Together we make a lifetime of difference

Annual Review 2007/08

Who we are and what we do

Children’s Hospices UK is the national charity that gives voice and support to all children’s hospice services.

• Wemakethelivesofchildrenandyoungpeoplewho are not expected to reach adulthood, and their families, better by ensuring they receive the best possible care

• Wecampaignandlobbyonbehalfofchildren’shospice services, making sure their voice is heard by the Government

• Wefundraiseforchildren’shospices,sotheycancontinue to improve their services to life-limited and life-threatened children, young people and their families

• Weraiseawarenessoftheservicesofferedbychildren’s hospices in the UK

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Message from the Chair

The role of Children’s Hospices UK has never been more important and more relevant than it is today. It has been an extraordinary year which hascreatedanumberofverysignificantopportunitiesforusandthe44children’s hospice services we represent.

Thepublicationof‘BetterCare:BetterLives’,theGovernment’sfirststrategy for children’s palliative care in England, marks the start of a new and promising era. Published in February 2008, the report promises a step changethatcouldmakeasignificantdifferencetothousandsofchildrenand young people who are not expected to reach adulthood, and their families.

Children’s palliative care has never been so high up the Government’s agendabutwewillhavetofighttokeepitthereinthefaceofamuchmorechallengingfinancialenvironment.Asaresult,ourroleasthenationalvoice for children’s hospice services has never been more crucial. It is vital that we continue to work with our partners and members to ensure that the aspirations set out in the strategy are delivered. In particular, we must ensure that the strategy leads to more local spending on children’s hospices and other children’s palliative care services.

Moving forward, we will develop our priorities and resources to ensure thattheyreflecttheneedsofchildren’shospiceservicesatthiscriticaltimein the evolution of children’s palliative care. By working together well, we will be stronger and more effective in everything we do, not just in England, but across all four countries. Together we will make a real difference to the thousands of children, young people and families who need our help and support.

David King, Chair of Children’s Hospices UK

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Children’s Hospices UK Highlights 2007/08

• Playedakeyroleinthedevelopmentof‘BetterCare: Better Lives’, the Government’s landmark strategy for children’s palliative care in England

• Helpedchildren’shospiceservicestodevelop their care practices through joint research projects and workshops to enable the sharing of best practice and knowledge

• Raised£668,090forchildren’shospiceservices in the UK

• Ensuredthepubliccontinuedtolearnabouttheinvaluable work of children’s hospices, with our new website, new identity and our successful media relations work

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Children’s hospices are such friendly places; the staff make a real effort to create a home from home. I have seen first hand the huge difference the expert care makes to children, young people and families.”Holly Willoughby, Children’s Hospices UK Patron

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Campaigning and lobbying

Weareworkingwithourpartnersandmemberstoensure that children’s hospice care remains high on the Government’s agenda.

• In2007/08,Children’sHospicesUKplayedapivotalrole in the development of ‘Better Care: Better Lives’, theGovernment’sfirsteverstrategytoachievebetteroutcomes for life-limited and life-threatened children, young people and their families

• Wearecampaigningtoensurethatthefundstoimplement ‘Better Care: Better Lives’ are provided to Primary Care Trusts

• Ongoing campaigning by Children’s Hospices UK, ourpartnersandmembers,sawanextra£20millionprovided by the Government as an emergency funding boost for children’s hospices in England until 2011

• WeworkedcloselywiththeEveryDisabledChildMatters campaign to give our members access to extra funding from Local Authorities

Children’s Hospices UK has been highly effective in championing the role of children’s hospice services in meeting the needs of life-limited and life-threatened children, young people and their families.”Christine Lenehan, Director, Council for Disabled Children

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The best possible care

In2007/08wecontinuedworkingwithourpartnersandmembers to help develop the best practices in children’s hospice care including:

• Acollaborativeresearchprogrammetoimprovehospice services for life-limited and life-threatened young people and their families

• Aframeworktoensurethebesttrainingforchildren’shospice and palliative care staff

• Improvementstohospiceservicesforthesiblings of life-limited and life-threatened children and young people

• Meetings and workshops for children’s hospice care staff to network and share best practices

• Obtainingmoreaccuratestatisticsaboutchildren’spalliative care needs for the strategic development of future services

Children’s Hospices UK brings the national perspective to Acorns, helping to ensure that we are at the cutting edge in our delivery of hospice care services to children, young people and families.”Emma Aspinall, Head of Care, Acorns Children’s Hospice

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Raising awareness

Children’s Hospices UK plays a crucial role in ensuring that the public understands the vital work of children’s hospice services.

• Ourcommunicationsteamgenerated,onaverage,a national media mention every week. Highlights included coverage on ITV’s This Morning, the ITV lunchtime news, Channel 5 and substantial features in the Mail on Sunday YOU magazine

• TheChildren’sHospicesUKwebsitewasre-launched to provide improved information and services to our members, the general public and other stakeholders

• WeworkedcloselywithITVtodevelopa special ‘Challenge Anneka’ programme which was seen by millions. The challenge was for children and young people using children’s hospices, and celebrities, to make a CD together. Sales of the ‘Over the Rainbow’ CD exceeded 100,000 and the £250,000royaltiesweredistributedtochildren’shospice services

Fundraising for children’s hospices

Children’s Hospices UK’s national fundraising scheme enables national companies and organisations to raise funds for their local children’s hospice.

• In2007/08wedistributed£668,090tochildren’shospice services throughout the UK

• Weformedsuccessfulfundraisingpartnershipswith Team England Footballers Charity, Fortnum & Mason, Autoglass, SThree, the Round Table and the Boys’ Brigade

• WewereawardedFundraisingTeamoftheYear2007 by the Charity Times

• Weexpandedourfundraisingteamtodevelopa programme of national events which will raise additional funds for all our members

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Fortnum & Mason is proud to be working in partnership with Children’s Hospices UK. It gives us a range of opportunities to show our support and enables our staff and customers to get involved. Most importantly it’s good to know we can make a real difference to children and families.”Cathy O’Neill, HR & Customer Service Director, Fortnum & Mason

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Through the Team England Footballers Charity partnership with Children’s Hospices UK, my England team-mates and I hope to raise awareness of the vital work that children’s hospices do in caring for children and young people who may not live to reach adulthood.”David Beckham

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National fundraising for children’s hospice servicesWedistributed£668,090 to children’s hospice services throughout the UK

Openwork has been a major supporter for over four years,contributing£400,000todate.Thismoneyhasenabled us to further strengthen the support we give to our member children’s hospices and through them help make a difference to the children, young people and families they care for.

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Accounts for the year 2007/08

Expenditure: £1,559,039

£1,239,232 on charitable activities

£271, 517 on income generation (this represents the cost of raising funds to support core activities)

£48,290 on governance

Income: £1,608,138

£944,469 from fundraising donations

£350,370 from other sources

£313,299 from grants and trusts

59%22%

19%

80%

17%3%

Together we make a lifetime of difference

Children’s Hospices UK First Floor, Canningford House 38 Victoria Street, Bristol BS1 6BY www.childhospice.org.uk info@childhospice.org.uk

Tel: 0117 989 7820 Fax: 0117 929 1999

Children’s Hospices UK is the working name of the Association of Children’s Hospices which is a registered charity in England (1103795) and is incorporated as a company limited by guarantee (4840209 - England)

Openwork is proud to support Children’s Hospices UK through its Community Involvement Programme

About usChildren’s Hospices UK is the charity that gives voice and support to all children’s hospice services. Our vision is for every child and young person who is not expected to reach adulthood, and their family, to have access to the highest standards of children’s hospice care and support close to home.

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