August 2016! NEWSLETTER!

Mar$nGarganChairofOrthopaedicsSickKids,Toronto

“Manycongratula<onsontheearlysuccessoftheBOSSStudy–suchcollabora<veendeavorsareclearlythewayforwardforourspecialty.

Canadaiswatchingwithinterest.”

HighlightsthisMonth

159pa<entsrecruited(42thismonth)ARUKoffer£274ktosupportBOSS

14thNov2016–CollaboratorMee<ngUSAtomirrortheBOSSStudyAiredalecomingon-board

MonthlyCaseConfirma$onWeaskeverysitetoclickasimple linkeachmonthtoconfirmcaseuploads– this is theonlywaywe canensurepeoplearelookingforcases.112sitesconfirmedcaseuploadswerecompleteforJuly.BarnetandChaseBarnsleyHospitalBartsBasildonBasingstokeBedfordBetsiCadwaladrBirminghamBlackpoolBoltonBordersGeneralBrightonandSussexBristolBuckinghamshireCalderdaleCardiffChelseaChesterColchesterCoventryCwmTafDerbyDoncasterDorsetCountyDudleyDumfriesEast&NorthHertsEastKentEastLancashireEastSussexEdinburghEpsomForthValleyGlasgowGreatWesternGuysHairmyres

Click the link now to confirm uploads for August

HarrogateHeartOfEnglandHinchingbrookeHomertonHullImperialInverclydeIpswichJamesPagetKeZeringKingsCollegeLancashireLeicesterLincolnshireLiverpoolLeedsLewishamMaidstoneMedwayMidCheshireMidEssexMidYorkshireMorecambeBayNewcastleNorfolkandNorwichNorthCumbriaNorthMidlandsNorthWestLondonNorthamptonNorthernDevonNo\nghamOxfordPennine(NthManc)PeterboroughPlymouthPoolePortsmouth

RaigmoreRobertJonesRotherhamRoyalAberdeenRoyalAlexandriaRoyalBerkshireRoyalDevonRoyalFreeRoyalNa<onalOrthoRoyalSurreyRoyalUnitedBathSalisburyScarboroughSheffieldShrewsburySouthDevonSouthManchesterSouthTeesSouthamptonSouthportStGeorgesStHelensStockportSwanseaTamesideThePrincessUCLWarringtonWestMiddlesexWestSuffolkWexhamParkWhippsCrossWhi\ngtonWirralWorcestershireWorthingWrigh<ngton

AneurinBevanBarkingBradfordCambridgeChesterfieldDurhamFifeGloucestershireGreatOrmondStreetHillingdonLutonManchesterMiltonKeynesMonklandsNorthumbriaNthLincolnshireandGoolePennineAcute(Oldham)RoyalCornwallSandwellSouthLondonHealthcareSunderlandTauntonTaysideWolverhamptonCrosshouseWestHertsWesternIslesWinchesterWishawYork

Wearewai$ngonafew:

WyeValley

Recruitment?BOSS is now one of the bestrecrui<ng studies in the NHS.We have 159 recruits in 4months.

Whohasrecruited?Amazingly59siteshaverecruitedsofar•  Barts•  Basildon•  Birmingham•  Bristol•  Buckinghamshire•  Cambridge•  Cardiff•  Chelsea•  Colchester•  Coventry•  Crosshouse•  CwmTaf•  Dudley•  Durham•  EastKent•  EastSussex•  EastLancs•  Epsom•  GreatOrmondSt•  Guys•  Hull•  Kings•  Lancashire•  Lewisham•  MiltonKeynes•  Liverpool•  Norwich•  No\ngham•  Manchester•  Maidstone&Tunbridge•  MiltonKeynes•  MorecambeBay•  Newcastle•  NorthMidlands•  No\ngham•  Oxford

“One of the fastest recruiting studies in the UK”

WhichPa$ents?Slipped Epiphysis - All newcases of disease. Enter thempost-op.

Perthes’ Disease – All newcasespresen<ngtoprovidersofdefini<ve care (i.e. may bediagnosed 6 months ago buttakensome<metobereferredfrom emergency dept, GP,colleaguesetc).

AugustTop5

CoventryCwmTafDurhamGuys

Worcester

•  Peterborough•  Plymouth•  Portsmouth•  RobertJones•  RoyalAlexandria•  RoyalCornwall•  RoyalFree•  RoyalNa<onalOrth•  RoyalBerks•  RoyalSurrey•  Southport•  Stoke•  Stockport•  Southampton•  Taunton•  UnitedLincoln•  Warrington•  WestMiddlesex•  WexhamPark•  Whi\ngton•  Worcester•  Worthing•  WexhamPark

Addi$onalFunding?ARUKhaveawardedtheBOSSCollabora<ve£274kinassocia<onwithcomputerscien<stProfTimCootes(UniversityofManchester).ThisfundingwillusetheradiographstheBOSSStudytoautomatethedetec<onofradiographicoutcomes,andtotrytopredictlatediseasepaZernsfromearlyradiographicfeatures.UnfortunatelyagrantfromAc<onMedicalResearchaboutthemechanicsofSCFE,inassocia<onwithProfMikeFagan(UniversityofHull)hasbeenturneddown.

BOSSStudyDay

“One of the fastest recruiting studies in the UK”

AcrossthePondWehavehadcontactfrombytheUSAandCanadaexpressingtheirkeennesstomirrortheBOSSStudy.WeareworkingwiththethroughtheIMPACCT

networktodevelopinterna<onalcollabora<ons.

TheBOSSStudyhasamazingengagement,andweneedtoharnesseveryone’senthusiasmtoplanthenextstudy….NIHRrepresenta<vehaveexpresseddelightwithBOSSrecruitment,andthereisawillingnesstosupportandenablethegrouptobeaworld-leadingresearchcollabora<ve.Amee<ngisplannednexttoNewStreetSta<oninBirmingham(10amstart)inNovembertoplanthenextstepsfortheBOSSCollabora<ve.WehaveaskedtheRCSEngforCPDpoints,andhaveabudgettosupporttravelexpensesetc.Registerviathee-maillinksentwiththisnewsleZer.

Monday14thNovTheStudio,Birmingham

Requestsfromthestudymanager…

E-mailCaseConfirma$on.Pleaseconfirmcaseuploadsbyclickingthelinkonthee-mail,ratherthane-mailingus–itisfarsimplertomanage(andtakesabout10secondstodo).Pa$entID.Justtoremindyouthatthestudygeneratesauniquenumber,i.e.15-3–thisisthenumberthatyoushouldincludeonconsentformsandques<onnaires.Pleasedonotincludeanyiden<fiabledetails(i.e.name/DOB).Makesureyoukeepanoteofthisstudynumberalongwiththepa<entname,DOBetcinyourhospital.SendingusconsentformsFor those taking part in theconsented element of thestudy, please ensure thatconsent forms and pa<entmaterialsaresentbypostorfaxtotheCTU–note-mail.

Any questions contact BOSS@liverpool.ac.uk

DrEmmaCwiklinskiBOSSStudyCoordinator

SendingRadiographs.WewouldpreferradiographsviatheIEPlink(beZerimagequality).Wewillsendaformaldocumenttoresearchteamsinthenextweek.PROCEDUREFORPACSTEAMS:q  Iden<fythex-raystudytobetransferred.q Duplicatetheimagesandanonymisethe

pa<entdetailsasfollows:•  ReplacetheName,NHSNumber,Hospital

numberandanyotherPIDwiththeBOSSStudynumber.

•  Replacethedateofbirthwiththedate1stJanuary2001.

•  Ensurethattherearenootheritemsofdataonthestudythatcouldiden$fythepa$ent.YourInforma<onGovernancePolicywillprovidefurtherdetails.

q LogintoIEP,createanewtransfer.q Enterthedes<na<onas“AlderHeyChildren’s

NHSFounda5onTrust”.q Enterthedemographicsforthepa<ent

(BOSSStudynumberassurname,forename,hospitalnumberandNHSnumber,andthedateofbirthas01/01/2001).

q SelectthestudyfromtheStudieslist.q SelecttheDes<na<onNode“RBS_Research”

andthePriority“OvernightDownload”.

WhoaretheBOSSCollabora$ve?

Whoaretheleadinves$gatorsatsites(1of2)?

HOSPITAL LEAD+CONSULTANTAbertawe Bro Morgannwg University Health Board (Swansea, Wales) Paul WilliamsAlder Hey Children's NHS Foundation Trust Colin BruceAneurin Bevan Health Board (Wales) Mr Sujit KadambandeBarking, Havering and Redbridge University Hospitals NHS Trust Krishna VemulapalliBarnet and Chase Farm Hospitals NHS Trust Bob ChatterjeeBarnsley Hospital NHS Foundation Trust Nick NicolaouBarts & The London Manoj RamachandranBasildon and Thurrock University Hospitals NHS Foundation Trust Madhu TiruveedhulaBedford Hospital NHS Trust Phillip EdgeBetsi Cadwaladr University Health Board (Wales) * Mr Koldo AzurzaBirmingham Children's Hospital NHS Foundation Trust Ed BacheBlackpool Teaching Hospitals NHS Foundation Trust Amit ShahBolton NHS Foundation Trust Mr MajidBradford Teaching Hospitals NHS Foundation Trust David ShawBrighton and Sussex University Hospitals NHS Trust Naidu MaripuriBuckinghamshire Healthcare NHS Trust Jo HicksCalderdale and Huddersfield NHS Foundation Trust * Mr Nitish GogiCambridge University Hospitals NHS Foundation Trust Kuldeep StohrCardiff and Vale University Local Health Board Clare CarpenterCentral Manchester University (Manchester Children's) Sattar Alshryda Chelsea and Westminster Hospital NHS Foundation Trust Stuart EvansChesterfield Royal Hospital NHS Foundation Trust John CashmanCity Hospitals Sunderland NHS Foundation Trust Mr G De KiewietColchester Hospital University NHS Foundation Trust V Shiv ShankerCountess Of Chester Hospital NHS Foundation Trust Pete KenyonCounty Durham and Darlington NHS Foundation Trust Jonathan PageCroydon Health Services NHS Trust Miss Karen DalyCwm Taf Health Board Judy MurrayDerby Hospitals NHS Foundation Trust Mohan UtukuriDoncaster and Bassetlaw Hospitals NHS Foundation Trust Robert KuchaskiDorset County Hospital NHS Foundation Trust Nicholas SavvaEast and North Hertfordshire NHS Trust Nick de RoeckEast Kent Hospitals University NHS Foundation Trust (QEQMH) Mark CornellEast Lancashire Hospitals NHS Trust Robin PatonEast Sussex Healthcare NHS Trust Adrian Butler-ManualEpsom and St Helier University Hospitals NHS Trust Mark ChurchillFrimley Park Hospital NHS Foundation Trust Azal JalgaonkarGloucestershire Hospitals NHS Foundation Trust Mr R BrownGreat Ormond Street Hospital for Children NHS Foundation Trust Andreas RoposchGreat Western Hospitals NHS Foundation Trust Sarah IrbyGuy's and St Thomas' NHS Foundation Trust Mr Fabian Norman-TaylorHampshire Hospitals NHS (Baisingstoke) Nigel RossiterHampshire Hospitals NHS (Winchester) Iain MacLeod Harrogate and District NHS Foundation Trust * Mr David LavaletteHeart Of England NHS Foundation Trust Rozalia DimitriouHillingdon Hospitals NHS Foundation Trust * Sanjay KumarHinchingbrooke Health Care NHS Trust Mr Arpit PatelHomerton University Hospital NHS Foundation Trust Toby BaringHull and East Yorkshire Sally HobsonImperial College Healthcare NHS Trust * Raj BhattacharyaIpswich Hospital NHS Trust Graeme CarlileJames Paget University Hospitals NHS Foundation Trust * Anish SnaghrajkaKettering General Hospital NHS Foundation Trust S ShyamsunderKing's College Hospital NHS Foundation Trust Om LahotiLancashire Teaching Hospitals NHS Foundation Trust Tony McEvoyLeeds General Infirmary Colin HoltonLewisham and Greenwich NHS Trust * Mohammed Abdus-SameeLuton and Dunstable Hospital NHS Foundation Trust Yega kalairajahMaidstone and Tunbridge Wells NHS Trust Jo DartnellMedway NHS Foundation Trust * Prof Bijay SinghMid Cheshire Hospitals NHS Foundation Trust David MachinMid Essex Hospital Services NHS Trust Jeremy TuiteMid Yorkshire Hospitals NHS Trust Nirmal TulwaMilton Keynes Hospital NHS Foundation Trust Julian FlynnNorfolk and Norwich University Hospitals NHS Foundation Trust Anish SanghrajkaNorth Cumbria University Hospitals NHS Trust Carol BrignallNorth West London Hospitals NHS Trust (also includes Ealing above) Ian HollowayNorthampton General Hospital NHS Trust Mr R NatarajanNorthern Devon Healthcare NHS Trust Nick TrebleNorthern Lincolnshire and Goole Hospitals NHS Foundation Trust F R HowellNorthumbria Healthcare NHS Foundation Trust John LeitchNottingham University Hospitals NHS Trust Kathryn PriceOxford University Hospitals NHS Trust Rachel BuckinghamPennine Acute Hospitals NHS Trust (North Manchester) Edward Yates

HOSPITAL LEAD+CONSULTANTPennine Acute Hospitals NHS Trust (Oldham) Mr Ardeshir BonshahiPeterborough and Stamford Hospitals NHS Foundation Trust Mr P MitchellPlymouth Hospitals NHS Trust Ben HolroydPoole Hospital NHS Foundation Trust Alexander Aarvold Queen Alexander Hospital, Porstsmouth Robert RichardsQueen Elixabeth Hospital, Woolwich - part of University Hospital LewishamSunil BajajRobert Jones and Agnes Hunt Orthopaedic and District Hospital NHS TrustRobert FreemanRoyal Berkshire NHS Foundation Trust Nev DaviesRoyal Cornwall Hospitals NHS Trust Mr Russell HawkinsRoyal Devon and Exeter NHS Foundation Trust Peter CoxRoyal Free London NHS Foundation Trust Olivia Malaga ShawRoyal National Orthopaedic Hospital NHS Trust Deborah EastwoodRoyal Surrey County NHS Foundation Trust Chris CoatesRoyal United Hospital Bath NHS Trust Andy McBrideRoyal West Sussex AND Worthing And Southlands Hospitals Nhs Trust Adam AjisSalisbury NHS Foundation Trust Phil Pettit Sandwell and West Birmingham Hospitals NHS Trust Siten RoyScarborough and North East Yorkshire Health Care NHS Trust Suraj JoshySheffield Children's NHS Foundation Trust Sanjeev MadanShrewsbury and Telford Hospital NHS Trust* Jae RheeSouth Devon Healthcare NHS Foundation Trust Guy WansbroughSouth Tees Hospitals NHS Foundation Trust Hopcroft Richard Southport and Ormskirk Hospital NHS Trust Marcus CopeSt George's Healthcare NHS Trust Ms Karen DalySt Helens and Knowsley Hospitals NHS Trust Stephen LipscombeStockport NHS Foundation Trust Barnes MorganTameside Hospital NHS Foundation Trust Wiqqas JamilTaunton and Somerset NHS Foundation Trust Andrew J KellyThe Dudley Group NHS Foundation Trust Veronique SpiteriThe Newcastle Upon Tyne Hospitals NHS Foundation Trust Philip HenmanThe Princess Alexandra Hospital NHS Trust Alex AminiThe Rotherham NHS Foundation Trust Stephen GilesThe Royal Wolverhampton NHS Trust Ram VadiveluThe Whittington Hospital NHS Trust Adrian O'Gorman United Lincolnshire Hospitals NHS Trust Tom SouthornUniversity College London Hospitals NHS Foundation Trust Mr Michael J OddyUniversity Hospital Of South Manchester NHS Foundation Trust Nasser KurdyUniversity Hospital Southampton NHS Foundation Trust Alex AarvoldUniversity Hospitals Bristol NHS Foundation Trust Fergal MonsellUniversity Hospitals Coventry and Warwickshire NHS Trust Stephen CookeUniversity Hospitals Of Leicester NHS Trust Mr Alwyn AbrahamUniversity Hospitals Of Morecambe Bay NHS Foundation Trust Paul MarshallUniversity Hospitals of the North Midlands Belen CarsiWarrington and Halton Hospitals NHS Foundation Trust David AtkinsonWest Hertfordshire Hospitals NHS Trust* Krisztian DeierlWest Middlesex University Hospital NHS Trust* Hilal Fareed West Suffolk NHS Foundation Trust Miss S DeakinWexham Park (Frimley Health NHS) Jacob ThampyWhipps Cross University Hospital Kes Sri-RamWirral University Teaching Hospital NHS Foundation Trust Gillian JacksonWorcestershire Acute Hospitals NHS Trust Charlie DockerWrightington, Wigan and Leigh NHS Foundation Trust Henry Wynn Jones Wye Valley NHS Trust Iain BissellYork Teaching Hospital NHS Foundation Trust Ken Mannan

Whoisn’tintheBOSSgroup?•  AiredaleNHSTrust(althoughtheyarenowtryingtojoin)•  NorthMiddlesexHospital(nocontactatallestablishedeventhroughthemedicaldirector)•  Fife(threateningtoleaveowingtoproblemswithadministra<on)

“The biggest study on the NIHR portfolio – almost everyone treating orthopaedic diseases

of childhood”

Whoaretheleadinves$gatorsatsites(2of2)?