IN CONTROL BIG EVENT WORKSHOP
Improving services for people with autistic spectrum conditions
and their family carers
What we’ll talk about
What the government is doing What SCIE is doing What you can do
What the government is doing
Autism Act – 2009 Autism Strategy “Fulfilling and Rewarding
Lives” – March 2010 Statutory guidance – December 2010
Autism Act 2009
First ever condition-specific law Required government to produce Autism
Strategy Required government to produce statutory
guidance No new rights England only & adults only
Autism Strategy – March 2010
“All adults with autism are able to live fulfilling and rewarding lives within a
society that accepts and understands them. They can get a diagnosis and
access support if they need it, and they can depend on mainstream public
services to treat them fairly as individuals, helping them to make the
most of their talents.”
Autism Strategy – March 2010
Five key themes
Awareness Diagnosis Services Work Local plans
Autism strategy – points to make
Long-term Consultation Money for training No other new money Delivery plans Reviewed 2013 Not law, but...
Statutory guidance – December 2010
Will set out what in strategy is compulsory Consultation over the summer Will cover
Diagnosis Numbers Assessment Transition Local planning & leadership Training
What SCIE is doing
Research briefing Practice enquiry SCTV Personalisation briefing
Research briefing
Evidence base for what works is weak Outcomes for people with autism often poor Access to social care is problematic Individuals ‘fall through the cracks’ People with autism and learning disabilities
access support more easily More able people often struggle for help More awareness about autism is needed
Research briefing
Evidence - effectiveness of autism specific approaches
Need better understanding of the barriers to social care among ethnic minorities, women and older people with autism
People with autism and their organisations - more vocal
Concerns about individuals with additional sensory processing differences
Practice enquiry
University of Sussex National Autistic Society
Practice enquiry
Looking at barriers to services How to overcome them Survey on NAS website Section for people with autism Section for carers www.nas.org.uk
Social Care TV
September 2010 Awareness raising Supported by Department of Health Part of training programme for different
professional groups
Personalisation briefing
Treat people with autism as individuals More support for people with Asperger’s Traditional services may not be best option People with autism take control over their
support and their life High quality support planning Good access to information Staff are trained in autism Meaningful relationships reduce
safeguarding issues
Over to you
Who you are What’s working well What needs to change What you can do/would like to see done
differently What messages for provider/manager What you can do to help your organisation