barbara sharp, reablement workshop nov 2013
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Alzheimer Scotland Barbara Sharp
Practice Development Manager
Living Well with Dementia: A training programme for staff supporting people
with dementia at home
• What are we setting out to do?
• What have we based our ideas on?
• What is our proposal?
What are we setting out to do?
• To support staff to work in a reciprocal partnership with people with dementia and their families, contributing to meaningful outcomes for them
• To motivate and equip staff as to how to enable people with dementia to live life to their full potential
• To enhance the confidence and competence of staff in this supporting role
What have we based our ideas on? Voices of the experts ...
‘Some of us need to be re-abled ... to re-learn that they have the right and the ability, albeit sometimes with your support, to be in charge, as best they can be, of themselves. To be responsible for their own actions’
Richard Taylor 2009
Voices of the experts ...
‘A reciprocal learning and teaching partnership ... work with us – so that we can continue to cope ...
Andrew is more stable because he is involved and enabled – we take risks ...
Find staff who really care and are compassionate’
Ann (wife and carer)
Philosophy and models of care
• Person centred ethics and care (Baldwin, 2008;
Brooker 2006; Kitwood, 1997)
• Relationship centred care (Nolan et al. 2008; 2006;
2003)
• Rights based care (Cross-Party Group on Alzheimer's
2009)
• Concepts of ‘Recovery’ (Martin, 2009; Gavan, 2011)
• Personal adaptation (Repper and Perkins 2003)
Rights based care
Relationship Centred Exchange Model
Person with dementia
Support staff
Family
Theoretical Framework
• Shaped by a strong commitment to the personal outcomes approach to care
‘In a climate of limited resources, being clear about what makes a difference to people is more important than ever’ (Cook and Miller, 2012).
Policy frameworks
• Scotland’s Dementia Strategy (Scottish Government,
2010)
• Dementia Strategy 2013-16 Proposition Paper (Scottish Government, 2013)
• Promoting Excellence Skills and Knowledge Framework (Scottish Government 2011)
• Standards of Care for Dementia in Scotland (Scottish Government 2011)
Key documents for practice
Dementia Standards
I
• A diagnosis
• Be regarded as a unique individual
have
• Be treated with dignity and respect
• Be as independent as possible
the
• Included
• Access treatment, care and support
right
• Have support from carers who are educated and supported
• End of life care that reflects my wishes
Keeping
Well,
Prevention
and
Finding out
its Dementia
Living Well
with
Dementia
Living Well
with
increasing
help and
support
End of Life
and Dying
Well
Dementia is a journey
The 5
pillars of
post-
diagnostic
support
8 Pillars
Model
Approaches to learning
• Appreciative enquiry
• Confirmatory experience
• Modelling experience
• Interactive
• Experiential
• Practically relevant
• Positive and involving
Structure
• Directed pre-course learning - Promoting Excellence
• Gathering of baseline data for evaluation/research purposes
• Two days of taught content in a peer group setting and one day half day in joint skilled/enhanced level group
• Course work applied to practice
• Assessed components
• Post course evaluation – immediate and longer term
Experiential Learning
‘I have dementia but it does not define me. My action and hopes and dreams define me’
The Training team
• Barbara Sharp: Practice Development Manager, Alzheimer Scotland and Research Fellow, Alzheimer Scotland Centre for Policy and Practice
• Margaret Brown: Senior Lecturer, Institute for the Health and Well-being of Older People, University of West of Scotland (UWS)
• Alexandra Simpson: Consultant, Alzheimer Scotland
• Dr. Karen Watchmen: Lecturer, Alzheimer Scotland Centre for Policy and Practice, UWS
• Sandra Shafii: AHP dementia consultant
www.alzscot.org
Making sure no-one goes through dementia on their own