christopher g. chute - who.int · klinik für dermatologie, venerologie und allergologie...

Members of the Revision Steering Group for the revision of the International Classification of Diseases

Christopher G. CHUTE

Chair: Revision Steering Group Dr. Chute received his undergraduate and medical training at Brown

University, internal medicine residency at Dartmouth, and doctoral

training in Epidemiology at Harvard. He is Board Certified in Internal

Medicine, and a Fellow of the American College of Physicians, the

American College of Epidemiology, and the American College of

Medical Informatics.

He became founding Chair of Biomedical Informatics at Mayo in 1988, stepping down after 20 years in

that role. He is now Professor of Medical Informatics, and is PI on a large portfolio of research including

the HHS/Office of the National Coordinator (ONC) SHARP (Strategic Health IT Advanced Research

Projects) on Secondary EHR Data Use, the ONC Beacon Community (Co-PI), the LexGrid projects, Mayo’s

CTSA Informatics, Mayo’s Cancer Center Informatics including caBIG, and several NIH grants including

one of the eMERGE centers from NGHRI, which focus upon genome wide association studies against

shared phenotypes derived from electronic medical records.

Dr. Chute serves as Vice Chair of the Mayo Clinic Data Governance for Health Information Technology

Standards, and on Mayo’s enterprise IT Oversight Committee. He is presently Chair, ISO Health

Informatics Technical Committee (ISO TC215) and Chairs the World Health Organization (WHO) ICD-11

Revision. He also serves on strategic advisory panels to NCRR and NHGRI within NIH, and the Health

Information Technology Standards Committee for the Office of the National Coordinator in the US

DHHS. Recently held positions include Chair of the Biomedical Computing and Health Informatics study

section at NIH, Chair of the Board of the HL7/FDA/NCI/CDISC BRIDG project, on the Board of the Clinical

Data Interchange Standards Consortium (CDISC), ANSI Health Information Standards Technology Panel

(HITSP) Board member, Chair of the US delegation to ISO TC215 for Health Informatics, Convener of

Healthcare Concept Representation WG3 within the (TC215), Co-chair of the HL7 Vocabulary

Committee, Chair of the International Medical Informatics Association (IMIA) WG6 on Medical Concept

Representation, American Medical Informatics Association (AMIA) Board member, and multiple other

NIH biomedical informatics study sections as chair or member. Contact: Mayo Clinic College of Medicine

710 9th Ave SW

Rochester MN 55902, USA

[email protected]

Office: +1 (507) 284-5506

Fax: +1 (507) 284-0360


Robert JG CHALMERS

Chair: Dermatology Topic Advisory Group

Dr Chalmers has been a consultant dermatologist in Manchester since 1983. He

has major interests in the systemic treatment of psoriasis and in evidence-based

dermatology.

He has been interested in terminology for skin disease since the 1980s. He was

closely involved in the development of the British Association of Dermatologists’

Index of Dermatological Diagnoses (BAD Index) which was developed in response to dissatisfaction with ICD for the codification of skin disease and was

first published in 1994. Some 80 British dermatologists have contributed to its

development and its subsequent revisions.

He was also a member of the Dermatology Specialty Working Group which submitted terms to the UK National

Health Service’s project to develop a generic healthcare terminology, Clinical Terms, in the mid-1990s. Clinical

Terms was amalgamated in 1999 with the American generic healthcare terminology, SNOMED RT as SNOMED CT.

The majority of terms in the BAD Index were submitted to Clinical Terms and thus appear in SNOMED CT.

He has had a close interest in the further development of SNOMED CT. He contributed to the SNOMED CT

multiprofessional quality assessment (MPQA) exercise to which he and colleagues contributed in 2002 soon after

SNOMED CT was first published. As a result of these efforts the BAD was invited to work with the International

SNOMED organisation and a further 2,000 dermatological terms which had not been included were added to

SNOMED CT in 2004.

He has also worked closely with Professors Mark Pittelkow and Peter Elkin of the Mayo Clinic, Rochester,

Minnesota in evaluation of the dermatology content of SNOMED CT vis-à-vis the BAD Index, and more recently,

of the Dermatology Lexicon.

In 2001 he was invited on to the Advisory Board of the Dermatology Lexicon Project by Professor Lowell

Goldsmith and colleagues and visited them in Rochester, New York, in December of that year to advise on the

Project.

He has been keen to see the development of a standardised reference terminology for dermatology and

convened a meeting of interested parties at the World Congress in Buenos Aires in October 2007 to discuss the

feasibility of this.

Contact: Robert Chalmers

Dermatology Centre

University of Manchester School of Medicine

Stott Lane

Eccles Manchester M6 8HD UK

tel +44 (0) 161 206 1016

fax +44 (0) 161 206 1018

Department of Dermatology

Manchester Royal Infirmary

Oxford Road

Manchester M13 9WL UK

tel +44 (0) 161 276 4173

fax +44 (0) 161 276 8881

[email protected]


Michael WEICHENTHAL

Co-Chair: Dermatology Topic Advisory Group

Dr Weichenthal is a dermatologist based at the University of Kiel in

Germany. He has research interests in the epidemiology and genetics of

psoriasis. Further interests are in malignant melanoma and other skin

malignancies as well as photobiology.

Dr. Weichenthal has been involved in coding and classification of

dermatological diseases since the 1990s. Since the retirement of Dr Tilo

Henseler in 2000, Dr Weichenthal has led the Diagnostic Coding Working

Group of the Deutsche Dermatologische Gesellschaft. This group has

overseen the development and modification of an extended six-character

German language clinical modification of the dermatology content of ICD10, the Dermatologischer

Diagnosenkatalog mit ICD-10 Schlüssel (2000). It is in routine use by German dermatologists to enable

them to make official returns to government and health insurance organisations. An English

translation of the DDK was adopted by the ILDS as the preferred clinical modification of ICD10 and is

available from the ILDS website.

Dr. Weichenthal holds a degree in Medical Informatics and is responsible for the clinical skin cancer

registry, being part of the Kiel based Comprehensive Cancer Centre North. Here he is engaged in

implementing recent classification models for melanoma, cutaneous lymphomas and other skin

malignancies.

Contact: Dr Michael Weichenthal

Klinik für Dermatologie, Venerologie und Allergologie

Universitätsklinikum Schleswig-Holstein, Campus Kiel

Schittenhelmstr. 7

24105 Kiel, Germany

Tel.: 0431-597 1539

Fax: 0431-597 1606

[email protected]


James E. HARRISON

Chair: External Cases and Injuries Topic Advisory Group

Dr James Harrison is an injury epidemiologist who directs the Research

Centre for Injury Studies at Flinders University, in South Australia. He is

an Associate Professor in the School of Medicine at the university. The

Research Centre operates the National Injury Surveillance Unit (NISU) of

the Australian Institute of Health and Welfare, which he also directs.

NISU is Australia’s national centre for injury surveillance. Its many publications are accessible on-line.

Dr Harrison and the NISU team make extensive use of mortality data and hospital data classified

according to the International Classification of Diseases (ICD). During the past decade, they have

worked closely with Australia’s National Centre for Classification in Health concerning the injury and

external causes chapters of the Australian clinical versions of ICD-9 and ICD-10, providing advice and

making submissions concerning the content of revisions. Dr Harrison is currently a chief investigator in

a project to evaluate the quality of ICD external cause coding of hospitalized injury cases in Australia.

Dr Harrison has been actively involved with the development of the International Classification of

External Causes of Injury (ICECI) since its inception, and is a member of the ICECI Coordination and

Development Group. He is also a longstanding active participant in the International Collaborative

Effort on Injury Statistics, convened by the US National Center for Health Statistics.

Dr Harrison holds a degree in medicine from Melbourne University, a Master of Public Health degree

from the University of Sydney, and is a Fellow of the Australasian Faculty of Public Health Medicine. His

main areas of research interest are injury prevention and control, and methods and infrastructure for

public health surveillance and evaluation, including classifications.

Contact: Research Centre for Injury Studies

Flinders University – School of Medicine

National Injury Surveillance Unit AIHW,

Sturt Road, Bedford Park, Adelaide, Australia

[email protected]


Kentaro SUGANO

Chair: Internal Medicine Topic Advisory Group

Dr Kentaro Sugano received his doctorate and degree in

medicine at the University of Tokyo. Further education at the

Tokyo University Hospital led to the PhD. Dr Sugano did

research at the University of California, and at the University

of Michigan. His further career continued at the University of

Tokyo and the Jichi Medical School. Dr Sugano is Chief

Professor and Chairman of the Department of Internal

Medicine, Jichi Medical University and Deputy Director of Jichi

Medical University Hospital.

Dr Sugano is a member of several national and international medical societies: Japanese Society of

Internal Medicine (council member), Japanese Society of Gastroenterology (member of the Board of

Directors), Japanese Gastroenterological Endoscopy Society (council member), and Japanese Society for

Helicobacter Research (council member), Japanese Gastric Cancer Association (council member),

American Gastroenterology Association, Steering Committee Member of the International Gut

Hormone Conference. He is co-editor of “Gastric Cancer” and has been the editor or advisor to several

other renowned international journals. Some 300 research publications underpin his expertise in the

field of internal medicine.

Contact: Department of Internal Medicine

Jichi Medical School

3311-1 Yakushiji

Shimotsuke 329-0498 Japan

[email protected]


Steven E. HYMAN

Chair: Mental Health Topic Advisory Group

Steven E. Hyman, MD is Provost of Harvard University and Professor of

Neurobiology at Harvard Medical School. From 1996 to 2001, he served as

Director of the National Institute of Mental Health (NIMH), the component

of the US National Institutes of Health charged with generating the

knowledge needed to understand and treat mental illness. Before serving

as Director of NIMH, Dr. Hyman was Professor of Psychiatry at Harvard

Medical School, Director of Psychiatry Research at Massachusetts General

Hospital, and the first faculty Director of Harvard University's Mind, Brain,

and Behavior Initiative. In the laboratory he studied the molecular biology

of neurotransmitter action.

Dr. Hyman is a member of the Institute of Medicine of the National Academy of Sciences and of the

American Academy of Arts and Sciences. He currently serves as Editor of the Annual Review of

Neuroscience. He received his BA from Yale College in 1974 summa cum laude, and his MA from the

University of Cambridge in 1976, which he attended as a Mellon fellow studying the history and

philosophy of science. He earned his MD from Harvard Medical School in 1980.

Contact: The Office of the Provost

Massachusetts Hall, Harvard University

Cambridge, MA 02138, USA

[email protected]


Martin SUNDBERG

Chair: Musculoskeletal Topic Advisory Group

Dr Martin Sundberg is a consultant Orthopedic surgeon.

He received his medical degree at Lund University 1988

and became a certified specialist in Orthopedics in 1995.

After his clinical training program he started research at

Malmö University hospital and took his doctoral degree

in 2001 on bone mass measurements in relation to physical activity during adolescence. After that his

main research focus has been on joint replacement. Since 2008 he is Associate Professor at Lund

University and since 2006 he is leader of the Arthroplasty unit at Lund University Hospital. He is the

official orthopedic coding expert to the Swedish National Board of Health and Welfare and is

responsible for coding within the Swedish Orthopedic Society. Contact: Department of Orthopedics

Lund University Hospital

222 35 Lund

Sweden

[email protected]


D. Maxwell PARKIN

Chair: Neoplasms Topic Advisory Group

After graduating in medicine (Edinburgh University, 1968), and initially

specialising in internal medicine and gastoenterology, Dr Parkin became

qualified in Public Health/Epidemiology in 1974. He worked in this field in

Edinburgh, Leeds, and University of Michigan School of Public Health. Dr.

Parkin moved to the International Agency for Research on Cancer (WHO)

in Lyon in 1981, first as scientist, and then, from 1986, as head of the

Descriptive Epidemiology Unit, where he remained until October 2004.

Currently, he is:

• Visiting senior research fellow, Clinical Trials Service Unit and Epidemiological Studies Unit, Oxford University,

• Epidemiologist, Wolfson Institute of Preventive Medicine (Queen Mary University, London)..

• Consultant to Kampala Cancer Registry (Uganda).

• Head of Cancer Registry Programme of the International Network for Cancer Treatment and Research (INCTR)

Other positions and activities:

• Immediate Past-President, International Association of Cancer Registries

• Chairman of the steering committee of the European Network of Cancer Registries

• Honorary Professor, Peking Medical University College

• Honorary Professor, Tianjin Medical University

• Foreign Adjunct Professor, Karolinska Institute, Stockholm

• Chair the International Scientific Advisory Committee Cancer Surveillance Epidemiology Networks, Canadian Partnership Against Cancer (CPAC)

His work at the International Agency for Research on Cancer (IARC) included responsibility for classification

and coding of neoplasms, including chairing the committee and board of editors for the third edition of the

International Classification of Diseases for Oncology (ICD-O 3) in 2000. He continues in an advisory role to

IARC in this field

Dr Parkin has published extensively, with more than 300 papers and reviews in the international scientific

literature, mainly on descriptive epidemiology (international cancer patterns and trends), with a major

concern for cancer registration, and in cancer prevention and control (especially the effectiveness of cancer

screening).

Contact: Clinical Trial Service Unit & Epidemiological Studies Unit

University of Oxford

Richard Doll Building

Old Road Campus

OXFORD OX3 7LF

U.K.

Tel: (44) 1865 743743 (reception)

(44) 1865 743663 (direct)

FAX: (44) 1865 743985

[email protected]

Cancer Research UK Centre for Epidemiology, Mathematics

and Statistics

Wolfson Institute of Preventive Medicine

Charterhouse Square

LONDON EC1M 6BQ

U.K.

Tel: (+44) 207 014 0271

FAX: (+44) 207 014 0269

[email protected]


Raad A. SHAKIR Chair: Neurology Topic Advisory Group

Raad Shakir is the Chief of Neurology, Imperial College NHS Trust,

Charing Cross Hospital, London, UK. He is the Secretary-Treasurer

General World Federation of Neurology.

He qualified from Baghdad Medical School in 1971. Received

Neurology Training in Glasgow and was Fellow at Massachusetts

General Hospital.

He has served as Chair and member of many committees of the WFN

and International League Against Epilepsy. His work in the field of Tropical Neurology spans 20 years.

This resulted in the publication of two books on the topic. He is heavily involved in Clinical Neurology

practice and training as an examiner and Regional Neurology Speciality advisor to the UK Royal College

of Physicians London.

His previous appointments include Academic vice Dean and Editor of four Journals in the field of CNS

Infections, Co-Editor of Continuum, CNS Infections section, of the American Academy of Neurology.

Raad Shakir was Member of the Publication and Public Relations committees WFN, Chair Tropical

Neurology Research Group WFN, Tropical Neurology Commission ILAE, and Chair Local Organising

committee World Congress of Neurology, London 2001.

In his capacity as Secretary-Treasurer General of the WFN, he is closely involved in international affairs

of Neurology development, teaching, public health provision of neurological services and education. Contact: Raad A Shakir

Charing Cross Hospital

London W6 8RF

[email protected]


Satoshi KASHII

Co-Chair: Ophthalmology Topic Advisory Group

Dr Satoshi Kashii received his degree in medicine at Gifu University,

doctorate degree at Kyoto University Graduate School of Medicine

and Neuro-Ophthalmology fellowship at Albert Einstein College of

Medicine. He is a fellow of the North American Neuro-Ophthalmology

Society (NANOS). He is now Director of Department of

Ophthalmology, Osaka Red Cross Hospital and Clinical Professor of

Ophthalmology, Kyoto University School of Medicine. Current

research interests concern clinical research that addresses function,

disease and response to therapy of neuro-ophthalmic disorders, with

particular emphasis in visual fields and optic nerve disorders.

As for social activities, Dr. Kashii is the Secretary General of the Asian Neuro-Ophthalmology Society and

member of several national and international ophthalmology societies; Japanese Ophthalmological

Society (Council Member), Japanese Neuro-Ophthalmology Society (Board Member), American

Academy of Ophthalmology, NANOS and Association for Research in Vision and Ophthalmology. He is

an editorial board member of the Japanese Journal of Ophthalmology (Executive Editor), the Journal of

Neuro-Ophthalmology, and the Neuro-Ophthalmology Japan (Shinkeiganka).

Contact: Professor of Visual Science

Faculty of Health and Medical Sciences

Aichishukutoku University

Aichi-Prefecture 480-1197

Japan

[email protected]


Jeffrey F. LINZER Sr.

Chair: Paediatrics Topic Advisory Group

Jeffrey Linzer Sr., MD is an Associate Professor of Pediatrics and

Emergency Medicine at Emory University School of Medicine. He

received his BA from the University of California, Santa Barbara,

began his medical training at CEU Xochicalco and finished it at the

University of California, Irvine, California College of Medicine. He

did his pediatric residency at the University of California, Irvine and fellowships in Allergy-Clinical

Immunology and Pediatric Emergency and Transport Medicine at Children's Hospital Los Angeles. Board

certified in Pediatric Emergency Medicine, he is a Fellow of the American Academy of Pediatrics and the

American College of Emergency Physicians.

Dr. Linzer currently is the Associate Medical Director for Compliance for the Division of Pediatric

Emergency Medicine and Co-Director for the Children’s Sedation Service, at Children’s Healthcare of

Atlanta, Emory University. In addition to his clinical and academic duties, he represents the American

Academy of Pediatrics on the ICD-9-CM Editorial Advisory Board and Coordination and Maintenance

Committee, and serves on several national committees dealing with diagnosis coding issues. He is

currently working with several medical societies on the United States’ transition to ICD-10-CM.

Contact: Division of Pediatric Emergency Medicine

Children’s Healthcare of Atlanta

1405 Clifton Road, NE

Atlanta, GA 30322, USA

[email protected]


Ségolène AYMÉ

Chair: Rare Diseases Topic Advisory Group

Dr Ségolène Aymé is a medical geneticist, director of research at the

French Medical Research Council (INSERM). She is the executive

manager of the INSERM department dedicated to information on

rare diseases in Paris. This service established in 1997 the European

database of rare disease and orphan drugs named Orphanet

(www.orpha.net), currently funded by the French ministry of health,

the INSERM and the European commission (DG Public Health and DG

Research).

She was the founder and the first president (1997-1999) of the

International Federation of Human Genetics Societies. She is the

current chairperson of the Public and Professional Policy Committee of the European Society of Human

Genetics which is releasing recommendations and guidelines (http://www.eshg.org) and the leader of

the Rare Diseases Task Force established by the European Commission, DG Public Health and

Consumers’ protection. She is also the chairperson of the French Society of Human Genetics and the

editor-in-chief of the Orphanet Journal of Rare Diseases (www.ojrd.com).

Contact: Ségolène Aymé

INSERM SC11 / Orphanet

102 rue Didot – 75014 Paris, France

Tel: +33 1 56 53 81 37

[email protected]


Marjorie S. GREENBERG

Co-Chair: WHO-FIC Council Marjorie S. Greenberg is Chief of the Classifications and Public

Health Data Standards Staff (CPHDSS) at the National Center for

Health Statistics (NCHS), Centers for Disease Control and Prevention,

U.S. Department of Health and Human Services (DHHS)

([email protected]). The CPHDSS serves as a nucleus within NCHS for

data standards and classification by fostering the collaborative development of tools and guidelines to

enhance the integrity, comparability, quality, and usefulness of the data products from a wide variety of

public and private agencies at the international, national and sub-national levels.

Ms. Greenberg, who has been with NCHS since 1982, also serves as Executive Secretary to the National

Committee on Vital and Health Statistics, which is the external advisory committee to NHHS on health

information policy. She has been Head of the WHO Collaborating Center for the Family of International

Classifications (FIC) for North America since 1996 and has chaired the WHO-FIC Education Committee

since its inception in 1999. Ms. Greenberg is the 2005-2007 chair of the WHO-FIC Network Planning

Committee and also is an ex-officio member of the Joint Collaboration with the International Federation

of Health Records Organizations (IFHRO). Her areas of interest and expertise include health data

standardization, uniform health data sets, health classifications, training and education, data policy

development and evaluation policy. She speaks and writes on these subjects for national audiences and

co-authored the chapter on Standards and Their Use in Health Statistics in a comprehensive edited

volume on Health Statistics (Oxford University Press, 2005).

Ms. Greenberg is a founding member of the Public Health Data Standards Consortium, and serves on

the Consortium Board of Directors as Vice President for Federal agencies and is the Consortium’s

federal representative to the National Uniform Billing Committee.

Ms. Greenberg received her bachelor’s degree from Wellesley College and a master’s degree from

Harvard University.

Contact: Marjorie S. Greenberg

National Center for Health Statistics

Centers for Disease Control and Prevention

3311 Toledo Road, Room 2413

Hyattsville, MD 20782

USA

[email protected]


Stefanie WEBER Co-Chair: WHO-FIC Council

Dr. Weber received her medical degree from the University of Frankfurt, Germany in 1998. In the same

year she finished her doctoral thesis. After some additional training in computer science Dr. Weber

joined DIMDI, the "German Institute of Medical Documentation and Information" which is an institute

within the scope of the German Ministry of Health.

She has recently been appointed as the new head of the German Collaborating Centre of the WHO

Family of International Classifications (FIC) Network. She has also been elected to be co-chair of the

Electronic Tools Committee of the WHO-FIC Network.

Current international projects of Dr. Weber include the development of a classification maintenance

tool in collaboration with WHO. Additionally, she is member of the Core Group of the IRIS project, an

international project for the development of an automated coding system for causes of death.

DIMDI provides high quality information for all health care areas. It develops and operates database-

supported information systems for drugs and medical devices and is responsible for a programme that

evaluates medical procedures and technology (Health Technology Assessment, HTA).

DIMDI is the publisher of official medical classifications such as ICD-10-GM and OPS (German procedure

classification) and maintains medical terminologies, thesauri, nomenclatures and catalogues (e.g.

MeSH, UMDNS, Alpha-ID, LOINC, OID) that are important for health care telematics and other

applications.

DIMDI facilitates online access to its information systems and 70 databases covering the entire field of

medicine. It also develops and maintains software applications and operates its own data processing

centre.

Contact: DIMDI - German Institute of Medical Documentation and Information

Waisenhausgasse 36 - 38a

50676 Köln

Office: +49 221 4724-485

Fax: +49 221 4724-444

[email protected]


Mea M. C. RENAHAN

Chair: Update and Revision Committee WHO-FIC

Mea Renahan is a business executive with over 25 years in

health-care administration. She is a Certified Health Executive

with the Canadian College of Health Service Executives. She

holds a Masters in Business Administration from York University

and an Honours Bachelor of Science in Physical Therapy from the

University of Toronto.

Since January of 2002, she has held the position of Manager of Classifications Standards at the Canadian

Institute for Health Information (CIHI). CIHI is a pan-Canadian, independent, not-for-profit organization

whose mandate is to improve the health of the health system and the health of Canadians by providing

reliable and timely health information. In this position, she is responsible for the development,

maintenance, adoption and implementation throughout Canada of the International Statistical

Classification of Diseases and Related Health Problems, 10th Revision, Canada (ICD-10-CA) and the

Canadian Classification of Health Interventions (CCI) in both English and French. She manages a cross-

country and bilingual team of Health Information Management (HIM) Professionals.

Her administrative career has spanned: acute, long-term; rehabilitation, and community care at both

local and provincial levels. As the Vice President of Client Services for the Arthritis Society, Ontario

Division, she was responsible for directing the development and delivery of clinet services to people

with arthritis throughout Ontario. She designed and implemented province-wide volunteer supported

Community Arthritis Programs.

She held the position of Director of Physiotherapy at St. Joseph’s Health Centre in Toronto, a multi-level

hospital serving West Toronto with 803 beds and over 1,400 employees.

Her credentials include—

Chair, WHO Update and Revision Committee (URC)

Member, WHO-FIC Planning Committee

Member, Board of Directors for the Canadian Therapeutic Riding Association

Member, Executive Committee, University of Toronto P & OT Alumni Association

Contact: Canadian Institute for Health Information

90 Eglinton Avenue East, Suite 300

Toronto ON M4P 2Y3, Canada

[email protected]


Richard MADDEN

Chair: Family Development Committee WHO-FIC

Dr Richard Madden is Professor and Director of the National

Centre for Classification in Health at the University of Sydney.

The Centre produces ICD-10-AM and the Australian Classification

of Health Interventions, and works across a range of health

classification and terminology issues. He plays an active role in

WHO work on health and related classifications.

Dr Madden was Director of the Australian Institute of Health and

Welfare, Australia’s national health and welfare statistics

agency, for 10 years up to January 2006. Previously, he was Deputy Australian Statistician for three

years.

In earlier roles, Richard Madden worked in government health and disability agencies, and headed the

ACT and the Northern Territory Treasuries. He is a statistician and an actuary, being actuary of the year

in 2002. Dr Madden has a Bachelor of Science from Sydney University and a PhD in statistics from

Princeton University. In the Australia Day honours list of 2003, Dr Madden was awarded the Public

Service Medal in recognition of the commitment he has made to improve national health and welfare

data collection and standards. Contact: National Centre for Classification in Health, Faculty of Health Sciences

University of Sydney

P.O. Box 170

Lidcombe NSW 1825

Australia

[email protected]


Mark A. MUSEN

Co-Chair: Health Informatics and Modelling Topic Advisory Group

Dr. Musen is Professor of Medicine (Biomedical Informatics Research)

and Computer Science (by courtesy) at Stanford University, where he is

head of the Stanford Center for Biomedical Informatics Research. He

holds an MD from Brown University and a PhD from Stanford.

Dr. Musen conducts research related to intelligent systems, the

Semantic Web, reusable ontologies and knowledge representations, and biomedical decision support.

His long-standing work on a system known as Protégé has led to an open-source technology now used

by thousands of developers around the world to build intelligent computer systems and new computer

applications for e-science and the Semantic Web. He is known for his research on the application of

intelligent computer systems to assist health-care workers in guideline-directed therapy and in

management of clinical trials. He is principal investigator of the National Center for Biomedical

Ontology, one of the seven National Centers for Biomedical Computing supported by the NIH Roadmap.

In 1989, Dr. Musen received the Young Investigator Award for Research in Medical Knowledge Systems

from the American Association of Medical Systems and Informatics. He received a Young Investigator

Award from the National Science Foundation in 1992. In 2006, he was recipient of the Donald A. B.

Lindberg Award for Innovation in Informatics from the American Medical Informatics Association. Dr.

Musen sits on the editorial boards of several journals related to biomedical informatics and computer

science. He is co-editor of the Handbook of Medical Informatics (Springer-Verlag, 1997) and co-editor-

in-chief of the journal Applied Ontology.

Contact: Stanford Center for Biomedical Informatics Research

Stanford University

251 Campus Drive, X-215

Stanford, California 94305-5479

USA

[email protected]


Alan RECTOR

Co-Chair: Health Informatics and Modelling Topic Advisory Group

Alan Rector is Professor of Medical Informatics in the School of

Computer Science at University of Manchester. He received his BA in

Philosophy and Mathematics from Pomona College, his medical training

at the universities of Chicago and Minnesota where he obtained his MD,

and his PhD in Medical Informatics from the University of Manchester.

Over the past twenty-five years he has led a series of projects on clinical decision support, medical

records, and medical terminology including the ground breaking PEN&PAD project on intelligent

medical records He led the GALEN program (www.opengalen.org) on clinical terminology and ontology.

More recently his work evolved to include application of the Web Ontology Language, OWL, and

development of the Protégé-OWL ontology development environment in collaboration with the

Stanford Center for Biomedical Informatics Research.

He currently leads two industrial collaborations using OWL to enhance clinical systems. One is with

Siemens Medical Solutions Health Services of the US, on knowledge driven clinical systems. The other is

with Informatics CIS of Glasgow, on adaptable forms for pre-anaesthesia assessment and other

specialized information gathering tasks. From 2002 to 2008 he led the MRC sponsored Cooperative

Clinical E-Science Framework (CLEF) consortium of UK universities and NHS trusts that aimed to

provide "joined up" information solutions for clinical care and research.

He has been a visiting senior scientist at Stanford University and consultant to the NHS and Connecting

for Health, Hewlett Packard, the Mayo Clinic, and a variety of smaller companies. He has been active in

various national and international committees including, the JISC Support of Research Committee, the

National Cancer Research Institute's Informatics Initiative, the Joint NHS/Higher Education Forum on

Informatics, and the Board of the Academic Forum of the UK Institute for Health Informatics. He has

also been active in HL7, the main standards body for health informatics, and on the board of HL7-UK.

In 2003, Professor Rector was awarded the first British Computer Society Health Informatics Committee

award for lifetime service to Health Informatics. Contact: School of Computer Science

University of Manchester

Manchester M13 9PL

UK

[email protected]

Office: +44 (0) 161 275 6149 /6188

Mobile: +44 (0 771 511 7526


Cille KENNEDY

Co-Chair: Functioning Topic Advisory Group Cille Kennedy is a Senior Policy Analyst in Health Policy, Office of the

Assistant Secretary for Planning and Evaluation (ASPE), US

Department of Health and Human Services (DHHS). The ASPE is

principal advisor to the Secretary of DHHS on policy development,

and is responsible for major activities in policy coordination,

legislation development, strategic planning, policy research, evaluation, and economic analysis.

In her former position at the National Institute of Mental Health, National Institutes of Health, Dr.

Kennedy was a Project Scientist for the development of the World Health Organization’s Disability

Assessment Schedule 2 (WHO DAS 2). Simultaneously, she was Chair of the International Mental Health

Task Force for the development of the WHO’s International Classification of Functioning, Disability and

Health (ICF).

Her interest in the relationship between disorder and functioning/disability was stimulated in 1983

when she was responsible for designing and managing the American Psychiatric Association’s (APA)

evaluation of the Social Security Administration’s standards and guidelines which had been developed

for the determination of disability on the basis of mental disorders.

Since 2008, she has been an Advisor to the APA’s Impairment Assessment Study Group which is working

to distinguish the relationship of disorder and functioning/disability in the formulation of a diagnosis

and in the application of the clinical significance criterion. The work is part of the APA’s development

of its fifth edition of the Diagnostic and Statistical Manual. The group is basing its work on the

conceptual model and classification of functioning/disabilities in the ICF.

Dr. Kennedy received her graduate education in psychology at New York University. The focus of her

recent presentations and publications has been the relationship of functioning/disability and mental

disorders, notably in the context of revising the classifications of mental disorders.

Contact: Cille Kennedy

Office of the Assistant Secretary for Planning and Evaluation

Health Policy – Room 447D

200 Independence Avenue, SW

Washington, DC 20201

USA

[email protected]


Gerold STUCKI

Co-Chair: Functioning Topic Advisory Group

Gerold Stucki is Professor and Chair of the Seminar of Health Sciences

and Health Policy at the University of Lucerne and Director of Swiss

Paraplegic Research in Nottwil, Switzerland.

He received his medical education at the University of Berne and

obtained a Master of Science (MSc.) in Health Policy and Management

from the Harvard School of Public Health and a diploma in Biostatistics

and Epidemiology from the University of McGill, Montréal, Canada.

During his appointment as Chair of the Department of PRM at the Ludwig-Maximilian University from

1999-2009, Prof. Stucki pursued clinical research in PRM and musculoskeletal medicine, and developed

a new research agenda for human functioning and rehabilitation research. His clinical research focused

on the development of concepts and programs for multidisciplinary rehabilitation service and care

provision in the acute hospital, inpatient rehabilitation, post-acute community care and prevention

programs.

In the context of Prof. Stucki’s new research agenda he has been collaborating with the WHO a member

of its Classification, Terminology and Standards team in an international effort to implement the new

International Classification of Functioning, Disability and Health (ICF) in rehabilitation and the health

sector in general. To facilitate human functioning sciences research, Prof. Stucki has initiated the ICF

Research Branch at the LMU Institute for Health and Rehabilitation Sciences (www.icf-research-

branch.org) as an international research network under the auspices of WHO´s German Collaboration

Center for the Family of International Classifications. Since 2005, he has been assigned the task of

developing the Swiss Paraplegic Research (SPF) into a research institution with a comprehensive

perspective. The goal of the SPF is to contribute to optimizing the quality of life of people with spinal

cord injury (SCI) as well as “to learn for and from SCI” for the benefit of people with SCI and other

health conditions. With his teams at the ICF Research Branch and SPF, Prof. Stucki has been playing a

key role in WHO´s ICF implementation activities.

Since August 2009 he has been appointed as Professor and Chair of the Seminar of Health Sciences and

Health Policy at the University of Lucerne. The Seminar aims to run educational and research programs

and to coordinate a forum that facilitates the translation of research into practice - all with the goal of

optimizing the functioning and social inclusion of people with health conditions.

Contact: Guido A. Zäch Str. 4

CH-6207 Nottwil

[email protected]


Syed ALJUNID

Co-Chair: Morbidity Topic Advisory Group

Dr Syed Aljunid is a Professor of Health Economics and a Senior Research

Fellow at the United Nations University-International Institute for Global

Health. Prior to this, he served as a Consultant in Public Health Medicine

and Head of the Department of Community Health, Faculty of Medicine,

National University of Malaysia (UKM). He obtained his MD from

Universiti Kebangsaan Malaysia, a Master of Science in Public Health

from the National University of Singapore and a PhD in Health Economics

and Financing Programme from the London School of Hygiene and

Tropical Medicine. He is a Fellow of the Academy of Medicine Malaysia since 2000.

His main interest is in strengthening health care systems in developing countries through research and

development in health economics and financing. He is currently involved in supporting a number of

developing countries develop and implement case-mix systems for provider payment under social

health insurance programmes. This includes Malaysia, Indonesia, Mongolia, Uruguay and the

Philippines.

He heads the International Training Centre on Case-mix and Clinical Coding established in 2006 at the

University Kebangsaan Malaysia to build human resource capacity of case-mix systems with special a

focus on low and middle income countries.

He is currently the Founder President of Malaysian Health Economics Association (MY-HEA), President

of Public Health Medicine Specialist Association of Malaysia and Executive Board Member of Asia Pacific

International Society of Pharmoeconomics and Outcome Research. He served as a consultant and

adviser to a number of international agencies such as the World Health Organisations, UN-AIDS, UNDP,

UNICEF, GAVI, Asian Development and the World Bank in various international projects.

He has published more than 200 journal articles, monographs and seminar papers.

Contact: Syed Mohamed Aljunid

United Nations University-International Institute For Global Health,

HUKM Complex, Jalan Yaacob Latiff, 56000 Cheras

Kuala Lumpur, MALAYSIA

+603.9171 5394

[email protected]


Harold A. PINCUS

Co-Chair: Quality and Safety Topic Advisory Group

Harold Alan Pincus, M.D. is Professor and Vice Chair of the Department of

Psychiatry and Co-director of the Irving Institute for Clinical and

Translational Research at Columbia University and Director of Quality and

Outcomes Research at New York Presbyterian Hospital. He also serves as a

Senior Scientist at the RAND Corporation.

He graduated from the University of Pennsylvania and received his medical degree from Albert Einstein

College of Medicine in New York. Following completion of residency at George Washington University

Medical Center, Dr. Pincus was named a Robert Wood Johnson Foundation Clinical Scholar. As a Clinical

Scholar, he served as a professional staff member of the President’s Commission on Mental Health at

the White House and, subsequently, as a congressional fellow in the U.S. House of Representatives.

Dr. Pincus has been the leader or co-investigator of multiple projects related to health care quality

and patient safety, health system evaluation and comparative effectiveness research, including

Director of the Robert Wood Johnson Foundation National Program in Depression in Primary Care:

Linking Clinical and System Strategies and the Health and Aging Policy Fellowship Program funded by

Atlantic Philanthropies. He also chaired and served on national committees related to the evaluation

of quality and patient safety for the National Institute of Health, Institute of Medicine/National

Academy of Sciences, National Quality Forum, National Committee for Quality Assurance, and World

Health Organization. In addition, he has been extremely involved in the development of medical

classification systems, e.g. as Vice Chair of the Task Force to develop the Diagnostic and Statistical

Manual of Mental Disorders, 4th edition (DSM IV). Internationally, he has been involved in the

International Initiative of Mental Health Leadership (IIMHL) leading an initiative of 12 countries to

develop and implement a framework of mental health quality indicators.

He has been appointed to the editorial boards of ten major scientific journals and has edited or co-

authored 23 books and over 300 scientific publications in health services research, science policy,

research career development and the diagnosis, classification and treatment of mental disorders.

Contact: NYS Psychiatric Institute

Room 5813 Unit/Box:09

1051 Riverside Drive

New York, NY 10032

Phone: 212-543-5401

Fax: 212-543-6038

[email protected]


William GHALI

Co-Chair: Quality and Safety Topic Advisory Group

Dr. William Ghali, MD, MPH, is a Professor in the Departments of Medicine

and Community Health Sciences at the University of Calgary. He is also

based in the Centre for Health and Policy Studies in Calgary, Alberta,

Canada. He is holder of a Government of Canada Research Chair in Health

Services Research, and is also funded as a Health Scholar by the Alberta

Heritage Foundation for Medical Research. Clinically, he is trained as a

General Internist (MD [‘90] - University of Calgary, FRCP(C) [‘94] - Queen’s University, Kingston,

Ontario), while his methodological training in health services research and epidemiology was obtained

in the Health Research Unit at Boston University, where he also completed a Masters of Public Health

Degree (MPH [‘95]).

Dr. Ghali’s research program is in the general area of health services research and thus falls within the

third of four ‘pillars’ identified by the Canadian Institutes of Health Research. His work focuses on

evaluating health care delivery for four inter-related high incidence and prevalence conditions -- cardiac

disease, diabetes, cerebrovascular disease, and venous thromboembolic disease. These all represent

serious conditions that have a large impact on the Canadian health care system and that influence the

quality of life of many Canadians. Cardiac disease, cerebrovascular disease, and venous

thromboembolic disease share the common thread of being serious vascular diseases that constitute

the focus of the Heart and Stroke Foundation of Canada. Meanwhile, diabetes is a high prevalence

condition that causally and prognostically influences these vascular diseases. Improved effectiveness

and efficiency of health care delivery to individuals with each of these conditions is clearly important to

Canadians and their health care system.

Dr. Ghali’s research has shed light on several aspects of quality of care relating to the medical

conditions that are the focus of his program. Specifically, his work has provided important information

on:

• Trends in outcomes of care for these conditions

• Descriptions of processes of care for these conditions

• Equity, and in some instances inequity, of access to care for these conditions (by age, by

sex/gender, by geographic location of residence, by income level, by race/ethnicity)

• Appropriateness of certain procedures for these conditions

• Practice variation across regions and hospitals, and the implications of such variation on quality

of care

• Economic considerations in rationing of health services

• Cost impact of adverse events

• Waiting times for cardiac care

Given the pride that Canadians have in their health care system, and the investment of federal and

provincial governments in the future enhancement of our health care system, findings from this

research have considerable public policy implications relevant to the general health and well-being of

Canadians.


Tevfik Bedirhan ÜSTÜN World Health Organization Coordinator: Classifications, Terminologies and Standards

Dr. Üstün has worked in WHO since 1990 first in Mental Health, then in

Evidence Cluster as an international health officer and formed multiple

international networks on Classification and Assessment of Health and

Disability; Mental Health Epidemiology, and Primary Care applications of

classification and training programmes.

He has conducted large scale epidemiological surveys such as the

Psychological Problems in General Health Care (1990-1998) ; World

Mental Health Surveys ( 1998- 2006) and World Health Surveys ( 1999-

2003).

Currently he is responsible for the WHO’s Family of International Classifications (ICD, ICF and other

health classifications); development of standardized health terminologies; and compilation of health

information standards.

Dr. Üstün is the author and co-author of more than 150 articles, several books on psychiatry, primary

care, classifications and health assessment. He has been awarded as a Distinguished Fellow from

American Psychiatric Association; Honorary Fellow from Royal College of Psychiatrists from UK; National

Scientific Council Fellowship from Turkey.

Further information http://www.who.int/classifications

Contact: World Health Organization

20, Av. Appia

1211 Geneva, Switzerland


Robert JAKOB World Health Organization Medical Officer - ICD: Classifications, Terminologies and Standards

Robert Jakob, MD is Medical Officer of WHO in charge of the ICD and

derived classifications, since 2005.

From 2001 to 2005, he served at the German Institute for Medical

Documentation and Information (DIMDI), a federal authority, which is also

a WHO-FIC Collaborating Centre. He led a team that helped formulate a German emergency data set,

and other data sets for the German electronic health card, as well as creating a registry for “electronic

objects” (OID) in health. He was earlier in charge of ICD use in mortality statistics, the ICD adaptation

for Oncology, the ICF (International Classification of Functioning, Disability, and Health), and consulting

for the classification of procedures in medicine. Dr Jakob’s fluency in four languages facilitated his

participation in the international activities of the Network of the WHO-FIC Collaborating Centres. Dr

Jakob was a surgeon at the St Vincenz Hospital in Datteln from 1990-2001, and set up and ran the

hospital information system.

Dr Jakob is member of the German Society of Medical Informatics, Biometry and Epidemiology, has a

diploma in medical quality management (German Medical Board) and management of health and social

institutions (Univ. Kaiserslautern). He is a board certified surgeon and received his medical education at

the University of Essen.



20, Av. Appia


Tel +41 22 791 5877


Can ÇELIK

World Health Organization

Systems Analyst: Classifications, Terminologies and Standards

Can Çelik has worked in WHO as a Systems Analyst since 1996.

He has worked in the development of Computer Aided Personal

Interviewing software, rule based diagnostic systems, computerization of

WHO assessment instruments and large scale survey management.

Since 2005 he has been mainly working for the Classifications, Terminologies and Standards Unit on the

design and development of tools that facilitate the use, update and maintenance of the WHO

classifications.

Mr. Çelik received his Computer Engineer degree in 1991 and M.Sc. degree in 1995 from the Middle

East Technical University Ankara, Turkey and he was the Head of the Systems Administration and

Programming Unit in the Computer Center of the same University before he joined WHO.



20, Av. Appia


Tel +41 22 791 3008


Sara COTTLER World Health Organization

Technical Officer: Classifications, Terminologies and Standards

Sara Cottler is a technical officer in the Classifications,

Terminologies and Standards unit at the WHO Headquarters in

Geneva. She has held this position since December 2008. Sara

works as the project manager of the ICD Revision towards an ICD-

11.

Previously, she worked as a technical officer for the International Centre for Migration and Health in

Geneva, Switzerland.

Ms. Cottler received a dual-degree in Gender and Women Studies and Anthropology from Washington

University in St. Louis in 2007.



20, Av. Appia


Tel +41 22 791 2739 [email protected]

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