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Determining success in digital health engagement – the dallas case study Siobhán O’Connor School of Nursing, Midwifery & Social Work, University of Manchester Prof Frances Mair & Prof Catherine O’Donnell, University of Glasgow Dr Marilyn McGee-Lennon & Dr Matt-Mouley Bouamrane, University of Strathclyde The King’s Fund Digital Health & Care Congress Wednesday 17 th June 2015 (Session W2C) @shivoconnor 1

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Determining success in digital health engagement – the dallas case study Siobhán O’Connor School of Nursing, Midwifery & Social Work, University of Manchester Prof Frances Mair & Prof Catherine O’Donnell, University of Glasgow Dr Marilyn McGee-Lennon & Dr Matt-Mouley Bouamrane, University of Strathclyde The King’s Fund Digital Health & Care Congress Wednesday 17th June 2015 (Session W2C)

@shivoconnor

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Societal  Changes  

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Poten0al  Solu0ons  

 

Health  Challenges  

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               Aim  1:    Develop  and  implement  digital  health  and  wellbeing                      products  and  services  at  scale  to  improve  people’s  lives  

               Aim  2:    Promote  a  large-­‐scale  consumer  market  (>160,000  people)                      that  drives  service  and  social  innovaBon1  

Timeframe:    2012  –  2015  

 

Investment:    £37  million    

Living  It  Up  (LiU)  

More  Independent  

(Mi)  

Year  Zero  (YZ)  

i-­‐Focus    (iF)  

Four  dallas  consor0a:  NHS  Trusts  -­‐  Local  authoriBes  –  Private  Industry  -­‐  Voluntary  

Sector  -­‐  Academia  

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Digital  health  technologies:  telehealth  &  telecare  –  mobile  health  apps    -­‐  electronic  PHRs  -­‐  online  health  portals  -­‐  assisted  living  devices  and  sensors  

Geographies:  rural  and  urban  areas  of  Scotland  and  the  north  of  England  

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•  Small  scale  pilot  studies  and  randomized  controlled  trials  (RCTs)  

•  eHealth  implementaBon  is  complex  &  challenging  in  the  real-­‐world2  

•  Research  focuses  on  clinical  informaBon  systems  •  Research  focuses  on  usability/adopBon  or  retenBon/normalizaBon  

Reach   Enroll   Use   Retain  

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Research  aims:  •  Explore  digital  health  engagement  strategies  in  primary  care  •  Determine  factors  for  successful  eHealth  recruitment  

Methodology    -­‐  Exploratory  case  study    -­‐  Ethical  approval  (University  of  Glasgow)  

Secondary  Analysis    -­‐  Baseline  &  midpoint  interviews    -­‐  Project  documentaBon  (n=25/163)  

Thema0c  Analysis    -­‐  Framework  approach3  

Interviewee  Type  

Baseline   Midpoint  

Health  service   6   9    

Industry   6   5  

Voluntary  Sector   3   4  

Academia   2   1  

Government   0   1  

Total   17   20  

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Five  themes  facilitate  digital  health  engagement    1.  Community  engagement    2.  High  quality  technical  design  3.  Digital  awareness  &  accessibility    4.  Clinical  engagement  5.  OrganisaBonal  eHealth  capacity    

•  Market  research  •  Personalised  recruitment  •  Financial  incenBves  •  User  champions  •  ExisBng  community  networks  

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1.  Community  Engagement    

“There  are  things  like  health  trainers.  You  know,  we  don’t  directly  commission  the  health  trainer  service  but  what  we  do  is  we  augment  it  with  the  ability  to  understand  &  know  

about  the  technology  that’s  occurring”  

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2.  High  quality  technical  design  

•     Co-­‐design  methodology  •     Integrated  digital  login  •     Easy  to  use  interface  •     Automated  system  

“by  basing  it  all  around  co-­‐design  and  working  with  the  communi?es  to  develop  it  …  so  if  we  keep  that  process  

going,  then  I  think  it  could  be  something  that  communi?es  really  use  and  want”  

•  Digital  champions  programme    •  Digital  hubs  •  Large  retail  outlets  •  Smarthouse  

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3.  Digital  awareness  &  accessibility  

“What  most  of  the  community  hubs  in  the  city  are  in  exis?ng  places  where  people  …  if  we  can  get  a  computer  in  there  from  the  union  learn  and  with  a  digital  champion  to  help  people  use  them  then  that’s  what  they  are  really  targe?ng  for  and  

that’s  overcoming  the  barrier  for  access”    

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4.  Clinical  Engagement  

•  Clinical  champions  •  Demonstrator  projects  •  Digital  skills  training    •  Financial  incenBves    

“So  there’s  definitely  an  interest  from  the  medical  profession,  par?cularly  GPs  and  saying  how  might  Living  It  Up  help  with  the  kind  of  social  prescribing….  we  have  communica?on  on  that  

basis  I  think  ul?mately  they  will  be  very  good  champions  for  this  going  forward”  

•  Digital  health  policy/strategy  •  SupporBng  IT  infrastructure  •  Digitally  enabled  clinical  staff  •  eHealth  ethos  or  culture  

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5.  Organisa0onal  eHealth  capacity  

“they’re  much  further  developed  in  terms  of  their  own  digital  strategy  as  an  organisa?on  so  their  staff  do  mobile  working,  they  have  tablets  and,  you  know,  they’re  digitally  enabled.”  

Health  Service  

Pa0ents  &  Public  

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•  Lessons  learned  about  successful  digital  health  engagement    

Introduce  digital  health  strategy  

Design  tailored  recruitment  strategies  

CollaboraBve  grassroots  

engagement  

Consider  co-­‐design  

IncenBvise  eHealth  engagement    

Invest  in  technical  infrastructure  

Digital  Awareness    

&    Accessibility  

Provide  eHealth  educaBon  &  setup  digital  literacy  training    

Create  digital  health  hubs    &  clinical/user  champions  

 

Study  LimitaBons    •  Only  one  perspecBve  captured    •  eHealth  programme  not  finished    •  Non-­‐parBcipaBon  not  explored    Next  Steps  •  Interviews  &  focus  groups    

•  Users  (paBents,  carers,  health  professionals)  •  TheoreBcal  framework  for  complex  intervenBons4,5    

•  NormalizaBon  Process  Theory  (NPT)6  

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@shivoconnor  

[email protected]    

+44  (0)161  603  7852  

1.  McGee-­‐Lennon   M,   Bouamrane   M,   Barry   S,   Grieve   E,   LaBna   D,   Watson   N   et   al.   EvaluaBng   the  Delivering  Assisted  Living  Lifestyles  at  Scale   (dallas).  HCI  2012.  Proceedings  of   the  26th  Annual  BCS  Conference   on   Human   Computer   InteracBon;   2012   Sept   12-­‐14;   Birmingham,   UK.  hnp://ewic.bcs.org/content/ConWebDoc/48790    

2.  Mair  FS,  May  C,  O'Donnell  C,  Finch  T,  Sullivan  F,  &  Murray  E.  (2012)  Factors  that  promote  or  inhibit  the   implementaBon   of   e-­‐health   systems:   an   explanatory   systemaBc   review.  Bulle?n   of   the  World  Health  Organiza?on,  90(5),  357-­‐364.  hnp://www.who.int/bulleBn/volumes/90/5/11-­‐099424/en/    

3.  Ritchie  R,  Spencer  L.  QualitaBve  Data  Analysis  for  Applied  Policy  Research,  In:  M.  Hubermann  &  M.  Miles,  The  Qualita?ve  Researcher’s  Companion,  Sage  PublicaBons,  Thousand  Oaks,  California,  2002.      

4.  Craig   P,   Dieppe   P,   Macintyre   S,   Mitchie   S,   Nazareth   I   &   Peqcrew   M.   (2008)   Developing   and  EvaluaBng   complex   intervenBons:   the   new   Medical   Research   Council   guidance.   BriBsh   Medical  Journal,  337.  hnp://www.bmj.com/content/337/bmj.a1655    

5.  O’Connor  S,  Mair  FS,  McGee-­‐Lennon  M,  Bouamrane  M,  O’Donnell  C.  Engaging  in   large-­‐scale  digital  health  technologies  and  services.  What  factors  hinder  recruitment?  Proceedings  of  the  26th  Medical  I n f o rmaBc s   Eu rope   Con fe r ence   (M IE )   2015 ,   May   27 -­‐ 29 th ,   Mad r i d ,   S pa i n .  hnp://ebooks.iospress.nl/publicaBon/39349  

6.  May  CR,  Mair  F,  Finch  T,  MacFarlane  A,  Dowrick  C,  Treweek  S.  et  al  (2009)  Development  of  a  theory  of   implementaBon   and   integraBon:   NormalizaBon   Process   Theory.   ImplementaBon   Science   4(29),  29.  

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Siobhán   O’Connor   is   a   Lecturer   in   Adult   Nursing   at  the   School   of   Nursing,   Midwifery   and   Social   Work,  University  of  Manchester.  She  has  a  mulBdisciplinary  background   with   an   honours   B.Sc   Nursing   and              B.Sc.   Business   InformaBon   Systems   from   University  College  Cork,  Ireland.  She  is  currently  compleBng  her  doctorate  at  the  University  of  Glasgow,  exploring  the  digital  health  engagement  process  to  paBent  focused  technologies  in  primary  care.  She  is  a  member  of  the  BCS  BriBsh  Computer  Society,  the  Health  InformaBcs  Society  of  Ireland  (HISI)  and  the  European  FederaBon  for  Nursing  InformaBcs  (EFMI  NI).    

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Siobhán  O’Connor,  B.Sc.,  CIMA  CBA,  B.Sc.,  RGN  

hnps://soconnor.ie     @shivoconnor