Case study

Title: Measuring the quality of life of children suffering from cerebral palsy

Country: Sub-Saharan Africa

Specific theme: Measuring impact

By: Cécile Rolland, Technical Adviser – Occupational Therapy, CBR

Impact Assessment Seminar, 2-6 December Phnom Penh

Project description

• A kit for measuring the quality of life of children suffering from Cerebral Palsy (CP), designed to be used in programmes to support children suffering from CP in their living arrangement

Impact Assessment Seminar, 2-6 December Phnom Penh

Study description

• Research stages: – Desk study (2012) : welfare vs satisfying basic needs ?– Field study (2013) : contextualisation

• Features:– A means of measuring – Contextualised – Aimed at children – Children suffering from CP

Impact Assessment Seminar, 2-6 December Phnom Penh

Description of tool?

Impact Assessment Seminar, 2-6 December Phnom Penh

Society

Individual

Conceptual framework

Fig. 1: The four levels in the life of a child in Sub-

Saharan Africa

Description of the tool?

Impact Assessment Seminar, 2-6 December Phnom Penh

Equipment and procedures

• A subjective and objective data set

• A discussion

Description of the tool?

Impact Assessment Seminar, 2-6 December Phnom Penh

Pre/Post survey

• Preparations for implementation– Contextualised

equipment– Training

• Interpreting the replies

• A contextualised/adaptable tool for the countries where we work

• A tool constructed for and with children (+5 years old) and adolescents suffering from CP

• A tool to be tested

• A tool for change

Summary points:

Impact Assessment Seminar, 2-6 December Phnom Penh

Implementation

Impact Assessment Seminar, 2-6 December Phnom Penh

Activity Tools Who Time span

Definition of a contextualised conceptual framework

Handbook of recommendations Team with technical support (senior level)

Adapting the tools Handbook of recommendations (definitions, indicators/questions, training and user guide, changing database structure)

Team with senior-level support and a technical coordinator

Questionnaire trial / Team

3 -6 weeks

Appointment/training of researchers and supervisors

Handbook of recommendations

Training tools

Project manager with technical support

2-4 weeks

Survey User guide, scale guide Researchers and supervisors, reporting to the team

Dependent on the number of children and organisation

Compiling database Use Excel to compile the data Team 1-2 children/hour

Key points: success factors

• A contextualised tool

• An identified target

• A piloted tool

• Selected, trained and supervised researchers

• A contextual analysis for each new series of surveys

• Take your time

Impact Assessment Seminar, 2-6 December Phnom Penh

Key points: constraints

• Selection of researchers

• No contextual analysis chart

• Does not currently apply to children under 5 years of age

• Limit: suitability for certain situations? (refugee camps)

• Not available in Spanish

Impact Assessment Seminar, 2-6 December Phnom Penh

The next steps: discussion

At Head Office• Developing the tool to cover 0-5 year olds • Translation into Spanish

In the field •Researching pilot projects (2 years)

testing the tool in French developing an appropriate reference tool for Asian and

Spanish-speaking contexts

Impact Assessment Seminar, 2-6 December Phnom Penh