CRF was Founded

On the eve of her 12th birthday,

Natalie Stack made a wishno child should ever have to make

2003}In

AND WITH SUPPORT FROM ITSMANY FRIENDS, CRF HAS RAISED

$29.3 MILLIONTO BRING NATALIE’S WISH CLOSER TO REALITY

DURING THE FOLLOWING

12 YEARS

1,000,000+CRF-FUNDED RESEARCH ALSO OFFERS

HOPE TO MILLIONSWHO SUFFER FROM OTHER RARE AND WELL-KNOWN DISEASES AND DISORDERS.

Thank you to everyone who has traveled with us on the journey towards a cure. Each of you has

made a aremarkable difference. We appreciate youmore than words can express. Now, we hope you will stay with us to finish what we have so nobly started –

to find the cure for cystinosis.

The Power ofONE

About CystinosisCystinosis is a rare, inherited, metabolicdisease that is characterized by the abnormal accumulation of the amino acid cystine in each of the body’s cells.Build-up of cystine in the cells eventuallydestroys all major organs of the body including the kidneys, liver, eyes, muscles,bone marrow, thyroid and brain.

Medication is available to control someof the symptoms of this terrible disease,but cystinosis remains incurable.

Cystinosis affects approximately 500people, mostly children, in North Americaand fewer than 2,000 worldwide. It is oneof the 7,000 rare or “orphan” diseases inthe United States that collectively impactsapproximately 30 million Americans.

Federal funding for research on cystinosisand other rare diseases is virtually non-existent and most pharmaceuticalcompanies remain uninterested becausefinancial rewards are too small. Yet, whilethere is only a small number of patientswho suffer from any given “orphan” disease, knowledge gained by studyingone disease often leads to advancementsin other rare diseases and more prevalentand well-known disorders.

The Cystinosis Research Foundation wasestablished in 2003 with the sole purposeof raising funds to find better treatmentsand ultimately a cure for cystinosis.

Today, CRF is the largest provider ofgrants for cystinosis research in theworld, funding more than 131 studies in 12 countries. CRF has raised $29.3million, which it has granted or committedto cystinosis research studies around the world. CRF’s efforts have changed the course of cystinosis research andgiven new energy to its investigators and scientists. CRF’s commitment to research has given hope and promise to the global community of cystinosis patients and their families.

C Y S T I N O S I S R E S E A R C H F O U N D A T I O N

100OF EVERY DOLLAR DONATEDGOES DIRECTLY TOCYSTINOSIS RESEARCH

PERCENT

JOIN US ON FACEBOOK.COM/CYSTINOSISRESEARCHFOUNDATION

Global Outreach. Global Impact.

Your generosity has funded

131 12STUDIES IN

COUNTRIES

THANK YOU TO OUR SPONSORS

PRESENTING SPONSOR

BRONZE SPONSORS

SILVER SPONSORS

Joe McKay & Mike Wolfe

Tres Reid

b e r k e l e y p o i n t® Bierbaum, DeRevere and Peterson

Value $1,100

Value $2,515

LIVE AUCTION ITEMSHelp us find the cure. Bid high, bid often!

An Exceptional Case of Wine from the PrivateWine Cellar of Jeff and Nancy StackOnce again Jeff has selected extraordinary red and white winesfrom outstanding wineries. These American and Italian winesinclude Cabernet Sauvignon’s, Pinot Noir, Barolo and Chardonnayswhich are rated from 93 to 100 points by wine connoisseursRobert Parker and the Wine Spectator. If you appreciate finewine you will want to add this special selection to your ownwine collection, quality guaranteed!

If for any reason, purchaser is dissatisfied with the quality of any of these bottles, we will replace that bottle with similar or betterquality (no questions asked).

Donated by Nancy and Jeff Stack

Escape for an Evening to the Resort at Pelican Hill, Newport CoastYou and your guest will relax in a luxurious Bungalow GuestRoom with all the comforts of home featuring a limestone fireplace, elegant marble bath and your own private terrace tosavor the glorious sunset. Your stay will include two (2) 50minute ‘Amber Gold Massages’ plus breakfast at the ColiseumPool & Grill. Enjoy this perfect overnight mini-vacation for two (2) at the world renown 5-Star Pelican Hill Resort.

Donated by Pelican Hill Resort

�

� AMERICAN REDS VALUE RP* RP*

1994 Silver Oak “Alexander Valley” $110 93 89Cabernet Sauvignon

1995 Dunn Vineyards “Howell Mountain” 150 96 91Napa Valley Cabernet Sauvignon

1996 Araujo “Eisele” Napa Valley 220 94 94Cabernet Sauvignon

1997 Joseph Phelps “Insignia” Napa Valley Red 350 96

2001 Chateau Montelena “Estate” Napa Valley 125 95Cabernet Sauvignon

2001 Caymus “Special Select” Napa Valley, 275 95 90Red Wine

2002 Verite “La Joie” Sonoma Red Wine 300 98

ITALIAN REDS

1999 Gaja “Sperss” Barolo 250 95

2001 Vincenzo Abbrezzese “Madonna del Piano” 250 96 100Reserva Brunello de Montalcino

AMERICAN WHITES

2011 Aubert “Ritchie Vineyard” 170 96Sonoma Chardonnay

2012 Morlet “Ma Douce” Sonoma Chardonnay 90 94 96

2012 Peter Michael “Ma Belle Fille” 225 95 97 Sonoma Chardonnay

RP* – Robert Parker Rating WS* – Wine Spectator Rating

Phot

os C

ourt

esy

of P

elic

an H

ill R

esor

t

THANK YOU TO OUR UNDERWRITERS

BAG TAGS

AlaboutFireInc

BEVERAGE CARTS HOST

b e r k e l e y p o i n t®

CIGARS GOLF BALLS

GOLF CLUBSGOLF CART SIGNAGE HATS

HOLE-IN-ONE

MEDIA SPONSOR PIN FLAGS RAFFLE PRIZES SIGNAGE

®

®

OWN A HOLE

TEE SIGN

John Schumacher

Val Achtemeier, Darla Longo and Barbara Emmons

LONGEST DRIVE LUNCH HOST

Chuck Belden

Steve Bellitti and Tom Taylor

Jeff Luzar

Luxury Private Suite for 10 at the Honda Center –Anaheim Ducks vs Dallas Stars Friday, January 15, 2016 at 7:00 P.M.This suite has the perfect location to experience the fast-paced Anaheim Ducks as they continue their quest for the Stanley Cup against the Dallas Stars. The private suite located at center court, includes 10 tickets, plus three (3) parking passes and a $500 credit for your food and refreshments.

Donated by Kimco, Carolyne and Kim Megonigal

Value $1,800

LIVE AUCTION ITEMS Continued

�

Lateral X Elliptical by Octane Fitness – A Complete Reinvention of Cross TrainingThe Lateral X Elliptical will help you build the body you deserve by providing you with the option to move in multiple lateral planeson this innovative machine. Loaded with Octane’s signature break-through boosters and features, this unique elliptical is designed to satisfy even the most physically ambitious. Great for sportstraining and working the hips, thighs and glutes, the perfect all around workout system.

Donated by Lynne and Augie Nieto

Add a new dimension and excitement to the cardio floor with the LateralX elliptical that delivers functional challenges, more muscle demands and greater caloric burn.

MOVE IN A NEW DIRECTION

IREC

CTION

O C T A N E A D V A N T A G E S

O C T A N E A D V A N T A G E S

Value $6,999

�

Golf Adventure for Eight (8) in Fabulous Cabo San Lucas Mexico Travel via private aircraft on a King Air from Orange County toCabo San Lucas for three (3) nights and four (4) days at Casade la Torre – a beautiful 5-bedroom Sea of Cortez view luxuryhome located inside the gates of the exclusive Palmilla Norteresidential community, adjacent to the one and only PallmillaHotel. The spectacular private residence includes (1) mastersuite, (3) guest suites and (1) guest room, all with privatebaths. This home sleeps six (6) or perfect for four couples!

Your golf getaway includes two (2) rounds of golf for eight(8) at the most spectacular courses in Cabo, the privateChileno Bay designed by Tom Fazio and Diamante Cabo San Lucas designed alongside the Pacific Ocean.

Casa de la Torre valued at $10,000 – donated by Kimmy and James ‘Watty’ WatsonKing Air estimated value $9,500 – donated by Nancy and Jeff StackGolf Rounds valued at $4,800 – donated by Anonymous

Value $24,800

�

Air Control Systems, Inc.Aliso Viejo Country ClubArroyo Trabuco Golf ClubSteve Bellitti, Colliers InternationalBen’s Asphalt, Inc.Jack Berquist, Accord Group HoldingsChicago Title

Steve Carfano’s, Newport Beach Golf ShopDave Desper, CBREDisneyland ResortFairmont Grand Del MarTom Gilchriese,

TLG Paving Company, Inc.John Hamilton

Janet Keller and Bernie SchneiderLorin Backe PhotographyNeiman MarcusLawrence Malekow, Howard RoofingPark Hyatt Aviara ResortPatina Restaurant GroupPelican Hill Resort, Robert Reimbold

Todd PickupRL and David PetersQuiksilverSARES•REGIS GroupNancy and Jeff StackStudio4HairTijeras Creek Golf Club

Ben’s Asphalt, Inc.G. Joannou Cycle Company Inc.

for Jamis Bicycles

GuardTopMAC AirMammoth Mountain Ski Area, LLC

Paddle Surf WarehousePatina Restaurant GroupNancy and Jeff Stack

The Lodge at Torrey Pines

Raffle

Silent

Disneyland Resort, Mark Hollingworth

Infinite Hero Foundation

Patina Restaurant GroupKelly PeartJoe Roach, Eagle Construction

Nancy and Jeff StackSouth Coast Plaza

The Wine ClubTraditional Jewelers

Super Silent

Laura and Michael K. HaydeKimco, Carolyne and Kim MegonigalLevendi Winery, Jim Gianulias

Lynne and Augie NietoPelican Hill Resort, Robert

Reimbold & Irene Shuohan Fu

Mary and Peter RooneyNancy and Jeff Stack

Kimmy and James ‘Watty’ WatsonThe Island Hotel, Gerard Widder

Live Auction

Chicago Title and Fidelity National Title Manly Stewart Finaldi Lawyers Partner Engineering & Science, Inc.

Goodie Bags

Bluewater Grill Dana Whitmer GuardTop Nancy and Jeff Stack

Awards

THANK YOU TO OUR GIFT-IN-KIND DONORS

THANK YOU TO OUR COMMITTEE AND VOLUNTEERS

Fletcher Jones Mercedes Benz Traditional Jewelers

Hole in One

CommitteeVince Ciavarella, Chairman, SARES•REGIS Group

Teri BradenBen’s Asphalt Inc.

Ron DyerSARES•REGIS Group

Tom GilchrieseTLG Paving Company, Inc.

Stacy JohnsonCystinosis Research Foundation

Bill KellerFriend of CRF

Samra KellerFriend of CRF

Simee KristjanssonSARES•REGIS Group

Marylyn MilburnSARES•REGIS Group

Jennifer SimpsonSARES•REGIS Group

Don SolsbyInternational City Bank

Zoe SolsbyCystinosis Research Foundation

Jeff StackTrustee, Cystinosis Research FoundationSARES•REGIS Group

Nancy StackTrustee, Cystinosis Research Foundation

Danielle StaffieriWith Fresh Eyes

Kelly SuguitanSARES•REGIS Group

VolunteersDebbie Beers, CRF FamilyGreg Bissell, Friend of CRFSherry Boucher, CRF FamilyBridgit Brannon, SARES•REGIS GroupBo Burch, SARES•REGIS GroupMelanie Byrne, Friend of CRFJane Chapman, SARES•REGIS Group

Karen Dimmick, JK BookkeepingKelli Dimmick, JK BookkeepingErin Feiler, SARES•REGIS GroupAmber Hathaway, SARES•REGIS GroupDonna Heiken, Friend of CRFKay Hunter, Friend of CRFTerry LaMotte, SARES•REGIS Group

Maria Elena Leon, Friend of CRFMarylyn Milburn, SARES•REGIS GroupAlana Moeung, SARES•REGIS GroupSue Ellen O'Connor, Friend of CRFJanine Padia, SARES•REGIS GroupJennifer Simpson, SARES•REGIS GroupKelly Suguitan, SARES•REGIS Group

Diana Tsipolitis, Friend of CRFLinda Watson, SARES•REGIS GroupMarnie Wickert, Friend of CRFStacy Winn, SARES•REGIS GroupDeborah Wise, SARES•REGIS Group

LIVE AUCTION ITEMS Continued

Enjoy Dinner for Eight (8) at the Award-Winning Golden Truffle Restaurant with Wine Provided by Levendi WineryYou and your guests will have the opportunity to experiencethe finest fare in Orange County prepared by renown Chef AlanGreeley. Levendi will provide your wines for the evening, six(6) bottles, two white and four red. This could be your mostmemorable holiday celebration of 2015!

Includes $1,000 gift certificate to Golden Truffle and $300 of Levendi Wines.

Donated by Nancy and Jeff Stack and Jim Gianulias, Levendi Winery

Value $2,470

Value $1,300

Anaheim Ducks vs Vancouver Canucks –Luxury Private Suite for 10 (and 2 Glass Seats) at Honda Center Monday, November 30, 2015You won’t want to miss seeing this exciting hockey gamein your own luxury private suite for 10 at center ice withfour (4) preferred parking passes, and two (2) additionalGlass Seat tickets at center Ice, with one (1) reservedparking pass. Plus a $500 food and beverage allowance!

Donated by Laura and Michael K. Hayde and Nancy and Jeff Stack

�

�

The Cystinosis Research Foundation is a non-profit, tax-exempt entity pursuant to Section 501(c)3. Federal Tax ID #32-0067668.

100 percent of the funds raised will support cystinosis research. All gifts are tax deductible.

18802 Bardeen Avenue � Irvine, CA 92612-1521

949-223-7610 � www.cystinosisresearch.org

CYSTINOSISRESEARCH FOUNDATIONRESEARCH • HOPE • CURE

LIVE AUCTION ITEMS Continued

Enjoy a Weekend Getaway for Two (2) at the Island Hotel, Newport BeachYour weekend excursion includes luxurious accommodationsin an Island Corner Suite with V.I.P. Island Club access; two(2) 80 minute spa treatments to reinvigorate your mind andbody; breakfast for two (2) at the Oak Grill or Aqua Loungeplus a two (2) hour electric boat rental to cruise the picturesque setting of Newport Harbor.

Donated by Gerard Widder, General Manager, Island Hotel,Newport Beach

Priceless

�

USC vs UCLA Football Game – Four (4) 50-Yard Line Tickets, Saturday, November 28, 2015 Committed college football fans wait all season for thiscross-town rivalry classic football game-day. Thesepriceless tickets are located in Row 27 Section 22 Seats5, 6, 7 and 8 and are center field on the 50 yard line.Parking pass included!

Donated by Mary and Peter Rooney

Priceless