Download - Retention: Partners Make It Happen
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Retention:Partners Make
It Happen
March 22, 2012 and March 29, 2011
For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#
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Welcome & IntroductionGround Rules for Webinar Participation
Welcome This is a “public event.” If you have confidentiality
concerns . . .- Your names appear on-line in the list of webinar
registrants--consider viewing the webinar at a later time, after it is posted at incarecampaign.org, or simply listening to the audio
- All webinars are recorded--do not use identifying information when asking questions
For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#
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Welcome & IntroductionGround Rules for Webinar Participation
Actively participate and write your questions into the chat area during the presentation
Do not put us on hold Mute your line if you are not speaking (press *6, to
unmute your line press #6) Slides and other resources will be available on our
website at incarecampaign.org
For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#
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Welcome & IntroductionAgenda
Welcome & Introductions, 5 mins in+care Campaign Overview, 5 mins The Importance of Retention, 15 mins Opportunities to Improve Retention, 10 mins Partners in+care Overview, 10 mins
Q & A opportunities throughout webinar
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At the end of this webinar, you will know . . . What is retention and why is it important Some of the challenges to retention and how they
can be overcome How to get involved as a partner in the in+care
campaign
Welcome & IntroductionLearning Topics
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Welcome & IntroductionIntroduce Guests
Michael Hager, NQC
Dr. Anna Huang, HRSA/HAB
John Sapero, Maricopa Co. Ryan White Program Part A [Phoenix, AZ]
Bob Tracy, NQC peer consultant [Saint Paul, MN]
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The goal of the in+care Campaign is to bring patients back to care and keep others from falling out of care.
In+care Campaign Overview Purpose
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In+care Campaign Overview National Campaign
Regional, state and local
Ryan White grantees and providers; all parts
Partners – people living with HIV/AIDS and their allies
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In+care Campaign Overview 5 Parts
Webinars/Meet Authors
Coaches
QI Projects &Data
Champions
Partners
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In+care Campaign Overview Get the Toolkit
www.incarecampaign.org
+request welcome toolkit
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In+care Campaign Overview
Additional Questions: Contact us a [email protected] Visit Web site: www.incarecampaign.org
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In+care Campaign’s Focus on RetentionWhat is Retention?
Stay in care / Return to care
Retention –having a routine for seeing your doctor/health care provider on a regular schedule
Doing this persistently – year-after-year-after-year
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In+care Campaign Focus on RetentionWhere does it fit?
Not in HIV Care Engaged in HIV Care
Unaware of HIV infection
Aware of HIV infection (not in care)
Receiving some medical care but
not HIV care
Entered HIV care but lost to
follow-up
Cyclical or intermittent user
of HIV care
Fully engaged in HIV care
Continuum of Engagement
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1/3 to 2/3 of PLWHA in US are not in regular care
In+care Campaign’s Focus on RetentionRetention – It Needs Our Attention
17-40% of PLWHA who know status are not in regular care
40% of patients newly diagnosed did not see provider within 6 months
Visit www.incarecampaign.org – Resources Tab to review
studies on need for and benefits of retention.
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In+care Campaign Focus on RetentionRisk of Poor Retention
Visit www.incarecampaign.org – Resources Tab to review studies on need for and benefits of retention.
Why do we need to
be concerned about people not being in regular HIV care?
Less likely to benefit from
HIV drug therapies or to be adherent
Experience more illnesses requiring hospitalization.
Trouble managing transmission risk.
Survival prospects are worse.
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In+care Campaign Focus on RetentionBenefits of Good Retention
Visit www.incarecampaign.org – Resources Tab to review studies on need for and benefits of retention.
Likely to have better health
outcomes [improved CD4 count, suppressed viral load, fewer hospital admissions or emergency room visits]
Greater life expectancies.
What are the
benefits of being in regular HIV care?
Simply “showing up regularly” can improve
health and survivability.
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In+care Campaign Focus on RetentionWe Need to – Want to Do Better
The goal of the in+care Campaign is to bring patients back to care and keep others from falling out of care.
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In+care Campaign Focus on Retention
Additional Questions: Contact us a [email protected] Visit Web site: www.incarecampaign.org
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Challenges to RetentionWhat Research Tells Us
Retention Challenges• Do not feel sick • “Life” gets in the way
• Other health issues • Little experience with
routine health care• Not enough help
• Clinic/system too complex• Processes are
confusing • Not helpful at clinic
Visit www.incarecampaign.org – Resources Tab to learn about effective retention initiatives.
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Challenges to RetentionWhat Experience Tells Us
Real Life Observations –
• “I’m not so sick. I don’t need to see a doctor, yet.”
• “I know I have an appointment but then I just can’t get there because I don’t have a way to get there.”
• “It just felt weird. They really don’t understand me at my clinic. I didn’t feel comfortable.”
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Challenges to RetentionHow Can They Be Overcome
• Self-care – learning more• Reaching out to others –
peer-support, peer navigators, friends and family
• Tools – a ride, a meal, help with housing
• “Systems” that work with us by working with them
Visit www.incarecampaign.org – Resources Tab to learn about effective retention initiatives.
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Partners in+carePurpose
Successful results in HIV care depend upon partnership between consumers and their providers.
So does the in+care Campaign.
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Partners in+care Overview
Increase Knowledge
Web “Hub”Nat’l+Network WebinarsExchange/Engage
Self CarePeer-to-PeerEngage in QI
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Partners in+care Web Hub
www.incarecampaign.org
Click the Partner Tab
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Partners in+care Web Hub
www.incarecampaign.org
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Partners in+care Webinar Series
Retention: Be the Ones to Make It Happen – March 29 [repeat session]
It Starts with You: Self-care and Retention – April 19
Sharing the Benefits of Care: Reaching Out to Others – May 22
Making Retention Easier: Creating Systems that Work – June 29
Visit www.incarecampaign.org for schedule and information about participating in these webinars.
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Partners in+care What We will Accomplish
Create a network of 1000 consumers ready to be engaged in retention and QI.
Identify 100 consumers ready to become QI leaders.
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Partners in+care What We Will Accomplish
Share what we know so we all get better at:
Seeing our doctor and HIV care providers on a regular basis
Reaching out and supporting others so they see their doctors and HIV care providers on a regular basis – especially those who are new to HIV care or who have stopped regular visits
Making sure we all get the full benefit of care and treatment in order to improve our health
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Partners in+care What We Will Accomplish - Next
1. Promote / Recruit Partners
2. Promote / Participate in Webinars
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Partners In+care Campaign
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Sign up to be a Partner!
Campaign Headquarters:National Quality Center (NQC)90 Church Street, 13th floorNew York, NY 10007Phone 212-417-4730
incareCampaign.org
