The Washington TBI Resource Center “Current Contract Update”

Data from July 1, 2011 – September 30, 2012

Deborah CrawleyExecutive Director – Brain Injury Association of Washington

11/1/2012

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Brain Injury Association of Washington

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* Providing direct services to individuals throughout Washington whose lives are affected by Brain Injury since 1982.

Our vision is a world where Brain Injury is prevented, and every person already affected by its impact benefits from resources that maximize his/her quality of life.

Our mission is to increase public awareness, support and hope for those affected by Brain Injury through education, assistance and advocacy.

The Brain Injury Association of Washington is the organization in Washington providing crucial support services to individuals whose live are affected by Brain Injury.

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Exhibiting the ability to accomplish great things with a staff of only 9 full time employees. Recognizing there is still more to be done.

BIAWA Staff DC

PM JD PDJGJM

JP

WL

BNG

MH

DH

NH Cheryl MyersCJW

ExecutiveDirector

Data and WebsiteManager

Clinical Case Manager

TBI ResourceCenter

OperationsManager

Pediatric ResourceManager

AdministrativeAssistant

Resource LineSpecialist

NorthwestResource Manager

King RegionResource Manager

Resource LineSpecialist

WesternResource Manager

SouthwestResource Manager

CentralResource Manager

EasternResource Manager

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The Washington TBI Resource Center

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Previous Contracts: oStatewide Toll-Free Resource Line (12/2007)oWashington TBI Resource Coordination (WATBIRCS) (2008)

Combined Contract: oResource Line + In-Person Resource Management for Adults (2011) and Pediatrics (2011/2012)

The Resource Line

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Offering Support, Information & Referrals to Individuals throughout the state of Washington whose lives are affected by Brain Injury or who are interested in learning more about Brain Injury. Referrals to:•Neuropsychologists, Attorneys & Rehab Providers;•Government Assistance Programs;•Adult Family Homes, Assisted Living Facilities and•Clinical Case Management, Adult & Pediatric Resource Management.

500 Calls per month42 New Clients per month Center Calls are 280% above DSHS Requirement

1,100 Resources specifically vetted and entered into our database 50 Resources per Month

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Resource Management

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Resource Managers help connect people to resources and support in their communities while working toward individualized, identified goals with the objective of improving the quality of life for persons with Brain Injury by assisting them, their families and loved ones fill in the gaps of needed services.

15 Referrals per month vs. WATBIRCS 6 98 Currently Enrolled 85 Adults 13 Pediatric

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WATBIRCS covered Snohomish, King, Clark and Spokane. BIAWA increased geographic area by 450% with essentially the same contract dollars.

10WATBIRCS data is over 2.5 years. BIAWA data is to date 1.25 years.

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*Progress of BIAWA Clients significantly higher than WATBIRCS in all areas.

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A Pediatric Cliento August 2004: Dominic fell from his loft bed in the middle of the night. In the morning, he

was taken to the hospital were they found a fracture and bleed.

o September 2004: Dominic had a stroke and was put into a medically induced coma

o Home tutored until Feb/March of 2005o August 2005: Dominic was placed at May Institute in Boston

o September 2010: Family moved to Washington

o January 2011: Dominic placed in Renton School District at Renton Academy (alternative school)

o May 2011: Dominic had follow up with PCP who noted that the school district “didn't have the understanding and tools that Dominic needed to succeed.”

*Dominic’s mom was a persistent advocate for her son. Holding meetings with the school, requesting continuous changes to his IEP plan and bringing educational materials on Brain Injury to the school.

o November 2011: Dominic’s mom calls the Washington TBI Resource Line after hearing about us through word of mouth.

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o November 2011: Alana identifies her goal for PRM work “Find an educational placement that will help Dominic with his emotional and behavioral needs.”

o It was quickly determined that Julie Dawning would began attending school meetings to help Alana advocate for her son. Julie spent time listening to the family and found ways to make sure their concerns about Dominic’s decreasing emotional health and lack of educational progress were heard by the school district. Once it became clear to the family and Julie that Dominic really needed the support only a specialty school could provide, it took six month’s working with the family, the district and the specialty school to place Dominic with the school district covering the expense.

o September 2012: Dominic is now a proud student at New Horizon School in Renton, where he receives his education in an environment that is well suited to his needs.

o Presently: Julie continues to work with Alana and Dominic on their additional goal to establish Mental Health Counseling and Med Management.

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A Pediatric Client

An Adult Client

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o January 2003: Evan was assaulted and sustained a TBI o October 2011: Evan called the Washington TBI Resource Center for

support and “understanding.” He was referred to Mary Hughes Northwest Resource Manager.

o November 2011: Evan identified his primary goal as, “"Get my life together, I don't like the way things are and need my meds to keep me on the level. Success with SSI which is in process. Need housing.”

o November 2011: Mary supported Evan in establishing consistent Mental Health Services and prescriptions for appropriate medications.

o March 2012: Evan was placed in stable housing. o April 2012: Mary referred Evan to an attorney to assist him with his

Social Security application. o May 2012: Evan’s COPES assessment was completed.

o Presently: As a result of his participation in Resource Management services, has stable housing with utilities in a safe neighborhood. Evan has voiced happiness with his apartment and likes that he is within walking distance of services, including Safeway and the bus. He is eligible for HopeLink transport to and from his regular counseling appointments. With the help of Resource Management, Evan has gained the tools and self-confidence to schedule and attend his appointments on his own. He continues to work with his attorney on his Social Security application.

o Mary engages in ongoing collaboration with Evan as well as his extensive care team providing support as Evan exerts his own agency and establishes a higher quality of life.

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An Adult Client

In Addition

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BIAWA is committed to ensuring all who are directly impacted by Brain Injury as well as their service providers receive the support they need at no personal cost to them.

Resource Center staff are actively involved in all aspects of our organization’s outreach including: Academic ScholarshipsFund Development Inter-Agency CollaborationLegislative AdvocacyOutreach/TrainingSocial OutingsSupport GroupsWebsite Development

Inter-Agency Collaboration• Washington State Lifespan Respite Coalition• Directors of Disability Organizations• Washington State Residential Care Council

(WSRCC)• ADS Cross-Training

• ALS Association Evergreen Chapter, National MS Society, and Northwest Parkinson’s Foundation

• Alliance of Information & Referral Systems

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Outreach/Training

205 Days of Targeted Outreach75,000 ReachedOctober 2012 – 34 days & nearly 6,000 Individuals 21

BIAWA participates in conferences and community events as well as provides free customized training to educators, medical providers, legal professionals and other service providers. EX: Co-Occurring Disorders Conference

WA State Prevention Summit Educational Service District (ESD) Outreach Race for a Soldier

School Psychologists Conference

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Social Outings

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Support Groups25 Affiliate Support Groups throughout Washington25 Additional Groups Receiving Support from BIAWA•Staff fill in for groups such as Harborview, Young Adults with TBI, and others •Staff are facilitators for groups such as Cherry Hill, Bellingham, & Vancouver •Staff help start new groups such as Bellevue Pediatric Support Group

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Clients are given the opportunity to complete our Satisfaction Survey via Survey Monkey or hard copy once at time of enrollment and again at time of discharge.

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* Overall, I was satisfied with my experience with the Washington TBI Resource Center* The Staff were polite and respectful toward me* I was comfortable being open and honest with the Staff about my needs/concerns* The Washington TBI Resource Center provided me with options regarding resources/referrals* The Washington TBI Resource Center met my needs* The Washington TBI Resource Center provided me with help in a timely manner* I will call the Washington TBI Resource Center in the future* I will refer the Washington TBI Resource Center to other people

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Thank You!

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