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See discussions, stats, and author profiles for this publication at: https://www.researchgate.net/publication/14306405 An improved questionnaire for assessing quality of life after myocardial infarction Article in Quality of Life Research · March 1996 DOI: 10.1007/BF00435980 · Source: PubMed CITATIONS 146 READS 616 4 authors, including: Some of the authors of this publication are also working on these related projects: Evaluation of Peoples-uni http://peoples-uni.org View project The BEACH (Bettering the Evaluation of Care and Health) program, a continuous national study of general practice activity in Australia, 1998-2016 View project Lisa Valenti The University of Sydney 87 PUBLICATIONS 1,851 CITATIONS SEE PROFILE Richard Heller People's Open Access Education Initiative 287 PUBLICATIONS 9,257 CITATIONS SEE PROFILE All content following this page was uploaded by Lisa Valenti on 05 June 2014. The user has requested enhancement of the downloaded file.

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Page 1: An Improved Questionnaire for Assessing Quality of Life ... · Quality of Life Research, 5, pp. 151-161 An improved questionnaire for assessing quality of life after acute myocardial

See discussions, stats, and author profiles for this publication at: https://www.researchgate.net/publication/14306405

An improved questionnaire for assessing quality of life after myocardial

infarction

Article  in  Quality of Life Research · March 1996

DOI: 10.1007/BF00435980 · Source: PubMed

CITATIONS

146READS

616

4 authors, including:

Some of the authors of this publication are also working on these related projects:

Evaluation of Peoples-uni http://peoples-uni.org View project

The BEACH (Bettering the Evaluation of Care and Health) program, a continuous national study of general practice activity in Australia, 1998-2016 View project

Lisa Valenti

The University of Sydney

87 PUBLICATIONS   1,851 CITATIONS   

SEE PROFILE

Richard Heller

People's Open Access Education Initiative

287 PUBLICATIONS   9,257 CITATIONS   

SEE PROFILE

All content following this page was uploaded by Lisa Valenti on 05 June 2014.

The user has requested enhancement of the downloaded file.

Page 2: An Improved Questionnaire for Assessing Quality of Life ... · Quality of Life Research, 5, pp. 151-161 An improved questionnaire for assessing quality of life after acute myocardial

An Improved Questionnaire for Assessing Quality of Life after Acute Myocardial InfarctionAuthor(s): L. Valenti, L. Lim, R. F. Heller, J. KnappSource: Quality of Life Research, Vol. 5, No. 1 (Feb., 1996), pp. 151-161Published by: SpringerStable URL: http://www.jstor.org/stable/4034791Accessed: 23/09/2009 12:43

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Quality of Life Research, 5, pp. 151-161

An improved questionnaire for assessing quality of life after acute myocardial infarction

L. Valenti, L. Lim,* R. F. Heller and J. Knapp Centre for Clinical Epidemiology and Biostatistics, Faculty of Medicine and Health Sciences, The University of Newcastle, Newcastle NSW AUSTRALIA

This paper reports our experience with the use of an improved self-administered questionnaire for assessing quality of life (QOL) after acute myocar- dial infarction. The modified questionnaire significantly increased the proportion of patients able to answer all questions from 840%-92%. The additional questions in the improved questionnaire increased the total variance explained by the Emotional, Physical and Social QOL factors from 65.8%-66.5%. Intemal consistency and construct validity were assessed and found to be high. Overall, we have found that this improved questionnaire is easy to administer and that it possesses desirable properties of validity and reliability.

Key words: Acute myocardial infarction; quality of life; self administered questionnaire.

Introduction

Cardiovascular disease is currently the major cause of death in Australia and other developed countries," 2 and is a growing concem in many developing coun- tries.3 There has been a noticeable shift in recent years towards a focus on disease-specific quality of life(QOL) as the primary outcome measure in studies of cardiovascular disease.4'5,',7 In particular, there appears to be a demand for reliable, sensitive and validated questionnaires which measure QOL follow- ing acute myocardial infarction (AMI), which can be used in a patient self-administered mode.8

The authors wish to thank Dr Gordon Guyatt and colleagues, McMaster University, Canada, for granting permission to publish our modification of the origina] QLMI questionnaire. This work was supported by a grant from the National Health and Medical Research Council of Australia (NH&MRC).

To whom correspondence should be addressed at Centre for Clinical Epidemiology and Biostatistics, David Maddison Clinical Sciences Building, Royal Newcastle Hospital, Newcastle NSW 2300. Tel: (049) 236152; Fax: (049) 236148.

The Quality of Life after Myocardial Infarction Questionnaire (QLMI) was developed at McMaster University, Canada.9 Previous use of the QLMI ques- tionnaire in Newcastle, Australia found it can be successfully applied in a patient self-administered mode.8'0 Following this experience we made a few minor modifications to the original questionnaire.8"0 In a recent study of the impact of counselling on patients following hospitalization for suspected AMI," the modified QLMI questionnaire (QLMI-2), was again applied in a self-administered mode to assess QOL.

This paper reports the performance of the QLMI-2 questionnaire as a tool for measuring QOL 6 months after hospital discharge. The specific aims were to compare patient responses to the original QLMI questionnaire used in a self-administered mode with responses to the QLMI-2 questionnaire; to deter- mine the consistency of QOL scores obtained from two different groups of comparable AMI patients; to assess if the three new questions added to the original questionnaire performed as expected; and to assess the reliability and validity of the QLMI-2 questionnaire.

Methods

Modification of the original QLMI questionnaire

Questions in the original QLMI questionnaire fall into three QOL domains which assess 'emotional', 'physical' and 'social' QOL.8"0 The questions use a Likert-scale with seven possible responses, where a '1' represents the lowest QOL and '7' the highest. A QOL domain score was obtained by calculating the average Likert responses across all questions allocated to that domain.

The original QLMI questionnaire used by the McMaster group comprised 26 questions and was

?r) 1996 Rapid Science Publishers Quality of Life Research - Vol 5 - 1996 151

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L. Valenti et al.

interviewer-administered.9'2 When the questionnaire was used in a self-administered mode on an Australian population, three of the 26 questions were omitted from the analysis: one was considered inappropriate in the Australian setting, the inter- pretation of another was ambiguous and a third question, which addressed sexual intercourse, was unanswered by many respondents.8"0 The QLMI-2 questionnaire is a modification of our first self- administered version of the QLMI questionnaire. In QLMI-2 the sex question was amended to include a not-applicable response and three new questions were added, giving a total of 27 items. The three new questions (questions 24, 25 and 26) focus on the social and physical domains, as our previous work found that relatively few questions fell into these domains.8 The QLMI-2 questionnaire is included in an unabridged format in the Appendix.

The 1990-91 study

A study of 450 AMI patients aged between 25 and 69 years was carried out between September 1990 and December 1991 to assess the effect on QOL of an information mail-out intervention.'0 QOL was measured 6-months after hospital discharge using the original QLMI questionnaire in a self-adminis- tered mode, to which 375 (83%) patients responded. Patients were recruited from hospitals in the Lower Hunter region of New South Wales, Australia.

The 1993-94 study

The QLMI-2 questionnaire was administered to patients with AMI or angina recruited between May 1993 and March 1994, for a study which assessed the impact of counselling on QOL measured at 6 weeks and 6 months after discharge from hospital." Patients were recruited from the same hospitals as in the 1990-91 study. Seventy-one per cent of the subjects, who ranged in age from 25-74 years, were male and 75% had not previously had an AMI. A total of 490 subjects were enrolled, of whom 352 (72%) responded to the 6-month questionnaire.

Quality of life measures

Only 6-month QOL scores were examined in this paper as QOL has been reported to reach a "steady- state' between 2-12 months after e AMI event.9

Heller et al." found that emotional quality of life scores declined at 6 weeks post discharge, but by 6 months had returned to levels similar to scores measured while in hospital.

Statistical methods

Principle components factor analysis with a varimax rotation was used to determine the allocation of items in the QLMI-2 questionnaire to the underlying QOL domains.3 Reliability was assessed by measuring internal consistency (scale reliability) separately for each of the three domains using Cronbach's a."4

Construct validity was assessed by determining the association between QOL scores separately for each of the three domains, and study variables pre- viously reported to be associated with QOL: previous AMI, sex, rehospitalization within 6 months after discharge, whether coronary artery bypass surgery was performed within the 6 month follow-up period, clinical diagnosis (AMI or angina) and age group (c60 or ?60).1sr16"7The statistical significance of these associations was computed using the Wilcoxon 2- sample test."8

The Wilcoxon 2-sample test was also used to com- pare the QOL domain scores between the 1990-91 and 1993-94 patient samples. For these comparisons, patients aged 70 years and over in the 1993-94 study were excluded and computation of QOL scores excluded the three new questions.

Results

Use of the original QLMI vs. the QLMI-2 Questionnaire

Three hundred and sixteen of the 375 (84%) respon- dents in the 1990-91 study answered all the questions in the original QLMI questionnaire compared with 322 of the 352 (91.5%) respondents in the 1993-94 study. Only 4.3% of respondents to the 1993-94 study did not answer the sex question (question 27), compared to 12.3% in the 1990-91 study. Further, 49.6% of the 1990-91 respondents gave the response 'none of the time' in relation to how often their heart problem interfered with sexual intercourse, while in the 1993-94 study 31.8% gave the 'none of the time' response and 27% gave the 'not applicable' response. This question was excluded from the following analysis.

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Consistency of QOL scores between two comparable patient samples

Demographic characteristics of the 1990-91 and 1993- 94 patient samples were comparable in all respects, except that the 1993-94 study had a higher proportion of smokers (33% vs. 21%) and of patients diagnosed as having definite AMI (50% vs. 38%). Virtually iden- tical distributions of emotional, physical and social QOL scores were seen in the two patient samples (Figure 1). The 1990-91 patient sample had a marginally higher, but not statistically significant, proportion of patients with QOL scores >6 (Emo- tional: 42.2% vs. 39.3%; Physical: 43.1% vs. 40.9%; Social: 54.1% vs. 50.2%).

Performance of the three new questions

The factor weights obtained from factor analysis on the QLMI-2 questionnaire responses at 6 months are shown in Table 1. The weight has been shown as bold and underlined if it would be allocated to a domain based on the decision rule of allocating an item to a domain if the weight is ?0.4. For example, question 1 was allocated only to the emotional do- main, while question 6 was allocated to both the emotional and physical domains (Table 1).

Overall the percentage of variance explained in- creased from 65.8o/o-66.5% with the addition of the three new questions. The variance explained by the social domain increased markedly from 18.40/o-21.4% while the variances attributable to the physical and emotional domains deteriorated sllghtly, from 18.1%- 17.1% and from 29.30/cr28% respectively. Questions 24 and 25 appeared to impact most strongly on the social domain, but also contribute to the physical domain. Question 26 impacted equaLly on the physi- cal and social domains.

Internal consistency

Cronbach's a coefficient was very high for all three domains (0.95, 0.93 and 0.95 for the emotional, physi- cal and social domains respectively), indicating a very high degree of homogeneity of items within a domain. When items within a domain were excluded one at a time, the a values did not fall below a for the domain in total, giving further indication that questions in each domain are measuring the same construct.19

Figure 1. Distribution of QOL scores for the two comparable AMI patient samples. p-value from Wilcoxon Two-Sample Test

Emotional QOL so% 0C1990-91 in S&3-94 tudy SOX ' t d

3OX . ................................ ............ .....

30X . .~... ......................

20%

10%

0x I to <2 to <3 to <4' to <S to <66 to 7

QOL Score

N flean Q00Iedian QOB-valu 1990-91 Study21i 5.47 5.64 1993-94 Study257 5.31 5.64 0.31

Phys-ical QOL 50% 0r1990-91 SOp3-94 tudy

4%. . . . . . . . . . . . . I . .. . . . . . . . . .

30%X

20% .... . . . . .

10%

I to <2 to <3 to <4 to <S to <66 to 7 QOL Score

N Mean 00Uedian OOB-valu 1990-91 Study218 5 41 5 72 1993-94 Study257 5.33 5 67 0.56

Social QOL 50% z qjO1990-91 S_ e 394 tudy

40 X . .... ............... ........... i... . . . . .

30%.. . . . . . . . . 2o0

I to <?2 to <3 to <4 to <5 to <66 to 7 QOL Score

N Mean Q00Iedian QOB-valu 1990-91 Study218 5.73 6.10 1993-94 Study257 5.57 6.00 0.41

Construct validity

Subjects who had not suffered a previous AMI and those not readmitted to hospital in the 6 month follow-up period were found to have a statistically significantly higher QOL in all three domains. (Pre- vious AMI Emotional: 5.08 .37 vs. 5.4 ? 1.22;

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L. Valenti et al.

Table 1. Factor weights and variance explained from factor analysis

Emotional Physical Social

1. Frustrated 0.25 0.15 2. Worthless 0.16 0.42 3. Confident 0 0.26 0.37 4. Down in the dumps 0.86 0.22 0.23 5. Relaxed 0.79 0.26 0.21 6. Worn out 0.52 0.17 7. Happy with personal life 0.21 0.28 8. Restless 0.8 0.29 0.21 9. Short of breath 0.24 0.32

10. Tearful 0.I2 0.17 0.20 11. More dependent 0.39 0.20 12. Social activities 0.4 0.46 0.52 13. Others/less confidence in you QA.5 0.08 0.66 14. Chest pain 0.17 0.72 0.17 15. Lack self-confidence PAZ 0.19 0.47 16. Aching legs 0.39 0.44 0.05 17. Sports/exercise limited 0.23 Q.6 0.61 18. Frightened 0.25 0.36 19. Dizzy/lightheaded 0.39 0.61 0.07 20. Restricted or limited 0.21 0.6 0.62 21. Unsure about exercise 0.34 0.4 0.48 22. Overprotective family 0.18 0.00 23. Burden on others 04 0.20 0.66 24. Excluded 0.19 0.43 0.74 25. Unable to socialize 0.23 0.4 0.68 26. Physically restricted 0.17 % Total variance explained 28.1% 17.2% 21.4% Sum=66.5% % Total variance explained (excluding the three 29.3% 18.1 % 18.4% Sum=65.8%

extra questions, i.e. items 24, 25 and 26)

(Weight is shown in bold and underlined if item is allocated to that domain according to the decision rule to allocate a question to a domain if the factor weight is greater than or equal to 0.4)

Physical: 5.00 ? 1.47 vs. 5.60 ? 1.18; Social; 5.21 ? 1.51 vs. 5.77 ? 1.25. Readnitted-Emotional: 4.34 ? 1.26 vs. 5.54 ? 1.18; Physical: 4.28 ? 1.44 vs. 5.68 ? 1.13; Social: 4.36 ? 1.48 vs. 5.89 ? 1.16.) Males, those who had by- pass surgery in the 6 month follow-up period, those diagnosed with a definite AMI and those aged 60 or more also showed consistently higher QOL in all three domains, although the associations were not statistically significant.

Discussion

This study found that the modifications made to the QLMI questionnaire improved the questionnaire in the sense of significantly increasing the proportion of patients able to answer all questions. The total

variance explained by the three QOL domains was also increased, primarily in the social domain. Hillers et al.9 argued that the original QLMI questionnaire possessed good face and content validity as a conse- quence of an exhaustive item selection and reduction process in its development. As our modifications to the questionnaire were relatively minor, it can be argued that the QLMI-2 questionnaire possesses similar properties of face and content validity. It is reassuring that the questionnaire produced similar QOL scores from two independent but comparable patient samples assessed at different points in time.

Our experience with the QLMI-2 questionnaire was that patients responded very favourably. The time taken to complete the questionnaire was typically between 5-10 minutes. By offering a 'not applicable' response to the sexual intercourse question many more patients were able to respond to this question

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than in the 1990-91 study (96% vs. 88%). The signifi- cantly smaller proportion of 1993-94 patients giving the 'none of the time' response (32% vs. 50%) sug- gested that some of the 1990-91 patients who would have given the 'not applicable' response, had that option been available, had given the 'none of the time' responses instead. We also suspect that the vast improvement in patient response in terms of numbers of questions answered was due in part to the place- ment of the sex question at the end of the QLMI-2 questionnaire.

Although this study exduded the question on sex- ual intercourse from analysis, a possible strategy for inclusion of this question would be to allocate it to the physical domain, and to obtain a physical QOL score by averaging over all the questions allocated to the physical domain answered.

There was some suggestion that telephone admini- strafion of the QLMI-2 questionnaire was feasible when patients have a copy of the questionnaire at hand. The initial 41 patients recruited into the 1993-94 study were administered the QLMI-2 questionnaire over the telephone. They were given the question- naire in hospital, and the research nurse telephoned one week after discharge from hospital to obtain their baseline responses. Although this approach worked very well, it was abandoned because of potential interference with the intervention.

In summary, the QLMI-2 questionnaire was found to be easy to use in a self-administered mode and to display desirable properties of validity and reliability.

References

1. Australian Institute of Health and Welfare. Australia's health 1994: thefourth biennial report of the Australian Insti- tute of Health and Welfare. Canberra: AGPS 1994.

2. Mark DB, Naylor CD, Hlatky MA et al. Use of medical resources and quality of life after acute myocardial in- farction in Canada and the United States. N Engl I Med 1994 Oct 27; 331: 1130-1135.

3. INCLEN Multicentre Collaborative Group. Risk factors for cardiovascular disease in the developing world. A Mulicentre collaborative study in the International Clini- cal Epidemiology Network (INCLEN). I Clin Epidemiol 1992; 45(8): 841-847.

4. Guyatt GH, Feeny DH, Patrick DL. Measuring health-

related quality of life. Ann Intern Med 1993 Apr 15; 118(8): 622-629.

5. Fitzpatrick R, Fletcher A, Gore S, Jones D, Spiegelhalter D, Cox D. Quality of life measures in health care. I: Applications and issues in assessment. BMJ 1992 Oct 31; 305(6861): 1074-1077.

6. Guyatt GH, Bombardier C, Tugwell PX. Measuring dis- ease-specific quality of life in clinical trials. Can Med Assoc 1 1986 Apr 15; 134(8): 889-895.

7. Wenger NK, Mattson ME, Furberg CD, Elinson J. Assess- ment of quality of life in dinical trials of cardiovascular therapies. Am J Cardiol 1984; 54: 908-913.

8. Lin L L-Y, Valenti LA, Knapp JC et al. A self-administered quality-of-life questionnaire after acute myocardial in- farction. I Clin Epidemiol 1993; 46(11): 1249-1256.

9. Hillers TK, Guyatt GH, Oldridge N et al. Quality of life after myocardial infarction. I Clin Epidemiol 1994; 47(11): 1287-1296.

10. Heller RF, Knapp J, Valenti, L, Dobson A. Secondary pre- vention after acute myocardial infarction. Am I Cardiol 1993; 72: 759-762.

11. Heller RF, Lim L, Valenti L, Knapp J. A randomized trial of community based counselling after hospitalization with Ischaemic heart disease. (submitted for publication)

12. Oldridge N, Guyatt G, Jones N et al. Effects on quality of life with comprehensive rehabilitation after acute myo- cardial infarction. Am I Cardiol 1991; 67: 1084-1089.

13. Kleinbaum DG, Kupper LL, Muller KE. Applied regression analysis and other multivariable methods: 2nd Edition. Boston Mass: PWS-KENT, 1988.

14. Cronbach, L. Coefficient alpha and the internal structure of tests. Psychometkria 1951; 16: 297-334.

15. Wilklund I, Herlitz J, Hjalmarson A. Quality of life five years after myocardial infarction. Eur Heart 1 1989; 10: 464-472.

16. Baum FE, Cooke RD. Community-health needs assess- ment: use of the Nottingham health profile in an Australian study. Med I Aust 1989; 150: 581-590.

17. CASS Principal Investigators and their associates. Coro- nary artery surgery study (CASS): A randomised trial of coronary artery bypass surgery. Circulation 1983; 68: 951- 960.

18. SAS Institute Inc., SAS/STAT User's Guide, Version 6, Fourth Edition, Volume 2. Cary, NC: SAS Institute Inc., 1989.

19. Streiner DL, Norman GR. Health Measurement Scales-A practical guide to their development and use. New York: Oxford University Press, 1991.

(Received 30 June 1995; accepted 28 July 1995)

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Appendix

We wish to thank Dr Gordon Guyatt and colleagues at McMaster University, Canada, for their kind per- nission to publish this modified questionnaire in an unabridged format.

Quality of Life Questionnaire-QLMI-2

Please leave blank We would now like to ask you some questions about how you have been feeling during the last two weeks.

(Please tick the box that matches your answer)

1. In general, how much of the time during the last two weeks have you felt frustrated, impatient or angry? All of the time .................0..1 Mostof the time .................0 2 Agood bit of the time ................ 03 Someofthe time ................0 4 Alittleofthe time ................ 05 Hardly any of the time ................0 6 Noneofthetime ................0 7

2. How often during the past two weeks have you felt worthless or inadequate?

Allofthetime ................0. 1 Mostofthe time ................ 2 Agoodbitof the time ................0 3 Someofthe time ................ 04 Alittleofthetime ................0 5 Hardly any of the time ................0 6 Noneofthe time ................ 07

3. In the past two weeks, how much of the time did you feel very confident and sure that you could deal with your heart problem?

Noneofthe time ................ 01 Alittleofthe time ................0 2 Someofthe time ................0 3 Agoodbitof the time ................ 04 Mostof the time ................0.5 Almostallofthetime ................ 6 All of thetime ................ 07

4. In general, how much of the time did you feel discouraged or down in the dumps during the last two weeks?

Allofthetime .0.......n1 Mostof te time ........ 02 Agoodbitof te time .0....... 3 Some of the time ................. 0 4 Astleofthe time ................5 O Hardlyan of the time ....... 06

Noneofthetime .0....... 7 I

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Please leave blank

5. How much of the time during the past two weeks, did you feel relaxed and free of tension?

Noneofthetime ................ 1 Alittle of the time ............... 02 Someofthetime ............... 03 Agoodbitof the time ............... 04 Mostof the time ...............0 5 Almostallofthetime ............... 06 Al of thetime ...............0O 7

6. How often during the last two weeks have you felt wom out or low in energy?

Al of thetine ............... 1 Most of the time ............... 02 Agoodbit of the time ............... 03 Someofthetime ............................... 04 Alittleofthetime ............... 05 Hardly any of the time ............... 06 Noneofthe time ............... 1307

7. How happy, satisfied, or pleased have you been with your personal life during the past two weeks?

Very dissatisfied, unhappy most of thete ..............0 1 Generally dissatisfied, unhappy ..................... 2 Somewhat dissatisfied, unhappy .....................0.. 3 Generally satisfied, pleased ........................0.3 4 Happy most of the timne..............0............ O5 Very happy most of the time ................. 0.. 6 Extremely happy, could not have been more satisfied or pleased . 0 7

8. In general, how often during the last two weeks have you felt restless, or as if you were having difficulty trying to calm down? All of thetime ................... 01 Most of the time ................... 02 Agoodbit of the time ................... 03 Someofthe time ................... 04 Alittleofthetime ..................... . 05 Hardly anyof the time .....................0 6 Noneofthetime .....................0 7

9. How much shortness of breath have you experienced during the last two weeks while doing your day to day physical activities. Extreme shortness of breath ..................... 0 1 Very short of breath ..................... 2 Quite a bit short of breath ..................... 3 Moderate shortness of breath .....................0 4 Some shortness of breath ..................... 0 5 A little shortness of breath ..............0...... 6

No shortness of breath .0......... 7 |

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L. Valenti et al.

Please leave blank

10. How often during the last two weeks have you felt tearful, or like crying? All of te time .............. .0.1................ . Most of the time ............... ................ . 02 Agoodbit of the time .0.3........................ . 3 Someofthetime .............................. . 04

Adlyleofthe time ............................ 05 Hardly ayof the time .06 Noneofthe time . 07

11. How often during the last two weeks have you felt as though you were more dependent than you were before your heart problem?

AUlofthetime ................ .0.1............ . . Mostofthetime. . ........................ 2 Agoodbitof the time ........................ 03 Someofthe time.. ....................... 4 Alittleofthe time ......................... 05 Hardlyany of the time .........................06. Noneofthe time.07 . K ]

12. How often during the last two weeks have you felt unable to do your usual social activities, or social activities with your family?

All of thetimne ......................... 0 Mostofthetime ........................ 02 Agoodbit of the time ......................... 03 Some of the time ... . ..4. ........................ 4 Alittleofthe time. . ....................... 5 Hardly any of the time ........................ 0 . 6 3

Noneofthe time ................ . 07 . [ I 13. How often during the last two weeks have you felt as if others no

longer have the same confidence in you as they did before you had the heart problem?

AUlofthetime ........................ 01 Most of thetime ........................ 02 Agoodbitof the time ........................ 03 Someofthe time ........................ 0 4 Afittleofthe time ........................ 05 Hardly anyofthetime. ....................... 0 6 Noneofthetime ........................ 0.7 . . I

14. How often during the past two weeks have you experienced chest pain while doing your day to day activities?

Allof the time ................ ................ . 01 Mostofthetime ........................ 02 Agoodbitof thetime ........................t e0 3 Someofthetime ....................... .34 Alittleofthe time ....................... .5 Hardlyanyof the time .0........... 6

Noneofthetime .0........... 7 J

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Please leave blank

15. How often during the last two weeks, have you felt unsure of yourself or lacking in self-confidence?

All of the time. . . .......... 01 Most of the time ............................... 0 2 Agoodbitof thete ............... 03 Someofthe time ...............0 4 Alittleofthetime ............... 05 Hardly any of the time .............. 0 6 Noneofthetime ................07 O 7

16. How often during the last two weeks have you been bothered by aching or tired legs?

Allofthetime ................................. 01 Most of the time ............... 02 Agoodbit of the time ............... 03 Someofthe time ............... 04 Alhttleofthetime ............... 05 Hardly any of the time ............... 06 Noneofthetime ...............07

17. During the last two weeks how much have you been limited in doing sports or exercise as a result of your heart problem?

Extremely lmited ...............0 1 Very mited ............... 02 Limited quite a bit ...............0 3 Moderately limited ............... 0 4 Somewhat limited ...............0 5 Limited a lttle ............... 06 Not lmitedatall .................07

18. How often during the last two weeks have you felt apprehensive or frightened?

All of thetime ..................... 1 Mostofthe time ................ 02 Agoodbitof thetme ................t 03 Someofthetime ................ 04 Alhttleofthetime ................ 05 Hardly anyofthetime ................ 06 Noneofthetime .................07.. I 7

19. How often during the last two weeks have you felt dizzy or lightheaded?

Allof the time ................. 01 Mostof thete ................. 02 Agoodbit of thete ................. 03 Someofthetime ............... 04 Alittleofthetime ............... 05 Hardlyanyof the time .......................... 06 Noneofthetime ................07.... 1 7

Quality of Life Research' Vol 5 1996 159

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L. Valenti et al.

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20. In general, during the last two weeks, how much have you been restricted or limited as a result of your heart problem?

Extremely mited ................ 1 Very ited ............... .2 Limitedquiteabit.. ............... 3 Moderately limited ............... .O4 Somewhat lmited.. ......... ...... 5 Limited a lttle ............... .36 Notatall mited ................ 7

21. How often, during the last two weeks, have you felt unsure as to how much exercise or physical activity you should be doing? AU of the tie..................01....... .3 Mostofthetime ................0 2 Agoodbit of the time ................0 3 Someofthetime ................0 4 Alhttleofthetime ................ 5 Hardly anyofthe time ....0 ....................... O6 Noneofthe time .............................0 7

22. How often during the last two weeks have you felt as if your family is being overprotective toward you?

Allofthetimne .............................. Mostof thete .............................0 2 Agoodbitofthe time ...........................0 3 Someofthetime .............................0 4 A little of the tme .............................t .5 Hardly any of the time ...........................0 O 6 Noneofthetime ............................. 7 7

23. How often, during the past two weeks, have you felt as if you were a burden on others?

AU of thetime ................................. Most of the time ................02...............3 2 Agoodbit of the time ................3........... 3 3 Someofthe time .............................0 4 Alittleofthe time .............................0 5 Hardly any of thetime ...........................t i. 6 None of thetime ............................ 0 7

24. How often during the last two weeks have you felt excluded from doing things with other people because of your heart problem? Allofthetine ............................. 1 Most of the time .............................0 2 Agoodbit of the time ................03........... O3 Someofthe time .............................0 4 Alittleofthetime ............................. O5 Hardly any of the time ...........................0 O 6

Noneoftheieme .0............. 7 |

160 Quality of Life Research Vol 5- 1996

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QOL post-AMI questionnaire

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25. How often during the last two weeks have you felt unable to socialize because of your heart problem? Allofthetie ............... 1 Most of the time ............... 0 2 A good bit of the time ............... 03 Someofthetime ............... 04 Alittleofthetime ............... 05 Hardly anyofthetime ............... 06 Noneofthe time ................07.. 7

26. In general, during the last two weeks, how much have you been physically restricted or limited as a result of your heart problem? Extremely limited .................0 1 Very mited ................ 2 Limitedquiteabit ................0 3 Moderately imited ................0 4 Somewhat mited ................ 5 Limited a little ................0 6 Notataill mited ................0 7

27. How often during the last two weeks, have you felt your heart problem limited or interfered with sexual intercourse?

Not apphcable ................0 0 AUlofthetime ................ 01 Mostofthetime ...............0 2 Agoodbit of the time ...............0 3 Someofthetime ...............0 4 Alittleofthetime ............... 05 Hardly anyofthetime ...............0 6 Noneofthetime ...............0 7

Quality of Life Research -Vol 5 1996 161

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