Children with Special Health Care Needs in

Illinois

University of Illinois Medical Center

Division of Specialized Care for Children (DSCC)

Established in 1937The Division of Specialized Care for Children is the Illinois Title V agency for specialized treatment and rehabilitation of children with chronic physical disabilities and health impairments.

Division of Specialized Care for Children

1937 Agency created and placed under the Department of Welfare

1941 Funding transferred to the University of Illinois as part of the College of Medicine

1957 Officially transferred by the General Assembly to the University of Illinois

University of Illinois Medical Center

▀ Stronger voice for CSHCN and their families

▀ Greater credibility with providers and consumers

▀ Ability to be more responsive to the needs of CSHCN

▀ Learning opportunities through DSCC for students in the School of Public Health and Medical School

▀ DSCC’s statewide program is an essential element of UIC’s community service initiatives

DSCC’s Mission Statement

DSCC’s mission focuses on public service, education, and research as a basis to provide, promote and coordinate family-centered, community-based, culturally competent care for eligible children with special health care needs (CSHCN) in Illinois.

A Tradition of Excellence

DSCC has provided care coordination services to over

1 million Illinois families of

children with special health care needs

in all 102 counties

Rockford

Rock Island

Peoria

St. Clair

ChampaignSpringfield

Olney

Marion

13 DSCC Regional OfficesNorth Cook CountyChicago North & SouthDuPageSouth Cook

DSCC also has 40 satellite locations

Rockford

Rock Island

Peoria

St. Clair

ChampaignSpringfield

Olney

Marion

DSCC Clinics North Cook CountyChicago North & SouthDuPageSouth Cook

Kane County Clinic

Carbondale Clinic

Salem Clinic

Mattoon Clinic

Champaign Clinic

Kankakee Clinic

DSCC Programs Core

SSI Disabled Children’s Program

Children’s Habilitation Clinic

Home and Community Based Waiver

DSCC Core Program

DSCC Core Program EligibilityDefined by Administrative Rules

General Eligibility Age Residency Citizenship

Medical Eligibility Specific impairment

categories Financial Eligibility

285% FPL

89 Illinois Administrative Code CH X, SEC. 1200.

DSCC Core Program Any Illinois child from birth to age 21 Medical condition which can be improved through

medical treatment Eligible diagnosed condition (care coordination) Suspected eligible condition (no-cost diagnostic

services) Financial assistance for those families who meet

financial eligibility criteria.

DSCC Serves Approximately 23,000 children and families annually

Medically Eligible ConditionsA child must have a treatable chronic condition in one of the following categories:

Orthopedic (bone, muscle, joints)Heart defectsNeurological condition (nerve, brain, spinal cord)Hearing lossCystic FibrosisDisfiguring defects – external body

Medically Eligible Conditions Speech conditions requiring medical/dental treatment Certain inborn errors of metabolism Eye impairments including cataract, glaucoma,

strabismus, and certain retinal conditions (excludes refractive errors)

Urinary impairments (kidney, ureter, bladder) Hemophilia

Care Coordination Services

Development of an Individualized Service Plan (ISP) Assists family in accessing

needed services Provides benefits

management Collaborates with a managing

physician Provides transition planning

from adolescence to adulthood

All Eligible Families Receive Care Coordination Services at No Cost

DSCC Approved Providers

Physicians Board certified Primary Care Pediatric specialists

Therapists (OT, PT, Speech etc.)

DME Supplies/Equipment Hospitals

Specialty Centers Cleft Lip/Cleft Palate Craniofacial Cochlear Implant Cardiac Centers Ambulatory Surgical

Centers Epilepsy Surgical Centers

DSCC has more than 10,000 enrolled providers

DSCC SSI-Disabled Children’s Program

Congress Established SSI-DCPIn 1978, Governor James Thompson designated DSCC as the state agency to administer the SSI-Disabled Children’s Program

Approximately 200 - 250 newly eligible children for SSI receive information and referral services each month.

DSCC Assistance for families in the SSI-DCP

Referral information to community and state resources

Referrals to Early Intervention Program …birth to 3 years

Referrals to Pre-school Educational Programs ages 3 to 5 years

Transition follow-up for youth ages 14-15 years

Children’s Habilitation Clinic

Multidisciplinary CSHCN clinic with 950 visits annually

Training opportunity for UIC medical staff, nurses, therapists, and social workers

Children’s Habilitation Clinic

Home and Community Based Waiver Program

Home and Community Based Waiver Program

Predominantly care coordination service More than 500 children in the program Considered a model program by other

states Cost neutral program for DSCC Operated by DSCC; Administered by HFS

In 1980, the first ventilator dependent child was discharged in collaboration between DHFS and DSCC.

Home and Community Based Waiver Services Environmental

modifications

Training of nurses, vent dependent children only.

Placement maintenance

Respite Care - up to 336 hours a year

Skilled shift nursing care

Special medical equipment and supplies

DSCC Advisory Groups

Family Advisory Council

Chairperson DSCC Family Liaison Specialist Represented by 13 family members Activities:

Family Newsletter (Special Addition) Family Handbook Block Grant Review Technical assistance with agency

procedures/documents

Medical Advisory Board

15 members Minimum of 12 physicians

Up to 3 other professionals

Ex-Officio parent representative from Family Advisory Council

The Medical Advisory Board usually meets three times a year

University of IllinoisMedical Center’s

Division of Specialized Care for Children

Future Opportunities

What Families Say About DSCC “Excellent medical care

received”… from well qualified DSCC-approved medical specialists”

“Caring, dedicated, committed DSCC care coordinators” … just doing their job”

“….no comparison to other agencies”

DSCC Family Survey

For More Information

Visit our website . . .

Address - http://www.uic.edu/hsc/dscc/

Website

Division of Specialized Care for Children(DSCC)

3135 Old Jacksonville Road

Springfield, IL 62704-6488 1-800-322-3722

. . . partnering with Illinois families to build better lives for children with special health care needs

A Tradition of Excellence

“My child is my life.”A Parent

2005 DSCC Survey