCT 1(3 WORDS MAX)

TOPIC CENTER(5 LINKS x 4 WORDS

MAX)

NEWS(5 LINKS x 10 WORDS MAX)

CAROUSELPHOTOTHUMB

FEATURED PRODUCT 2 (3 WORDS MAX)

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

NEWSLETTERSIGNUP

GLOBAL NAVIGATION AND SERVICE LINKS SEARCH

CAROUSEL PHOTO

FEATURED PRODUCT 1 (3 WORDS MAX)

FEATURED PRODUCT 2 (3 WORDS MAX)

PUB SEARCH

SLIDE TITLE (10 WORDS MAX)

SLIDE TEASER (50 WORDS MAX)

TOPIC CENTER(10 LINKS x 4 WORDS MAX)

NEWS(5 LINKS x 10 WORDS MAX)

CONTENT PRIORITY = FLEXIBILITY

NAV SEARCH (SITE AND PUBS)

SLIDE TEASER SHORT(10 WORDS MAX)

FEATURED PRODUCT 1(3 WORDS MAX)

TOPIC CENTER(5 LINKS x 4 WORDS

MAX)

NEWS(5 LINKS x 10 WORDS MAX)

CAROUSELPHOTOTHUMB

FEATURED PRODUCT 2 (3 WORDS MAX)

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

DESIGN

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

DESIGN

SECRET LANGUAGE OF DATA alberta soranzo | @albertatrebla

DESIGN

alberta soranzo | @albertatrebla

albertasoranzo@gmail.com

UCLA Center for Health Policy Research

THANK YOU!