Sixty-Five Roses

• CF is one of the UK's most common life-threatening inherited diseases.

• Cystic Fibrosis affects over 8,500 people in the UK3 in 25,000 of the population.

• Over 2 million people in the UK carry the faulty gene that causes Cystic Fibrosis 1 in 25 of the population.

Survival of the Fittest…

The ∆F508 mutation occurred over 50,000

years ago in Northern Europe

Individuals with two copies of ∆F508 get

Cystic Fibrosis and often cannot reproduce.

People with one faulty copy are carriers and research suggests that this prevents water loss during cholera, greatly increasing chances of survival.

Treatment

Pills

30 a day210 a week450 a month

11,000 a year

Nebulizer

2x30 min sessions a day7 hours a week

360 hours a year

Physio

30 mins a day3.5 hours a week180 hours a year

Intravenous Injection’s

2-week course, every 3 months.

& Diet…

the best bit…

Strawsat theReady!!

and…..breathe….

to remind your lungs why they like the taste of air….

Just like life...

CF is a roller-coaster

• Gene therapy

• Lung reconditioning

• Life expectancy

• IVF

FYI - That needle has to go somewhere that’d bring a tear to any man’s face

http://www.cftrust.org.uk

CF Week8th – 14th May 2011

Any questions…Please come and speak to me!