bring aba to the community: lessons from ireland

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Bring ABA to the Community Lessons from Ireland Mickey Keenan University of Ulster Rotterdam, 2012

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Bring ABA to the Community: Lessons from Ireland. Mickey Keenan University of Ulster. Rotterdam, 2012. How do you help parents who have been denied access to an effective science for dealing with autism?. What science are you talking about? How does it help parents? - PowerPoint PPT Presentation

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Page 1: Bring ABA to the Community: Lessons from Ireland

Bring ABA to the Community:Lessons from Ireland

Mickey KeenanUniversity of Ulster

Rotterdam, 2012

Page 2: Bring ABA to the Community: Lessons from Ireland

How do you help parents who have been denied access to an effective science for

dealing with autism?

1. What science are you talking about?2. How does it help parents?3. In what way are parents denied

access to it?

Page 3: Bring ABA to the Community: Lessons from Ireland

Comments on the effectiveness of Applied Behaviour Analysis (ABA) for helping

children with autismAmerican Association on Intellectual and Developmental Disabilities “highly recommended” (highest rating)

National Institute of Mental HealthThe National Academies PressAssociation for Science in Autism TreatmentAutism SpeaksOrganization For Autism Research

ABA-based procedures are highly effective

Surgeon General of the United States“Thirty years of research demonstrated the efficacy of applied behavioral methods in reducing inappropriate behavior and in increasing communication, learning, and appropriatesocial behavior.”

Current Opinion in Psychiatry “Interventions based on applied behavior analysis have the strongest empirical basis, although there is some evidence that other therapies have promise.” (Sturmey, 2002)

Pediatrics “The most efficacious psychosocial treatment for autism is applied behavior analysis...” (Lilienfeld, 2005)

Supreme Court of British Colombia (2000)“…It is beyond debate that the appropriate treatment is ABA or early intensive behavioural intervention.”

Government agencies supporting the use of ABA-based procedures

New York State Department of HealthMaine Administrators of Services for Children with Disabilities

U.S. Dept. of Defense

Page 4: Bring ABA to the Community: Lessons from Ireland

National Standards Project – 2009(http://www.nationalautismcenter.org/)

The overwhelming majority of interventions were developed in the behavioural literature.

Page 5: Bring ABA to the Community: Lessons from Ireland

ABA in Ireland:A parent’s perspective

ABA in Ireland:A parent’s perspective

Parents

Government officials

Page 6: Bring ABA to the Community: Lessons from Ireland

Cillian’s Story

Professionalswho were unable to offer practical advice to Cillian’s parents

age 3 yrs 10 mths

Page 7: Bring ABA to the Community: Lessons from Ireland

Cillian’s diagnosis

age 3 yrs 10 mths

Cillian’s Story

Page 8: Bring ABA to the Community: Lessons from Ireland

Age 3

Cillian’s Storyage 11 yrs

Page 9: Bring ABA to the Community: Lessons from Ireland

Welcome address to an ABA conference with a script he wrote himself!

Cillian, 2005

age 13 yrs

Age 3 Age 11

Cillian’s Story

Page 10: Bring ABA to the Community: Lessons from Ireland

A remarkable transformation by any standards

Cillian, 2005

Age 11Age 3

Cillian’s Storyage 13 yrs

• Skills deficit in community to achieve what Cillian’s mum and I achieved together (Local ABA Charity, P.E.A.T., has one professional and 250+ parents)• Misinformation on Applied Behaviour Analysis• Abuse of parents by some professionals who charge extortionate fees for their services

Page 11: Bring ABA to the Community: Lessons from Ireland

ABA is a SCIENCE It is NOT a commercial product or a therapy for autismDillenburger, K., & Keenan, M. (2009). None of the As in ABA stand for autism: Dispelling the myths. Journal of Intellectual & Developmental Disability, 34, 193–195.

Applied Behavior Analysis is the science in which tactics derived from the principles of behavior are applied systematically to improve socially significant behavior and experimentation is used to identify the variables responsible for behavior change. (Cooper, Heron, & Heward, 2007 p. 20)

Page 12: Bring ABA to the Community: Lessons from Ireland

Person-Centered and Holistic perspective: Evidence-based practice

Page 13: Bring ABA to the Community: Lessons from Ireland

Person-Centered and Holistic perspective: Evidence-based practice

Page 14: Bring ABA to the Community: Lessons from Ireland

Person-Centered and Holistic perspective: Evidence-based practice

Page 15: Bring ABA to the Community: Lessons from Ireland

Person-Centered and Holistic perspective: Evidence-based practice

Page 16: Bring ABA to the Community: Lessons from Ireland

Person-Centered and Holistic perspective: Evidence-based practice

Page 17: Bring ABA to the Community: Lessons from Ireland

Please supply a list of references from research published in peer-reviewed journal articles showing an eclectic approach to be equal to, or superior to ABA

Please supply a list of references from research published in peer-reviewed journal articles showing an eclectic approach to be equal to, or superior to ABA

Admitted they didn’t have any!! Yet, they say ECLECTIC is the way to go

The Republic of Ireland was asked the same question

Same Answer

Same Policy

Page 18: Bring ABA to the Community: Lessons from Ireland

Category Mistake:

Indicative of lack ofunderstanding ofbasic issues

Page 19: Bring ABA to the Community: Lessons from Ireland

Chemistry properties structure composition behavior reactions, interactions, changes

Science of Matter

Chemistry is the science of matter, especially its properties, structure, composition, behavior, reactions, interactions and the changes it undergoes.

Category Mistakes

Page 20: Bring ABA to the Community: Lessons from Ireland

Chemistry is the science of matter, especially its properties, structure, composition, behavior, reactions, interactions and the changes it undergoes.

Chemistry properties structure composition behavior reactions, interactions, changes

Science of Matter

Chemistry

ABA is the applied branch of the science of behaviour analysis incorporating an understanding of basic principles like Stimulus Control, Schedules, Shaping, ….

ABA Stimulus control schedules shaping ……. ……. …… …….

Science of Behaviour

Manualised applications of the science of behaviour in the area of autism include PECS, DTT, NET, PT, VB, Lovaas, TEACCH.

ABA PECS DTT NET PT VB Lovaas TEACCH

Application of a Science of Behaviour

Category Mistakes

Page 21: Bring ABA to the Community: Lessons from Ireland

This slide shows the level of antagonism towards ABA by professionals not trained in this science.

Page 22: Bring ABA to the Community: Lessons from Ireland

Dealing with Misrepresentation

Competence in a ScienceAs a general rule, in matters concerning physics, the Institute of Psychics in Ireland would seek to have appropriately qualified physicists represented on any review panel which might be reporting on 'findings from physics'.Institute of Physics in Ireland

ABA professionals never involved in writing Gov. sponsored reports in Ireland

International standards of training in ABA ignored

Page 23: Bring ABA to the Community: Lessons from Ireland

How they do it in Scotland

Scottish autism toolbox –

The Scottish Government has deleted a key section of the Autism Toolbox on its web site, which contained seriously flawed information on ABA.

… the description of ABA was inaccurate, 30 years out of date, and made no mention of recent research findings which indicate clear evidence of benefit for many children with autism.

Dealing with Misrepresentation

Page 24: Bring ABA to the Community: Lessons from Ireland

“Feedback was sought on the draft ASD Guideline from across the health, education, disability and social service sectors, as well as from families, ... Most of the concerns expressed by individuals or groups related to a view that the principles of ABA had been misrepresented and that ABA research had not been properly evaluated in the draft ASD Guideline.”

How they do it in New Zealand

Dealing with Misrepresentation

In response to these concerns, the Ministry commissioned a new review of literature on the effectiveness of ABA interventions for people with ASD.”

Page 25: Bring ABA to the Community: Lessons from Ireland

How they do it in the Netherlands

?

Page 26: Bring ABA to the Community: Lessons from Ireland

"Sometimes our light goes out but is blown into flame by another human being. Each of us owes deepest thanks to those who have rekindled this light."

Albert Schweitzer

Conclusion

Leonardo da Vinci programme

Page 27: Bring ABA to the Community: Lessons from Ireland