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End of Life Care: Review of the Educational Literature Dave Pulsford Senior Lecturer School of Health University of Central Lancashire [email protected]

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Page 1: Dave Pulsford Senior Lecturer School of Health University of Central Lancashire dpulsford@uclan.ac.uk

End of Life Care: Review of the Educational Literature

Dave PulsfordSenior Lecturer

School of Health University of Central Lancashire

[email protected]

Page 2: Dave Pulsford Senior Lecturer School of Health University of Central Lancashire dpulsford@uclan.ac.uk

Large number of papers published in last decade

Majority of authors from USA, but range of other countries represented (including UK)

Two broad types of paper:◦ Studies identifying staff attitudes regarding

preparedness for End of Life Care, and related education and training needs,

◦ Studies describing and evaluating specific education or training interventions.

Nature of the Literature

Page 3: Dave Pulsford Senior Lecturer School of Health University of Central Lancashire dpulsford@uclan.ac.uk

Groups studied include medical students and junior doctors; student nurses and nurses in a range of specialities, also social workers.

Education needs identified include: symptom control, pain management, communicating with patients about end of life care, assisting patients’ decision making, prolonging life versus quality of life, nutrition, complementary therapies, spirituality and professionals’ coping strategies for working with dying patients.

Studies identifying Staff Preparedness & Education/Training Needs

Page 4: Dave Pulsford Senior Lecturer School of Health University of Central Lancashire dpulsford@uclan.ac.uk

Range of educational initiatives included: short courses/study days, ward-based study sessions, blended/e-learning courses

Most courses were for medical or nursing staff (students or qualified);

A few for unqualified care staff or other professional groups

Few multi-disciplinary audiences

Studies evaluating specific Education/Training Interventions

Page 5: Dave Pulsford Senior Lecturer School of Health University of Central Lancashire dpulsford@uclan.ac.uk

Content of courses reflected current perceived educational needs, in particular interpersonal aspects of EOL care

Learning methods predominantly participatory and interactive (case-study discussion, role-play, etc)

Means of evaluation of learning included: course evaluation forms, knowledge questionnaires, self-reports of behaviour change, assessment of interpersonal skills.

Some studies compared pre-and post- course, or included a control condition

Studies evaluating specific Education/Training Interventions (2)

Page 6: Dave Pulsford Senior Lecturer School of Health University of Central Lancashire dpulsford@uclan.ac.uk

Outcomes included: improved attitudes towards EOL care, better preparedness for EOL Care, increased knowledge and confidence, reduced death anxiety

Some studies reported no improvement following educational input: – related to prior experience of participants and level of practice-based support, learning and supervision that participants had to reinforce classroom based input

Studies evaluating specific Education/Training Interventions (3)

Page 7: Dave Pulsford Senior Lecturer School of Health University of Central Lancashire dpulsford@uclan.ac.uk

Classroom-based education in End of Life care is highly useful to practitioners, and may be essential, but it is insufficient for changing practice without experience, support and supervision “in the field”

Conclusion