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AUTISM SPEAKS-FUNDED RESEARCHERS & PARTNERSHIPS ON DISPLAY AT INSAR 2019 MAY 1 - 4, 2019 | MONTREAL, CANADA ENHANCING LIVES TODAY AND ACCELERATING A SPECTRUM OF SOLUTIONS FOR TOMORROW

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Page 1: AUTISM SPEAKS-FUNDED ON DISPLAY AT INSAR 2019 · across the spectrum and throughout the life span, for the needs of individuals with autism and their families. We do this through

AUTISM SPEAKS-FUNDED RESEARCHERS & PARTNERSHIPS

ON DISPLAY AT

INSAR 2019MAY 1 - 4, 2019 | MONTREAL, CANADA

ENHANCING LIVES TODAY AND ACCELERATING A SPECTRUM OF SOLUTIONS FOR TOMORROW

Page 2: AUTISM SPEAKS-FUNDED ON DISPLAY AT INSAR 2019 · across the spectrum and throughout the life span, for the needs of individuals with autism and their families. We do this through

AUTISM SPEAKS-FUNDED RESEARCHERS & PARTNERSHIPS ON DISPLAY AT INSAR 2019

PLEASE USE THIS BROCHURE AS A ROADMAP TO

EXPLORE THE POSTERS, ORAL PRESENTATIONS,

SPECIAL INTEREST GROUPS AND OTHER EVENTS

THAT FEATURE AUTISM SPEAKS INVESTIGATORS,

FELLOWS AND RESEARCH PARTNERS AT THIS YEAR’S

ANNUAL MEETING. THE ABSTRACTS REPRESENT A

DIVERSE PORTFOLIO OF COLLABORATIVE PROGRAMS.

WE HOPE YOU’LL VISIT, ENGAGE AND CELEBRATE

THIS GROUNDBREAKING WORK.

Page 3: AUTISM SPEAKS-FUNDED ON DISPLAY AT INSAR 2019 · across the spectrum and throughout the life span, for the needs of individuals with autism and their families. We do this through

TUESDAY, APRIL 30, 2019

CST Technical Consultation and Coordination Meeting

CST Regional Focal Point Training and Consultation Meeting

WEDNESDAY, MAY 1, 201911:00 AM

Ramezay Room | 8th floor Le Westin Montreal, 270 Rue Saint-Antoine 

PRESS CONFERENCE

Ruth Ann Luna (GI grant support) Abstract ID#31722 Gut Feelings: Linking Gastrointestinal Multi-Omic Profiles with Complex Phenotypes in Pediatric ASD

THURSDAY, MAY 2, 201911:30 AM - 1:30 PM

POSTERS

MEDICAL AND PSYCHIATRIC COMORBIDITY

Arun Karpur# Abstract ID#29626 Factors Predicting Psychiatric Disorders Among Children with ASD: Analysis from the 2016 National Survey of Children’s Health

Maya Reiter (Weatherstone Predoctoral Fellow) Abstract ID#30273 Amygdala-Frontal Functional Connectivity Predicts Longitudinal Anxiety during the Transition to Adulthood in Autism

Daniel Coury (Autism Treatment Network)* Abstract ID#30496 Association of Child and Adolescent Sleep Problems with Child and Parental Health

Amanda Bennett (Autism Treatment Network)* Abstract ID#31831 Behavioral Concerns Associated with Sleep Disturbance Severity in Children with ASD

DIAGNOSTIC, BEHAVIORAL, SENSORY AND INTELLECTUAL SCREENING AND ASSESSMENT

Micah Mazurek et al (Autism Treatment Network)* Abstract ID#30758 Developmental and Autism-Specific Screening Practices among Primary Care Providers

ORAL PRESENTATIONS

2:30 PM - 3:25 PM

NEUROPATHOLOGY / -OMICS

Ruth Ann Luna (GI grant support) Abstract ID#31722 Gut Feelings: Linking Gastrointestinal Multi-Omic Profiles with Complex Phenotypes in Pediatric ASD

POSTERS

5:30 PM - 7:00 PM

NEUROPSYCHOLOGY

Robyn M. Busch, Thomas Frazier# Abstract ID#31145 Neurobehavioral Phenotype of Autism Spectrum Disorder Associated with Germline Heterozygous Mutations in PTEN

KEY | Grantee | # Autism Speaks Staff

* This ATN/AIR-P activity was supported by Autism Speaks and cooperative agreement UA3 MC11054 through the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Research Program to the Massachusetts General Hospital. This work was conducted through the Autism Speaks Autism Treatment Network.

AUTISM SPEAKS-FUNDED RESEARCHERS & PARTNERSHIPS ON DISPLAY AT INSAR 2019

Page 4: AUTISM SPEAKS-FUNDED ON DISPLAY AT INSAR 2019 · across the spectrum and throughout the life span, for the needs of individuals with autism and their families. We do this through

KEY | Grantee | # Autism Speaks Staff

* This ATN/AIR-P activity was supported by Autism Speaks and cooperative agreement UA3 MC11054 through the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Research Program to the Massachusetts General Hospital. This work was conducted through the Autism Speaks Autism Treatment Network.

INTERVENTIONS – NON-PHARMACOLOGIC – INFANT, TODDLER, AND PRESCHOOL

Melissa Maye (Weatherstone Predoctoral Fellow) Abstract ID#31241 Encouraging Toddlers with ASD to Request: An Exploration of Expectant Pausing and Engagement Strategies

DIAGNOSTIC, BEHAVIORAL, SENSORY AND INTELLECTUAL SCREENING AND ASSESSMENT

Amy Shui et al (Autism Treatment Network)* Abstract ID#29765 Effects of Age, IQ, and Sex on Autism Diagnostic Instrument Scores

EVENT

7:00 PM - 9:00 PM

AUTISM SPEAKS RECEPTION

Reporter Bar | 3rd floor Le Westin Montreal, 270 Saint-Antoine Ouest

FRIDAY, MAY 3, 20197:15 AM - 8:45 AM

Room 522

SPECIAL INTEREST GROUP

Ramzi Nasir, Laura Pacion, Antria Spyridou, Jinan Zeidan, Andy Shih# (Public Health Program Support)

Autism and Related Disorders in the Context of Humanitarian Emergencies

Autism in Humanitarian Settings

PANELS

10:30 AM-12:30 PM

HEALTH AND WELL-BEING IN TRANSITION-AGE YOUTH AND ADULTS WITH AUTISM SPECTRUM DISORDER

Lisa Croen (Public Health Grant) Abstract ID #29950 Are Health Care Providers Ready to Transition Teens with Autism Spectrum Disorders to Adult Care? A Survey of Clinical Providers in California

THE MULTIPLE POWERS OF EYE TRACKING IN EARLY DEVELOPMENTAL RESEARCH: FROM MECHANISM TO DIAGNOSTIC, PROGNOSTIC, AND CLINICAL CHARACTERIZATION UTILITY

Thomas Frazier# Abstract ID#31937 A Brief Remote Eye Tracking Paradigm May Enhance Clinical Evaluation of Autism Risk and Language Level

POSTERS

11:30 AM - 1:30 PM

FAMILY ISSUES AND STAKEHOLDER EXPERIENCES

Alycia Halladay, Arun Karpur#, Joan New#, Casey Gold, Alison Singer, Thomas Frazier# (Science Program Support) Abstract ID#30213 Determining Impact of Fellowship Grants in Autism Research

Cecilia Montiel-Nava (Public Health Program Support) Abstract ID#30050 Parents’ Attitudes Toward the Process of Attaining a Diagnosis of Autism Spectrum Disorder for Their Children

Eric Butter, Kevin Stephenson et al (Autism Treatment Network)* Abstract ID#29746 Mechanisms of Parental Stress Associated with Emotional and Behavioral Problems in Children with Autism Spectrum Disorder

AUTISM SPEAKS-FUNDED RESEARCHERS & PARTNERSHIPS ON DISPLAY AT INSAR 2019

Page 5: AUTISM SPEAKS-FUNDED ON DISPLAY AT INSAR 2019 · across the spectrum and throughout the life span, for the needs of individuals with autism and their families. We do this through

PANELS

3:30 PM - 5:30 PM 

“DEVELOPMENTAL DISCONNECTIONS” IN INFANTS AT RISK FOR ASD

Xuan A. Tran (Weatherstone Predoctoral Fellow) Abstract ID #31777 Functional Connectivity during Language Processing in Infants at Familial Risk for ASD

SLEEP, CIRCADIAN NEUROSCIENCE, AND AUTISM ACROSS THE LIFESPAN

Beth Malow (Autism Treatment Network)* Abstract ID#: 33041 Interventions for Sleep and Circadian Rhythms

POSTERS

5:30 PM - 7:00 PM 

SERVICE DELIVERY/SYSTEMS OF CARE

Beth Malow (Autism Treatment Network)* Abstract ID#29926 ECHO Autism Transition: An Innovative Approach for Increasing Access to Healthcare for Adolescents and Young Adults with Autism Spectrum Disorder

PEDIATRICS

Fenning R. M, Steinberg Epstein R., Butter E., Hammersmith K., McKinnon-Bermingham K., Norris M., Moffitt J. M., Coury D.L., Lu F., Macklin E., Kuhlthau K. (Autism Treatment Network)* Abstract ID#30208 Daily dental care, dental office experiences, and oral health in underserved children with ASD

MOLECULAR GENETICS

Stephen Scherer (MSSNG Program Support) Abstract ID #31214 The Autism Speaks MSSNG Whole Genome Sequencing Precision Medicine Resource

SOCIAL COGNITION AND SOCIAL BEHAVIOR

Emily Neuhaus (Meixner Postdoctoral Fellow) Abstract ID#31190 Social Motivation by Self- and Parent-Report: Reporter Correspondence and Social Correlates

SENSORY, MOTOR, AND REPETITIVE BEHAVIORS AND INTERESTS

Amanda Bennett (Autism Treatment Network)* Abstract ID#30361 Sensitivity to Sounds and Touch and Sleep Concerns in Children with ASD

Alison Marvin, Beth Malow, Amanda Bennett, Daniel Coury (Autism Treatment Network)* Abstract ID #30011 Measures of Effectiveness for Single-Question Sleep Problem Screeners in Children with ASD

SERVICE DELIVERY/SYSTEMS OF CARE

Micah Mazurek et al (Autism Treatment Network)* Abstract ID#29835 Caring for Children with ASD in Primary Care: Perceived Barriers and Needs for Support

Olivia Lindley et al (Autism Treatment Network)* Abstract ID#30723 Service Use Classes Among School-Aged Children from the Autism Treatment Network Registry

Courtney Burnette et al (Autism Treatment Network)* Abstract ID#30036 A Novel Approach for Building Clinical Capacity of Pediatric Providers in Rural and Underserved Communities

12:30 PM - 1:30 PM

CULTURAL DIVERSITY NETWORKING LUNCHEON

AUTISM COMMUNITY STAKEHOLDER LUNCHEON

AUTISM SPEAKS-FUNDED RESEARCHERS & PARTNERSHIPS ON DISPLAY AT INSAR 2019

Page 6: AUTISM SPEAKS-FUNDED ON DISPLAY AT INSAR 2019 · across the spectrum and throughout the life span, for the needs of individuals with autism and their families. We do this through

ABOUT AUTISM SPEAKS

Autism Speaks is dedicated to promoting solutions,

across the spectrum and throughout the life span,

for the needs of individuals with autism and their

families. We do this through advocacy and support;

increasing understanding and acceptance of people

with autism; and advancing research into causes and

better interventions for autism spectrum disorder

and related conditions.

To learn more about Autism Speaks,

please visit AutismSpeaks.org.

KEY | Grantee | # Autism Speaks Staff

* This ATN/AIR-P activity was supported by Autism Speaks and cooperative agreement UA3 MC11054 through the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Research Program to the Massachusetts General Hospital. This work was conducted through the Autism Speaks Autism Treatment Network.

COMMUNICATION AND LANGUAGE

Amy Shui et al (Autism Treatment Network)* Abstract ID#29848 Understanding Pediatric Quality of Life in Autism Spectrum Disorder: Variability in Dimensions in Children with Varying Language Levels

MEDICAL AND PSYCHIATRIC COMORBIDITY

Jean Gehricke et al (Autism Treatment Network)* Abstract ID#29935 Physical Exercise and Bone Fracture Rates in North American Children with Autism Spectrum Disorder

SATURDAY, MAY 4, 201911:30 AM – 1:30 PM

POSTERS

BIOMARKERS (MOLECULAR, PHENOTYPIC, NEUROPHYSIOLOGICAL, ETC)

Rachael Muscatello (Weatherstone Predoctoral Fellow) Abstract ID #30142 Interactions between the Hypothalamic-Pituitary-Adrenal Axis and Autonomic Nervous System as Predictors of Depressive Symptoms in Children with ASD

NEUROANATOMY

Maya Reiter (Weatherstone Predoctoral Fellow) Abstract ID#30312 Atypical Anatomy of Primary Visual Cortex and Links with Intelligence in Children with Autism Spectrum Disorders

DIAGNOSTIC, BEHAVIORAL, SENSORY AND INTELLECTUAL SCREENING AND ASSESSMENT

Deborah Pearson, Donna Murray# Abstract ID#29711 Toddlers with Tuberous Sclerosis Complex with Comorbid Autism Spectrum Disorder at High Risk for Adaptive Behavior Delay By 36 Months

ADULT OUTCOME: MEDICAL, COGNITIVE, BEHAVIORAL, SOCIAL, ADAPTIVE, VOCATIONAL

Cecilia Montiel-Nava (Public Health Program Support) Abstract ID #30020 Service Use in Adolescents and Adults in Latin America. Results from a Multisite Study

EPIDEMIOLOGY/POPULATION STUDIES

Micah Mazurek et al (Autism Treatment Network)* Abstract ID#30824 Prevalence and Clinical Characteristics of Social (Pragmatic) Communication Disorder in a Clinic-Referred Sample

PANELS

1:30 PM - 3:30 PM

LESSONS LEARNT FROM THE FIELD-TESTING OF THE W.H.O. CAREGIVER SKILLS TRAINING

Erica Salomone (Public Health Program Support) International Field-Test of the W.H.O. Caregiver Skills Training for Families of Children with Developmental Disorders or Delays

Rosa Hoekstra (Public Health Grant) Pre-Testing the W.H.O. Caregiver Skills Training Programme for Implementation in Urban and Rural Ethiopia

Amina Abubakar (Public Health Program Support) The Acceptability, Feasibility and Preliminary Evaluation of the W.H.O. Caregiver Skill Training Programme in Rural and Urban Kenya

Mayada Elsabbagh (Public Health Program Support) Facilitators and Barriers to Implementation of Manualized Interventions in Community Based Settings

Page 7: AUTISM SPEAKS-FUNDED ON DISPLAY AT INSAR 2019 · across the spectrum and throughout the life span, for the needs of individuals with autism and their families. We do this through

ABOUT AUTISM SPEAKS

Autism Speaks is dedicated to promoting solutions,

across the spectrum and throughout the life span,

for the needs of individuals with autism and their

families. We do this through advocacy and support;

increasing understanding and acceptance of people

with autism; and advancing research into causes and

better interventions for autism spectrum disorder

and related conditions.

To learn more about Autism Speaks,

please visit AutismSpeaks.org.

Page 8: AUTISM SPEAKS-FUNDED ON DISPLAY AT INSAR 2019 · across the spectrum and throughout the life span, for the needs of individuals with autism and their families. We do this through

© 2019 Autism Speaks Inc. Autism Speaks and Autism Speaks Design are registered trademarks owned by Autism Speaks Inc. All rights reserved. The use of unaffiliated representatives for endorsement, advertising, promotional and sales material is prohibited by law.

These projects, presentations and events are examples of the breadth of research collaborations, initiatives and studies that Autism Speaks

supports through funding and other resources, but is not an exhaustive list of Autism Speaks-funded research. We apologize if a project was

inadvertently missed.

THE 2019 ANNUAL MEETING

OF THE INTERNATIONAL SOCIETY

FOR AUTISM RESEARCH

CONNECT WITH US

Please visit us at BOOTH #203 to learn more about our scientific programs and resources.

PLEASE SCAN TO ACCESS ALL AUTISM SPEAKS’ INSAR CONTENT