CENTRO DE REFERENCIA ESTATAL DE ATENCIÓN A

PERSONAS AFECTADAS DE ENFERMEDAD RARA Y SUS

FAMILIAS

COPENHAGUE EURO-HSP General Assembly September 12,2014

Burgos is located in the north of Spain. City with nice green areas, great artistic and cultural tradition.Its Cathedral, Museum of Human Evolution ...

HOW DO YOU ARRIVE

Burgos has a privileged geographic situation. Main road junction between northern and southern Spain, Portugal and elsewhere in Europe. Connection point of the main Spanish and European economic areas.

You can access to the city by train, bus or flight. The Adolfo Suarez Madrid-Barajas International Airport is two hours of Burgos.

BEATIFUL AND MONUMENTAL CITY, HISTORY, TRADITION,…

The State Reference Center for people with rare diseases and their families in Burgos, is an advanced center for the promotion, development and dissemination of information, innovative experiences and methods of caring for people with rare diseases, and a highly specialized center in care and support to families and caregivers on prevention, promotion of personal autonomy and social participation of people with these diseases and developing their ends.

CREER NEAR TO NICE URBAN GREEN AREA AND THE REAL MONASTERIO DE LAS HUELGAS…

STATE REFERENCE CENTER FOR PEOPLE WITH RARE DISEASES AND

THEIR fAMILIESCREER programs

FAMILIES AND NGOs SERVICES• Expert’s Conferences, Workshops, Respite Service, Caregivers

School, Ongs Cooperation Services, Interchanging, meetings, Information and Advice Services

REFERENCE SERVICES• Specialized website, Training Expert, Interchanging Network,

Consulting and Technical Support Services, Innovation and Development Services

SOCIAL AND HEALTH CARE SERVICES• Multidiscipline Valuation Service, Rehabilitation Services, Daily Life

Training Services, Information about Comunity Resources

STATE REFERENCE CENTER FOR PEOPLE WITH RARE DISEASES AND THEIR fAMILIES

CREER

UNE-EN-ISO 9001QUALITY

UNE-EN-ISO 14001ENVIROMENTAL MANAGEMET

UNE-170001UNIVERSAL

ACCESIBILITY

Adapted rooms

Accesibility

Comfortable

Functional

FACILITIES

FACILITIESMultisensorial stimulation room

Hydrotherapy room

Psychomotor

Physiotherapy room

FACILITIES

Library

Workshops rooms

Meeting room

Coffee shop

CREER WORK TEAMMANAGER DIRECTORMANAGEMENT FINANCE

Technical Area I Technical Area II Social and Health Area

Coordinator Area Coordinator Area Coordinator Area

Social Educator Documentary General Practitioner DoctorPhysical Therapy Doctor

PsychologistSocial Worker

Speech Therapist Physiotherapists

Occupational Therapists Pedagogue Teachers Nurses

Nurses assistans

Thank you for the interest shown to the State Reference Center for Assistance to People with rare diseases and their families

Some of you visited the Centre in 2010. You have known the work we do. Our main goal is to improve the quality of life of people affected by rare disease and their families. We provide services and specialized care.

We are very delighted to invite you to participate in the CREER programs. Among the possible collaborations that we may have:The Meetings Programs offers the possibility that people affectted and their families can stay in the center, share activities plus combining activities such as Conferences, Assemblies, Meetings ... We offer the possibility to develop an Euro- HSP Meeting. One goal to the Reference Center is to support and promote networking, the possibility of hosting a European meeting level, meets our guidelines.

Other resource we offer to Euro-HSP is the Information and Advisory Service.

Hoping to see you soon in Burgos.

Best regards

Aitor AparicioManager Director CREER