creating a dialogue: helping researchers put user involvement into practice north west users...
TRANSCRIPT
Creating a dialogue:Creating a dialogue: helping helping researchers put User researchers put User
involvement into practiceinvolvement into practice
North West Users Research Advisory Group
Evelyn Bitcon & David Britt
& Sara Morris
North West Users Research Advisory Group North West Users Research Advisory Group (NWURAG)(NWURAG)
Background:2000 – NWURAG started. 3 one day conferences held in
the North West
2001 – facilitated workshops and focus groups
2002 – Health R&D NoW began training workshops for Users and NHS Staff. New User support post created at Health R&D NoW
2003 – “Making it Happen” report published. “Next Steps” event held. 12 new lay members recruited to NWURAG
Who we areWho we are
• Individual lay members and people from organisations (NHS staff and academics)
• Wide range of interests, experience and involvement with other organisations
• We meet every two months• Lunch and expenses• Supported by Health R&D NoW
• Currently 25 members• 50% lay members
What we do - aimsWhat we do - aimsWe aim to support members of the publicand professional researchers workingtogether in health research. We can offer:
• One-to-one advice• Talks about user involvement• Help with training and workshops• General information about involvement in
research• Examples of successful involvement
What we do - actionsWhat we do - actionsNeeds are identified through discussion.Work is carried out in subgroups:
• Confidence building workshop • Patient & Public Involvement support • Brown envelope (payment for users)
• Communications (links and publicity)
• Top tips (information for researchers)
PostcardPostcard
Future plansFuture plans• Develop a ‘code of practice’ for lay
researchers
• Collect and publicise ‘success stories’ in the North West
• Engage with the existing and new clinical research networks
• Cancer, mental health, medicines for children, diabetes, stroke, Alzheimer’s
How to contact usHow to contact us
Dr Sara Morris, R&D Manager for User InvolvementHealth R&D NoW, Lancaster University
01524 592656 [email protected]
Or visit our website:www.lancs.ac.uk/fss/ihr/hrdn/userswww.lancs.ac.uk/fss/ihr/hrdn/users