communities, platforms & data- how to engage patients using data, social media and games
TRANSCRIPT
-
7/27/2019 Communities, Platforms & Data- How to Engage Patients Using Data, Social Media and Games
1/11
Welcome, I am Bonnie Feldman, also known as @DrBonnie360, a provider, digital
health analyst and business development consultant. Like all of us, I am also a patient.
As the creator and moderator, I am excited to bring you a panel entitled Community,
Platforms and Data- How to engage patients using data, social media and games. I
bring you three distinguished panelists known for their innovative forward looking
thinking:
1. First we have Dan Conroy-head of business development at Aetna Care Pass
2. Second we have Anmol Madon- the CEO and Co-founder of Ginger.io
3. Third, we Bruce Springer, the CEO of OneHealth
-
7/27/2019 Communities, Platforms & Data- How to Engage Patients Using Data, Social Media and Games
2/11
Have you woken up in the middle of the night with a burst of creativity?
The idea for this panel came to me as one of those middle of the night bursts. How
lucky am I to see this come to fruition. After practicing dentistry, then working all overWall Street, in my first digital health research journey, Mobile Social Games for Health, I
explored lots of fun dashboards: apps that use gaming mechanics and online social
networks to nudge individual behavior change.
Next in Big Data Hype and Hope- where I got hooked on understanding the workings
under the hood I looked at how data was collected, managed, analyzed and applied
by users.
-
7/27/2019 Communities, Platforms & Data- How to Engage Patients Using Data, Social Media and Games
3/11
MyAh hah! moment in my research journey is when I discovered an evolving
ecosystem of experimenters across the health/wellness and disease spectrum. After
interviewing more than 125 companies, and attending more than 25 meetings over the
last few years, I have seen how these mobile tools with 24/7 access can:
1.Support self improvement
2.Extend the reach of our healers
3.Leverage the expertise of one to many
Today, we will explore how big data is converging with the mobile social games
revolution to enable new tools for personal wellness and disease management.
Pioneering companies such as Aetnas Care Pass, Ginger.io and One Health are using
the increasing power of computational sensors and data analytics. Mobile devices,
gaming mechanics, social networking and crowdsourcing is enabling pioneering
companies, to create and use health data in new ways.
-
7/27/2019 Communities, Platforms & Data- How to Engage Patients Using Data, Social Media and Games
4/11
Social media is one of our new health tools. As we now all know in the wake of the
recent NSA revelations:
Our new tools include metadata: tracking time and place, through mobile devices and
social networking.
Unlike spying, in our field, I find a growing emphasis on positive peer-to-peer
connections: using data as well as metadata.
There is an enormous amount of primary data being generated by healthcare social
networks.
These online social networks offer elements of fluidity and flexibility not seen in the
offline world. With no limits on geography or network size or number of networks -
personalized networks can be custom-created, easily assembled and disassembled,
depending on changing personal preferences and needs.
So, social networks using personalized peer-to-peer networks could become useful
external motivators for spurring healthy behaviors.
Social media data can enrich the patient profile by adding lifestyle/behavior data such
as patient-reported data, social media posts, socioeconomic data. Metadata fits here,
tooactivity, geolocation, timing.
Yet eo le are com lex and influencin ever da choices is not a one-size-fits-all
-
7/27/2019 Communities, Platforms & Data- How to Engage Patients Using Data, Social Media and Games
5/11
As the ecosystem is evolving so are the data sources. As you can see in this visual,
health data comes from a large variety of sources and can include both structured and
unstructured data.
For this panel discussion, we will focus on the area on the right with mobile smart
phones and social media, where companies such as
1. OneHealth and Ginger.io give real time behavioral data
2. Aetna Care Pass which has fitness data
-
7/27/2019 Communities, Platforms & Data- How to Engage Patients Using Data, Social Media and Games
6/11
Who is using this data and how?
The big sources are also the big users, as you can see in this visual they include:
1. Payers
2. Providers
3. Employers
For the purposes of this panel we will focus on the users on the right side of this visual:
1. Patients2. Insurers
3. Employers
-
7/27/2019 Communities, Platforms & Data- How to Engage Patients Using Data, Social Media and Games
7/11
As a practicing dentist and then again during my research, I wondered what role can
data play in closing the feedback loop that will nudge behavior change?
When you think about it, everyone engaged in healthcare is in the behavior change
business. As shown in this visual, for an individual patient or consumer a simple
feedback loop can be described as:
1.The user engages with the mobile tool;
2.data is captured;
3.feedback is delivered back to the consumer.
This could be a simple reward system to encourage flossing your whole mouth one time
per day.
More complex feedback loops involve multiple iterations such as changing your
sleeping routine or your eating and exercise patterns. On a population level, a feedback
loop might be to reduce smoking or when the government has opened its databases to
encourage more open data sharing. Ginger.io will give us a view of how they are using
population level feedback loops.
-
7/27/2019 Communities, Platforms & Data- How to Engage Patients Using Data, Social Media and Games
8/11
The ultimate goal of engagement is to get us to take better care of ourselves, both
individually and collectively.
Engagementhas been a popular topic of late, with HIMSS writing a book and doing ameetup while Health Affairs devoted the entire February issue to the topic. In fact,
engagement has been called the holy grail of healthcare. What is interesting to me, as
a scientist and provider is that is that no one can agree on the what it is .
-
7/27/2019 Communities, Platforms & Data- How to Engage Patients Using Data, Social Media and Games
9/11
In this panel, we will examine how CarePass, Ginger.io and OneHealth are using mobile
tools and data to help us take better care of ourselves.
On the dashboard, we will see how they think about patient engagement and how theyare approaching behavior change using an active and passive data collection, elements
of game mechanics and a variety of social support techniques. We will also dive under
the hood to give us insights into the how they collect, analyze and turn their data into
usable information today and in the future.
It will be fun to see and hear the different perspectives, so get your questions ready.
-
7/27/2019 Communities, Platforms & Data- How to Engage Patients Using Data, Social Media and Games
10/11
We will kick off the discussion portion of the panel with some of the issues and
challenges facing each of our panelists including:
Privacy
SecurityData Sharing
Timeliness of data
Citizen Science
Individual empowerment versus institutional resistance
Institutional goals vs individual resistance
-
7/27/2019 Communities, Platforms & Data- How to Engage Patients Using Data, Social Media and Games
11/11