bingo spells winning for bianh! – celebrating 25 years

THE BRAIN INJURY ASSOCIATION OF NEW HAMPSHIRE

52 Pleasant StreetConcord, NH 03301

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IN THIS ISSUE...BINGO Spells Winning for BIANH! – Celebrating 25 Years...... President’s & Executive Director’s Messages ........................ Page 2BINGO Spells Winning for BIANH! – (cont’d) ......................... Page 333rd Annual Brain Injury & Stroke Conference .................... Page 43rd Annual Bowling for Beauties .......................................... Page 5Disability Rights Center......................................................... Page 6Spotlight on Krempels ........................................................... Page 7Caregivers Respite Camp ....................................................... Page 8

BINGO Spells Winning for BIANH! – Celebrating 25 Years

Located in a quiet, nondescript building off of Central Street in Hudson, the local Kiwanis Hall has been the home to avidBingo players for many years. And for two nights every week, Bingoplayers support a special cause. Every Tuesday and Saturday night,Bingo players benefit the Brain Injury Association of New Hampshire.

Bingo is not new to the Brain Injury Association of New Hampshire. If we turnthe clock back to 1991, George W. Bushwas our President, a gallon of gasoline hadjust topped a dollar, a first-class stamp costjust a quarter, and the BIANH started a tra-dition that stands to this day: our weeklyBingo events.

It’s hard to believe that Bingo has beensuch an integral part of our Association fortwenty-five years. One player at a time,one game at a time, and one card at a time,players get together to renew friendshipsand share experiences, and if they arelucky, to come home with winnings. Whilesome players might head home with a few extra dollars in their pockets, jackpots of up to $60,000 are not uncommon.

Just ask Mike Marcoux. Mike has been working as a BIANHvolunteer for the last year-and-a-half. “My granddaughter was

born with a rare brain disorder, so that motived me to volunteer here,” shared Mike during a recent night at the Kiwanis Hall. Mike continues, “She is fourteen now and doing well.”

He has an easy smile and bright eyes. It’sclear to all who meet him that Mike enjoys being part of the BIANH team of Bingo volunteers.

“I really like the fact that everything thatcomes in directly supports the Brain InjuryAssociation of New Hampshire,” says Mikeas he shares his experience with a broadsmile. “I work every Tuesday and Saturdaynight to help the Association. Because I’mhealthy, I can help people.”

First-time visitors to the BIANH Bingoevents might be more than a little surprisedabout how much Bingo night feels like alarge and extended family reunion. Formany of the players, getting together for oneor two nights a week has been a tradition

carried on for decades.

With cards arranged in front of her, her soft voice only tells part ofJulie Beaudin’s story. “I’ve been playing Bingo for over sixty years.I have good friends here,” says Julie.

Continued on page 3

THE VOICE OF BRAIN INJURY –Help, Hope and Healing

I SSUE # 6 5 , SUMMER 2 0 1 6

IN THIS ISSUE...INSIGHTS ............................................................................ Page 933rd Annual BIANH Golf Classic........................................ Page 1030th Annual Walk by the Sea................................................ Page 12Save The Date - 10th Annual Caregivers Conference......... Page 13Elliot Clinics & Pine Tree Camp ......................................... Page 14Employment Success NCIL................................................. Page 15Brain Injury Awareness Day................................................. Page 16“Ask Jon”.............................................................................. Page 17

N E W S L E T T E RGOING GREEN? If you would like to receive the HEADWAY Newsletter by email, please contact [email protected]

By David A. Grant

PRESIDENT’S MESSAGE

Summer 2016 - HEADWAY Newsletter

BIANH Officers &Board of Directors

EXECUTIVE COMMITTEE

PresidentFreddi Gale, CBIS, Conway

Vice-PresidentRobin Kenney, Ed.D., Peterborough

TreasurerMichael Palmieri, Concord

SecretaryScott Dow, CBIST, Hampstead

Family Council RepresentativeDiane Schreck, NashuaJeannine Leclerc, Keene

Survivor RepresentativePaul Van Blarigan, Hollis

Professional RepresentativeJeremiah Donovan, MBA, CBIS, Hillsboro

Immediate Past PresidentLaura Flashman, Ph.D., Grantham

Executive DirectorSteven D. Wade, Concord

BOARD OF DIRECTORSDavid F. Bauer M.D., Lebanon Donna Beaudin, OTR/L, CBIST, NHA, SalemRobert S. Carey, Esq., Concord Patricia Ciarfella, Center Ossipee Catherine Costanzo, Esq., Henniker Nancy Craddock, Windham Gina England, MA, CC-SLP, ContoocookPhilip Girard, MS, Deerfield David Grant, Salem Jay Hamel, Londonderry Peter Isquith, Ph.D., Vermont Rosalie Johnson, Dover Elizabeth Kenney, Peterborough Jon Lanteigne, Bedford Eldon Munson, Jr., FrancistownHeather Rousseau, New Boston Schuyler Scribner, Durham Garry Sherry, MS, North Conway William Storo, M.D., Concord Lauren Weaver, MS., CCC-SLP, Dover

EX OFFICIOJohn Capuco, Psy.D., ConcordBud Elkind, CBIST, KeeneNewton Kershaw, Jr., Esq., ManchesterJohn Richards, MS, MBA, Peterborough

Publisher Brain Injury Association of New Hampshire

Editor Renee FistereDesign/Layout Cantin Design Inc.Printer Upper Valley Press

EXECUTIVE DIRECTOR’S MESSAGE

This past June marks the 25th Anniversary of our BrainInjury Association of NH charitable BINGO games!Over $3 million has been raised over the years to supporta wide array of programs and services to help supportpeople living with brain injury and family caregivers.

We send our thanks to Dee Sleeper and Annjie Dow fortheir on-going leadership in coordinating our charitable BINGO fundraising efforts.

New Hampshire State Laws allow charitable gaming solong as the proceeds benefit a charitable organization.Every Tuesday night and most Saturdays of each monthwe run a brain injury charitable BINGO game at theHudson Kiwanis Hall in Hudson, New Hampshire.Typically, over 300 people attend our games, so it takesa lot of coordination and effort to run a successfulBINGO program. Our thanks also go to the Hudson Kiwanis Club, which has been a long-time host of our game. Without their support we would have been unable to sustain our charitable BINGO gaming program.

What a successful 33rd annual Brain Injury Conferencein May! It is always a pleasure to hear many of the speakers, the Keynote Speakers - Gina England and Mike Casey – were especially touching. One of the most important messages is: with a great team (whoever they may be, especially family) accomplishments continue throughout life. This conference also brings together so many providers, survivors, and professionals in this field. It is indeedan honor and privilege to be among all.

It is also with mixed emotions that I again wish BudElkind all the best for his retirement plan taking him toFlorida. Bud Elkind has contributed so much for theBrain Injury Community for well over 25 plus years inso many different roles in New Hampshire and beyond.Bud will still be involved in his national role withACBIS and as the Chairman of the Board for the BrainInjury Association of America.

Summer is now upon us, and most importantly the enjoyment of summer vacations. This feeling of freedom and independence may cause many recklessactions. Studies also indicate that head injuries aremore likely to occur in the spring and summer months

Submission & Editorial Policy: HEADWAY is published by the Brain Injury Association of New Hampshire. The Editor invites and encourages contributions in the form of articles, special reports and artwork. BIA of NH reserves the right to edit or refuse articles submitted for consideration. The Association does not endorse, support, or recommend any specific method, facility, treatment or programmentioned in this newsletter. Please submit items to: Editor, Brain Injury Association of NH, 52 Pleasant Street, Concord, NH 03301. For advertising rates please call 603-225-8400.

by Freddi Gale, BIANH President

25 Years of Support for BIANHby Steven D. Wade BIANH Executive Director

and on weekends when adultsand children are more active.Traumatic Brain Injury is the leading cause of disabilityand death in children and adolescents nationwide.

We may know it as “summer” but in emergency roomsacross the country, the three-month period that followsspring is known as “trauma season.” This is especiallytrue here in the north when children and adults who havebeen cooped up for months emerge from hibernationand school classrooms. Bicycle accidents, swimming/diving accidents, ATV, dirt bike, and motorcycle accidents have a high number of hospital ad-missions but the most common is falls. From junglegyms, skateboarding, slipping on wet surfaces, ladders,and just everyday accidents, falls have exceeded motor vehicle accidents over the past five years fortrauma hospitalization. Physical activity is great for children and adults, but please use caution and when recommended be sure to wear helmets for those activities.

Enjoy your summer, please be safe and use all necessary precautions!

Our appreciation and thanksmust also go to Shirley Rooney,Dee Sleeper and Laurie Boyce– the core team who helped startthe BINGO games 25 years ago. Shirley and Dee arestill very much involved in the games, and 25 years latergenerously sharing of their time, talent, and expertise.

Last but not least, a hearty thanks must go to the 15 volunteers and workers who show up every game,each week, year in and year out, to run the BINGO game.They are a key reason for the long-time success of our charitable gaming effort. Thank you, BINGO volunteers!!

For more information about the BINGO games andLucky 7 Games – (www.bianh.org).

Every Tuesday, 6:45 – 9:00 pm, Hudson Kiwanis Hall,Melendy Rd, Hudson, NH.

Also, the first, third and fourth Saturday of each month,6:30- 9:00 pm.

Summer Follow-Up

HEADWAY Newsletter Summer 2016 -

Benefitted in part by the BIANH Bingoevents, this vital program offers direct supportto qualifying New Hampshire residents whoneed help with a wide range of expenses including specialized equipment, assistivetechnology, home modifications, as well astransportation needs and financial crisis assistance.

And while many of the weekly Bingo playerscome to the Kiwanis Hall just for the fun andcompanionship, a surprising number of players come to play knowing that the moneythey spend goes, at least in part, to the BrainInjury Association of New Hampshire.

“I’ve been volunteering here since February of2015,” says Stephanie Dow. “I work with individuals with developmental disabilitiesand brain injuries. It’s always very excitingwhen someone wins here,” she continues.“Everybody is like family here. You get to thepoint where you have personal relationshipswith the people here. It’s really great.”

Continued from page 1- BINGO Spells Winning for BIANH! – Celebrating 25 Years

Like a couple of partners-in-crime, everyweek, players Arlene and Dottie can be spottedsitting together, engaged in animated conversation. Theirs is typical of the manyfriendships that surround Bingo Night. Theycome to support the BIANH and that alone isenough. “I’ve been coming every Tuesdaynight for over four years,” exclaimed Dottie.Arlene, quick to chime in, added, “It’s a funnight out – and even better when you win!”She quickly and happily shared about winning$6,400.00 a few years ago. “It’s always a funnight out. And if you win something, that’s justa bonus!”

Long-time players will no doubt continue tosupport the Brain Injury Association of NewHampshire’s work through its Tuesday andSaturday Bingo nights at the Hudson KiwanisHall. New friendships will continue to developas they have for many years, and old friendswill continue to meet, catch up on life andspend time together.

But if you happen to hear an especially loudcheer as you pass by this quiet building, alucky player just might be going home with arather large jackpot. And in lockstep with thatjackpot is the critical funding that the BIANHneeds to continue its life-changing work.

Around here, we call that the ultimate win-winscenario!

At a spry ninety-one years old, most wouldthink Julie to be comfortably in her mid-seventies. “I have really good friends here –and sometimes I even win!”

And with every winner, the BIANH wins as well. Charitable gaming here in New Hampshire is a critical component to helping fund the Brain Injury Association ofNew Hampshire.

Through funds raised at its twice-weeklyBingo nights, the BIANH is able to pourmonies raised directly back into New Hampshire communities and help those whoneed it most – local residents who have hadlives affected by Traumatic Brain Injury.

The Brain Injury Community Support Program has a clearly defined mission: To support individuals with brain injuries andthose with neurodegenerative disorders to livein the community.


33RD ANNUAL BRAIN INJURY & STROKE CONFERENCE

On Wednesday, May 18th the Brain Injury Associationof NH held its 33rd annual conference at the Courtyard Marriott and Grappone Conference Center in Concord.

The morning began with an inspiring and emotionalkeynote address given by Mike Casey and Gina England, MA, CCC-SLP. Mike sustained a brain injury after a skiing accident in 1997 and spent 8months at HealthSouth Rehabilitation Hospital. Gina,a speech language pathologist, was part of Mike’srehab team. Mike and Gina shared their 8- month journey, giving the audience both sides of the story, beginning as patient and therapist and ending as friendto friend. Nineteen years later, their relationship stillendures. Mike’s family was also in attendance andspoke at the end providing the audience with a familyperspective as well.

The rest of the day was filled with equally inspiring andinteresting presentations covering a wide range of topicssuch as stroke, less common causes of brain injury, musictherapy, service dogs, cognitive strategies, visual disturbances, and much more.

During the luncheon, as is customary, the winners ofthe Ellen Hayes award were announced and presented.This award is the highest honor the Brain Injury Association of NH bestows upon two individuals fortheir outstanding efforts in support of individuals withbrain injuries. This year Tom Badgley was the volunteer recipient and Patti Motyka was the professional recipient. Both Tom and Patti have

worked tirelessly in support of brain injury survivorsand their families.

A special thank you to all of our presenters – MikeCasey; Gina England, MA,CCC-SLP; Brian Harris,MA,MT-BC, NMT/F; Linda Douglas, MEd; MeghanDoty, MS, CCC-SLP; Julie Zahareas, MS, CCC-SLP;Ross Gourvitz, PhD; Amanda Plourde, COTA/L, CDI,CDRS; Linda Hume, Animal Facilitated Therapy Coordinator; Scott Toussaint, OTR/L; Seddon Savage,MD, MS; Elizabeth Hoover, PhD, CCC-SLP, BC-ANCDS(A); Mary Amatangelo, MS, RN, ACNP-BC, CCRN, CNRN; Amy Pruszenski, OD,FCOVD; Patrick Culbert; Drew Holmes; AndrewRojas; Nina Hopkins, OTR/L; Donna McCarten, RN,PhD, CS, CADAC-II; Keri Vasquez Miloro, MS,CAGS, CCC-SLP, BCS-S; Gwendolyn Gladstone,MD, FAAP, CAP; Debra Samaha, MPH, RN; andLynn Durand, MD

Thank you to all of our sponsors & exhibitors. Yoursupport enables us to continue providing one of thelargest and most comprehensive brain injury and &stroke conferences in New England.

Lead Sponsor: Abramson, Brown & Dugan

Supporting Sponsors:NH Bureau of Developmental Services

Session Sponsors:Catholic Medical CenterHealthSouth Rehabilitation Hospital

Break Sponsors:Crotched Mountain Rehabilitation Center New Hampshire Healthy FamiliesRobin Hill FarmWell Sense Health Plan

Exhibitors:CapGrow PartnersCompassus HospiceCrotched Mountain ATECH ServicesDriveAbility @ Exeter HospitalElliot Memory & Mobility CenterGoodwill NeuroRehab ServicesGovernor’s Commission on DisabilityKindred-Braintree ManorMay Center School for Brain InjuryNH Children’s TrustNH Vocational RehabilitationNeuroRestorativeNorth Country Independent LivingNortheast Rehabilitation HospitalRide-Away Wheelchair VansRose Meadow GroupSt. Joseph Hospital Rehab Center


BEAUTIES BOWLING FOR BRAIN INJURY

Sponsorship Levels

Presenting Sponsor- $2,000. Name on all press releases, media advertising, social media, logo on website, signage at event, Large logo on custom T-shirt, recognition in event brochure.

Prize & Food Sponsor- $1,000. Logo on website, signage at event, Large logo on custom T-shirt, recognition in event brochure.

Community Partner- $500. Logo on website, signage at event, logo on custom T-shirt, recognition in event brochure.

Lane Sponsor- $200. Logo on website, signage on Lane, recognition in event brochure.*All donations are tax deductible and go directly to support BIANH.

3rd Annual Beauties Bowling for Brain Injury at Boutwell’s Bowling AlleyConcord- July 24th 6-8 pm

“No one ever anticipates being injured. It happens when you least expect it. The possibility of getting a concussion, of all things, definitely had never entered into my mind. After all, I was a dancer,not an athlete. But, it happened to me. And it changed my life.

In March of my freshman year of high school I bent over to pick up a ball during gym class. We wereplaying team handball. If the ball is above your knee, you use your hands. If the ball is below yourknee, you use your feet, that is the rules, but unanticipated disaster struck. As I went down to pick upthe ball, he kicked, and the ball/foot combination struck me somewhere over my left eye. That’s all Iremember. I was knocked unconscious.”

I’m now two years post-injury. I still can’t dance or run due to headaches. My memory isn’t what itused to be. I struggle to memorize words in Spanish class and I still have many lost memories of mychildhood and cloudy memories of the first year post-injury…”

Beauty runs in the FamilyStephanie and Brooke Mills are pageant winners (Ms. America 2014 & Miss Capital Area Outstanding Teen, respectively.) AfterBrooke’s injury, both have dedicated their year of service to concussion awareness. Beauties Bowling for Brain Injury is a fundraiserto assist the Brain Injury Association of NH (BIANH) with their Concussion Program. Currently, BIANH’s Program covers over18,000 NH high school students. Besides education & training, the program covers the baseline testing and expert review of the results.

“Concussion is hard on the entire family and as a Mom I can say that for sure. Brooke and I feel honored to give back and to continue raise awareness about concussion… We share BIANH’s vision to bring this issue into the forefront and that is why we created this fundraiser. We realize it takes money to provide baseline testing and most school’s budgets are stretched pretty thin.Brooke and I have been through a lot over the past couple of years and this is our way to try to make a difference…” Stephanie explains.

You can make a difference tooBy becoming a partner in this event, you can assist NH students and schools with the most up-to-date education, awareness, and concussion protocols. You can make a difference today.

All proceeds are Tax Deductible and go directly to BIANH! Thank you for your Support!

Brooke & Stephanie Mills

TO REGISTERwww.bianh.org

Changes in Leadership at Disability Rights Center - NHDISABILITY RIGHTS CENTER


There have been recent changes to leadership at the Disability Rights Center.Amy Messer has left, DRC has appointed Lynne Clay as Interim Executive Director to replace Amy Messer, and Ben Sahl has been appointed as the newLegal Director.

DRC bids a fond farewell to Amy Messer, who is leaving DRC to serve as ajudge on the NH Superior Court. Amy has been on the DRC staff for 17 years, acting for many years as the Legal Director and more recently as Executive Director. She also served on the Board of the Brain Injury Association ofNH for many years.

“We are all extremely excitedabout Amy’s appointment andsimultaneously sad to see hergo,” said Paul Levy, DRCBoard President. “She hasserved DRC, our clientele andcommunity with great energyand spirit and with the highestof competence over the years.We are deeply grateful to herfor this service and wish herthe very best in the next stageof her professional work.From our work with Amy, weknow that she will be a finejudge and serve the commu-nity extremely well.”

Lynne, former Managing Attorney, will serve as InterimExecutive Director while theBoard finds a permanent replacement for Amy.

“We are very fortunate to have great competence throughout our staff and tohave Lynne step forward,” said Paul. “Lynne has been with DRC for nearly25 years, serving in several capacities. We all thank Lynne for assuming thisposition.”

“I am honored to have the opportunity to serve as Interim Executive Directorand I look forward to leading the DRC as we continue to protect and advancethe rights of individuals with disabilities in New Hampshire,” said Lynne.

DRC also welcomes a new Legal Director, Benjamin Sahl, who started in

early May, relocating from New York City. He was the William J. Brennan FirstAmendment Legal Fellow in the national office of the ACLU and an associate with Latham & Watkins LLP. His practice in civil litigation has included extensive pro bono work on behalf of individuals with disabilities inhousing, education, and public access.

A family member of a person with a brain injury, Ben is passionate about disability rights issues. His efforts have ranged from the regional, includingmembership on the Manhattan Developmental Disabilities Council and the

Committee on Legal Issues Affecting People with Disabilities of the New YorkCity Bar Association, to the national, including the National Consortium on Deaf-Blindness, and the NationalFamily Association for theDeaf-Blind. He currently sitson New Hampshire’s Developmental Services Quality Council, which provides leadership for consistent, systemic review and improvement of the quality of New Hampshire's developmental disability andacquired brain disorder service system.

“As the parent of a child withintellectual and physical disabilities, I share a very personal investment in the

Disability Rights Center’s mission,” said Ben. “I look forward to helping ensure equality, opportunities, and quality of life for all of New Hampshire’s individuals.”

Disability Rights Center - NH is New Hampshire’s designated Protection andAdvocacy system, and is dedicated to eliminating barriers existing in NewHampshire to the full and equal enjoyment of civil and other legal rights bypeople with disabilities. DRC receives funding from the Department of Healthand Human Services, Administration for Community Living to provide protection and advocacy for individuals with traumatic brain injury. More information about DRC can be found at http://www.drcnh.org or call us at603-228-0432.

Legal Director, Benjamin Sahl Lynne Clay, Interim Executive Director


Krempels Center is honored to be the beneficiary of one of the largest andmost exciting 5K races on the Seacoast, The Runner’s Alley / RedhookMemorial 5K. The race, held every Memorial Day weekend, and directed by Runner’s Alley’s Jeanine Sylvester, donates 100% of its profits to Krempels Center. The race has raised over $700,000 for Krempels Center since 2004. One of the largest fundraisers for Krempels Center, race funds help Krempels Center provide programsand services to help brain injury survivors address the long term impactsof their injury. Every year Krempels Center members, along with theirfamilies, choose to run, walk or roll for Krempels Center. This band offriends, aptly named “Team Krempels” had strong turn out this year,and also raised money and helped out at the race. Over 1922 runner/walkers finished the race this year. Thank you to the Brain Injury Association of New Hampshire for being one of our race sponsors!

SPOTLIGHT ON KREMPELSScenes from the Race:

Runner’s Alley / Redhook 5K Benefits Krempels Center.


This past May, my wife Sarah and I had the pleasure of attending the 2016BIANH Annual Brain Injury & Stroke Conference. Over the last several years,we have had the fortune to attend BIA conferences from coast-to-coast. Earlier this year, I was both humbled and honored to present in a keynote capacity in Baltimore as well as Seattle conferences.

But there is something special about being here in our home-state of NewHampshire. Being part of this year’s conference as attendees was simply wonderful. And with almost a bit of trepidation, I must admit that this wasour first-ever time attending the New Hampshire conference – something Iwill never have to say again!

Over the last few years life has gotten busy for Sarah and me in ways we neversaw coming – kind of like my brain injury. We are both evolving as outspoken advocates for those affected by traumatic brain injury. Not onlyhere in New Hampshire, but worldwide, TBI has a ripple effect – meaningthat not only is the survivor affected, but so are family members, wives, husbands, mothers, fathers, children, employers – the list of those affectedgoes on and on.

Brain injuries are not an individual affair, they affect the entire community.

This past spring, my wife Sarah founded a Caregiver’s Support Group thatnow meets monthly in Salem. With the support of the BIANH, word is getting

out about her new caregivers group. New folks are attending, resources areshared and for one family at a time, life is getting easier.

Over the last few years, the growth of available resources is picking up speed.When I sustained my own TBI back in 2010, I reached out to look for a localbrain injury support group. At the time, the only options were one in the Keenearea and one in Concord.

As we have learned along the way, it takes time, many years in fact, to rebuilda whole new life after TBI. Early on in our recovery, trips to support groupsthat far away from home were simply not practical.

If we “fast forward” to 2016, there is a local support group only a half a milefrom our home – a group that I now co-facilitate. In nearby Atkinson, TerryCadorette facilitates a thriving TBI support group and the efforts of EllenEdgerly, the BIANH Support Group Coordinator, continue to positively impactso many others.

To quote aging rocker Bob Dylan, “The times, they are a changin’.”

Gone forever are the days of one hundred mile round trips to be among others who hold the key to life after brain injury.

2016 Conference Memories

Bicycle Safety – It’s Common Sense!Summer is not far away and soon the bicycle will get pulled out of the garage or backyard shed. Before you whisk away and speed down the road or teach youryoung child to adventure out without the training wheels, please be sure you know how to stay safe on those two wheels!There is more to bicycle safety than just strapping on a helmet. Wearing the helmet properly will protect your brain if you are in an accident, but here are a fewother common sense goals (and rules!) about bicycle safety.Remember, on the road, bicyclists must drive like other vehicles. Bicyclists are to be aware of and obey the traffic signs/signals, too.Here are just a few tips:

Never ride against traffic. State law and common sense require bicyclists ride on the same side of the road as motorists.Do not ride out to the curb or weave between closely parked cars. Motorists may not see you when you try to move back into the traffic flow.Follow lane markings, just as motor vehicles are to follow (i.e., do not go straight in a lane marked “right-turn only.”) In slow traffic, ride in the middle of the lane and stay in the middle at busy intersections and whenever you are moving at the same speed as traffic.Motorists may not look for a bicyclist passing on the right, so always pass on the left. Learn to scan for traffic behind you without swerving or use a rear-view mirror for bicycling.Keep both hands ready to brake for best safety. Allow for extra braking distance in the rain, since the brakes are less efficient when wet.Wear brightly colored clothing to make you more highly visible. Dress appropriate for weather – in the rain wear a poncho or waterproof suit.Never use a headphone, ear-buds, or a cell phone while riding.Use hand signals to tell motorists and pedestrians what you are intending to do.Always make eye contact with drivers. Assume that other drivers do not see you. Eye contact is important with any driver who might pose a threat to your safety.Be on the look-out for sewer grates, gravel, ice, debris, construction, and other road hazards.When riding at night, use lights and wear reflective clothing. The law requires bicyclists to have a white headlight (visible from at least 500 feet) and a rear reflector or tail-light (visible from 300 feet behind).Keep your bicycle in good repair. Adjust the bike to fit you properly. Check brakes and tires regularly.

ALWAYS WEAR A HELMET!


Everyone thinks I’m brave – it’s not that. Once I hit the road to Florida inmy motorhome, I regain control. Every day on the road is a fresh start, eachday is planned and planned again well in advance, using the strategies Ilearned while recovering from a Traumatic Brain Injury. One line followedby another, completed then crossed off and on to the next. I can only moveforward.

I can still remember my other life: work, volunteer, play,maintain a home, and still have plenty of time to spend withmy husband Randy, family, and friends. Like most survivors, I remember when that world crashed – December 8, 2001.

In my new reality, I feel as if I am a child’s toy topspinning so fast that the centrifugal force is randomly spewing away my thoughts and plans tobe productive. Some days the top slows down andon others, it rotates so quickly that it is all I can dojust to hang on the ride.

Travel gives me back control. With my itineraryplan and the larders stocked, Randy tries to start thetrip with me. We head south in the late winter, eachday we drive 250-300 miles easing into a routine,and trying to miss any snowstorm in the forecast. Arriving at an RV campground, we level the mo-torhome, extend the slides, and connect the water andsewer. Next, I walk the “Road Warrior” – my old Yorkie,Lilly. Then there is dinner to prepare, clean up, and finallysleep. The next morning the routine is reversed. Any itemswe used must be stowed as they become projectiles while traveling.

At some airport along the route, I usually have todrop Randy off to fly home so he can return towork. You should see some of the looks we getwhen driving our motorhome through the departure area of an airport! Being a pilot, he willbe able to meet me in future destinations down the road.

I am able to spend a week here or two weeksthere, eventually making it all the way to Key

West. Every day is planned, such as stopping for gas or groceries alongthe way because once the RV is parked and set up, I can’t just drive toany store, I get around on my bicycle for planned adventures.

I am very fortunate to have family and friends join me along the way. I love the company for exploring new areas but there is one stipulation:

they have to be ready to bicycle or walk everywhere. Just ask myfriend, Anne, about her “Vacation Boot Camp!” I have basketsand coolers to attach to our bicycles long with a cart to carrygroceries, laundry, or beach chairs.

When traveling alone, I am rarely lonely. WalkingLilly, I meet many other dog lovers setting up walkingdates. Each evening finds most campers at the waterfront to marvel at the beauty of each sunset.More bonds form. The people I encounter are fromall over the world and all share the same bond: “Wanderlust.”

With meeting so many interesting folks, the numberof Traumatic Brain Injury and Stroke survivors isastounding. With one particular couple, the wifesuffered a stroke a number of years ago. Eachevening her husband bundles her up and helps herinto their golf cart, then drives to the waterfront towatch the sunset. Due to the severity of her aphasia,she is only able to speak three words. She will takeeach person’s hand, place it on her heart, look them

deeply into the eyes and say “ I love you, I LOVE YOU!”Is there any better way to share a sunset?

Along the way, I’m invited to join other RVers for potluck dinners,Yoga, airplane rides, museum tours, and much,much more. The people I have the pleasure tomeet share so much of their lives with me. It feelslike little gifts. Each day I learn something new:the name of a flower or tree, or the mating habitsof dolphins or alligators.

Learning that I am a Traumatic Brain Injury survivor many other travelers will ask me how canI drive the RV and do all of the set up mostlyalone. I respond, “Because I can!”

MEET THE INTERVIEWER – ROSALIE JOHNSON, TRAVELER

Ron has found his niche with this employer and is celebrating his oneyear anniversary. Beth remarks thatRon’s job is probably the most important job of the restaurant; hekeeps the dishes moving along on verybusy nights. Beth realizes what a difficult job this can be and values hiscompetence and sense of humor. All ofthe employees value Ron stating thathe knows his job and does it well.Beth also has a sense of when Ron maybe overwhelmed and needs just a quickbreak. From Beth’s own personal experiences and knowledge she knowswhat challenges some people may struggle with. Truly, this is a communitysetting where Ron feels safe, comfortable, and respected. He hasformed friendships with employeesmaking plans out of the work place togo bowling.

Ron states “I love to come to work,”and he certainly feels welcomed andpart of the team.

A HUGE Thank You to Beth Carta-Dolan as the owner of Joseph’sSpaghetti Shed in Glen, New Hamp-shire, for valuing all employees!

When Ron is not working, he faithfully delivers a Meals on Wheelsroute while also filling in for otherswho might be absent, he is a memberof the Mount Washington Valley Dolphins Swim Team, and he participates in many other local causessuch as Valley Pride Clean Up Day,Jen’s Friends Cancer Climb, and theBIANH Walk by the Sea.


Good employment matches are some-times hard to come by, but when thereis a good match for both the employeeand employer, everyone benefits!

Ron has been receiving servicesthrough North Country IndependentLiving for a number of years and has always strived to find successfulemployment. He appreciates the valueof working and being a valued memberof his community. Work history hasbeen hit or miss, as many employersdid not fully understand the “invisibleinjury” that Ron has. It always seemedto be one thing or another that led Ronto leave a position or be terminated before too long.

One year ago, Joseph’s Spaghetti Shedhired Ron as a member of their family team.

Founded in the summer of 1984 byDavid Carta, the original building wasthe sugarhouse where David mademaple syrup. The decision to open arestaurant was shared by David’sdaughter Beth, and the name Joseph’sSpaghetti Shed was to honor Joseph,their father/grandfather who had arrived from Italy at a young age andmade his living as a chef in the area.

Now 32 years later, Joseph’s SpaghettiShed has been successful in so manyways and Beth is quick to credit heremployees as part of this success.When fully staffed during busy seasonsshe employs 18 staff with many long-term employees at 15 years and 20 years!

EMPLOYMENT SUCCESS!

North Country Independent Living

Supported Residential Care ProgramCommunity Residence ProgramResidential Treatment and RehabilitationHome Based RehabilitationComprehensive Day Treatment Programs Employment Services Alternative Education/Autism

1-888-400-6245 (NCIL) [email protected] northcountryindependentliving.com

Providing an alternative to institutionalized and campus living for persons with an acquired brain injury and other neurological disorders.

ncilNORTH COUNTRYINDEPENDENT LIVING

E s t a b l i s h e d 19 8 3

Quality of Life…for adults with a brain injury

www.robinhillfarm.com55 Donovan Road, P.O. Box 1067, Hillsborough, NH 03244

Tel: 603-464-3841 Fax: 603-464-3851e-mail: [email protected]

� Supported Residential Programs� Residential Rehabilitation Programs� Supported Apartment Programs� 24 Hour Staffing for All Programs


The Brain Injury Association of America (BIAA) leads the nation in observing Brain Injury Awareness Month in Marcheach year. On Wednesday, March 16, 2016, Brain injury advocates were invited to join BIAA for Brain Injury AwarenessDay on Capitol Hill. The event was hosted by the Congressional Brain Injury Task Force. Individuals had an opportunity to network with other national and federal agen-cies and to visit with their Members of Congress.

The Brain Injury Association of New Hampshire (BIANH) was represented by Steve Wade, Executive Director ofBIANH, Freddi Gale, BIANH Board President, Jerry Donovan,Executive Director of Robin Hill Farm, and Ellen Edgerly,Community Organizer, BIANH.

Visits were made to all of the New Hampshire CongressionalDelegation offices to discuss issues affecting individuals withbrain injury in New Hampshire.

BRAIN INJURY AWARENESS DAY


Dear Jon,As a brain injury survivor, considering my costs of medication, insurance, healthcare, rent, etc., my income would have to be very large inorder to afford it all. Since my accident, I have not been able to work full time, and have lost several of my benefits. I’m not very likely to earna salary that would allow me to pay for these expenses. Do you have any ideas that will help me manage my finances, work full- or part-time,and allow me to keep my benefits?Thank you, Ted

Dear Ted,Thank you for this question. There are so many factors to consider before a brain injury survivor decides if and when to go back to work. Your questionhits a homerun for many as brain injury survivors trying to make ends meet. Staying within financial guidelines and understanding the programs that mightbe available to you is one way to attempt to succeed in this challenge.

The medical and financial situations are unique to oneself and his/her living environment. I will not attempt to explain the rules and regulations for the various agencies, as they are too complicated. I will however, suggest ideas or recommendations that have actually aided me over the years. In some of mypast Ask Jon responses, I have suggested many ways to help stay within earnings and benefit limits.

Establishing a budget is one of the first tasks I highly recommend. Compare your income with your weekly/monthly expenses – list everything out and know exactly when bills have to be paid off. There are excellent free forums and blogs consisting of budget scenarios all over the Internet. Managing and maintaininga budget can be as simple as keeping a written log, diary, or checkbook to keep up with financial occurrences. I would suggest working with someone who understands the latest and most up-to-date information that is available. This person may recommend things like tax software for the tax season.

Another idea is to use a caregiver or financial counselor who is familiar with your needs. Ask for assistance to help you understand the Social Security earnings requirements for SSDI. You would need to determine by Social Security standards what you are allowed to have (GROSS WAGES) that wouldnot affect any SSDI benefits. You should also determine if you will need any special assistance at your place of employment. In other words, “Are you goingto need help from others in order to perform the job?” This is called “Work Subsidy.” Your employer would need to verify this with Social Security, butonce approved, you should be able to work more hours, thus earning additional income without possibly affecting your existing SSDI benefits.

Assess your current Medicare and Medicaid needs from an in depth point of view. Your counselor or caregiver will instruct you if there are any changes required. What other programs could help you to “not go broke” with expenses once you do get a good paying job? You could research MEAD (Medicaidfor Employed Adults with Disabilities) program. This program provides Medicaid coverage to adults with disabilities who are working and who would nototherwise be financially eligible for Medicaid. MEAD was, and still is, designed to allow individuals with disabilities to increase their working income andhave higher resource limits. Also ask how you can find out about other programs that might be available in your state.

There are ways to help you save on household expenses. Apply for Section 8 help with your rent. Depending upon your earnings and/or living arrangements you could get a substantial discount on your rent. Don’t forget to ask for discounts from utility (i.e. Internet, cable, phone, gas, or electricity)providers, some of which offer discounted rates based on income or disability. Requesting information from these utility providers is a great idea.

Educational knowledge of managing expenses should be taken into account. Take classes at a local college or university to help enhance your knowledgeand skills. Great courses that I took were Financial Management, Financial Accounting, and Introduction to Business at the University of New Hampshire(UNH) in Manchester. To refrain from paying full price per credit, ask about “auditing” the class you want to take. You won’t earn college credits, but youcould save 50-75 percent on the tuition depending on the college. There could be funding programs available through a local CRC (Community ResourceCenter) to help pay for some of your tuition cost; ask them what is available and apply to these programs.

Public Transportation is less expensive than purchasing and driving your own vehicle. When you consider the mandatory and necessary expenses to a motorvehicle (i.e. car or motorcycle), public transportation becomes a bargain. The expenses you need to consider in owning a vehicle include its upfront cost,annual inspection, yearly repairs, regular maintenance, insurance, costs of fuel, etc. All of these could pertain to an increase of insurance rates, so bear inmind that the thousands you are saving each year can be considerable and can be used for public transportation.

A few examples of how I have used public transportation are: when I have a doctor’s appointment, I call my medical insurer and request transportation toand from the appointment. This works out well, as they are always on time, upfront, and friendly. Or, when I go shopping or to the mall, I have used public transportation or I have a friend drive me. Another possibility -- for the occasional longer excursion -- travel by train or by bus. This is great if youlike to travel to a destination many miles away; it might take a little extra planning to do this, but with help from your caregiver or counselor, it can be done.Trips like this are surprisingly affordable considering how much you have saved by not owning your own car. You can sit back and enjoy the scenery, asone bus company says, and “leave the driving to us!”

In conclusion, agency rules or guidelines can change at any time. It is imperative to have a keen understanding of any changes that might be forthcoming.It is also important for you to know everything from household expenses, your income, and your benefits. Your ultimate success as a brain injury survivoris achieved by staying within guidelines and understanding the programs that might be best available to you.

Thank you,Jonathan Lanteigneare

? ? ? ? ASK JON ? ? ? ?by Jonathan Lanteigne


(Times and places may change without notice – please call in advance)Revised June 21, 2016

APHASIA:Manchester: 4th Tuesday of every month, 6:30pm – 7:30pm, (no meetingsheld in June, July, or December) Catholic Medical Center – RehabilitationMedicine Unit, Level F, 100 McGregor Street, Manchester, NH. Contact: Jean Manning or Larissa St. AmandPhone: (603) 663-6694

BRAIN INJURY:Atkinson: Greater Salem/Derry Brain Injury Support Group for Survivors, Families and Caregivers, 1st Tuesday of the month, 6:30pm-8:00pm, Community Crossroads, 8 Commerce Drive, Atkinson, NHContact: BIANH Phone: (603) 225-8400 Concord: 3rd Tuesday of the month, 6:30pm-8:00pm, Granite State Independent Living, 21 Chenell Drive, Concord, NHContact: BIANH Phone: (603) 225-8400 Conway: 1st Wednesday of the month, 6:00pm-7:30pm, Northern HumanServices, Center Conway, NHContact: BIANH Phone: (603) 225-8400 Keene:Monadnock Pacers 4th Tuesday of the month, 6:00pm-7:30pm –DHMC, 580 Court St., Keene, NHContact: BIANH Phone: (603) 225-8400 Lakes Region: 1st Thursday of the month, 6:00pm-7:30pm, Lakes Region Community Services, 719 Main Street, Laconia, NHContact: BIANH Phone: (603) 225-8400 Manchester: Greater Manchester Brain Injury and Stroke SupportGroup; 2nd Tuesday of the month, 6:00pm-7:30pm, Catholic MedicalCenter, Rehab Medicine Unit F200, 100 McGregor Street, Manchester, NH Contact: BIANH Phone: (603) 225-8400 Nashua: 1st Wednesday of the month, 6:00pm, St. Joseph Hospital (4th floor), Nashua, NHContact: BIANH Phone: (603) 225-8400 Peterborough: 1st Tuesday of the month, 6:00pm-8:00pm, Monadnock Community Hospital, 452 Old Street Road, Peterborough, NHContact: BIANH Phone: (603) 225-8400

Rochester: 4th Thursday of the month, 6:00 – 7:30 pm, First Church Congregational United Church of Christ, 63 South Main Street, Rochester,NHContact: BIANH Phone: (603) 225-8400

Salem: 1st Wednesday of the month, 5:00pm-6:00pm, Northeast Rehab Hospital, Administrative Conf. Room, Salem, NHContact: BIANH Phone: (603) 225-8400

Seacoast: 1st Tuesday of the month, 7:00pm-8:30pm, North HamptonUnited Church of Christ, North Hampton, NHContact: BIANH Phone: (603) 225-8400

Upper Valley: 2nd Wednesday of the month, 6:00-7:30pm, Dartmouth Hitchcock Medical Center, Fuller Board Room, Lebanon, NHContact: BIANH Phone: (603) 225-8400

CAREGIVERS SUPPORT GROUP (Caregivers only)Salem: 1st Wednesday of the month, 6:00-7:00 pm., Kelley Library, 234 Main St., Salem, NH Contact: BIANH Phone: (603) 225-8400

MILD BRAIN INJURY SUPPORT GROUP:Salem: 2nd Wednesday of the month, 5:00pm-6:00pm, Northeast Rehab Hospital, Reception will direct you to the room, Salem, NHContact: BIANH Phone: (603) 225-8400

STROKE AND BRAIN INJURY:Kennebunk ME: 1st Tuesday of the month, 3:00pm, Upstairs small conference room, RiverRidge Neurorehabilitation Center, 3 BrazierLane, Kennebunk, MEContact: Steve Fox Phone: (207) 985-3030 ext: 326

Nashua: 1st Wednesday of the month, 6:00-7:30pm, 4th Floor, St.Joseph Hospital, 172 Kinsley Street, Nashua, NHContact: Patti Motyka Phone: (603) 882-3000 x68034

Portsmouth: 2nd Monday of the month, 5:00pm-6:00pm, NortheastRehab Hospital in Portsmouth, 1st floor Dining Area, Portsmouth, NHContact: Liz Barbin Phone: (603) 501-5572

BRAIN TUMOR:Derry: 2nd Monday of the month, 5:30pm-7:00pm, Derry Public Library, Paul Collette Conf Room A, Derry, NHContact: Urszula Mansur Phone: (603) 818-9376

STROKE:Concord: Community Stroke Support Group, 3rd Tuesday of the month,4pm, HealthSouth, 254 Pleasant Street, Concord, NHContact:Susan Tanner (603) 226-9812 Phone: (603) 226-8843

Lebanon: 1st Friday of the month, 10:00am-11:30am, DHMC Aging Resource Center at Centerra Parkway, 46 Centerra Parkway, 2nd Floor,Lebanon, NHContact: Linda Wilkinson Phone: (802) 295-3037Contact: Charlotte LeClair Phone: (603) 650-5149

Nashua: 2nd Wednesday of the month, 6:00pm-7:30pm, 4 South DiningRoom, St. Joseph Hospital, 172 Kinsley Street, Nashua, NHContact: Kathy Schuler Phone: (603) 882-3000 x 66550

Salem: 1st Wednesday of the month, Northeast Rehab Hospital, FamilyConf. Room, 70 Butler Street, Salem, NHContact: Jessica Anderson Phone: (603) 893-2900 x3218

SUPPORT GROUPS IN NEW HAMPSHIRE


DONORS AND MEMBERSAnonymous DonorsDiane AubreyBAE SystemsBenjamin BaileyCynthia BaileyAnn FitzgeraldRosemary GarretsonGeokon, IncLisa HolmesThomas HookerLarrie & Helen IngallsKnights of Columbus Council

6850Eldon & Janet Munson, Jr.Rehabilitation Services Association

Rose Meadow FarmsElaine Sokoloff

IN HONOR OF KCPamela Nation

IN HONOR OF KERRI HATCHChristopher & Jeannette Cattan

IN HONOR OF TOM & ANDREA LANGERKevin Perkins

IN MEMORY OF DIANNE BURELLEGilbert Burelle

IN MEMORY OF BARBARA CUMMINGSRaymond & Josephine

MessinaJohn & Lois Mlocek

IN MEMORY OF PAUL CROWLEYMr. & Mrs. Gordon ConverseMr. & Mrs. Angelo DeyesoJacqueline Dziekan & Warren

SmithEileen FoxFrances GeyerNicholas & Roberta Lamparelli

David & Ann LaneBarbara MachholzBarry & Kathy McEachernAndrea Sweeney

IN MEMORY OF NANCY OLISKYKaren Deshaies

ANNUAL FUND

2016 MEMBERS AND DONORSThank you to all our members and donors!

(This list reflects donations received from January 1, 2016 to December 2016)

IN MEMORY OF CHERYL PARECharlotte Hamilton

bingo spells winning for bianh! – celebrating 25 years

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