Using PersonalisedTechnology to Improve the

Health and Wellbeing ofPeople with Learning

Disabilities

Emma NicholsFebruary 2016

Outcomes (£)

• From 15 Hours per day + ‘Sleep in’To

• 27 Hours per week with No ‘Sleep in’

Growing population

Social Care Spend

51.3%

9.2%

31.2%

6.4% 0.1% 1.8%

Older People Physical Disability Learning Disability

Mental Health Asylum Seakers Other Adult Services

Total Adult Social Care Spend 2013/14: £17,250m

People are living longer

Early 1900s Late 1900s

Male Female Male Female

General population 45 49 81 84

People with learning disabilities 18 66

People with Down’s Syndrome 9 50

– Respiratory disease (e.g. pneumonia and aspiration)– Coronary heart disease (particularly congenital heart

disease)– Gastrointestinal disorders (e.g. gastro-oesophageal

flux disease)– Epilepsy– Cancer (particularly gastrointestinal cancers)– Sensory impairment– Osteoporosis– Hypothyroidism (particularly in Down’s Syndrome)– Mental illness and challenging behaviours– Obesity– Poor oral health

Leading Causes of Death in People with a LearningDisability

• How do we know people are getting ill?• Diagnosis• Visiting the GP• Hospital Admission• Consent (MCA)• Communication between professionals

(care provider, social care, health care)

Challenges for people with learningdisabilities

• Clear health care recording of people with learningdisabilities?

• Named Health Care Co-ordinator for people with complex ormultiple health needs

• CLDT to offer support to access services• Specialist Advice on MCA, including staff training• Long term health care plans including end of life plans• Recording of causes of death• Level playing field

CIPOLD key recommendations(Confidential Inquiry into the Premature Deaths of People with LD)

PT and Innovation projectprinciples

Esteem needs

Social needs Achievementneeds

Safety needsBasic needs

PT andInnovation

Maslow and technology

Need PT ExampleBiological and Physiologicalneeds

Medication solutionsEnvironmental Controls

Safety needs TelecareFinger Print Lock

Belongingness and Love needs Communication aidsVirtual Social Network

Esteem Needs Taking as much control aspossible of 1,2, 3 above

Personalised Technology – a definition

Implementation process

Training

Refer

Assess

Solution

ConsentFunding

Install

Training

Monitor

R & D Projectse-MAR

• eMAR (electronic MedicationAdministration Record) system

• Developed by Hft and Graphix Asset

• Designed to make process easier

• Generates reminders about missed/ latemedication

• Significantly reduces medication errors

Hft and video-consultation

Lincus

• Tablet-based, self-reportingtool

• Allows people to communicate how they are feeling

• Initially developed for YMCA

• Hft and Rescon developed an LD version

• Trialed in Devon

• Extending trials

Lincus Surveys

GeneralHealth

MentalHealth

Social Life EmotionalHealth

Wellbeing Mood Social Mood AngryComfort Stress Home

SituationExcited

Tired Engagement Lonely SupportedHunger Control Family Time Supported

SpirituallyThirst

Outcomes from the Lincus pilot:

• 20% increase in emotional health andwellbeing

• Diagnosis of advanced osteoarthritis

• Reduction in challenging behaviours

Lincus data

• HEF is an evidence based outcomesframework for people with learning disabilities

• Considers recommendations - CIPOLD• Aims to reduce health inequalities for people

with learning disabilities – creating a level playingfield for the people we support.

• Measures the impact of services on a personshealth and wellbeing

• It enables staff to make changes to anindividual’s health plan to ensure they have agood quality of life

What is HEF+?(Health Equalities Framework)

£75,000 over 15 months to integrateHEF+ into the Lincus platform. Making it:

• Easier to use• Easier to collate information• Clear data and reporting• Indicate where remedial action is

required (Health Action Plans)

Trialing at Hft services in Gloucestershire(supported living) and Bradford (dayservice).

Project began in November 2015.

Health Foundation project: HEF intoLincus

Mi partnership

• Demographic challenges• Resource and funding is tight• Health and social care are not fully

integrated• How services are costed – hourly rate vs

outcome led budgetingBut…• Technology can make a difference to the

health and wellbeing of people withlearning disabilities and others

In summary

Thanks for listening!