tomasz szelagowski general director federation of polish patients the role of patients and...

Tomasz SzelagowskiGeneral Director

Federation of Polish Patients

The role of patients and patients' organisations in the

facilitation of necessary changes in current healthcare

delivery systems in Europe

November 10, 2012. Malta.

Patients’ voice

Independent, non-governmental umbrella organization

VISION: High-quality, patient-centered, equitable healthcare for all patients

MISSION: To provide a strong and united patients’ voice –> patients at the centre of EU health policy & programs

Strategic goals

• Equal access to healthcare• Patients’ involvement• Patients' perspective• Sustainable patient organisations• Patient unity

Meaningful involvement

• Build capacity• Strengthen our policy impact• Develop the patients’ evidence-base• Extend our membership• Build powerful communications and

partnerships• Diversify the funding base

• Lack of equal and timely access to treatment per se

• Limited and unequal access to modern treatment

• Increased patients’ financial burden (co-payments)

• Restricted access to relevant information

• Lack of life-long range of services and support for patients with chronic diseases

• Lack of thorough information on the possibilities for treatment abroad

Common concerns

Building the PatientPartnerNetwork for CCM

Since then… in Poland

• White Summit 2008 HealthCare System Reform

• Around country seminars 2007; 2009

•Pilot projects 2011

• Joint action on Public Health Act 2011/2012

• FPP position in White Paper on AHA 2012

• Advances on the empowerment model and health literacy

Health Literacy in summary

University Collage Dublin 2011

Since then… in Europe• Substantive EPF Position - Transparency Directive

• Major Conference in Sofia, September 2012 – Health Inequalities in the New MS and the Candidate Countries

• The European Patient Academy on TherapeuticInnovation, EUPATI

• Patient Involvement in HTA – EPF studies

• Advances on the ‘ empowerment model’ and health literacy

Patients voice

Governance perspective

Creation of multistakeholder hybrid organisations and initiatives

New multilateralism

Today‘s minister of health has a dual responsibility:to promote his or her country‘s health and…to advance the health interests

of the European and global community.

prof. dr. Ilona Kickbusch …at EHFG/WHS

• Better recognition of the potential of patients’ organizations (PO)

• Joint projects with PO to be set-up

• Open communication among all stakeholders

Design - Implement - Manage TOGETHER

Building the PatientPartnerNetwork for Quality and

Safety

Visit us at: www.federacjapp.

pl