an infopeople webinar december 1, 2008 kelli ham, consumer health librarian finding easy-to-read and...
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An Infopeople WebinarAn Infopeople WebinarDecember 1, 2008December 1, 2008
Kelli Ham, Consumer Health Kelli Ham, Consumer Health LibrarianLibrarian
Finding Easy-to-Read and Multilingual Materials for Your
Patrons
Agenda
Overview of issues surrounding health information materials for lower literacy users
Easy-to-read information resources
Multilingual health information
Community assessment and partnerships
Objectives
Participants will be able to: Recognize components of easy-to-read
materials Assess health information materials quickly
for readability and quality Navigate to appropriate online easy-to-
read and multilingual resources Identify community partners for innovative
solutions specific to your community
Easy-to-Read Materials
For our purposes today: Easy-to-read indicates that the words,
content, and design are chosen specifically so that the material is easier to read and understand by people who have difficulties reading readily available materials.
Reading levels of health information:
Only a small percentage of readily-available health information is truly written in plain language that is easy-to-read.
Some of the Issues What reading level is Easy-to-Read?
Most health materials are written at higher than 6th grade level
Who decides? No broad standards for health-related
materials No standards exist; just recommendations 4th to 6th grade reading level
Digital divide limits access to many resources
Components of Easy-to-Read Materials Plain language text without ambiguity
Take one pill with your breakfast Pictures or illustrations:
Graphics aid in understanding Typography
Serif-type fonts are easier to read Times New Roman is a serif font; Lucida is not
Larger type (12-14 pt) Design elements
Plenty of white space
Additional Elements
3 or 4 main concepts
Action verbs and concrete nouns
Visuals illustrate the action, tell the story
Limits use of jargon, abbreviations, symbols
Use short sentences and words with fewer
syllables
Tested with target audience
At a Glance: Determining Readability Levels
Easier Harder
Readable versus Understandability Format of materials makes a difference
Text only is harder than text with pictures Audio of text easier to understand for users Videos and multimedia increase
understanding Involves multiple senses
Much more information transmitted through visual demonstration
Better retention of information
Seeing Hearing Understanding
Easy-to-Read Materials in MedlinePlus
MedlinePlus points to quality resources from
trusted organizations on numerous health topics
The publishing organization determines if an
item is “easy-to-read”
The National Library of Medicine and
MedlinePlus do not make judgments as to
reading levels
Thus, “easy-to-read” materials in MedlinePlus
range in readability levels
Navigating to Easy-to-Read Materials
The Health Topics page has a link to all
Easy-to-Read materials currently
available
Finding All Easy-to-Read Materials
On main Health Topics Page:
Links to all Easy-to-Read and Interactive Tutorials
Collection of Easy-to-Read Content
Individual Health Topic Pages
Look for Easy-to-Read designation
Interactive Tutorials in MedlinePlus
Over 165 tutorials on Diseases, Tests, Surgeries and much more
Design of Interactive Tutorials
Easy to navigate Multimedia design helps users understand Short text content with audio on each slide
Good illustrations, some with animation Quizzes help users check understanding Good way to augment your circulating
collection of videos and dvds Users may need help getting started
Starting the Tutorial
Click here to start
Summary for Printing
Click here to start
Summary for Printing
Influenza - Interactive Tutorial
Summary Page
Some of the summaries are easier than others, depending on medical terminology and nature of the topic
Surgery Videos I’m having knee replacement surgery –
what can I expect? Currently, 15 videos on different knee
surgeries Transcripts available for printing
From MedlinePlus.gov homepage, click here
NIDDK Easy-to-Read Publications National Institute of Diabetes and Digestive and Kidney Diseases
http://diabetes.niddk.nih.gov/
NIH Publications
Advanced Search in Google publications “easy to read”
site:nih.gov
Useful Tools: Guidelines for Writing Materials
“I’ll know it when I see it”
By learning how materials should be written, it is easier to recognize appropriate materials for your patrons.
Helpful in choosing online resources
Adds value to collection development efforts
Guidelines for Writing Easy-to-Read Materials
How to Write Easy-to-Read Health Materials
On this page, you’ll find:
Step-by-step guidelines
Information and links to several
readability assessment tools, such as
SMOG and Fry Graph
Links to software programs
Bibliographies and additional guidelines
worthy of mention
Language and Culture in Your Community
What are the unique characteristics in your community?
Different communities, different needs inner city – minorities, low income and
other vulnerable populations farming community – rural, large
immigrant population ethnic clusters in the community
Health Information in Other Languages
Issues for librarians and healthcare professionals Need to know the content before
recommending Impossible to know, if you don’t speak
the language
Multilingual Resources in MedlinePlus
Robust collection of Spanish language materials
Recent addition of materials in 40 languages
Collection is small but growing
Follow same quality guidelines
To be included in Multiple Languages collection,
English translation is required
Languages content is available from Home
Page and individual Health Topic pages
Scenario
Library user:
“My father may need an angioplasty. He doesn’t read English well; do you have any information in Arabic?”
General Search Strategies in MedlinePlus
1
2
3
Other Languages on Health Topic Pages
Other Languages on Health Topics – cont.
Advanced Searching with Key Words
Consumer Health Manual from NN/LM
nnlm.gov/outreach/consumer/
Health Information in Many Languages
Health Information in Many Languages: A Few Resources Worthy of Mention
Polyglot Multimedia Medical Spanish Translator Includes audio files so you can hear the translations polyglot.topsailmultimedia.com/polyglot.html
Refugee Health - Immigrant Health Includes cultural customs and beliefs regarding health issues bearspace.baylor.edu/Charles_Kemp/www/refugee_health.htm
Ordering National Institute of Health Publications in Languages Other Than English Information for ordering NIH multilingual publications nnlm.gov/mcr/resources/community/multilingualNIH.html
Spanish Language Translator for Health Terms
Your Favorite Sources for Health Information Please share your sources for easy-to-
read or multilingual health materials Online resources Publishers of print materials Health videos and DVDs Other?
Determine Needs in Your Community How do you know?
Education and literacy levels Languages spoken
Census.gov for information on education levels, languages spoken at home, and other data at the county level American FactFinder for county profiles
factfinder.census.gov/ Population and Household Economic data
census.gov/population/www/popdata.html
American FactFinder
Education
Language spoken at home
Insights into Community Demographics
census.gov/population/www/socdemo/lang_use.html
Innovative Partnerships
County extension agents they interact with farm
workers could talk about use of
pesticides, preventing wounds Local environmental agencies
Air pollution control district can provide speakers about air quality, ozone, smoke from fires
Local literacy groups Teach basic computer skills
For More Information Infopeople Archived Webinars
Understanding Health Literacy Covers more about literacy and health literacy
issues, more examples and information about problem when people can’t read or understand health information
Communicating about Health Practical guidelines for helping library users know
what questions to ask and how to communicate more effectively with their healthcare providers
An In-Depth Look at MedlinePlus Includes details on Spanish-language materials and
all other special content
Kelli Ham, MLIS, Consumer Health [email protected]
NN/LM Pacific Southwest RegionUCLA Louise M. Darling Biomedical Library
nnlm.gov/psr