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Ngosl to noggcpsl Ci jitlrja rlport oi cnnlss to sonjcg ncrl cid cdvoncny eor plopgl wjth A.L./NE^ J doi‚t hcvl thl strlifth to orfcijsl ncrl eor ayslge, so J ca kust struffgjif throufh dojif whct gjttgl J nci. J acicfl to wcsh or `cth c`out twjnl c aoith. Ay housl js gthy cid J ca salggy. Ay alcgs crl gjajtld to thl aost sjapgl, aostgy ajnrowcvl rlcdy alcgs. Ct tjals thjs acmls al sujnjdcg.

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Publisher: Action for M.E. Authors: Catherine Hale, Sonia Chowdhury, Clare Ogden and Emma Hypher.M.E./CFS is a chronic disabling condition that can have a devastating effect on people’s lives.This interim report, based on findings from a survey carried out by the charity Action for M.E., demonstrates the shocking gap between the need for social care, and the provision of appropriate services, for adults in the UK with this disabling condition.850 people with M.E./CFS took part in the survey, describing the effect of the condition on their daily lives, their need for social care, and their access to advocacy to facilitate this.

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Ngosl to noggcpslCi jitlrja rlport oi cnnlss to sonjcg ncrlcid cdvoncny eor plopgl wjth A.L./NE^

‗J doi‚t hcvl thl strlifth to orfcijsl ncrl eor ayslge, so J ca kust struffgjifthroufh dojif whct gjttgl J nci. J acicfl to wcsh or `cth c`out twjnl c aoith.Ay housl js ffigthy cid J ca salggy. Ay alcgs crl gjajtld to thl aost sjapgl,

aostgy ajnrowcvl rlcdy alcgs. Ct tjals thjs acmls al sujnjdcg.‑

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A.L./NE^ js c nhroijn djsc`gjif noidjtjoi thct nci hcvl c dlvcstctjif leelntoi plopgl‚s gjvls.

Thjs jitlrja rlport, `csld oi ffiidjifs eroa c survly ncrrjld out `y thl nhcrjtyCntjoi eor A.L., dlaoistrctls thl shonmjif fcp `ltwlli thl illd eor sonjcgncrl, cid thl provjsjoi oe cpproprjctl slrvjnls, eor cdugts ji thl \M wjth thjsdjsc`gjif noidjtjoi.

8<2 plopgl wjth A.L./NE^ toom pcrt ji thl survly, dlsnrj`jif thl leelnt oe thlnoidjtjoi oi thljr dcjgy gjvls, thljr illd eor sonjcg ncrl, cid thljr cnnlss tocdvoncny to ecnjgjtctl thjs.

Thlrl‚s ovlrwhlgajif lvjdlinl thct thl ackorjty oe plopgl wjth A.L./NE^ crliot rlnljvjif thl sonjcg ncrl cid support to whjnh thly crl litjtgld. Jt‚s cgsonglcr eroa thl rlsugts thct, eor thl sacgg iua`lr who do rlnljvl plrsoicgjsldcid cpproprjctl support, thl `lilffits nci `l sjfijffincit. Howlvlr, `lttlrcnnlss to cdvoncny js illdld to ecnjgjtctl thljr jivogvlalit ji sonjcg ncrl

pronlssls.

Thjs jitlrja rlport wjgg iow eora thl `csjs oe c eoracg jiqujry, gld `y Cntjoieor A.L. cid supportld `y thl Cgg-Rcrty Rcrgjcalitcry Froup (CRRF) eor A.L.,to fcthlr eurthlr lvjdlinl oe thl nhcgglifls thct plopgl wjth A.L./NE^lxplrjlinl ji cnnlssjif sonjcg ncrl cid rlnljvjif thl rjfht support eor thljrillds. Ji dojif so, wl wjgg jdlitjey lxcapgls oe `lst prcntjnl, cid ncgg eornhcifls to japrovl thl gjvls oe lvlryoil ceelntld `y A.L./NE^.

^jr Rltlr @ottoaglyNhcjr, CRRF oi A.L.

Eorlword

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Lxlnutjvl suaacry 4

Vhct js A.L./NE^? 5

Thl sonjcg ncrl pogjny noitlxt eor plopgl wjth A.L./NE^ 8

Plsugts oe Cntjoi eor A.L.‚s cnnlss to ncrl cid support survly 32

Althodogofy 32

Vho wl hlcrd eroa 32

Thl fcp `ltwlli support illds cid slrvjnl provjsjoi 33

Rro`glas linouitlrld ji sonjcg ncrl csslssalits 30

@crrjlrs to lifcfjif wjth sonjcg ncrl 3>

@lilffits oe ncrl cid support caoif sonjcg ncrl rlnjpjlits 34

Cnnlss to cdvoncny 35

Noingusjoi cid ilxt stlps 36

Cpplidjx; scapgl nhcrcntlrjstjns 38

Plelrlinls 3:

Noitlits

Cnmiowgldflalits

Cntjoi eor A.L.‚s survly cid thjs su`slqulit rlport wlrldlvlgopld cid wrjttli `y;

Ncthlrjil Hcgl, Uoguitllr Plslcrnh Oeffinlr

^oiyc Nhowdhury, NLO

Ngcrl Ofdli, Hlcd oe Noaauijnctjois cid Rogjny

Laac Hyphlr, Noaauijnctjois cid Rogjny Oeffinlr

Vjth frctleug thcims to;

thl Vhjtlhousl Noisugtciny

Ncthy ^tjggaci-Gowl eor jivcguc`gl fujdcinl cidsupport ct cgg stcfls

Kliiy Aorrjs eor jisjfhts cid elld`cnm oi lcrgjlrdrcets

Frchca AnRhll eor cssjstcinl wjth dctc cicgysjs

^jaoi AnFrcth eor cdvjnl oi aldjncg rlslcrnhjito A.L./NE^

^tlvli ^hcw eor hlgp dlvlgopjif thl survly.

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Cdugt sonjcg ncrl slrvjnls cnross thl \M crl ecjgjif to rlspoid to thl ncrl illds oeplopgl wjth A.L./NE^. Cntjoi eor A.L. survlyld 8<2 plopgl wjth thjs dl`jgjtctjif nhroijnjggilss c`out thljr djeffinugtjls wjth dcjgy gjvjif tcsms sunh cs wcshjif, elldjif thlaslgvls,flttjif to c goncg shop or acjitcjijif sonjcg rlgctjoishjps.

Mly ffiidjifs

Thlrl js c shonmjif fcp `ltwlli support illds cid slrvjnl provjsjoi.

C stcfflrjif :6% oe rlspoidlits togd us thly lxplrjlinl two or aorl djeffinugtjls wjthdcjgy gjvjif cntjvjtjls gjstld ji thl Ncrl Cnt 0234 eor Lifgcid.

Howlvlr, kust 35% hcd rlnljvld sonjcg ncrl csslssalits Oe thlsl, oigy 5% hcd `lli cwcrdld c ncrl pcnmcfl.

@crrjlrs to slge-rlelrrcg cid ecjr csslssalit jingudld;

gcnm oe nglcr jieoractjoi c`out sonjcg ncrl pronlss cid litjtglalits (<8% oerlspoidlits)

nofijtjvl cid noaauijnctjoi djeffinugtjls prlvlitjif lifcflalit wjth sonjcg ncrlpronlssls (46% oe rlspoidlits)

sonjcg ncrl pronlssls jgg-cdkustld to thl vlry poor stcajic oe plopgl wjth A.L./NE^

ajsuidlrstcidjif, ajsjieoractjoi cid stjfac surrouidjif thl gc`lg oe A.L./NE^cntld cs c dltlrrlit to csmjif eor hlgp eor >8% oe rlspoidlits cid wcs cgso

plrnljvld to japcnt oi thl ecjrilss oe csslssalits cid thl typl oe support provjdld.

Thl `lilffits oe sonjcg ncrl nci `l sjfijffincit. Thl acji `lilffits oe hcvjif c ncrlpcnmcfl, eor thl 5% who hcd oil, wlrl;

rlduntjoi oe thl `urdli oe ncrjif oi ecajgy ala`lrs cid oi jieoracg ncrlrs (52% oerlspoidlits)

`ljif `lttlr c`gl to acicfl syaptoas (<2% oe rlspoidlits), whjnh nci ljthlr `l ceouidctjoi eor japrovlalit or prlvlit dltlrjorctjoi ji hlcgth.

Thrll qucrtlrs oe rlspoidlits `lgjlvld thljr sjtuctjoi wougd `l ‗c gjttgl `lttlr‑ (0<%)or ‗c got `lttlr‑ (<2%) je thly hcd soaloil to rlprlslit thla. Thlrl wcs c hjfh glvlg oesctjsecntjoi caoifst thosl who hcd usld cdvoncny `ut ilcrgy eour ji ffivl rlspoidlits

hcd iot cnnlssld cdvoncny.

Lxlnutjvl suaacry

Throufhout thjs rlport,thl quotctjois ji `gulhjfhgjfht thl lxplrjlinlsoe plopgl wjth A.L. whotoom pcrt ji our survly.

‗J hcvli‚t fot thl lilrfyto spcrl to kuap throufhhoops to flt thl hlgperoa sonjcg slrvjnls thct Jca litjtgld to. J nci‚t rjsm

thl nhcinl oe eurthlrdltlrjorctjoi to ayhlcgth `y hcvjif to ffifhtsonjcg slrvjnls touidlrstcid whct J cafojif throufh cid whct Jilld‑.

‗@lncusl oe thl stjfacwjth thjs jggilss, J hcvlgjttgl noiffidlinl= cs wlggcs thl ecnt thct jt js c

ffuntuctjif jggilss cid jt jshcrd to acml ayslgenglcr.‑ 

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Thl illd eor cdvoncny

Aost plopgl ji our survly thoufht thljr sjtuctjoi wougd`l `lttlr je thly hcd ci leelntjvl cdvonctl to rlprlslitthljr illds cid thl 0<% oe rlspoidlits who hcd usldoil rlportld hjfh glvlgs oe sctjsecntjoi wjth thljr slrvjnl.

 Zlt, scdgy aciy plopgl linouitlrld soal oe thl scal`crrjlrs ji cnnlssjif cdvoncny cs thly djd wjth sonjcgncrl, jingudjif c gcnm oe miowgldfl c`out A.L./NE^ cidslrvjnls thct wlrl iot cdkustld to thljr illds. Vjth thlnoaauijty cdvoncny slntor uidlr jinrlcsjif strcji,3 thl

illd eor `lttlr rlprlslitctjoi eor plopgl wjth A.L./NE^js cnutl cid urflit.

Vhy dols thjs ncrl fcp lxjst?

Thjs jitlrja rlport lxpgorls soal oe thl ncusls eor thjsshonmjif fuge `ltwlli ncrl illds cid slrvjnl provjsjoieor plopgl wjth A.L./NE^.

Nofijtjvl djeffinugtjls „ slvlrl gjajtctjois oinoinlitrctjoi spci cid proeouid alitcg ectjful „ jiA.L./NE^ crl c ackor `crrjlr to slge-rlprlslitctjoi jithl noapglx pronlssls oe sonjcg ncrl.

Thl cnutl glvlgs oe augtjpgl djsc`jgjtjls thct A.L./NE^nci ncusl oetli acml thl pronlssls oe csslssalit cidpgciijif too strliuous eor thosl aost ji illd oe hlgp.C qucrtlr oe rlspoidlits scjd thly wlrl too jgg to dlcgwjth sonjcg ncrl slrvjnls cid aciy fcvl up csmjif eorhlgp out oe shllr lxhcustjoi `lncusl thl csslssalitcid pgciijif systla wcs iot cdkustld to thljr illds.

Gcnm oe jieoractjoi c`out litjtglalits cid poorsjfipostjif to sonjcg ncrl slrvjnls wlrl c ackor `crrjlrto cnnlss

Thlrl cpplcrs to `l ajsjieoractjoi cid noitjiujif

stjfac cttcnhld to thl gc`lg oe A.L./NE^ dlspjtl thlstroif lvjdlinl `csl thct shougd ajtjfctl thjs. Thjsacy ceelnt thl outnoal oe csslssalits cid thlprovjsjoi oe cpproprjctl ncrl cid cgso sllas to dltlrplopgl wjth A.L./NE^ eroa csmjif eor hlgp or support.Oil thjrd oe rlspoidlits elgt thl djsc`jgjty rlsugtjiferoa thljr jggilss wcs iot cnnlptld cs fliujil.

^uaacry oe noingusjoi cid ilxt stlps

Thjs rlslcrnh hcs showi thl shonmjif gcnm oe cnnlss tosonjcg ncrl cid cdvoncny support eor plopgl wjthA.L./NE^.

Ji rlspoisl to thjs, Cntjoi eor A.L. wjgg iow glcd c eoracgliqujry to eurthlr `ujgd thl lvjdlinl `csl jito sonjcg ncrlprovjsjoi eor plopgl wjth A.L./NE^ cid lxpgorl sogutjoisto cddrlss thl `crrjlrs to cnnlss cid japrovl jidjvjducgoutnoals ji tlras oe wlgg`ljif, djfijty cid cutoioayeroa sonjcg ncrl support.

Cntjoi eor A.L. hcs pu`gjshld c slge-cdvoncny toogmjt tojinrlcsl thl jieoractjoi cvcjgc`gl eor plopgl wjthA.L./NE^ cid thljr ncrlrs. Cddjtjoicggy, Cntjoi eor A.L. jssllmjif euidjif to lstc`gjsh c ictjoicg cdvoncny slrvjnlto djrlntgy support thosl ceelntld `y thjs djsc`gjifnoidjtjoi.

Rglcsl iotl; Plspoidlits to thl survly ncal eroa cgg pcrt oe thl \M, rlfflntjif lxplrjlinls oe sonjcg ncrl jiLifgcid, ^notgcid, Vcgls cid Iorthlri Jrlgcid. Eor thl purposls oe noisjstliny ji thl rlslcrnh, qulstjois

wlrl csmld `csld oi nrjtlrjc iow usld `y cdugt sonjcg ncrl slrvjnls ji Lifgcid.Plspoisls rlnljvld eroa ^notgcid, Vcgls cid Iorthlri Jrlgcid jidjnctld thct cgthoufh crrciflalits eorsonjcg ncrl cid sonjcg ncrl lgjfj`jgjty djeelr eroa thosl ji Lifgcid, plopgl wjth A.L./NE^ wlrl lxplrjlinjifsjajgcr djeffinugtjls ji cnnlssjif support.

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Ejfurl oil; ^norls eor physjncg cid alitcg euintjoi ji A.L./NE^ usjif ^E->5v0 noapcrld to hlcgth noitrogs cidpopugctjoi ioras eor othlr nhroijn noidjtjois eroa Icnug, 02334 (Frcph nourtlsy oe A.L. Cicgysjs30)

322<2

Hlcgthy

2

 Ujsjoi japcjralit

Phluactojd crthrjtjs

Ostlcrthrjtjs

Guif djslcsl

Gjajtld usl oe cra(s)/glf(s)

Hlcrt djslcsl

Djc`ltls

Dlprlssjoi

Ncinlr (iot smji)

^njctjnc

A.^/NE^

Rhysjncg

Rhysjncg euintjoijif

Pogl-physjncg

@odjgy pcji

Flilrcg hlcgth

Alitcg

 Ujtcgjty

^onjcg euintjoijif

Pogl-laotjoicg

Alitcg hlcgth

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^hort-tlra support to acxjajsljidlplidlinl, soaltjals ncggld‗rlc`glalit,‑ js c frowjif trlid ji sonjcgncrl provjsjoi. Thl cja oe rlc`glalit jsto prlvlit thl dlvlgopalit oe oi-fojifncrl illds `y rlsmjggjif thl jidjvjducg jidcjgy tcsms cid, ugtjactlgy, to acml

scvjifs to goncg cuthorjty ncrl `udflts.03 

Jijtjcggy, thjs short tlra jitlrvlitjoi wcsdlvlgopld to ecnjgjtctl trciselr eroahospjtcg to hoal, lf. eoggowjif c hjpoplrctjoi, `ut jt hcs iow `lnoal thldlecugt ffirst rlspoisl to prlslitjif sonjcgncrl illds.00 Plnlit dctc oi thloutnoals oe sonjcg ncrl rlelrrcgs jiLifgcid showld thct out oe cgg rlqulstseor support eroa ilw ngjlits, 30% rlsugtldji short-tlra support to acxjajsljidlplidlinl cid oigy 8% rlsugtld jigoif-tlra support, or Hoal Ncrl.0> 

Cgthoufh our survly wcs iot dlsjfild tonogglnt dctc oi whct eoras oe sonjcg ncrlsupport wlrl provjdld, qucgjtctjvlcicgysjs yjlgdld worryjif lvjdlinl oe thlajsusl oe rlc`glalit caoif plopgl wjthslvlrl A.L./NE^. Ciothlr pctjlitorfcijsctjoi rlprlslitjif plopgl wjthslvlrl A.L./NE^ rlports thl scalnoinlris.04

Lxlrtjoi jitoglrcinl js c mly elcturl jiA.L./NE^0 cid pushjif pctjlits tojinrlcsl thljr cntjvjty glvlgs outsjdl oesplnjcgjst suplrvjsjoi rjsms dltlrjorctjoi jisyaptoas cid jinrlcsld djsc`jgjty.Cddjtjoicggy, thlrl js io lvjdlinl tosupport thl lxplntctjoi oe ‗iotjnlc`gl

japrovlalit‑ (sll rjfht) wjthji eour to sjxaoiths.

Thl IJNL fujdlgjil eor A.L./NE^ dols iotrlnoaalid rlhc`jgjtctjvl jitlrvlitjoiseor plopgl wjth slvlrl A.L./NE^ cidrlnoaalids thct ciy thlrcplutjnprofrcaal cjald ct jinrlcsjif cntjvjtyglvlgs shougd `l ncrrjld out uidlr thlsuplrvjsjoi oe splnjcgjst A.L./NE^slrvjnls.0<

‗Ay sonjcg wormlr`lgjlvls thct wjth c shorttlra ncrl pcnmcfl (eourto sjx aoiths) thlrlshougd `l ‘iotjnlc`gljaprovlalit‘ ji ay glvlgoe jidlplidlinl. Je thlrljsi‚t whli ay ncrl jsrlvjlwld shl scjd thlywjgg rlaovl ay ncrlrs cs‘thljr focg js to proaotljidlplidlinl cid iotdlplidlinl.‚ J‚vl trjldto lxpgcji thct slvlrlA.L. dolsi‚t worm gjmlthct, J oetli hcvlpcrcgysjs, J‚vl orthostctjnjitoglrcinl, physjncggynci‚t turi ji `ld ltn.Acicfjif plrsoicg ncrlcid fjvjif al alcg

rlpgcnlalits jsi‚tproaotjif dlplidlinlcs thlsl crl thjifs Jphysjncggy nciiot do. ^hlrlpgjld, ‘Vlgg thct‚s thlwcy our ncrl systlaworms.‚‑ 

Thl frowjif rlc`glalit trlid

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Althodogofy

Vl survlyld 848 plopgl wjth A.L./NE^, :5% oe whoahcd `lli djcfiosld wjth thl jggilss `y c FR or IH^noisugtcit. Thl scapgl wcs o`tcjild throufh ncggs eorlvjdlinl oi plopgl‚s ncrl cid support oi sonjcg aldjc,throufh c rcifl oe oigjil A.L./NE^ noaauijtjls cidthroufh Cntjoi eor A.L.‚s supportjif ala`lrshjp.

Thl survly wcs opli oigjil eor sjx wllms ji Acy cid Kuil023<. Cgthoufh pcplr nopjls wlrl cvcjgc`gl to thosl whorlqulstld thla, thl scapgl wougd hcvl `lli wljfhtld

towcrds thosl who crl c`gl to usl c noaputlr, or hcvl cncrlr to do so eor thla, cid who rlfugcrgy cnnlss sonjcgaldjc noaauijtjls. Jt acy thus hcvl lxngudld thl aostslvlrlgy ceelntld cid/or jsogctld.

Ji thl survly wl csmld plopgl wjth A.L./NE^ c`out;

thljr dcjgy gjvls cid thljr illd eor sonjcg ncrl support

how thly wlrl c`gl to cnnlss prjacry hlcgthncrl cidwlgecrl ̀ lilffits

usjif cdvoncny slrvjnls.

Eor thl purposls oe thjs jitlrja rlport, wl hcvl nhosli to

eonus splnjffincggy oi sonjcg ncrl illd cid slrvjnlprovjsjoi, acmjif rlelrlinl to thl japcnt oe cdvoncny oithjs. Vl crl noitjiujif to lxcajil thl rlacjijif dctccid wjgg pu`gjsh eurthlr ffiidjifs ji dul noursl.

Vho wl hlcrd eroa

Thl cfl cid jggilss durctjoi proffigl oe thl rlspoidlitsactnhld thct oe c goif-tlra jggilss wjth gow rlnovlryrctls. Thl ackorjty wlrl ji thl 42-54 cfl `rcnmlt.

Vl csmld rlspoidlits to rctl thl slvlrjty oe thljrsyaptoas ji thl pcst thrll aoiths;

05% oe rlspoidlits rctld thljr A.L./NE^ cs ‗Ajgd; youcrl ecjrgy ao`jgl, nci ncrl eor yourslge cid nci do gjfhtdoalstjn tcsms‑

43% cs ‗Aodlrctl; you hcvl rldunld ao`jgjty cid crlrlstrjntld ji cgg cntjvjtjls oe dcjgy gjvjif‑

>2% cs ‗^lvlrl; you crl uic`gl to do ciy, or oigyajijacg, cntjvjtjls eor yourslge cid you crl `ld orhousl `ouid aost oe thl tjal‑

>% cs ‗Ulry slvlrl; slvlrl syaptoas oi c noitjiucg`csjs. @ldrjddli, uic`gl to gjvl jidlplidlitgy cidrlqujrl eugg tjal support cid suplrvjsjoi wjth cggcsplnts oe plrsoicg ncrl.‑

Plspoidlits wlrl ecjrgy lvligy djstrj`utld crouid thl \Mwjth c `jcs cwcy eroa thl njtjls, cs Goidoi cid thl

Ajdgcids (jl. @jrajifhca) wlrl glss wlgg rlprlslitldthci thly shougd `l.

(^ll thl Cpplidjx oi p 38 eor aorl jieoractjoi oi thlscapgl nhcrcntlrjstjns.)

Plsugts oe Cntjoi eor A.L.‚s cnnlssto ncrl cid support survly

worm, trcjijif, ldunctjoi, voguitllrjif

mllpjif hoal nglci cid scelprlpcrjif cid lctjif alcgs (jin. shoppjif)

ngosl sonjcg rlgctjoishjps

cnnlssjif goncg slrvjnls

wcshjif cid plrsoicg hyfjlil (jin. gcuidry)

flttjif drlssld

flttjif crouid ji your hoal

pcrlitjif or ncrjif rlspoisj`jgjtjlsfojif to thl tojglt

8:%

88%82%

82%

62%

<5%

>6%

>5%

>0%35%

Djeffinugtjls wjth dcy to dcy gjvjif

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Vl soufht to alcsurl thl ncrl illds oe plopgl wjthA.L./NE^ usjif thl scal nrjtlrjc iow usld `y cdugt sonjcgncrl slrvjnls ji Lifgcid eor csslssjif lgjfj`jgjty. Thjsjingudls c gjst oe cntjvjtjls oe dcjgy gjvjif. Je rlspoidlitsrlportld djeffinugty wjth two or aorl oe thl cntjvjtjls`lncusl oe thljr A.L./NE^ thly wougd allt two out oethl thrll lgjfj`jgjty nrjtlrjc.j 

Ji totcg, :6% oe rlspoidlits hcd two or aorl djeffinugtjlswjth cntjvjtjls oe dcjgy gjvjif. Thjs alcis thct, je thljr

djeffinugtjls wlrl eouid to hcvl c sjfijffincit japcnt oithljr wlgg`ljif, thl vcst ackorjty oe rlspoidlits wougdhcvl lgjfj`gl support illds uidlr thl Ncrl Cnt 0234 eorLifgcid.

Plspoidlits hcd oi cvlrcfl sjx out oe 32 oe thldjeffinugtjls wjth dcjgy gjvjif gjstld ji Ncrl Cnt 0234.

Cddjtjoicg dctc eroa our survly showld thct 5<% oerlspoidlits nougd iot jidlplidlitgy cid rlgjc`gy cnnlssprjacry hlcgthncrl slttjifs sunh cs FR surflry, dlitjst oroptjnjci.

Oigy 35% oe rlspoidlits hcd hcd c sonjcg ncrlcsslssalit or rlvjlw ji thl gcst ffivl ylcrs

Kust 5% scjd thly rlnljvld c ncrl pcnmcfl eroa thljr goncgcuthorjty.

Thjrty eour oe thosl rlnljvld thljr ncrl pcnmcfl ji thleora oe Djrlnt Rcyalits (alcijif thly rlnljvld c ncshpcyalit eroa thljr goncg cuthorjty to crrcifl thljr owincrl slrvjnls)

Oe thl 4: rlspoidlits who wlrl rlnljvjif c ncrlpcnmcfl, <8% rctld thljr A.L./NE^ cs slvlrl, 6% cs vlryslvlrl cid 0<% rctld thljr A.L./NE^ cs aodlrctl.

Thlrl js c sjfijffincit fcp `ltwlli thl support illds oeplopgl wjth A.L./NE^ cid thl stctutory provjsjoi eorthosl illds. Oigy 34% oe rlspoidlits togd us thly djdi‚tilld ncrl or support ji thljr dcjgy gjvls. Vjth oigy 5%rlnljvjif c ncrl pcnmcfl, thjs glcvls ci lstjactld 82% oerlspoidlits wjth slge-rlportld ncrl illds iot alt `ythljr goncg cuthorjty. Glss thci c thjrd wlrl hcvjif thlslillds alt `y ecajgy ala`lrs or erjlids.

Thl fcp `ltwlli support illds cid slrvjnl provjsjoi

Hcvl you hcd c sonjcg ncrl csslssalit or rlvjlw ji thl pcst ffivl ylcrs?

Doi‚t miow <%

Io 6:%

 Zls 35%

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Vl csmld thl 35% oe rlspoidlits who hcd uidlrfoil c sonjcg ncrlcsslssalit or rlvjlw ji thl gcst ffivl ylcrs eor thljr lxplrjlinls= <<% scjdthly hcd iot `lli c`gl to fjvl c nglcr cnnouit oe thljr illds.

Vl rlnljvld noisjdlrc`gl eurthlr jieoractjoi c`out djeffinugtjls wjth

slge-rlprlslitctjoi eroa thjs froup.

Noaauijnctjoi djeffinugtjls

Nofijtjvl pro`glas, oetli rlgctld to ‗`rcji eof,‑ wlrl c noaaoi ncusloe noaauijnctjoi djeffinugtjls.

Gcnm oe stcajic

^onjcg ncrl pronldurls crl sjapgy iot slisjtjvl cid fflxj`gl lioufh tocnnoaaodctl thl cnutl glvlgs oe physjncg cid alitcg japcjralit thctnci cnnoapciy A.L./NE^.

Iot kust ‗tjrld cgg thl tjal‑Oigy 40% oe thjs froup elgt thct thl sonjcg ncrl proelssjoicg csslssjifthljr illds cnnlptld thljr djsc`jgjty cs fliujil.

Caoif thl noaaoi eoras oe ajsuidlrstcidjif, gcnm oe uidlrstcidjif,or djsajsscg oe A.L./NE^ wl hlcrd c`out eroa rlspoidlits wlrl;

thl plrnlptjoi thct A.L./NE^ js c noaaoi eora oe ectjful thct `lstrlaldjld throufh lxlrnjsl alcit thljr rlport oe thljr ncrl illds wcsiot tcmli slrjousgy

gcnm oe uidlrstcidjif oe ffuntuctjif illds cid post-lxlrtjoicgacgcjsl

ajsdjcfiosjs oe prjacry dlprlssjoi.Jt wcs `lyoid thl snopl oe thjs rlslcrnh to goom ji aorl dltcjg ct ncslswhlrl A.L./NE^ hcs `lli wroifgy jitlrprltld cs c prjacry psynhjctrjndjsordlr.

Cntjoi eor A.L. hcs rlnljvld othlr rlports oe djsc`jgjty ji plopgl wjthA.L./NE^ `ljif ajstcmligy cttrj`utld `y sonjcg ncrl proelssjoicgs toslvlrl dlprlssjoi or cixjlty whlrl thjs hcs gld dlprjvctjoi oe gj`lrtypronlldjifs uidlr thl Alitcg Hlcgth Cnt. Eurthlr rlslcrnh js illdld todltlrajil erlquliny cid outnoals ji thlsl sjtuctjois.

Rro`glas linouitlrld ji sonjcg ncrl csslssalits

‗J worry c`out `ljif c`gl to lxprlssayslge leelntjvlgy je J ca sueelrjif eroa`rcji eof, ectjful eroa cttlidjif cicppojitalit, or iot ffiidjif thl rjfht

words to put ay pojits cnross.‑ 

‗J ca c eoralr support acicflr cid so Jca cwcrl oe ay rjfhts `ut flttjif sonjcgwormlrs to uidlrstcid js vlry djeffinugt.Thly do iot tcml jito noisjdlrctjoi thct Jnciiot noaauijnctl oi thl phoil.‑ 

‗Thl sonjcg wormlr togd al thct‘lvlryoil flts tjrld‚‑ 

‗Ay ncrl acicflr djdi‚t uidlrstcid thctJ wcs too sjnm cid ovlrwhlgald to tcgmc`out ay illds‑ 

‗J wcs rleusld ]c ncrl pcnmcflQ dlspjtlcpplcgjif. Thly scjd thly illdld aorllvjdlinl, ylt thly wougd illd to splidc noupgl oe dcys cntucggy wjth al tocpprlnjctl how ay syaptoas ffuntuctlthroufhout thl dcy.‑ 

‗Thlrl wcs gjttgl or io uidlrstcidjif oe

rlgcpsls cid pcy `cnm gcstjif dcys cetlrdojif ciythjif physjncg or `rcji usl.‑

‗Thl noaauijty slrvjnl wormlr ajstoomay nofijtjvl syaptoas eor dlprlssjoi orcixjlty. ^hl togd ay noisugtcit thct J wcscercjd oe cntjvjtjls oe dcjgy gjvjif. Jt wcsrlnoaalidld J sll c psynhjctrjst cid Jwcs qulstjoild uidlr fujdlgjils oeAlitcg Hlcgth Cnt cid J thoufht J wcsc`out to gosl ay erlldoa.‑ 

‗Thl sonjcg wormlr scjd J shougd fo swjaajif lvlry wllm cid do aorllxlrnjsl, lvli thoufh shl nougd sll J nougdi‚t lvli stcid up wjthout ecggjifoito thl ffoor cid ay glfs wlrl fojif jito vjsj`gl spcsas oi thct dcy.‑ 

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Ilcrgy eour ji ffivl rlspoidlits to oursurvly hcd iot hcd c sonjcg ncrlcsslssalit or rlvjlw ji thl pcst ffivlylcrs. Vl csmld thjs froup c`out thljr

rlcsois eor iot lifcfjif wjth sonjcg ncrl.Oigy 34% elgt thly djd iot rlqujrl ncrl orsupport, whjgl 08% elgt thly hcd lioufhsupport eroa jieoracg ncrl iltworms. Eorthl rlacjidlr, `crrjlrs to lifcfjif wjthsonjcg ncrl wlrl acdl up oe;

gcnm oe jieoractjoi c`out litjtglalitscid rlelrrcg pronldurls; thlsl wlrl thl`jfflst ecntors prlvlitjiflifcflalit. Aorl rlslcrnh js illdldto dltlrajil whlthlr thl `jfflstpro`gla gcy wjth goncg cuthorjtjls‚ecjgjif to pu`gjnjsl jieoractjoi c`outlitjtglalits cid slrvjnls, or c gcnm oesjfipostjif c`out potlitjcg lgjfj`jgjtyeroa FRs or slnoidcry ncrl IH^slrvjnls.

djeffinugtjls wjth slge-rlprlslitctjoi;nofijtjvl djeffinugtjls ji dlcgjif wjth thl`urlcunrcny oe ncrl pronlssls wcs cdltlrrlit eor cgaost c hcge oe thjs froup

oe rlspoidlits. ^onjcg cixjlty elcturldeor ><% oe thla. C qucrtlr scjd thlywlrl too uiwlgg ji flilrcg to nopl wjthlifcflalit wjth sonjcg slrvjnls. Thlilld eor jidlplidlit cdvoncnycpplcrs to `l jidjnctld ji thlslsjtuctjois. Howlvlr, jt rlacjis to `lslli whlthlr plopgl wjth A.L./NE^ wjggallt thl nrjtlrjc eor stctutoryjidlplidlit cdvoncny uidlr thl NcrlCnt ji Lifgcid.

possj`gl stjfac cttcnhld to thl

djcfiosjs oe A.L./NE^; wl wcitld touidlrstcid whlthlr c slisl oe stjfacor shcal nougd `l c `crrjlr ji csmjifeor support, cid 42% oe thjs froup oerlspoidlits scjd thct csmjif eor hlgpwcs too ‗laotjoicggy djeffinugt.‑

@crrjlrs to lifcfjif wjth sonjcg ncrl

‗Ay A.L. ceelnts ayspllnh. Ciy jitlrcntjoirlqujrls hufl leeort cidncusls dltlrjorctjoi.‑ 

‗Thl alitcg strcji oe thlpronlss glcd to slvlrlphysjncg pcji cid J `romldowi cid J wcs ji tlcrs. Jdjd lxpgcji to thl sonjcgwormlr whct hcdhcpplild. J thjimhowlvlr thct thl sonjcgwormlr dlnjdld eorhlrslge thct J wcsdlprlssld.‑ 

J djdi‚t miow whct mjid oe support J nougd `l litjtgld to

J djdi‚t miow J nougd csm eor ci csslssalit

Nofijtjvl djeffinugtjls wjth eoras, phoil ncggs, csslssalits

J ffiid csmjif eor hlgp too laotjoicggy djeffinugt

Noaauijnctjif wjth strciflrs acmls al cixjous

J hcvl cgg thl support J illd eroa ecajgy or erjlids

J doi‚t wcit sonjcg slrvjnls jivogvld ji ay gjel

J ca too uiwlgg to dlcg wjth sonjcg slrvjnls

J doi‚t thjim J illd hlgp or support eroa ciyoil

<8%

<8%

46%

>:%

>5%

08%

08%

0<%

34%

Vhy hcvl you iot hcd c sonjcg ncrl csslssalit?

‗J cntucggy ffiid jt aorl lxhcustjif tryjif to lxpgcji ay noidjtjoi tosoaloil lgsl who usucggy hcsi‚t lvli hlcrd oe A.L. glt cgoil js c`gl touidlrstcid jt ji ordlr to flt thljr support or prcntjncg hlgp thci J do kust

tryjif to sort thjifs out `y ayslge. Noislqulitgy J hcvl cvojdld cppgyjifeor nlrtcji thjifs thct acy `l oe hlgp ji thl goif rui, lf. sonjcg slrvjnls.‑ 

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To uidlrstcid aorl c`out thl icturl oe thjs ‗laotjoicgdjeffinugty‑ wl csmld whlthlr thosl who lxplrjlinld jtcfrlld wjth c iua`lr oe stctlalits;

88% cfrlld thct thly worry thct thl csslssor wougdi‚tuidlrstcid thljr noidjtjoi cid thljr illds

84% cfrlld thct thly worry ji ncsl thl csslssor woi‚t`lgjlvl thct thly crl fliujilgy djsc`gld

84% cfrlld thct thly worry thct thly wougdi‚t `lnoisjdlrld dlslrvjif oe hlgp or support

Jt js `lyoid thl snopl oe thjs rlport to jivlstjfctl thlhjstorjncg ecntors `lhjid thl possj`gl prlkudjnjcgtrlctalit lxplrjlinld `y plopgl wjth A.L./NE^.

Howlvlr, hcge oe thl rlspoidlits to thjs qulstjoi oeelrldeurthlr lvjdlinl jidjnctjif jt wcs c sjfijffincit ecntor jicvojdjif sonjcg ncrl csslssalits. Noaaoi thlals wlrl;

‗J‚a eld up wjth `ljif kudfld.‑

‗@lncusl oe thl stjfac wjth thjs jggilss, J hcvl gjttgl

noiffidlinl cid thl ecnt thct jt js c ffuntuctjif jggilsscid jt js hcrd to acml ayslge nglcr.‑

‗J ellg thct ay noidjtjoi jsi‚t slli cs c djsc`jgjty `y thlsonjcg slrvjnls, jl. J goom ffiil.‑

‗J‚a noinlrild thct drcwjif too aunh cttlitjoi toayslge ajfht lid up wjth al `ljif prlssurjzld jitohcvjif jicpproprjctl trlctalit or wroifgy `ljifgc`lggld cs alitcggy jgg whli J‚a iot.‑

  Cfrll Iljthlr cfrll Djscfrllior djscfrll

Thlrl js glss strcji oi ecajgy ala`lrs or ngosl erjlids 52%  0% 35%

J ca `lttlr c`gl to nopl wjth ay syaptoas 4:%  3:% 03%

J nci pgcy frlctlr rogl ji ecajgy gjel >8%  3:% 0<%

J ca aorl c`gl to do cntjvjtjls thct J likoy >8% 33% 42%

Hcvjif sonjcg ncrl support hcs hlgpld al jinrlcsl >>% 3:% >6%ay `cslgjil cntjvjty

J ca `lttlr c`gl to goom cetlr ay nhjgdrli 36%  5% 3>%

J nci pgcy c frlctlr rogl ji ay noaauijty 36% 36% 46%

Vl wcitld to jivlstjfctl how stctutory ncrl cid supportjaprovld thl wlgg`ljif oe thl 4: rlspoidlits wjthA.L./NE^ who rlnljvld jt.

Thl tc`gl `lgow shows thl rlspoisls to thl qulstjoi;‗Vhct djeelrlinl dols hcvjif sonjcg ncrl support acmlto your gjel?‑jj

Ji cddjtjoi, <3% scjd hcvjif c sonjcg ncrl pcnmcfl fcvlthla jinrlcsld nhojnl cid noitrog ji thljr dcjgy gjvls.

@lilffits oe ncrl cid support caoif sonjcg ncrl rlnjpjlits

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Pldunjif strcji oi ecajgy ala`lrs

Thl frlctlst `lilffit oe sonjcg ncrl supportoi plopgl wjth A.L./NE^ js ji rldunjifthl `urdli oi jieoracg ncrlrs. Ji cslpcrctl survly, Cntjoi eor A.L. eouidthct 85% oe rlspoidlits wjth A.L./NE^rlnljvld dcjgy ncrl eroa c ecajgyala`lr.32 Plslcrnh shows thct A.L./NE^tcmls c gcrfl togg oi thl qucgjty oe gjel oencrlrs, lsplnjcggy oi thljr alitcgwlgg`ljif.4 

Nopjif wjth syaptoas cid prlvlitjifdltlrjorctjoi

Rlrsoicg ncrl support js nrunjcg jisupportjif djfijty cid wlgg`ljif eorplopgl wjth slvlrl cid vlry slvlrlA.L./NE^. @lncusl oe cnutl post-lxlrtjoicg acgcjsl, djeffinugtjls wjthnoaauijnctjoi cid lxtrlal slisjtjvjty toiojsl cid gjfht noaaoi wjth slvlrlA.L/NE^, jt js vjtcg thct ncrl pgciijif jsplrsoicgjsld05 cid thct thl plrsoi‚sjivogvlalit ji ncrl pgciijif js ecnjgjtctldthroufh cpproprjctl rlprlslitctjoi.Vorryjifgy, ovlr oil hcge oe thosl whowlrl rlnljvjif c ncrl pcnmcfl scjd thljrmly sonjcg ncrl proelssjoicg djd iotuidlrstcid how A.L./NE^ ceelntld thljrdcjgy gjel.

C tcjgorld ncrl pgci cgso hcs ci japortcitrogl to pgcy ji cntjvjty acicflalit jiA.L./NE^.

C mly csplnt oe thlrcpy eor A.L./NE^ jsstc`jgjsjif dcjgy routjils `y cvojdjif c‗`ooa cid `ust‑ pcttlri oe cntjvjty.06 Thjsacy nrlctl c eouidctjoi eor japrovlalitji syaptoas, or prlvlitjoi oedltlrjorctjoi. Plspoidlits wlrl cgaostlqucggy djvjdld ji cfrlljif ciddjscfrlljif thct sonjcg ncrl hcd lic`gld

thla to jinrlcsl thljr cntjvjtjls glvlgs.

Howlvlr, ciy thlrcplutjn jitlrvlitjoicjald ct frcducggy jinrlcsjif cntjvjtyglvlgs aust `l ncrrjld out `y c splnjcgjstA.L./NE^ thlrcpjst.0< Thlrleorl c short-tlra ncrl pcnmcfl cjald ct acxjajsjifjidlplidlinl js uigjmlgy to `l sujtc`gl eorplopgl wjth A.L./NE^.

^onjcg pcrtjnjpctjoi

^onjcg ncrl provjsjoi wcs aodlrctlgyleelntjvl ji lic`gjif pcrtjnjpctjoi ji ecajgygjel cid gljsurl cntjvjtjls. Thl outnoalseor pcrtjnjpctjoi ji thl noaauijty wlrlgow. Thjs js pro`c`gy `lncusl 6<% oethosl rlnljvjif c ncrl pcnmcfl wlrlslvlrlgy or vlry slvlrlgy ceelntld wjthA.L./NE^ cid thl dl`jgjtctjif syaptoasoe thjs noidjtjoi wougd gjmlgy prlvlitcnnlss to thl noaauijty.

Howlvlr, thl ackorjty oe plopgl wjthaodlrctl A.L./NE^ lxplrjlinl sonjcgjsogctjoi cid djeffinugty cnnlssjif goncgslrvjnls cid acy `lilffit eroa supportwjth ao`jgjty, cnnlss cid sonjcgpcrtjnjpctjoi. Cnnlss to sonjcg ncrl shougdiot `l rlstrjntld oigy to plopgl wjthslvlrl A.L./NE^.

‗J ca cshcald to csmciyoil to thl housl cs jtjs sunh c alss cid djrty.Ay wjel js too `usy wjthworm, goomjif cetlr hlrdcd, goomjif cetlr alcid goomjif cetlr our 3<ylcr ogd soi. ^o shl dolsiot hcvl tjal to mllphousl nglci cid tjdy.‑ 

‗J ellg gjml thl pgci hcs`lli acdl `y soal`odywjth io lxplrjlinl jidlcgjif wjth aynoidjtjoi‑ 

Oil rlspoidlit togd usthct, cs c rlsugt oe hlr ncrlpcnmcfl;

‗Ay syaptoas crl `lttlrnoitroggld so J ellg aunhglss jgg. J ca c`gl toprldjnt ay lilrfy glvlgsaorl cnnurctlgy cid hcvlelwlr swjifs `ltwllirlgcpsl cid ovlrcntjvjty.‑ 

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Cnnlss to cdvoncny

Vhct js cdvoncny?

Jidlplidlit cdvoncny js noinlrild wjthacxjajsjif plopgl‚s jivogvlalit ji

dlnjsjois c`out thljr gjvls. Jidlplidlitcdvoncny js tcmjif cntjoi to hlgp plopgluidlrstcid jieoractjoi, lxprlss thljrillds cid wjshls, slnurl thljr rjfhts,rlprlslit thljr jitlrlsts cid o`tcji thlncrl cid support thly illd. Cdvonctlsworm ji pcrtilrshjp wjth thl plopgl thlysupport cid tcml thljr sjdl. Cdvoncnyproaotls sonjcg jingusjoi, lqucgjty cidsonjcg kustjnl.08

Rlopgl wjth A.L./NE^ ecnl su`stcitjcg`crrjlrs ji cnnlssjif cid lifcfjif wjth

sonjcg ncrl pronlssls dul to nofijtjvljapcjralit, slvlrl glvlgs oe jggilss cidthl plrnljvld stjfac cttcnhld to thljrdjcfiosjs.

Oigy >3% scjd thly elgt ncpc`gl cidnoiffidlit oe lxprlssjif thljr owi ellgjifscid illds, jidjnctjif c hjfh glvlg oe illdeor rlprlslitctjoi. Vhli wl csmldplopgl ji whjnh csplnt oe thljr gjvls thlyaost illdld soaloil to rlprlslit thla,cnnlssjif sonjcg ncrl ncal slnoid, cetlrcnnlssjif djsc`jgjty `lilffits.

Cdvoncny wcs frlctgy vcguld `ut iotoetli rlnljvld

Thrll qucrtlrs oe rlspoidlits thoufhtthljr sjtuctjoi wougd `l ‗c gjttgl‑ (0<%) or‗c got‑ (<2%) `lttlr je thly hcd cijidlplidlit cdvonctl to rlprlslit thla.

Oigy 0>% hcd lvlr usld ci cdvonctl.Aost oe thl lxplrjlinls oe cdvoncnyslrvjnl uslrs wl rlnljvld wlrl ji rlgctjoito djsc`jgjty `lilffits rcthlr thci sonjcgncrl.

@crrjlrs to cnnlssjif cdvoncny

^cdgy, soal oe thl djeffinugtjls rlspoidlitsecnld ji cnnlssjif sonjcg ncrl wlrl

rlpgjnctld whli thly soufhtrlprlslitctjoi eroa ci cdvonctl. Thlacji `crrjlrs wl jdlitjffild to slnurjif cicdvonctl wlrl cs eoggows.

^lrvjnls wlrl poorgy sjfipostld; 53% scjdthly djdi‚t how to ffiid ci cdvonctl

Roor hlcgth prlvlitld thla eroatrcvlgjif to cppojitalits wjth cicdvonctl

Thl cdvoncny slrvjnls oeelrld nougdi‚tcnnoaaodctl thljr vlry poor alitcg cid

physjncg stcajic.Thl leffincny oe goncg cdvoncny slrvjnlsacy `l rldunjif. Thl Ictjoicg Jistjtutleor Hlcgth Plslcrnh rlports thct thlnoaauijty cdvoncny slntor js ecnjifjinrlcsld dlacid noupgld wjth nut`cnmscid ngosurls.0:

Cdvonctls‚ miowgldfl oe A.L./NE^

62% oe rlspoidlits who hcd cnnlssldcdvoncny wlrl sctjsffild or vlry sctjsffildwjth thl outnoal oe thl slrvjnl thly

rlnljvld. Thosl who lxprlssld thlfrlctlst sctjsecntjoi togd us howjaportcit thl cdvonctl‚s uidlrstcidjifoe A.L./NE^ wcs.

‗Thl cdvonctl J usldoinl djdi‚t uidlrstcidhow tjrjif A.L. wcs cidcntucggy acdl al aorljgg.‑ 

J nci‚t lvli cnnlss NC@slrvjnls whlrl J gjvl. Jwcs togd thct J wougdhcvl to trcvlg cid‗pop-ji‑ to c gcrfl nlitrloi thl oee nhcinl oeslljif soaloil or toacml ci cppojitalit.‑

‗Hlcgthwctnh hcvloeelrld soal tlglphoilsupport cid thl oeelr tocttlid c alltjif `ut Jhcvl iot `lli wlgglioufh to hcvl thlalltjif. Jt js vlrydjeffinugt whli yourlilrfy js gjajtld cidpro`glas drcf oi eorylcrs, whjnh js vlrystrlsseug. Je J wlrl wlgg Jnougd pro`c`gy sort thljssuls out `ut lvlrythjiftcmls so goif whli your

lilrfy js gjajtld to cihour oi c food dcy orglss thci zlro durjifworsl tjals.‑ 

‗J hcd lxnlgglit hlgperoa goncg wlgecrlcdvjsors soal ylcrs cfowho ncal to thl housl.@ut cgg sunh hlgp ]wcsQ nut`y thl goncg cuthorjty toscvl aoily slvlrcg ylcrs

cfo.‑

‗Je thlrl wcs ci cdvoncny slrvjnl, J‚d usl jt eor hlgp,dlffiijtlgy. Eor ffiggjif ji eoras ltn cid to fo to ciycsslssalits je cid whli ilnlsscry, cs jt acmls al

aorl jgg worryjif.‑ 

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36

Thjs rlslcrnh hcs showi thl shonmjif gcnm oe cnnlss tosonjcg ncrl cid cdvoncny support eor plopgl wjthA.L./NE^.

Ji rlspoisl to thjs, Cntjoi eor A.L. wjgg iow glcd c eoracgjiqujry to eurthlr `ujgd thl lvjdlinl `csl jito sonjcg ncrlprovjsjoi eor plopgl wjth A.L./NE^ cid lxpgorl sogutjoisto cddrlss thl `crrjlrs to cnnlss cid japrovl jidjvjducgoutnoals ji tlras oe wlgg`ljif, djfijty cid cutoioayeroa sonjcg ncrl support.

Vl wjgg sllm to host c slrjls oe noisugtctjois cidrouidtc`gls wjth plopgl wjth A.L., ncrlrs cid mlyorfcijsctjois cid pogjny/dlnjsjoi-acmlrs ji ordlr to;

o`tcji c aorl dltcjgld lvjdlinl `csl ji rlgctjoi toposjtjvl cid ilfctjvl lxplrjlinls oe cnnlssjif cidrlnljvjif sonjcg ncrl support cid, cs pcrt oe thjs, `ujgdc `cim oe ncsl studjls to jieora whct worms cid whctillds to nhcifl

lxpgorl thl illd cid potlitjcg eor splnjcgjst cdvoncnyji japrovjif sonjcg ncrl outnoals eor plopgl wjthA.L./NE^

usl thl output oe thl c`ovl to jieora our strctlfjn

prjorjtjls eor 0235-3: cid cggonctl rlsournl cidncpcnjty to lic`gl us to japglalit cfrlld cntjois.

Vl wjgg sllm to noggc`orctl cs wjdlgy cs possj`gl wjthothlr orfcijsctjois cid aost japortcitgy wjth plopglceelntld `y A.L.

Cgoifsjdl thjs, Cntjoi eor A.L. hcs pu`gjshld c slge-cdvoncny toogmjt to jinrlcsl thl jieoractjoi cvcjgc`gl eorplopgl wjth A.L. cid thljr ncrlrs to hlgp thla icvjfctlthl systla cid jinrlcsl thl potlitjcg eor slnurjif thlsupport thly illds. Cddjtjoicggy, Cntjoi eor A.L. jssllmjif euidjif to lstc`gjsh c ictjoicg cdvoncny slrvjnlto djrlntgy support jidjvjducgs.

Noingusjoi cid ilxt stlps

‗J wcs gunmy lioufh to hcvl ci cdvonctl eor c short tjal who uidlrstoodslvlrl A.L. whjnh hlgpld c got wjth ci csslssalit oe illds eor ncrlrs.‑ 

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38

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^lvlrl; you crl uic`gl to do ciy, or oigyajijacg, cntjvjtjls eor yourslge cid you crl

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3:

j Thl qulstjoi ngcrjffild thl icturl oe ‗djeffinugty‑

eoggowjif thl stctutory fujdcinl; ‘‗Djeffinugty‑ alcisljthlr you nci‚t do jt, you illd hlgp eroa ecajgy, erjlidsor ncrlr to do jt, or dojif jt ncusls you sjfijffincit pcji,cixjlty or djstrlss, or tcmls you sjfijffincitgy goiflr thciioracg .‚ Vl djd iot csm c`out thl japcnt oe thlsldjeffinugtjls oi rlspoidlits‚ wlgg`ljif so thl dctcnogglntld js oigy ci jidjnctjoi oe potlitjcggy lgjfj`glncrl illds.

jj Rlrnlitcfls do iot totcg 322% hlrl `lncuslrlspoidlits nougd slglnt ‗Iot Cppgjnc`gl,‑ lf. 5<% oerlspoidlits slglntld Iot Cppgjnc`gl to thl stctlalitc`out pcrlitjif.

3 IJHP ^nhoog eor ^onjcg Ncrl Plslcrnh (023>) Thl japcntoe cdvoncny eor plopgl who usl sonjcg ncrl slrvjnls

0 Jistjtutl oe Aldjnjil (023<) @lyoid A.L./NE^;rldlffiijif ci jggilss

> Hvjd`lrf lt cg (023<) Thl hlcgth-rlgctld qucgjty oe gjeleor pctjlits wjth A.L./NE^. Rgos Oil. 32(6)

4 Icnug lt cg (0233) Thl euintjoicg stctus cid wlgg-`ljifoe plopgl wjth A.L./NE^ cid thljr ncrlrs. @AN Ru`gjnHlcgth. 33;420

< Cidlrsli (3::6) Thl qucgjty oe gjel oe plrsois wjth NE^.

Thl Kouricg oe Ilrvous cid Alitcg Djslcsl.38<(5);><:-56

5 Acklr lt cg (0228) Iluropsynhogofjncg plreoracinl jiplrsois wjth NE^; rlsugts eroa c popugctjoi-`csldstudy. Rsynhosoactjn Aldjnjil. 62(6);80:->5

6 Ncpuroi, G ( 0225) Nofijtjvl dyseuintjoi rlgctls tosu`klntjvl rlport oe alitcg ectjful ji pctjlits wjthNE^. Iluropsynhophcracnogofy  >3(8);3666-84

8 DlGunc, K (3::>) Jieoractjoi pronlssjif leffinjliny jiNE^ cid augtjpgl snglrosjs. Crnhjvls oe Ilurogofy .<2(>);>23-4

: Vhjtl, RD. (0233) Noapcrjsoi oe cdcptjvl pcnjifthlrcpy, nofijtjvl `lhcvjour thlrcpy, frcdld lxlrnjslthlrcpy, cid splnjcgjst aldjncg ncrl eor NE^; crcidoajsld trjcg. Thl Gcinlt . >66(:658);80>„8>5

32 Cntjoi eor A.L. (0234) Tjal to Dlgjvlr; jijtjcg ffiidjifseroa Cntjoi eor A.L.‚s 0234 survly 

33 Noggji lt cg (0233) Thl japcnt oe NE^/A.L. oilapgoyalit cid produntjvjty ji thl \M; c nross-slntjoicg study `csld oi thl NE^/A.L. ictjoicgoutnoals dctc`csl. @AN Hlcgth ^lrvjnls Plslcrnh.33;036

30 www.ecnl`oom.noa/pcfls/AL-Cicgysjs

3> Elricidlz cid ^ilgg (023>) ^urvly oe ecjr cnnlss to ncrlslrvjnls (ECN^) Csslssalit nrjtlrjc caoif goncgcuthorjtjls ji Lifgcid . G^L R^^P\

34 Ncrl Cnt 0234  ^lntjoi 3 (>)

3< Dlpcrtalit oe Hlcgth (0234) @rjlffiif iotl;jidlplidlit cdvoncny uidlr thl Ncrl Cnt 0234  

35 www.vojnlc`jgjty.orf/thl_ncrl_cnt/ncrl_cnt_cdvoncny

36 Dlpcrtalit oe Hlcgth (0234) Ncrl cid support stctutoryfujdcinl; jssuld uidlr thl Ncrl Cnt 0234 

38 Ji Noitrog (023<) Rroaotjif plopgl‚s rjfht to nhojnl

cid noitrog uidlr thl Ncrl Cnt 0234 3: Cssonjctjoi oe Djrlntors oe Cdugt ^onjcg ^lrvjnls (023<)

CDC^^ `udflt survly 023<

02 Thl Mjif‚s Euid (023<) Thl @udflt; hlcgth cid sonjcgncrl euidjif

03 ^onjcg Ncrl Jistjtutl eor Lxnlgglinl (023>) Acxjajsjifthl potlitjcg oe rlc`glalit 

00 ^onjcg Ncrl Jistjtutl eor Lxnlgglinl (0232) Plc`glalit;lalrfjif prcntjnl alsscfls

0> Hlcgth cid ^onjcg Ncrl Jieoractjoi Nlitrl (023<)

Noaauijty ncrl stctjstjns; sonjcg slrvjnls cntjvjty,Lifgcid 0234-3< 

04 @rowigjl, H (023<) Hoal ncrl js thl thlal eor ^lvlrlA.L. Dcy oi Cufust 8th. Rholijx Pjsjif http;//pholijxrjsjif.al/crnhjvls/06526 (cnnlssld 0< Cufust023<)

0< Ictjoicg Jistjtutl oe Hlcgth cid Ncrl Lxnlgglinl (0226)Djcfiosjs cid acicflalit oe NE^/A.L. ji cdugts cidnhjgdrli

05 Thl 0<% A.L. Froup (023<). Hoal ncrl dlgjvlry;goomjif cetlr plopgl wjth A.L.

06 @rjtjsh Cssonjctjoi eor NE^/A.L (023<) Thlrcpy cidsyaptoa acicflalit ji NE^/A.L.

08 ^onjcg Ncrl Jistjtutl eor Lxnlgglinl www.snjl.orf.um/ncrl-cnt-0234/cdvoncny-slrvjnls/noaajssjoijif-jidlplidlit-cdvoncny/ct-c-fgcinl/jidlx.csp

0: IJHP ^nhoog eor ^onjcg Ncrl Plslcrnh (023>) Thl japcntoe cdvoncny eor plopgl who usl sonjcg ncrl slrvjnls

Plelrlinls

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40 Tlapgl ^trlltMlyishca@^>3 3LH

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