autism strategy survey 2017 - open objects software ltd · pdf fileautism strategy survey 2017...

Autism Strategy Survey 2017

We are putting together a strategy that sets out how we can help people with autism, aged 18 and over, get the services they need. We’d also like to help everyone learn about autism.

If you're living with autism, or are a parent or carer of someone with autism, we'd like to ask you about different aspects of your life including; school, finding a job, living arrangements and using local services, and the experiences you've had. You don’t have to answer a question if you don’t want to, and we won’t let anyone else have the information you give us.

If you have any questions, or need any help, please contact the Public Health and Wellbeing team at [email protected] This survey is open from 11 September to 10 December 2017. Diagnosis

1. What autism diagnosis do you have?

Autism Spectrum Disorder (ASD)

Asperger's syndrome

I don’t have a formal diagnosis, but I believe I am on the autistic spectrum

I don’t have a formal diagnosis, but I am being assessed

2. How old were you when you were diagnosed?

I don’t have a formal diagnosis 18 to 25

0 to 4 26 to 50

5 to 10 51 to 65

11 to 17 over 65

3. Do you have another type of disability?

If you answered ‘Yes’, please tell us what your other disability is.

mailto:[email protected]�


4. What was your experience of being diagnosed?

I don’t have a formal diagnosis yet

It was easy to get a diagnosis

I was given enough information about my diagnosis

I had someone to help me understand what my diagnosis meant for me

Is there anything else you’d like to tell us about your experience of being diagnosed?

Information and advice

5. Have you been able to find all the information you need on your diagnosis and the support that you can get?

If you answered 'No', please tell us a little about the problems you've had finding the information you need.


6. Where do you get your information from?

Parents/carers

Other family members

Friends

Other people with ASD/Asperger’s

Internet

A local charity

A local support group

West Berkshire Council

Other – please specify:

7. Do you think it would be helpful to have all the information you might need in one place?

If you answered ‘Yes’, please tell us a little about what format you would like it in.


Education

8. Which types of school did you attend? You can tick more than one.

Special school Independent school

Mainstream primary Post 16 special

Mainstream secondary Post 16 mainstream

Resourced unit Sixth form

Special residential school College

Mainstream residential school Post 18 college

Home schooled University

Other - please specify:

9. What was your experience of school life?

My teachers understood my autism

I had a helper or someone I could go to

I was given enough notice if my routine or timetable was changing

I had a quiet area I could go to

I had things explained in a way that I could easily understand

I was bullied

I didn’t feel supported

I didn’t enjoy being at school

Is there anything else you’d like to tell us about your experience of school life?


Employment

10. Are you currently working, including volunteering?

Please continue from Q12

Please answer Q11 and then continue from Q16

11. Please tell us why you aren't currently working.

I’m at school, college or university (full-time or part-time)

I’m trying to find work

I can’t work because of my illness or disability

I’m retired


12. What is your occupation?

Manager, director, senior official

Professional

Administrative and secretarial

Skilled trade

Caring, leisure and other service occupations

Sales and customer service

Process, plant and machine operative



13. What type of work or volunteering are you doing?

I work full–time for someone else (30 hours or more a week)

I work part-time for someone else (less than 30 hours a week)

I work for myself (full or part time)

I am on a government training programme, for example an Apprenticeship

I work as a volunteer full-time (30 hours or more a week)

I work as a volunteer part-time (less than 30 hours a week)


14. Did you have help finding work?




15. Who helped you find work?

Parents/carers


Friends

A local charity


Job centre




16. Do you think it’s easy to find a job?

If you answered 'No', please tell us what makes its difficult to find a job.

17. Please tell us about your working life experience up until now.

My employers understand/understood my autism

My colleagues understand/understood my autism

Things are/were explained in a way I can/could easily understand

I have/had a specific person I can/could go to if I need/needed help

I have/had a work schedule that gives/gave me a clear routine

I am/was given plenty of notice if my schedule is/was changing

My surroundings have been/were made comfortable for me

I have/had help to prevent/stop me being bullied

I am/have been stressed at work

Is there anything else you’d like to tell us about your experience of working life?


18. Do you think it’s easy to get onto training courses e.g. on the job or professional training and community learning?

If you answered 'No', please tell us what makes its difficult.

Travel

19. How do you travel e.g. to work or to local facilities and services?

I drive myself

Someone else drives me

I use public transport e.g. bus or train

I use a taxi

I cycle

I walk



20. Do you find it easy to travel on your own e.g. to work or local facilities and services?

If you answered 'No', please tell us what makes travelling difficult.

Local facilities and services

21. Do you think the following facilities and services in West Berkshire are autism friendly (meaning you can use these facilities and services without having sensory or social overload)?

Banks

Community activities

Council offices

Health services e.g. dentist and doctors

Libraries

Museums, theatres and cinemas

Parks and open spaces

Places to practice your religion


Public transport e.g. buses and trains

Schools

Shops

Sports and leisure facilities

If you answered 'No', please tell us what makes these facilities and services not autism friendly.

22. Are there any changes that could be made to these facilities and services to make them

more autism friendly?

If you answered 'Yes', please tell us what changes you would make.


23. How do you find out about activities and events in your community?

TV and radio

Newspaper

Local magazine

Internet

Through other people e.g. family and friends

Through other autistic people

Through local charities and support groups

Library

GP surgery



Housing

24. What type of housing do you live in?

I own my home

I rent my home

I live with my parents/carers

I live in Supported Living, a care home or in a Shared Lives home


25. Who do you live with?

On my own

With parents/carers

With partner and/or children

With other family members

With other people, who are not family



26. Have you ever had any help with finding somewhere to live?




Not applicable - I've never needed any help or support to find housing


27. Who helped you to find housing?

Parents/carers


Friends

A local charity




28. Do you think it's easy to find somewhere to live?

If you answered 'No', please tell us what makes it difficult to find somewhere to live.


29. Do you struggle with any of the following?

Managing my bills

Doing housework

Shopping for food

Cooking for myself

Communicating with people

Getting to know new people

Staying safe

Thinking about where you live, is there anything else you struggle with?


30. Do you think your health is...?

Health

Very good

Good

Fair

Poor

Very poor

Is there anything else you’d like to tell us about your health?

31. Do you struggle with any of the following?

Eating healthily

Losing weight

Being physically active

Stopping smoking

Drinking less alcohol or stopping altogether


Getting sleep

Dealing with stress

Managing my long-term health problem

Managing my personal hygiene

Managing my mental health

Thinking about your health, is there anything else you struggle with?

32. What makes it difficult for you to make changes to your health?

I don’t have enough money

I don’t like to leave my house because of my autism

I have family commitments

I’m too busy at work

I have too many social commitments outside of work

My condition makes it difficult


Services aren’t autism friendly


33. How do you feel about your local health services?

I can access health and social care services provided by West Berkshire Council easily

I can access health screening e.g. breast cancer screening easily

I can access doctors, hospitals, dentist, opticians and pharmacies easily

Is there anything else you’d like to tell us about your experience of local health services?

Crime

34. Have you had any contact with the Criminal Justice System (CJS) in West Berkshire? This includes the Police, the Youth Offending Service, courts and probation. This could be as a victim, witness or offender.





35. How old were you when you had contact with the Criminal Justice System (CJS)? You can

tick more than one.

Under 18

18 or over

36. Were the CJS staff aware of your autism?

37. Do you think the CJS staff understood your needs and supported you?

If you answered 'No', please tell us why you felt misunderstood and unsupported.

If you find yourself in a situation where you cannot explain your behaviour to people around you or to the emergency services (such as the police), you can show them your Berkshire Autism Alert Card. It is the same size as a bank card.

Autism Alert Card

If you would like an Autism Alert Card, please contact Autism Berkshire on 01189 594 594 for more details. There is also information on their website - http://www.autismberkshire.org.uk/berkshire-autism-alert-card/

38. Do you know there is an Autism Alert Card available for free?




39. Do you carry an Autism Alert Card?




http://www.autismberkshire.org.uk/berkshire-autism-alert-card/�

http://www.autismberkshire.org.uk/berkshire-autism-alert-card/�


40. Have you used it?




41. Was it useful?

If you answered ‘Yes’ or 'No', please tell us why you the Autism Alert card was or wasn’t useful.

42. Do you have any other comments?


These questions are optional. Any information provided here will be kept confidential.

About You (Optional)

43. Gender:

Female Transgender Male

Male Gender variant/Non conforming

Transgender Female Prefer not to say

44. How old are you?

18-24 65-74

25-34 75-84

35-44 85 and over

45-54 Prefer not to say

55-64

45. What is your ethnicity?

Asian or Asian British Mixed

Black or Black British Gypsy or Irish Traveller

White or White British Prefer not to say


46. What town/village do you live in?

47. We may need to contact you about your responses in this questionnaire and to see if there is anything we can do to help you.

Are you happy for us to contact you? If yes, please tell us your details.

Name

Email address

Phone number


Thank you for taking the time to complete our survey.

Please return your completed feedback form by 10 December 2017 to:

Rachel Johnson, Senior Programme Officer, Public Health and Wellbeing, Council Offices, West Street House, West Street, Newbury, Berkshire, RG14 1BZ

Or email it to: [email protected]

mailto:[email protected]�

autism strategy survey 2017 - open objects software ltd · pdf fileautism strategy survey 2017...

Documents